Èse neuromyelitis optica , alo NMO abe alesi míeyɔnae kpuie ene kpɔa? Ðewohĩ menye nenemae o. Elabena menye dɔléle si bɔ ŋutɔ le xexeame o. Gake enye dɔléle sesẽ aɖe si ate ŋu agblẽ nu le míaƒe ŋkuwo kple aklã ŋu tẽ. Eyata, ele vevie ŋutɔ be míanya nu tso esia ŋu. Egbea, míaƒo nu tso eŋu le mɔ bɔbɔe aɖe si gɔme nàte ŋu ase nu.
Kpuie ko la, nukae nye NMO?
Ŋkɔ bubu geɖewo hã le NMO si. Ame aɖewo yɔe be Neuromyelitis Optica Spectrum Disorder (NMOSD), eye ame bubuwo yɔe be Devic ƒe Dɔléle. Esia nye nu wɔnuku aɖe ŋutɔ si dzɔna. Míaƒe ŋutilã ƒe ametakpɔnu, si nye dɔlélenutsiŋutete, dzea mía ŋutɔwo ƒe lãmenugbagbevi siwo le lãmesẽ me dzi dzedze gɔme vodadatɔe. Ele abe mía ŋutɔwo ƒe aʋakɔ si le mía ŋutɔwo míaƒe dukɔ dzi dzem ene. Míaƒe lãmekawo ƒe akpa eve koŋue dzea amedzidzedze sia dzi: ŋku ƒe lãkusi, si tsɔa nyatakakawo tso ŋkua gbɔ yia ahɔhɔ̃a me, kple aklã, si toa akɔta.
Dɔléle sia ate ŋu adzɔ le mɔ vevi eve nu:
1. Monophasic NMO: Le esia me la, dzesiawo dzena kpata le ŋkeke alo kwasiɖa aɖewo me eye wodzudzɔna le amedzidzedze ɖeka me.
2. NMO si gbugbɔna dzɔna: Esiae nye ƒomevi si bɔ wu. Le afisia la, dzesiawo dzena eye wo nu yina le ɣeyiɣi aɖe megbe. Gake emegbe, le ɣleti aɖewo alo ƒe geɖe gɔ̃ hã megbe la, amedzidzedze bubu ate ŋu adzɔ. Dzesiawo ate ŋu agblẽ ɖe edzi le amedzidzedze ɖesiaɖe me.
Togbɔ be ƒomevi gbãtɔ ate ŋu adze ŋutsuwo kple nyɔnuwo siaa dzi hã la, ƒomevi evelia, alo NMO si gbugbɔna dzɔna la bɔ ɖe nyɔnuwo me wu ŋutsuwo. Ate ŋu agblẽ nu le ɖevi suewo hã ŋu.
Nukae nye NMO ƒe dzesiwo?
NMO ƒe dzesiwo le hatsotso vevi eve me. Ne esiawo dometɔ aɖe le ŋuwò la, ele vevie ŋutɔ be nàkpɔ ɖɔkta kaba ale si nàte ŋui.
| Atikewɔwɔ ƒe nɔnɔme | Numeɖeɖe kple dzesiwo |
|---|---|
| Nukpɔkpɔ ƒe ahɔhɔ̃mekawo ƒe dɔléle | Esiae nye esime ŋku ƒe lãkusi si le ŋkua me la va le dzo dam. Àte ŋu ase vevesese sesẽ aɖe le wò ŋku me zi ɖeka . Esia ate ŋu akplɔe ɖo kple ŋku ƒe nukpɔkpɔ si me kɔ o, eye ɣeaɖewoɣi gɔ̃ hã la, ame ƒe ŋku megakpɔa nu kura o. Zi geɖe la, edzea ŋku ɖeka dzi, gake ate ŋu adze ŋku eveawo dzi ɣeaɖewoɣi. |
| Lãmetsiŋusẽ si woyɔna be transverse myelitis | Esiae nye esime aklã si le akɔta la vuvu. Esia ate ŋu ana abɔwo kple afɔwo nase veve, agbɔdzɔ, ame natsi, alo azu lãmetututɔ . Ðewohĩ màgate ŋu aɖu wò tsinyegoe kple dɔgbo hã dzi o. Tsɔ kpe ɖe eŋu la, dzesiwo abe ʋuʋudedi, ʋuʋudedi, ʋuʋudedi atraɖii, kɔ ƒe ʋuʋu, kple taɖuame hã ate ŋu ado mo ɖa. |
Ne ɖevi suewo xɔ NMO la, woate ŋu aɖe dzesi sesẽwo abe nuwɔna ƒe tɔtrɔ, susu ƒe dɔmawɔmawɔ nyuie, alɔ̃madɔmadɔ, alo alɔ̃madɔmadɔ ene afia.
Ðe NMO sɔ kple MS (Multiple Sclerosis)?
Ao, teƒe sia nye teƒe si ame geɖe tɔtɔna le. MS, si gɔmee nye Multiple Sclerosis, nye dɔléle bubu si gblẽa nu le lãmekawo ŋu eye dɔlélenutsiŋutete ƒe dɔwɔwɔ gbɔe wòtsona. Tsã la, ɖɔktawo susui be NMO nye MS ƒomevi aɖe. Gake fifia numekukuwo ɖee fia be dɔléle eve siawo to vovo kura.
Tɔtrɔ mawo dometɔ aɖewoe nye esi :
| Memanu | NMO (Ahɔhɔ̃mekawo ƒe Dɔléle) . | MS (Sclerosis Geɖe) . |
|---|---|---|
| Alesi dɔlélea dzea egɔme kabakabae | Zi geɖe la, dzesiawo dzena kabakaba ŋutɔ eye wosẽna. | Zi geɖe la, dzesiawo dzena blewu, le ɣeyiɣi didi aɖe megbe. |
| Ʋudodokpɔwo | Ʋudodokpɔ aɖe koŋ li (antibody test) si woatsɔ anya NMO. | Ʋudodokpɔ aɖeke koŋ meli abe esia ene be woatsɔ anya MS o. |
| MRI-dɔdamɔnu si woɖe tso ahɔhɔ̃a me | Le dɔlélea ƒe gɔmedzedze la, ahɔhɔ̃a ƒe MRI-dɔdamɔnu ate ŋu adze abe ɖe wòsɔ ene. | Le MS me la, zi geɖe la, wokpɔa tɔtrɔwo le ahɔhɔ̃a ƒe MRI-mɔ̃wo me. |
| Nɔnɔme bubuwo | Dzesiwo abe ʋuʋudedi, ʋuʋudedi, kple ʋuʋudedi ene bɔ. | Zi geɖe la, womekpɔa dzesi siawo le MS me o. |
Nukae hea NMO vɛ?
Le nyateƒe me la, ɖɔktawo menya nusi tututu gbɔ NMO tso haɖe o. Kpeɖodzi aɖeke meli be wotsɔe tso dzidzime yi dzidzime o. Gake nu ɖeka me kɔ. Dɔléle bubuwo le ame geɖe siwo ŋu NMO le la ŋu , alo dɔléle bubuwo le woƒe ƒometɔwo ŋu. Kpuie ko la, enye nɔnɔme si me míaƒe ŋutilã ƒe ametakpɔnu, si nye dɔlélenutsiŋutete, dzea mía ŋutɔwo ƒe lãmenugbagbevi siwo le lãmesẽ me dzi vodadatɔe. Suklidɔ (Suklidɔ Ƒomevi 1), ƒunukpeƒetetedɔ, psoriasis, kple vitiligo nye dɔléle mawo ƒe kpɔɖeŋu ʋɛ aɖewo ko.
Aleke wokpɔa dɔlélea dzea sii?
Ne wò ɖɔkta bia nya tso wò dzesiwo ŋu vɔ la, ado wò kpɔ. Esia alɔ wò tamebubu ŋutete, ŋku ƒe nukpɔkpɔ, nuƒoƒo, ŋutilã ƒe ŋusẽ, kple nuŋububu ƒe ŋutete dodokpɔ ɖe eme.
Tsɔ kpe ɖe eŋu la, woate ŋu awɔ dodokpɔ siawo hã:
- Ʋudodokpɔ: Ame siwo ŋu NMO le la dometɔ siwo wu 70% ƒe ʋu me protein tɔxɛ aɖe, si woyɔna be dɔlékuiwutike, le woƒe ʋu me. Woate ŋu ade dzesi esia to ʋudodokpɔ me.
- Akɔta me tsi dodokpɔ: Ɣeaɖewoɣi la, ahiã be woaɖe tsi le aklã me adoe kpɔ.
- MRI ƒe fotoɖeɖe: MRI ( magnetic resonance imaging) .) nye dɔdamɔnu si me wozãa magnet gã aɖe kple kɔmpiuta tsɔ ɖea wò ŋutilã ƒe akpa si me kɔ nyuie. Esia ate ŋu akpe ɖe ŋuwò nàkpɔe ɖa be wò aklãa vuvu hã.
- Ŋkudodokpɔ: Woate ŋu aɖo wò ɖe ŋkudɔdala gbɔ, amesi awɔ dodokpɔ tɔxɛwo abe OCT (Optical Coherence Tomography) ene atsɔ akpɔe ɖa be ŋku ƒe lãkusia gblẽ hã.
Nukae nye atikewɔwɔ na NMO?
Esiae nye akpa vevitɔ kekeake. Atike aɖeke meli na NMO haɖe o. Gake atikewɔmɔnu siwo wɔa dɔ ŋutɔ li siwo ate ŋu akpe ɖe ame ŋu wòaɖu dzesiawo dzi eye woaxe mɔ ɖe amedzidzedze le etsɔme nu.
- Atike siwo tsia alɔ̃dɔdɔ nu: Atike yeye geɖe li siwo dzi woda asi ɖo nyitsɔ laa na NMO. Eculizumab (Soliris), inebilizumab-cdon (Uplizna), kple satralizumab-mwge (Enspryng) nye atike siawo dometɔ aɖewo. Atike siawo wɔa dɔ to dɔlékuiwutike siwo dzea míaƒe lãmenugbagbevi siwo le lãmesẽ me dzi eye woxea mɔ na wo be woagawɔ dɔ o me. Tsɔ kpe ɖe eŋu la, wò ɖɔkta ate ŋu aŋlɔ atike bubu siwo tea dɔlélenutsiŋutete ɖe to la na wò.
- Steroids: Wona steroid-tikewo be woatsɔ aɖe abi si le ŋutilãa me dzi akpɔtɔ. Zi geɖe la, wotoa vein (IV) dzi naa esiawo.
- Plasma exchange: Wogayɔnae be plasmapheresis, esia le abe ʋukɔklɔnu ene. Mɔ̃ tɔxɛ aɖe ɖea ʋumenugbagbeviɣia kple wò ʋu si me dɔlékuiwutike siwo gblẽa nu le ame ŋu le la dome eye wòɖenɛ ɖa. Emegbe, wotsɔa nusi woatsɔ aɖo eteƒe la kpena ɖe eŋu eye wogbugbɔa ʋu si ŋu wokɔ la dea wò ŋutilã me.
Gbedasi si Wotsɔ Yi Aƒeme
- NMO nye dɔléle si mebɔ o gake wòsẽa ŋu ŋutɔ si dɔlélenutsiŋutete wɔna, si gblẽa nu le míaƒe ŋkuwo kple akɔta ŋu.
- Ne èkpɔ dzesiwo abe ŋku ƒe vevesese kpata, ŋku ƒe ʋuʋu, gbɔdzɔgbɔdzɔ alo lãmetutudɔ le wò abɔwo kple afɔwo me la, di atikewɔlawo ƒe aɖaŋuɖoɖo kaba.
- NMO nye dɔléle si to vovo na MS (Multiple Sclerosis) tɔ. Ʋudodokpɔ tɔxɛ aɖe ate ŋu ade vovototo wo ame evea dome.
- Togbɔ be womate ŋu adae keŋkeŋ o hã la, atikewɔmɔnu siwo wɔa dɔ ŋutɔ li egbea be woatsɔ aɖu dzesiawo dzi ahaxe mɔ ɖe amedzidzedze le etsɔme nu.
- Ne ɖikeke alo nyabiase aɖe le wò alo ame aɖe si nènya me le esia ŋu la, taflatse ƒo nu kple wò ɖɔkta gaglãa.
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