Ðe ɖeɖi te viwòa ŋu viea? Ðe wòdze abe ɖe wòle sesẽm nɛ be wòali atrakpui, aƒu du, alo aƒo fefea? Ðe ŋutigbalẽ ƒe amadede dzĩ kple aŋutiɖiɖi le eƒe ŋkuwo kple ŋgonu ŋua? Ɣeaɖewoɣi la, míebua nusiawo be wonye nulɔdɔ bɔbɔe aɖe, gake esia ate ŋu anye nusi nu sẽ wu. Egbea míele nu ƒom tso Juvenile Dermatomyositis, alo JDM kpuie, si nye dɔléle si mebɔ o si dzea ɖeviwo dzi eye wòdzena kple dzesi mawo tɔgbe ŋu. Mègavɔ̃ ŋkɔ didi la o, mina míaɖe nusianu me le nya bɔbɔewo me.
Nukae nye Ðeviwo ƒe Ŋutilã ƒe Dɔléle (JDM)?
Kpuie ko la, JDM nye nɔnɔme si me míaƒe ŋutilã ŋutɔ ƒe ametakpɔnu, si nye dɔlélenutsiŋutete , gblẽna zi ɖeka eye wòdzea mía ŋutɔwo míaƒe ŋutilã ƒe akpa siwo le lãmesẽ me dzi dzedze gɔme. Etɔxɛe la, mía ŋutɔwo ƒe ŋutigbalẽ, ʋuka suewo, kple lãmekawo koŋue wògblẽa nu le . Le atikewɔwɔ me la, woyɔa dɔléle siwo me mía ŋutɔwo ƒe ɖoɖo wɔa dɔ ɖe mía ŋu le be ‘dɔléle siwo tsoa dɔlélenutsiŋutete gbɔ’ . Tsɔe be asrafoha si kpɔa míaƒe dukɔa ta la le mía ŋutɔwo míaƒe amewo dzi dzem.
Nɔnɔme sia nana ɖevia ƒe lãmekawo gbɔdzɔna. Esia wɔnɛ be esesẽna na wo be woatsi tre, alia atrakpui, aƒu du, afe, eye ɣeaɖewoɣi gɔ̃ hã woawɔ nu tsɛwo abe woƒe ɖa ƒoƒo ene. Abe dzila ene la, gɔmesese le eŋu be nàlé blanui ahavɔ̃ ne èse atikewɔwɔ ƒe nɔnɔme ɖesiaɖe si ana viwòa mate ŋu awɔ gbesiagbedɔwo o. Gake akpa nyuitɔ kekeakee nye be JDM ƒe atikewɔwɔ ate ŋu aɖu dzesiawo dzi dzidzedzetɔe ŋutɔ eye wòana viwòa ƒe agbenɔnɔ nanyo ɖe edzi ŋutɔ.
Amekae ate ŋu axɔ nɔnɔme sia wu?
JDM nye dɔléle si mebɔ kura o. Zi geɖe la, edzea egɔme tso ɖevi siwo xɔ tso ƒe 5 va ɖo ƒe 10. Ebɔ ɖe nyɔnuviwo hã dzi zi gbɔ zi eve wu ŋutsuviwo. Togbɔ be ate ŋu adze ɖevi ɖesiaɖe dzi hã la, numekukuwo ɖee fia be ebɔ ɖe yevu ɖeviwo me wu.
Ame tsitsiwo hã ate ŋu akpɔ dzesi siawo. Gake zi geɖe la, edzɔna le ƒe 40 alo 50-awo me. Ne dɔléle sia dze ame tsitsiwo dzi la, míeyɔnɛ be Dermatomyositis . JDM kple Dermatomyositis siaa le hatsotso ɖeka me, si fia be wonye dɔléle eve siwo le lãmekawo ƒe dɔdzẽ ƒe ƒuƒoƒo si woyɔna be Myositis me.
Nukae nye JDM ƒe nɔnɔme gbãtɔwo?
Hafi woakpɔ dɔlélea adze sii la, àte ŋu ade dzesi tɔtrɔ aɖewo le viwòa ŋu. Esiawo ate ŋu anye dɔlélea ƒe dzesi gbãtɔwo. Ne èlé to ɖe nusiawo ŋu la, àte ŋu ayi ɖɔkta kaba.
| Gbãtɔ ƒe akpa aɖe | Numeɖeɖe bɔbɔe aɖe |
|---|---|
| Ðeɖiteameŋu ɣesiaɣi | Ðevia senɛ le eɖokui me be ɖeɖi tea eŋu ɣesiaɣi eye megatsɔa ɖeke le duƒuƒu kple fefe me abe tsã ene o. |
| Asrã si metso o | Àte ŋu ase le ɖokuiwò me be dzoxɔxɔ alo dzoxɔxɔ le ye ŋu le susu bubu aɖeke ta o. |
| Ƒunukpeƒewo ƒe vuvu alo woƒe sesẽ | Ne èfɔ le ŋdi me la, wò ƒunukpeƒewo sesẽna, eye ate ŋu avuvu vie gɔ̃ hã. |
| Nudzroame | Didi be yeaɖu nu dzi ɖena kpɔtɔna, eye ɖewohĩ màbia nuɖuɖu abe tsã ene o. |
| Lãmetsiwo ƒe vevesese | Ðevia ate ŋu agblɔ be yeƒe lãmekawo le veve sem ne wole dɔ wɔm alo le fefem le mɔ si sɔ nu. |
| Lolo dzi ɖeɖe kpɔtɔ le susu aɖeke manɔmee | Ne ɖevi ƒe kpekpeme dzi le ɖeɖem kpɔtɔ evɔ mèkpɔ ŋusẽ ɖe woƒe nuɖuɖu dzi o la, ele be nàtsi dzi. |
| Ŋutilã ƒe ʋuʋudedi | Ʋuʋudedi ate ŋu adze le mo kple asiwo dzi. Ŋutilã ƒe tɔtrɔ ate ŋu adzi ɖe edzi hã ne wodoe ɖe ŋdɔkutsu dzi. |
Mina míaƒo nu tso dɔlélea ƒe dzesi vevi eveawo ŋu tsitotsito.
Ne wonya ɖo kpe JDM dzi ko la, dzesi vevi eve siwo nɔa anyi ɖaa li: ŋutigbalẽ ƒe tɔtrɔ kple lãmekawo ƒe gbɔdzɔgbɔdzɔ.
1. Ŋutilã ƒe Ʋuʋudedi
Ðevi siwo ŋu JDM le ate ŋu akpɔ ŋutigbalẽ ƒe ʋuʋudedi si le tẽ ŋutɔ.
- Mo ƒe tɔtrɔ: Esia dzea egɔme tso ŋgonu kple ŋkume ƒe ʋuʋu biã alo aŋutiɖiɖi . Ɣeaɖewoɣi la, ŋkumeɖonuawo dzena abe ɖe wovuvu ene, eyata ɖɔktawo ate ŋu abu vodadatɔe le gɔmedzedzea me be enye nulɔdɔ bɔbɔe aɖe.
- Asibidɛwo, klowo, kple abɔta: Le ɣeyiɣi aɖe megbe la, teƒe ƒuƒu siwo biã alo ƒoƒo ate ŋu ava viwòa ƒe asibidɛwo, klowo, kple abɔta. Ne èkpɔe gbã la, esiawo ate ŋu adze abe eczema alo psoriasis ene.
- Ɣe ƒe seselelãme: Esia nye dzesi vevi aɖe ŋutɔ. Ne ɖevi si ŋu JDM le la le ɣe ƒe keklẽ me la, ŋutigbalẽ ƒe ʋuʋudedi sia nu sẽna ɖe edzi .
2. Lãmetsiwo ƒe Gbɔdzɔgbɔdzɔ
Esiae nye JDM ƒe dzesi vevitɔ bubu si ɖea fu na ame wu. Lãmetsi siwo te ɖe ŋutilãa titina ŋu koŋue wosea gbɔdzɔgbɔdzɔ sia le. Ema nye:
- Abɔtawo
- Kɔ
- Akɔta ƒe nuto
- Ƒodo ƒe lãmekawo
- Abɔ kple afɔ siwo le etame
Ne lãmeka siawo gbɔdzɔ la, ate ŋu asesẽ na ɖevi ŋutɔ be wòawɔ gbesiagbedɔwo. Le kpɔɖeŋu me, tsitretsitsi tso anyinɔƒe, atrakpuiwo lialia, ɖiɖi tso zikpui dzi, duƒuƒu, kple woƒe ɖa tutu ate ŋu asesẽ.
Le nɔnɔme sesẽwo me la, JDM ate ŋu akpɔ ŋusẽ ɖe ɖevi ƒe gbɔgbɔ kple nu mimi ƒe lãmekawo hã dzi . Esia ate ŋu ana ame natsi dzodzodzoe, eƒe ɖiɖi, eye gbɔgbɔ nasesẽ (gbɔgbɔtsixetsixe).
Kuxi kawoe ate ŋu ado mo ɖa ne womewɔ atike nɛ o?
JDM nye atikewɔwɔ me dɔléle si hiã be woakpɔ egbɔ enumake. Ne womewɔ atike nɛ o la, kuxi sesẽwo ate ŋu ado mo ɖa.
- Calcium ƒe agbɔsɔsɔ: Ƒumelã sesẽ siwo le abe chalk ene ate ŋu adzɔ le ŋutigbalẽa te. Esiawo ate ŋu axe mɔ na lãmekawo ƒe ʋuʋu eye wòana woase veve.
- Lãmetsiwo ƒe tete: Lãmetsiwo va nɔa kpuie eye wodzea ƒoƒo gɔme ne wobɔbɔ ƒunukpeƒewo. Esia ate ŋu ana wòasesẽ be woakeke abɔ kple afɔ.
- Abi: Abi ate ŋu adze ŋutigbalẽa dzi alo le dɔgboa me.
- Gbɔdzɔgbɔdzɔ sesẽ: Gbɔgbɔ kple nu mimi ƒe lãmekawo ƒe gbɔdzɔgbɔdzɔ vevie ate ŋu ade ame ƒe agbe afɔku me.
Gake mègavɔ̃ le esia xexlẽ vɔ megbe o. Esia fia be ne womewɔ atike nɛ o la, .Nukae ate ŋu adzɔ? Tsã la, ne womekpɔ atike nyui aɖeke na dɔlélea o la, ɖevi siwo ŋu JDM le dometɔ ɖeka le etɔ̃ ɖesiaɖe me lɔƒo kuna. Gake egbea, esi wowɔ atikewɔwɔ siwo nyo wu ta la, ɖevi siwo wu 98% le agbe ƒe atɔ̃ le dɔlélea kpɔkpɔ vɔ megbe. Esia tae dɔlélea didi kaba kple edada nyuie le vevie ŋutɔ ɖo.
Nukatae esia le dzɔdzɔm? Nuka gbɔe JDM tsona?
Abe alesi míeƒo nu tso eŋu va yi ene la, JDM nye dɔléle si dɔlélenutsiŋutete ŋutɔ hena vɛ. Gake nukatae mía ŋutɔwo ƒe dɔlélenutsiŋutete trɔna ɖe mía ŋu zi ɖeka? Ðɔktawo mekpɔ nusi koŋ gbɔ esia tso ŋutɔŋutɔ haɖe o .
Gake nufiafia vovovowo li ku ɖe esia ŋu. Nufiafia vevi ɖekae nye be ne nane, abe dɔlékui ƒe dɔléle ene, ge ɖe ŋutilãa me la, míaƒe dɔlélenutsiŋutete dzea avuwɔwɔ gɔme. Gake ne dɔlékuia nu yi gɔ̃ hã la, dɔlélenutsiŋutete sia medzudzɔa avuwɔwɔ o. Ke boŋ woxɔe se be eyia edzi wɔa dɔ eye wòdzea mía ŋutɔwo míaƒe ŋutilã ƒe lãmenugbagbeviwo dzi dzedze gɔme. Numekulawo xɔe se hã be domenyiŋusẽfianu aɖe ate ŋu anɔ esia me.
Aleke ɖɔktaa wɔa anya dɔléle siae? (Dɔléle ƒe dzesi) .
Ne èkplɔ viwòa yi ɖɔkta gbɔ la, ado ɖevia kpɔ nyuie gbã. Vevietɔ la, woalé ŋku ɖe ŋutigbalẽ ƒe ʋuʋudedi kple lãmekawo ƒe ŋusẽ ŋu hã. Emegbe woabia nya wò tso wò dzesiwo ŋu.
Wowɔa dodokpɔ geɖe tsɔ ɖoa kpe dɔlélea tututu dzi.
- Ʋudodokpɔ: Ʋudodokpɔ ɖeka aɖeke meli si ate ŋu anya JDM enumake o. Gake ʋudodokpɔ ate ŋu alé ŋku ɖe nuwo abe dɔdzẽ ƒe agbɔsɔsɔ le ŋutilã me, lãmekawo ƒe enzyme siwo ƒoa ƒu ɖe ʋua me ne lãmekawo gblẽ, kple protein tɔxɛwo (autoantibodies) siwo wokpɔna zi geɖe le JDM me ene ŋu.
- Electromyography (EMG): Le dodokpɔ sia me la, wotsɔa elektrikŋusẽ suesuesue siwo le abe aŋe ene dea lãmekaawo me eye wodzidzea elektrikŋusẽ si le lãmeka mawo me. Esia ate ŋu akpe ɖe ame ŋu wòade dzesi nu ɖesiaɖe si mesɔ o le lãmekawo ƒe dɔwɔwɔ me.
- MRI (Magnetic Resonance Imaging): MRI-mɔ̃ ate ŋu awɔ ŋutilãa ƒe akpa si le eme ƒe nɔnɔmetata tsitotsito. Ete ŋu kpɔa nuwo abe lãmekawo ƒe vuvu kple dɔdzẽ si menya kpɔna dzea sii bɔbɔe o ene nyuie.
- Lãmetsi ƒe lãmenugbagbeviwo ɖeɖe: Le esia me la, wowɔa amekoko sue aɖe tsɔ ɖea lãkusi sue aɖe ŋutɔ le lãmeka si ŋu dɔlélea le me hedoa ekpɔ le nusuekpɔmɔ̃ me. Esia ate ŋu akpe ɖe ame ŋu wòanya ne dɔdzẽ le lãmekawo me eye nenye be JDM alo dɔléle bubu abe Muscular Dystrophy ene gbɔe wòtso.
- Nailfold capillaroscopy ƒe dɔwɔwɔ:Esia nye dodokpɔ bɔbɔe aɖe ŋutɔ, si me vevesese aɖeke mele o. Wozãa mɔ̃ aɖe si me kekeli tɔxɛ aɖe kple ŋkumeɖonu si lolona le tsɔ léa ŋku ɖe ʋuka suesuesue siwo le ɖevia ƒe ɖa te ŋu. Zi geɖe la, ʋuka siawo vuvuna le ɖevi siwo ŋu JDM le me.
Nukawoe nye JDM ƒe atikewo?
Taɖodzinu vevitɔ si le JDM dɔdamɔnu ŋue nye be wòaɖe abi si le ŋutilãa me dzi akpɔtɔ eye wòana ɖevia ƒe agbenɔnɔ nanyo ɖe edzi. Togbɔ be ele be ɖevi geɖe nanɔ agbe kple JDM ƒe geɖe hã la, atikewɔwɔ ate ŋu aɖu dzesiawo dzi nyuie ŋutɔ. Le atikewɔwɔ vɔ megbe la, ɖevi geɖe yia ɣleti alo ƒe geɖe evɔ dzesi aɖeke menɔa wo ŋu o. Míeyɔa esia be ‘tsɔtsɔke’ .
Woate ŋu ama atikewɔwɔmɔnuawo ɖe akpa vevi eve me.
| Atikewɔwɔ ƒe mɔnu | Nuɖᴐɖᴐ |
|---|---|
| Atikewo | |
| Corticosteroids ƒe atikewo | Esiawoe nye atike ƒomevi vevi siwo wonana gbã. Woɖea abi si le ŋutilãa me dzi kpɔtɔna kabakaba eye wokpɔa dɔlélenutsiŋutete ƒe dɔwɔwɔ hã dzi. |
| Hydroxychloroquine si nye atike si woyɔna be hydroxychloroquine | Zi geɖe la, wozãa atike sia tsɔ léa ŋutigbalẽ ƒe ʋuʋudedi nu. |
| Dɔlékuiwutike si wodona ɖe ʋuka me (IVIG) . | Le esia me la, wotsɔa dɔlékuiwutike siwo ŋu wokɔ tso ʋunala siwo le lãmesẽ me gbɔ la naa ŋutilãa le dzetsi me. Esiawo xea mɔ na dɔlékuiwutike siwo gblẽa nu le ame ŋu eye wonaa dɔlélenutsiŋutete ƒe dɔwɔwɔ fa. |
| Methotrexate ƒe atike | Wonaa atike sia ɖevi siwo katã kloe ŋu JDM le. Etsia dɔlélenutsiŋutete hã nu eye wòkpena ɖe ame ŋu be woaɖe steroid zazã dzi akpɔtɔ. |
| Agbenɔnɔ & Atikewɔwɔwo | |
| Tɔtrɔ siwo va le nuɖuɖu me | Nuɖuɖu si da sɔ si me atikutsetsewo, amagbewo, lã siwo me ami mele o, ami siwo naa lãmesẽ, kple nuku blibowo le ate ŋu akpe ɖe ame ŋu be dɔdzẽ dzi naɖe akpɔtɔ. Ne nu mimi sesẽ na wò la, ahiã be nàɖo aɖaŋu tɔxɛ siwo ku ɖe nunyiame ŋu. |
| Lãmesẽnyawo Gbɔkpɔkpɔ | Lãmesẽdɔwɔla ana kamedede siwo doa ŋusẽ lãmekawo, xea mɔ na ƒunukpeƒewo ƒe sesẽ, eye womesea veve o la ɖevia. |
| Nuƒoƒo ƒe Dɔdamɔnu | Ne lãmeka siwo kpɔa gome le nu mimi alo gbɔgbɔ me gbɔdzɔ la, nuƒoƒoŋutinunyala ate ŋu akpe ɖe ame ŋu le tenɔnɔ ɖe nɔnɔmea nu kple nuɖuɖu dedie ƒe mɔnuwo me. |
| Ɣe ƒe takpɔkpɔ | Esia le vevie ŋutɔ . Zã ɣe ƒe keklẽŋusẽtike si ƒe SPF 30 alo esi wu nenema ɣesiaɣi. Do kposɔwo, ɣe ƒe ŋkumewu, kple awu siwo tsyɔa wò ŋutilã dzi. Ele vevie ŋutɔ be nàkpɔ viwòa ta tso ŋdɔkutsu dzatsɛ me le ŋdi ga 10 kple fiẽ ga 4 dome. |
Gbedasi si Wotsɔ Yi Aƒeme
- Juvenile Dermatomyositis (JDM) nye dɔléle si mebɔ o si dɔlélenutsiŋutete hena vɛ si dzea ɖeviwo dzi. Esia fia be ŋutilãa ŋutɔ ƒe dɔlélenutsiŋutete dzea ŋutigbalẽ kple lãmekawo dzi.
- Dzesi vevitɔwoe nye ʋuʋudedi dzĩ-dzẽ le ŋutigbalẽa ŋu (vevietɔ le mo kple abɔta) kple lãmekawo ƒe gbɔdzɔgbɔdzɔ. Tsi dzi ne viwòa ɖe ɖeɖiteameŋu ƒe dzesiwo fia alo atrakpui lialia sesẽ.
- Esia menye naneke si ŋu wòle be woavɔ̃ ɖo o. Ne wozã egbegbe atikewɔmɔnu deŋgɔwo la, woate ŋu aɖu dzesiawo dzi le akpa gãtɔ me eye ɖevia ate ŋu anɔ agbe si sɔ, si me dzo le.
- Ɣe ƒe takpɔkpɔ le vevie ŋutɔ. Na wòazu numame na wò be nàzã ɣe ƒe keklẽŋusẽtike gbesiagbe eye nàdo kposɔ. Esia le vevie ŋutɔ be woatsɔ aɖu dɔlélea dzi.
- Ne ɖikeke suetɔ kekeake le ŋuwò be dzesi siawo dometɔ aɖe le viwòa ŋu la, yi ɖɔkta bibi gbɔ enumake . Ne wokpɔ dɔlélea dze sii kaba eye wodae la, ate ŋu ana ɖevia ƒe etsɔme nanɔ dedie.
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