Ðe wò ŋkuwo kpɔa tɔtrɔ sia tɔgbea? Mina míasrɔ̃ nu tso Pellucid Marginal Degeneration ŋu!

Ðe nèsena le ɖokuiwò me be yeƒe ŋkuwo le gbegblẽm ɖe edzi vivivia? Ɣeaɖewoɣi la, màte ŋu akpɔ nu nyuie ne èzã ŋkumeɖobolo gɔ̃ hã oa? Ekema esia nye nusi ate ŋu anɔ vevie na wò. Le nyateƒe me la, esia nye ŋkudɔ si mebɔ kura o, gake enyo be nànya.

Nuka tututue nye Pellucid Marginal Degeneration?

Kpuie ko la, Pellusic Marginal Degeneration, alo PMD kpuie, nye dɔléle si gblẽa nu le ŋkume ƒe ŋkume, si nye ŋkume ƒe akpa si me kɔ eye wòle goglo si le wò ŋku ƒe ŋgɔgbe ŋu. Eyia ŋgɔ vivivi. Ènyaa, ŋkume ƒe ŋkumeʋuʋu si le lãmesẽ me ye kpena ɖe mía ŋu míekpɔa xexeame nyuie. Ele abe fotoɖemɔ̃ ƒe lens ene.

Le PMD me la, ŋkume ƒe akpa aɖe, si te ɖe ŋkume ƒe akpa si le ete ŋu koŋ la, va nɔa tsɛ wu le ɣleti si le ɣletivimefakaka ƒe nɔnɔme me. Bu gaƒoɖokui aɖe ŋu kpɔ. Zi geɖe la, ƒuƒu sia dzɔna le teƒe si le gaƒoɖokui ƒe asi 4 lia kple 8 lia dome. Ŋku ƒe akpa si le ƒuƒuiƒe sia tame la dona ɖe ŋgɔ, ne míagblɔe bubui la, eva zua ʋuʋudedi. Le tɔtrɔ siawo ta la, kekeli si gena ɖe ŋkua me la mete ŋu nɔa te nyuie o. Míeyɔa esia be astigmatism. Le ɣeyiɣi aɖe megbe la, esia ate ŋu ana wò ŋku ƒe nukpɔkpɔ dzi naɖe akpɔtɔ vivivi.

Zi geɖe la, PMD gblẽa nu le ŋku eveawo siaa ŋu. Gake ɣeaɖewoɣi la, ate ŋu agblẽ nu le ŋku ɖeka ko ŋu. Nu nyui si le emee nye be mehea abi vɛ le ŋkume ƒe ŋkume o. Esia tae ŋkume ƒe ŋkume ƒe ŋkume ƒe akpa si le ʋuʋu ɖi (nya `pellucid` gɔmee nye "eme kɔ").

Esi wònye be PMD dzɔna blewu ŋutɔ ta la, ɖewohĩ dzesi aɖeke madze le ŋuwò le gɔmedzedzea me o. Gake ne ŋkume ƒe ŋkumeʋuʋu yi edzi le ƒuƒum hele dodom ɖe ŋgɔ la, ŋku ƒe ʋuʋu dzina ɖe edzi. Ɣemaɣie wò nukpɔkpɔ gagblẽna ɖe edzi vivivi. Esia ate ŋu ana wò gbesiagbedɔwo wɔwɔ nasesẽ.

Ameka ŋue nɔnɔme sia gblẽa nu le wu? Aleke gbegbe wòbɔe?

PMD ate ŋu adze ame sia ame dzi, eɖanye ameƒomevi alo to si me wòtso o. Ke hã, numekuku aɖewo ɖee fia be ebɔ ɖe ŋutsuwo me wu. Zi geɖe la, wokpɔnɛ le amesiwo xɔ ƒe 20, 30, alo 40 kple edzivɔ me. Gake woate ŋu akpɔe le amesiwo xɔ ƒe 50-awo alo emegbe gɔ̃ hã ŋu.

Akɔntabubu aɖeke meli si tututu ku ɖe alesi wòbɔe ŋu o. Gake mebɔ abe keratoconus, si nye dɔléle bubu si gblẽa nu le ŋkume ƒe ŋkume (si me ŋkume ƒe ŋkumeʋuʋu doa ŋgɔ va zua cone ƒe nɔnɔme) ene o. Wobu akɔnta be keratoconus dzea ame ɖeka le 400 ɖesiaɖe me va ɖo ɖeka le 2,000 ɖesiaɖe me. Eyata PMD nye nɔnɔme si mebɔ vie o.

Nukawoe nye dzesiawo? Aleke nèwɔ dea dzesii?

PMD ƒe dzesi vevitɔe nye ŋku ƒe nukpɔkpɔ ƒe gbegblẽ vivivi le ɣeyiɣi aɖe megbe. Esia tso ŋku ƒe ʋuʋu si le dzidzim ɖe edzi gbɔ. Ame akpa gãtɔ mekpɔa ŋkuve alo dzesi bubu aɖewo koŋ o.

Gake ƒã ŋutɔ be PMD ate ŋu ahe kuxi sesẽ aɖe si woyɔna be acute corneal hydrops vɛ. Esiae nye esime ŋkume ƒe ŋkumeʋuʋua vuvu zi ɖeka, si wɔnɛ be ŋkua megakpɔa nu nyuie o eye wòsea kekeli ƒe seselelãme. Ame aɖewo hã ate ŋu ase veve vevie. Esia nye nudzɔdzɔ kpata aɖe.

Nukatae esia le dzɔdzɔm? Nuka tae?

Le nyateƒe me la, numekulawo mekpɔ ke ɖe nusi tututu gbɔ PMD alo afɔku aɖeke tsona ŋu haɖe o, eyata esesẽ be woagblɔ nusita tututu wòdzɔna ɖo.

Aleke ɖɔktawo dea dzesi esiae? Dodokpɔ kawoe wowɔna?

Wò ŋkuŋutinunyala (ŋkudɔdala) ate ŋu akpɔ PMD. Ado wò ŋkuwo kpɔ, awɔ dodokpɔ vovovowo, eye wòabia wò dɔlélea ƒe dzesiwo, vevietɔ ne èle ŋku lém ɖe nu ŋu ɣeyiɣi didi aɖee nye esia.

Woyɔa dodokpɔ vevitɔ si wozãna tsɔ dea dzesi nɔnɔme sia, eye wobunɛ be enye "sikadzidzenu" la be ŋkume ƒe anyigba ƒe nɔnɔme. Esia nye dodokpɔ si wowɔna kabakaba, si me vevesese aɖeke mele o. Nusi nàwɔ koe nye be nànɔ anyi ɖe mɔ̃ aɖe ŋgɔ. Mɔ̃a ɖea wò ŋkuwo ƒe foto eye wòwɔa ŋkume ƒe ŋkume ƒe anyigbatata siwo me amadedewo le. Ele abe anyigbatata si ɖe to aɖe ƒe kɔkɔme fia ene. Ŋkudɔdala la srɔ̃a nu tso anyigbatata siawo ŋu be yeanya nu tso wò ŋkume ƒe nɔnɔme kple eƒe goglome ŋu.

Ame aɖe si ŋu PMD le ƒe ŋkume ƒe anyigbatata ateŋu aɖe "akpakpa siwo le nugbugbɔm" (abe akpakpa eve siwo le nugbugbɔm) alo "kpakpaluʋui ƒe asikewo" (abe kpakpaluʋui ƒe asike ene) afia ɣeaɖewoɣi. Anyigbatata siawo ɖe ŋkume ƒe akpa siwo ƒo xlãe ɖaɖɛ, alo do ɖe gota, le amadede dzĩ me fia. Wò ɖɔkta zãa anyigbatata siawo tsɔ nyaa nenye be PMD alo dɔléle bubu aɖe si gblẽa nu le ŋkume ƒe ŋkume ŋu (corneal ectasia) le ŋuwò.

Nukawoe nye atike siwo wozãna na esia?

Atikewɔwɔ ƒe tiatia nɔ te ɖe alesi wò dɔlélea nu sẽe kple afisi wòyi ŋgɔe dzi. Le gɔmedzedzea me la, àte ŋu azã ŋkumeɖobolo alo ŋkumeɖonu atsɔ ana wò nukpɔkpɔ nanyo ɖe edzi. Lãmetsiŋusẽ ƒe ŋkumeɖonu ƒomevi vovovowo li. Wò ŋkudɔdala ate ŋu akpe ɖe ŋuwò nàtia ƒomevi si sɔ na wò nɔnɔmea wu.

Nu vevitɔe nye be togbɔ be àte ŋu akpɔ nu nyuie wu ne èdo ŋkumeɖonu hã la, maxe mɔ na nɔnɔmea be wòagagblẽ ɖe edzi o.

Eyata ne wò nukpɔkpɔ menyo ale gbegbe be nàte ŋu atsɔ ŋkumeɖonu alo ŋkumeɖonu awɔ wò gbesiagbedɔwo o la, ate ŋu ahiã be woawɔ dɔ na wò mlɔeba. Amekoko bia be woaɖe wò ŋkume ƒe akpa si gblẽ alo wò katã ɖa eye woatsɔ ŋkume ƒe lãkusi si le lãmesẽ me tso amesi na wò ŋkume la gbɔ aɖo eteƒe. Amekokomɔnu vovovowo hã li na esia. Wò ɖɔkta aɖe dɔdamɔnu ɖesiaɖe ƒe viɖe kple kuxiwo me na wò.

Ðe mɔ aɖe li si dzi woato axe mɔ ɖe PMD nua?

Nublanuitɔe la, naneke meli nàte ŋu awɔ atsɔ axe mɔ ɖe PMD nu o.Elabena abe alesi míegblɔe va yi ene la, numekulawo menya nusi tututu hea esia vɛ haɖe o.

Gake ele vevie be nàyi ŋkudɔdala alo ŋkudɔdala gbɔ zi ɖeka ya teti le ƒea me be woado ŋku kpɔ. Ate ŋu alé ŋku ɖe wò ŋkuwo ƒe lãmesẽ bliboa ŋu ahade dzesi kuxi ɖesiaɖe kaba. Ne wokpɔ PMD kaba la, woate ŋu alé ŋku ɖe eŋu akpɔ alesi wòyi ŋgɔe eye woawɔ ɖoɖo ɖe atikewɔwɔ si sɔ ŋu.

Nukae nàte ŋu akpɔ mɔ na ne PMD le ŋuwò?

Wò ɖɔktae nye ame nyuitɔ kekeake si agblɔ wò nɔnɔmea na wò. PMD menaa ŋkuagbã keŋkeŋ o. Gake esi wò ŋkuwo le gbegblẽm ɖe edzi vivivi la, ate ŋu akpɔ ŋusẽ gã aɖe ɖe wò gbesiagbedɔwo dzi. Alesi dɔlélea doa ŋgɔe la toa vovo tso ame ɖeka gbɔ yi bubu gbɔ. Eyata atikewɔwɔ ŋuti aɖaŋuɖoɖo kple edziyiyi le wò agbe me katã hiã be nàlé ŋku ɖe wò nɔnɔmea ŋu ahakpɔ egbɔ be wò atikewɔwɔ ƒe ɖoɖoa le dɔ wɔm nyuie.

Aleke malé be na ɖokuinye? Aleke malé be na nye ŋkuwoe?

Ne PMD alo ŋkume ƒe dɔléle bubu aɖe le ŋuwò la, ele vevie ŋutɔ be nàlé be na nusiawo:

• Ƒo asa na ŋkuwo tutu. Esia ate ŋu ahe kuxiwo abe ŋkume ƒe ʋuʋu ene vɛ, togbɔ be ƒã hafi.
• Ƒo asa na ŋkututu sesĩe. Esia ate ŋu ana ŋkua ƒe nyaƒoɖeamenu nadzi ɖe edzi, si ate ŋu ana ŋkume ƒe tsi natsi hã.
• Ne èdo ŋkumeɖonu la, ke kɔ wo ŋu abe alesi wò ɖɔkta gblɔe ene pɛpɛpɛ.
• Lé ŋku ƒe dzadzɛnyenye nyui me ɖe asi. Klɔ teƒe si ƒo xlã wò ŋkuwo gbesiagbe kple adzalẽ fafɛ kple tsi fafɛ. Emegbe nàtsɔ avɔ falɛfalɛ aɖe aƒoe wòaƒu.

Ɣekaɣie wòle be makpɔ ɖɔkta? Ke ne nudzɔdzɔ kpata aɖe ya ɖe?

Zi geɖe la, ele be woado ŋku na wò zi ɖeka ya teti le ƒea me. Ɣeaɖewoɣi la, wò ɖɔkta ate ŋu abia tso asiwò be nàva doe kpɔ kaba. Kpɔ egbɔ be yeyi ɖoɖowɔɖi mawo katã gbɔ.

Azɔ hã, ne dzesi yeye aɖewo dze le ŋuwò alo nède dzesi tɔtrɔ aɖewo siwo womate ŋu aɖe o la, yɔ wò ɖɔkta enumake.

Nukae woawɔ ne nɔnɔme kpata aɖe dzɔ?

Ne dzesi siwo gbɔna dometɔ aɖe le ŋuwò la, ate ŋu anye atikewɔwɔ kpata. Eyata ƒo ka na 1990 enumake alo yi kɔdzi ƒe dɔwɔƒe si te ɖe ŋuwò kpata:

• Ŋku ƒe vevesese sesẽ kpata.
• Nukpɔkpɔ si me mekɔ o kpata alo nukpɔkpɔ eve.
• Ŋku ƒe vuvu (Edema).

Nya vevi kawoe wòle be míabia ɖɔktaa?

Ne wokpɔ PMD le ŋuwò la, esɔ be nyabiase geɖe nanɔ susu me na wò. Dzro wò biabia kple nusiwo katã ŋu nètsi dzi ɖo me kple wò ɖɔkta eye nàxɔ ŋuɖoɖo siwo nèhiã. Le kpɔɖeŋu me, àte ŋu abia nyawo abe:

• Afikae nye nɔnɔmea yi ŋgɔe?
• Atikewɔwɔmɔnu kae nyo nam wu?
• Ðe wòahiã be woawɔ dɔ nam?
• Nukae wòle be mawɔ be malé be na nye ŋkuwo le aƒeme?
• Ðe dɔwɔna aɖewo li siwo mele be mawɔ oa?

Vovototo kae le Pellucid Marginal Degeneration (PMD) kple Keratoconus dome?

Le gɔmedzedzea me la, PMD ate ŋu aɖi keratoconus (nɔnɔme si me ŋkume ƒe ŋkumeʋuʋu doa ŋgɔ va zua cone ƒe nɔnɔme). Esia wɔe be woate ŋu abu ame aɖewo siwo ŋu PMD le la vodadatɔe be keratoconus le wo ŋu, togbɔ be PMD le wo ŋu ŋutɔŋutɔ hã. Gake vovototo vevi geɖe le nɔnɔme eveawo dome.

Nu bubu si wòle be nànyae nye be àte ŋu axɔ PMD kple keratoconus siaa. Le nyateƒe me la, keratoconus hã le amesiwo ŋu PMD le ewo ɖesiaɖe me.

Mlɔeba la, nusiwo dzi wòle be woaɖo ŋkui (Take-Home Message) .

Pellucid Marginal Degeneration ate ŋu akpɔ ŋusẽ ɖe wò gbesiagbegbenɔnɔ dzi eye ate ŋu ana nàtsi dzi vie ɖe etsɔme ŋu. Ke hã, noe gbesiagbe, eye nàwɔ dɔ kple wò dɔdala bibi be nàkpɔ atike si nèhiã. Kuxi sesẽ aɖeke medoa go ame akpa gãtɔ siwo ŋu PMD le o. Woate ŋu atsɔ ŋkumeɖonu alo ŋkumeɖonu akpɔ nɔnɔmea gbɔ. Le go aɖewo me la, amekoko ate ŋu anye tiatia nyuitɔ kekeake. Ƒo nu kple wò ɖɔkta be nànya nu geɖe tso tiatia siwo nàte ŋu awɔ kple nusiwo nàkpɔ mɔ na le etsɔme ŋu. Nu vevitɔe nye be nànɔ anyi kpoo ahawɔ ɖe wò ɖɔkta ƒe mɔfiamewo dzi.

` Pellucid Marginal Degeneration, PMD, Cornea, Astigmatism, Nukpɔkpɔ ƒe Bubu, Ŋkudɔléle, Ŋku ƒe Nɔnɔme, Keratoconus