Ðe viwò suea mele nya ŋu ɖom nyuie ne èle nu ƒom na wo oa? Ðe nèsena le ɖokuiwò me be wole agbagba dzem be yewoawɔ dɔ tso nya siwo gblɔm nèle ŋu alo ade vovototo wo domea? Ɣeaɖewoɣi la, ɖeviwo ate ŋu akpɔ tɔtrɔ siwo menya kpɔna dzea sii bɔbɔe o le alesi wobua gbeɖiɖie me. Nɔnɔme ɖeka si ate ŋu aɖe esia me enye Auditory Neuropathy Spectrum Disorder, alo ANSD kpuie. Taflatse migatsi dzi o; mina míagbã esia ɖekae bɔbɔe, le mɔ si akpe ɖe ŋuwò nàse egɔme nu.
Nukae Nye Tome ƒe Ahɔhɔ̃mekawo ƒe Dɔléle (ANSD)?
Kpuie ko la, míaƒe towo léa gbeɖiɖi siwo ƒo xlã mí, eye míaƒe tosemɔ̃ trɔa esiawo wozua dzesi siwo woɖona ɖe ahɔhɔ̃a be wòaɖe wo gɔme. Gake le go aɖewo me la, dzesi siawo tɔtɔna alo womeɖoa ahɔhɔ̃a gbɔ nyuie o. Woyɔa nɔnɔme sia be Auditory Neuropathy Spectrum Disorder (ANSD) .
Ðevi siwo ŋu ANSD le ate ŋu ato nusiwo gbɔna me:
- Esesẽna be woade vovototo gbeɖiɖi ɖeka kple bubu dome, vevietɔ le teƒe siwo toɣliɖeɖe le.
- Kuxi le nuƒoƒo gɔmesese nyuie me.
- Gbeɖiɖiwo ate ŋu adze abe ɖe wole vɔvɔm le gegem ɖe eme hele dodom ene, alo wole tɔtrɔm.
- Nusese ƒe ŋutete ate ŋu adze abe ɖe mesɔ o tso ŋkeke yi ŋkeke ene.
Ke hã, nya nyui aɖe li. Ne ɖevi siwo ŋu ANSD le le atikewɔnu nyuitɔwo, atikewɔmɔnu tɔxɛwo, kple kadodomɔnu siwo wokpɔna la, woate ŋu atu gbegbɔgblɔ ƒe ŋutetewo ɖo dzidzedzetɔe eye woaɖo dze kple ame bubuwo nyuie.
Nukatae ANSD dzɔna? Nukawoe gbɔ wòtsona?
Nu vevitɔ si gbɔ ANSD tsonae nye gbeɖiɖi ƒe dzesiwo ƒe kaka le tomeka (to ememetɔ si wɔa gbeɖiɖi ŋudɔ) kple ahɔhɔ̃a dome ƒe tɔtɔ, eye zi geɖe la, esia tsoa tomeka ƒe gbegblẽ alo eƒe dɔmawɔmawɔ nyuie gbɔ .
Nu siwo gbɔna ate ŋu ana ɖevi naxɔ ANSD ƒe afɔkua nadzi ɖe edzi:
- Vidzidzi kaba .
- ANSD ƒe ƒome ŋutinya.
- Jaundice sesẽ le vidzĩ yeye ƒe ɣeyiɣia me.
- Oxygen ƒe agbɔsɔsɔ si bɔbɔ (hypoxia) do ŋgɔ na vidzidzi alo le vidzidzi megbe.
- Atike aɖewo (atike siwo me aɖi le) siwo ate ŋu agblẽ nu le to ememetɔ alo tomeŋusẽ ŋu la zazã.
- Domenyiŋusẽfianu ƒe nɔnɔme tɔxɛwo alo ahɔhɔ̃mekawo ƒe nɔnɔmewo , abe Charcot-Marie-Tooth dɔléle ene.
- Ta ƒe abi sesẽ .
Aleke wowɔa dea dzesi Tome ƒe Ahɔhɔ̃mekawo ƒe Dɔléle (ANSD)? Nukawoe nye dzesiawo?
Dzesi siawo ate ŋu adze le ƒe ɖesiaɖe me; ke hã, wodzia vidzĩ akpa gãtɔ kple ANSD. Alesi tosese ƒe kuxia nu sẽe ate ŋu atso esi nu mesẽ o dzi va ɖo esi me goglo dzi . Enyo be míade dzesii be ne viwòa te ŋu sea gbeɖiɖiwo abe alesi wòle ene hã la, ate ŋu aʋli vevie be yeawɔ dɔ tso nuƒoƒo ŋu ahase egɔme nyuie.
Vidzĩ aɖewo siwo ŋu ANSD le ate ŋu ato vidzĩ yeye ƒe tosese dodokpɔ gbãtɔ me. Zi geɖe la, ne wole tsitsim ko hafi nàte ŋu ade dzesi kuxi siwo le woƒe tosese kple dzeɖoɖo me.
Kpɔ nyuie le nu vevi siawo ŋu le viwòa ƒe ƒe gbãtɔ me
Lé ŋku ɖe eŋu ne viwòa ɖo tosese ƒe nu vevi siawo siwo wozãna ɖaa gbɔ. Ne èse le ɖokuiwò me be ye vi mele nusiawo gbɔ kpɔm o la, anyo wu be nàdzro nusiwo ŋu nètsi dzi ɖo me kple wò ɖeviwo ƒe dɔdala.
- Vidzĩ yeyewo : Ðe wotsia dzodzodzoe alo ɖea woƒe ŋutilã ƒe nuwɔna fiana ne toɣliɖeɖe sesẽ kpata?
- Anɔ abe ɣleti 3 ene : Ðe wodea dzesi wò gbe eye wotrɔa woƒe ta ɖe wò gbe ƒe ɖiɖi ŋua?
- Anɔ abe ɣleti 6 ene : Ðe wotrɔa woƒe ŋkuwo alo ɖoa ta gbeɖiɖi yeyewo gbɔa? Ðe wole gbeɖiɖiwo abe “oo” alo “ah” ene srɔ̃m?
- Anɔ abe ɣleti 12 ene : Ðe wole nu ƒom? Ðe woɖoa eŋu ne èyɔ woƒe ŋkɔa? Ðe wosrɔ̃a nyawo alo dzea nya bɔbɔewo abe “mama” alo “bye-bye” ene gbɔgblɔ gɔmea?
Kpɔ dzesi siawo ɖa ne viwòa le tsitsim
Ne viwòa le tsitsim la, àte ŋu ade dzesi dzesi siawo ne eƒe tosese sesẽ:
- Nuƒoƒo tsi megbe, mekɔ o, alo meli o .
- Edze abe womeɖoa nya ŋu o alo woʋlina vevie be yewoawɔ ɖe mɔfiame bɔbɔewo dzi ene .
- Womewɔa nu ɖe dzeɖoɖo si sɔ ŋu alo naa ŋuɖoɖo siwo meku ɖe wo nɔewo ŋu o .
- Wova ɖua wo dzi bɔbɔe le teƒe siwo toɣliɖeɖe le .
- Wobiana ɣesiaɣi be woakɔ television ƒe gbeɖiɖi ɖe dzi .
- Woɖea nusɔsrɔ̃ ƒe kuxiwo ƒe dzesiwo fiana .
Ne ètsi dzi ɖe viwòa ƒe tosese ŋu vie gɔ̃ hã la, taflatse yi ɖɔkta gbɔ enumake. Afɔɖeɖe siwo woawɔ do ŋgɔe nye mɔnu nyuitɔ kekeake.
Aleke wowɔa dea dzesi ANSD le se nu?
Be woate ŋu akpɔ ANSD nyuie abia be toŋutinunyala nada etɔxɛe kpɔ . Wozãa dɔdamɔnu dodokpɔ tɔxɛwo tsɔ daa tosese ƒe lãmesẽ kpɔna. Dodokpɔ vevi siwo wowɔna tsɔ dia dɔlélewoe dometɔ aɖewoe nye:
Nukawoe nye dodokpɔ siawo?
- Otoacoustic Emission (OAE) dodokpɔ : Esia léa ŋku ɖe alesi tomeka (to ememetɔ) wɔa dɔ nyuie ŋu. Zi geɖe la, wowɔa esia ne vidzĩa le alɔ̃ dɔm alo le ɖoɖoezizi me ŋutɔ. Tomeka sue aɖe naa gbeɖiɖi fafɛ siwo le ʋuʋum la dona, eye sensorwo dzidzea to la ƒe ŋuɖoɖo.
- Auditory Brainstem Response (ABR) dodokpɔ : Esia daa alesi gbeɖiɖi zɔa mɔ nyuie tso toa me, toa tomeŋusẽ me, yia ahɔhɔ̃mekaa me kpɔna. Ne wotɔ te gbeɖiɖi ƒe kaka la, dodokpɔ sia ade dzesii. Wobua ANSD ƒe dzesidede ŋu zi geɖe ne OAE ƒe dɔwɔwɔ me tsonu sɔ, gake ABR ƒe ŋuɖoɖowo menɔa anyi o alo edzi ɖena kpɔtɔna ŋutɔ.
- Middle Ear Muscle Reflex (MEMR) dodokpɔ : Esia dzidzea alesi lãmeka suesuesue siwo le wò to me wɔa nui ne gbeɖiɖi sesẽwo ɖi. Wotsɔa nusi wotsɔna dzroa nu me sue aɖe dea to me be wòana gbeɖiɖiwo naɖo, eye woléa alesi wòwɔa nui ɖe mɔ̃ dzi. Le ɖevi siwo ŋu ANSD le gome la, zi geɖe la, gbeɖiɖi sia menɔa anyi o alo ebiana be gbeɖiɖi sesẽ ŋutɔ hafi wòadze egɔme wu alesi wònɔna ɖaa.
Togbɔ be vidzĩ yeyewo ƒe tosese dodokpɔwo zãa OAE kple ABR dodokpɔ siwo wowɔ bɔbɔe hã la, dɔlélewo didi ƒe dodokpɔ blibo le vevie be woatsɔ aɖo kpe ANSD dzi alo aɖee ɖa.
Ðe wòhiã be woagawɔ dodokpɔ bubuwoa?
Ne wonya de dzesi ANSD ko la, wò ɖɔkta ate ŋu aɖo aɖaŋu be nàwɔ numekuku bubuwo:
- MRI Scan : Be woakpɔ to ememetɔ le susu me eye woakpɔ egbɔ be tomeŋusẽwo le eme.
- Domenyiŋusẽfianu dodokpɔ : Be woakpɔe ɖa be ANSD do ƒome kple domenyiŋusẽfianu ƒe nɔnɔme aɖewo siwo le ete hã.
- Ahɔhɔ̃ŋutinunya dodokpɔ : Be woada ahɔhɔ̃mekawo ƒe dzimaɖitsitsi ɖesiaɖe si keke ta wu akpɔ.
- Nukpɔkpɔ dodokpɔ : Esi wònye be tosese kple nukpɔkpɔ ƒe nyawo ate ŋu ado mo ɖa ɖekae ɣeaɖewoɣi ta la, ele vevie ŋutɔ be ɖevi si ŋu ANSD le nado ŋkudɔ kpɔ bliboe le ŋkudɔdala gbɔ .
Aleke wokpɔa ANSD gbɔe? - Nirogi Lanka ƒe agbalẽ
ANSD dzi kpɔkpɔ bia be eŋutinunyala bibiwo ƒe ƒuƒoƒo si me tɔwo nye dɔ vovovowo wɔwɔ . Esia lɔ toŋutinunyala, ENT (To, ŋɔti, kple ŋɔti) ŋuti nunyala bibi, nuƒoƒo kple gbegbɔgblɔ ƒe dɔléleŋutinunyala, kple sukudede ŋuti nunyala bibiwo ɖe eme, eye wo katã wowɔa dɔ ɖekae tsɔ wɔa belélename ƒe ɖoɖo si sɔ na ame ɖekaɖekawo.
Atikewɔwɔ ƒe mɔnu nɔ te ɖe ƒe si viwòa xɔ, eƒe lãmekawo ƒe dɔwɔwɔ ƒe nɔnɔme tɔxɛ, kple alesi gbegbe eƒe tosese ƒe kuxia nu sẽe dzi.
Le go geɖe me la, toɖoɖomɔ̃ siwo kpena ɖe ame ŋu nana ame ƒe agbenɔnɔ nyona ɖe edzi ŋutɔ. Tsɔ kpe ɖe esiawo ŋu la, nuƒoƒo kple gbegbɔgblɔ ƒe atikewɔwɔ si mewɔa tɔtrɔ o le vevie ŋutɔ be woakpɔ nu nyuitɔ kekeake le kadodo ƒe ŋgɔyiyi me.
Nukawoe nye kpekpeɖeŋunu siawo?
- Frequency Modulation (FM) Dɔwɔɖoɖowo: FM-mɔ̃ kpena ɖe viwòa ŋu to toɣliɖeɖe si le megbe dzi ɖeɖe kpɔtɔ kple nuƒola ƒe gbe (abe nufiala ene) ƒe gbe sesẽ kple eme kɔna me. Nuƒomɔ̃a doa nuƒomɔ̃ sue aɖe kple gbeɖiɖimɔ̃. Mɔ̃ sia ɖoa elektrɔnik dzesi aɖe ɖe mɔ̃ aɖe si viwòa dona alo esi wotsɔ do ka kple woƒe tomemɔ̃a tẽ. Esi wònye be woate ŋu atsɔ ɖoɖo siawo ayi teƒe bubuwo ta la, wonyo ŋutɔ na sukuxɔwo alo teƒe siwo toɣliɖeɖe le.
- Tomemɔ̃ : Mɔ̃ siawo doa ŋusẽ gbeɖiɖi si gena ɖe to me. Togbɔ be ɖevi aɖewo siwo ŋu Auditory Neuropathy Spectrum Disorder (ANSD) le kpɔa viɖe tso tomemɔ̃wo me—vevietɔ ne wozã wo kpe ɖe FM-mɔ̃ ŋu —zi geɖe la, tomemɔ̃wo ɖeɖe mesɔ gbɔ na ɖevi siwo ŋu ANSD le o , elabena ɖeko wodoa gbeɖiɖi siwo tro alo totro ɖe ŋgɔ.
- Tomemɔ̃ : Le ɖevi aɖewo siwo ŋu ANSD le siwo mekpɔa viɖe si sɔ tso tomemɔ̃wo me o gome la, tomekadodo nye tiatia nyui aɖe. Esia nye mɔ̃ si wodona to amekoko me si toa to ƒe akpa siwo mewɔa dɔ o ŋu be wòaʋã to ƒe lãmeka si sea nu la tẽ. Ne wona hehee nyuie eye woyia edzi le atikewɔwɔ me la, ɖevi siwo wotsɔ tomeka de to me la, woate ŋu asrɔ̃ nusese kple nuƒoƒo nyuie.
Nu bubu kae wòle be nànya?
Le tomemɔ̃wo godo la, ɖevi siwo ŋu ANSD le ate ŋu akpɔ viɖe tso nukpɔkpɔ ƒe kadodomɔnu hã me , si nɔa te ɖe nukpɔkpɔ dzi tsɔ ɖɔa li nyatakakawo.
Nukawoe nye kadodomɔnu siwo wokpɔna?
- Tokunɔgbe : Esia nye gbegbɔgblɔ si de ŋgɔ bliboe si me gbeŋutise, nyagbewo, kple nyagbewo ƒe ɖoɖo tɔxɛ le, si wozãna tsɔ ɖɔa li gbe si wodona.
- Cued Speech : Esia bia be woazã asi ƒe nɔnɔmewo aƒo xlã nu ne èle nu ƒom. Dzesi siawo kpena ɖe eteƒekpɔla ŋu wòdea vovototo gbeɖiɖi siwo ɖi wo nɔewo le nuyiwo dzi (abe ‘b’ kple ‘p’ alo ‘m’ kple ‘b’ ene) dome. Woate ŋu azã Cued Speech kple gbegbɔgblɔ ɖesiaɖe eye wòkpena ɖe ƒome siwo doa gbe eve koŋ ŋu.
- Signing Exact English (SEE) : Esia nye ɖoɖo si me wozãa dzesiwo tsɔ sɔ kple Eŋlisigbe si wodona nya ɖe nya nu. Togbɔ be ezãa tokunɔgbe ƒe akpa aɖewo hã la, ewɔna ɖe Eŋlisigbe me nyagbewo ƒe ɖoɖo kple gbeŋutise dzi.
Wotrɔ asi le Cued Speech kple SEE siaa ŋu be woatsɔ akpe ɖe gbe si wodona ŋu, si ana eme nakɔ ne nuyi xexlẽ ɖeɖe mesɔ gbɔ be woase gbedasia gɔme o.
Abe dzila ene la, èwɔa akpa vevi aɖe le kpekpeɖeŋu nana viwò si ŋu ANSD le be wòatu dzeɖoɖo ƒe ŋutetewo ɖo me. Dɔwɔwɔ kplikplikpli kple wò lãmesẽnyawo gbɔ kpɔhae nye mɔ nyuitɔ si dzi nàto akpɔ nu nyuitɔ kekeake na viwòa.
Àte ŋu akpɔ nyatakaka kple kpekpeɖeŋu bubuwo to dɔwɔnu siwo gbɔna dzi:
- CDC: Tosese Kple Viwò
- Asiwo Kple Gbewo (Kpekpeɖeŋunahabɔbɔ na dzilawo kple dɔwɔla bibiwo) .
Gbedasi Vevi Siwo Wotsɔna Yia Aƒeme
Ne míagblɔe kpuie la, nya vevi siwo dzi wòle be míaɖo ŋkui lae nye esi:
- Auditory Neuropathy Spectrum Disorder (ANSD) dzɔna ne gbeɖiɖi ƒe dzesiwo metso to me yi ahɔhɔ̃a me nyuie o.
- Dɔlélea didi kaba le vevie ŋutɔ. Ne èsusu be viwòa ƒe tosese sesẽ alo eƒe tsitsime ƒe nu veviwo gbɔ ɖoɖo la, yi eŋutinunyala bibi aɖe gbɔ enumake.
- Dodokpɔ tɔxɛwo wɔwɔ, abe OAE kple ABR ene, hiã hafi woate ŋu anya dɔléle sia pɛpɛpɛ.
- Dzi megaɖe le ƒowò o; dɔwɔnuwo abe FM-mɔ̃wo, tomemɔ̃wo, tomekawo, nuƒoƒo ƒe atikewɔwɔ, kple nukpɔkpɔ ƒe kadodomɔnu ene ate ŋu ana viwòa ƒe dzeɖoɖo ƒe ŋutete nanyo ɖe edzi ŋutɔ.
- Wò gomekpɔkpɔ le eme, dzigbɔɖi, kple nuwɔwɔ aduadu kplikplikpli kple wò atikewɔlawoe nye viwòa ƒe nunɔamesi gãtɔwo kekeake.
Ðo ŋku edzi be ɖevi ɖesiaɖe to vovo. Hadede kple wò lãmesẽnyawo gbɔ kpɔha be nàdi mɔnu nyuitɔ na viwòa nye afɔɖeɖe vevitɔ kekeake si nàwɔ le Nirogi Lanka gome.
Tome ƒe Ahɔhɔ̃mekawo ƒe Dɔléle, ANSD, Tosese, Ðeviwo ƒe Lãmesẽ, Tosese Dodokpɔ, Tomeŋusẽ ƒe Dɔléle, Nuƒoƒo ƒe Dɔdamɔnu
