Àte ŋu akpɔe le susu me be yefɔ gbeɖeka ŋdi eye dzesiwo abe wò ŋutilã ƒe akpa ɖeka ƒe ʋuʋu kple nukpɔkpɔ si me mekɔ o ene, eye emegbe le ŋkeke alo kwasiɖa ʋɛ aɖewo megbe la, emawo katã nu yi keŋkeŋ. Ekema kuxi aɖeke menɔa ŋuwò o ɣleti geɖe, ɖewohĩ ƒe geɖe gɔ̃ hã. Nusianu gatrɔna yia nɔnɔme si sɔ me. Emegbe kasia dzesi bubuwo dzena na wò, ɖewohĩ azɔlizɔzɔ gɔ̃ hã sesẽna na wò. Míele nu ƒom tso nɔnɔme aɖe si me dzesiwo ƒe ɖoɖo aɖe le si va yina alea ŋu. Esiae nye nusi míeyɔna be RRMS le atikewɔwɔ me.
Kpuie ko la, nukae nye RRMS?
RRMS nye kpukpui na `Relapsing-Remitting Multiple Sclerosis`. Esiae nye `Multiple Sclerosis` (MS) ƒomevi si bɔ wu. Le nyateƒe me la, amesiwo ade 80-85 le ame 100 ɖesiaɖe si ŋu MS le dome la, `RRMS` sia ƒomevi le wo ŋu.
Enyo, azɔ mina míalé ŋku ɖe gɔmesese si le ŋkɔ sia ŋu ŋu.
- Gbugbɔgadzɔ: Esia fia ɣeyiɣi aɖe si me dzesiawo dzena zi ɖeka alo gagblẽna ɖe edzi. Ame aɖewo hã yɔa esia be `flare-up`. Ɣeyiɣi sia ate ŋu axɔ tso ŋkeke ʋɛ aɖewo va ɖo kwasiɖa ʋɛ aɖewo.
- Ðeɖekpɔkpɔ: Esia fia ɣeyiɣi si me dzesiawo nu fa vivivi eye nègatrɔna yia nɔnɔme si sɔ me, keŋkeŋ alo eƒe akpa aɖe. Ðewohĩ dzesi aɖeke manɔ ŋuwò le ɣeyiɣi sia me o.
Kpuie ko la, RRMS nye nɔnɔme si ƒe dzesi enye ɣeyiɣi siwo me dzesiawo nu sẽna kple ɣeyiɣi siwo me dzesiawo dzi ɖena kpɔtɔna.
MS nye dɔléle si tsoa dɔlélenutsiŋutete gbɔ si me míaƒe ŋutilã ŋutɔ ƒe dɔlélenutsiŋutete, si nye dɔlékui si kpɔa mía ta tso dɔléle me, dzea mía ŋutɔwo ƒe lãmekawo dzi vodadatɔe. Ele vevie be mia kple wò ɖɔkta miade dzesi dɔléle ƒomevi si nye RRMS nyuie, elabena aleae miate ŋu ato anya atike si sɔ na mi wu.
Nukawoe nye dzesi siwo bɔ siwo wokpɔna le RRMS me?
Dzesi siawo medzena le ame sia ame ŋu le mɔ ɖeka nu o. Woate ŋu ato vovo tso ame ɖeka gbɔ yi bubu gbɔ ŋutɔ. Ɣeaɖewoɣi la, dzesi siawo dometɔ geɖe ate ŋu ado mo ɖa ɖekae. Esiawo dometɔ ɖeka alo esi wu nenema ate ŋu adze le dɔlélea gbugbɔgadzɔ me.
| Dzesi si dzena | Numeɖeɖe bɔbɔe aɖe |
|---|---|
| Tɔtrɔ siwo vaa ŋku ƒe nukpɔkpɔ me | Nuwo abe ŋku ƒe nukpɔkpɔ si me kɔ o, nukpɔkpɔ zi eve, amadedewo ƒe vovototodedeameme ƒe ŋutete manɔamesi, kple vevesese ne wole ŋkua ʋuʋum. |
| Nuveviwɔame alo seselelãme ƒe bu | Sese le eɖokui me be asiwo, afɔwo, mo, alo ŋutilã ƒe akpa bubuwo le ʋuʋum alo womegasena le wo ɖokui me o. |
| Akɔta alo ƒodo ƒe tete | Ewɔna nam abe ɖe ame aɖe le atuu wɔm na wò sesĩe le wò akɔta alo ƒodo ŋu ene. Ame aɖewo hã yɔa esia be "MS hug." |
| Ɖeɖiteameŋu | Ðeɖiteameŋu si gbɔ eme, si womate ŋu ado dzi atsɔ o, si sɔ gbɔ wu alesi wòle dzɔdzɔmee sã. Ðewohĩ ɖeɖiteameŋu sia nu maɖe le alɔ̃dɔdɔ nyuie megbe gɔ̃ hã o. |
| Aɖuɖɔtoe kple dɔgbo ƒe kuxiwo | Kuxiwo abe aɖuɖɔtoe gɔmedzedze sesẽ, aɖuɖɔtoedɔ kpata (aɖuɖɔtoedɔ kpata), kple aɖuɖɔtoe dzi makpɔmakpɔ. |
| Seselelãme si le abe elektrikŋusẽ ƒe ƒoƒo ene. | Elektrikŋusẽ ƒe ƒoƒo si le du dzi to akɔta ne wobɔbɔ kɔa ɖe ŋgɔ ƒe seselelãme. (Lhermitte ƒe dzesi) |
| Azɔlizɔzɔ sesẽ kple dadasɔ ƒe kuxiwo | Nukikli ne wole zɔzɔm, dadasɔ ƒe anyimanɔmanɔ, azɔlizɔzɔ sesẽ le lãmekawo ƒe gbɔdzɔgbɔdzɔ ta. |
| Lãmetsiwo ƒe gbɔdzɔgbɔdzɔ alo woƒe sesẽ | Lãmetsiwo ƒe ŋusẽ dzi ɖe kpɔtɔ alo woƒe sesẽ si mesɔ o (spasticity). |
| Tamebubu kple ŋkuɖoɖonudzi ƒe kuxiwo | Esesẽna be woatsɔ susu aɖo nu ŋu, ŋkuɖoɖonudzi ƒe bu, nyawo didi sesẽ, kple bubuawo Wogayɔa esia be ``ahɔhɔ̃ ƒe afu''. |
Togbɔ be ame aɖewo ƒe dzesiwo nu tso keŋkeŋ hã la, ame bubuwo ate ŋu akpɔ dzesi aɖewo siwo susɔ. Le nɔnɔme mawo me la, kamedede, atike, alo atikewo abe Botox® ene, abe alesi wò ɖɔkta gblɔe ene, ate ŋu akpe ɖe ŋuwò nàɖu wò dzesiwo dzi.
Ðe nusiwo hea dɔlélea vɛ siwo nana dzesiawo gagblẽna ɖe edzia?
Ẽ, nu aɖewo ate ŋu ana wò dzesiwo nagava alo agblẽ ɖe edzi. Gake `nu siwo ʋãa ame` siawo mekpɔa ŋusẽ ɖe amesiame dzi sɔsɔe o. Ðewohĩ nusi gblẽa nu le ame aɖe ŋu makpɔ ŋusẽ ɖe ame bubu dzi o.
Nusiwo gbɔ wòtsona zi geɖe dometɔ aɖewoe nye esi:
- Nuteɖeamedzi: Nuteɖeamedzi si gbɔ eme ate ŋu anye nu vevi si hea dzesiawo vɛ.
- Dzoxɔxɔ: Dzoxɔxɔ si nu sẽ, dzoxɔxɔ, alo vuvɔ si nu sẽ gɔ̃ hã na ame aɖewo ate ŋu ana dzesiawo nagagblẽ ɖe edzi.
- Dɔlékuiwo: Dɔlékui suesuesuewo abe dzamezã alo aɖuɖɔtoedɔléle ene gɔ̃ hã ate ŋu ana MS ƒe dzesi xoxowo nagadze.
- Atamanuwo zazã: Sigaretnono ate ŋu ana dɔlélea nayi edzi kabakaba eye wòana dzesiawo nagagblẽ ɖe edzi.
- Vitamin D ƒe anyimanɔmanɔ: Numekukuwo ɖee fia be vitamin D ƒe agbɔsɔsɔ si mede ame dzi o hã gblẽa nu le MS dɔlélea kple eƒe dzesiwo ŋu.
Nukatae MS sia va doa mo ɖa? Nuka gbɔe wòtso?
Le nyateƒe me la, womeke ɖe nusi tututu gbɔ MS tsona ŋu haɖe o , gake numekukuwo ɖee fia be nu geɖe ate ŋu ana wòdzɔ.
Ðeko nàbu míaƒe lãmekawo be wonye elektrikkawo. Wotsɔa ametakpɔnu ƒo xlã ka siawo, abe `insulation` ene. Míeyɔa esia be `myelin` . Myelin-kplo siae nana gbedasiwo zɔna kabakaba hetoa lãmekawo me pɛpɛpɛ.
Le MS me la, mía ŋutɔwo ƒe dɔlélenutsiŋutete, si nye asrafo siwo kpɔa mía ta tso dɔléle me, dzea myelin-kplo sia dzi vodadatɔe. Amedzidzedze sia gblẽa nu le myelin ƒe akɔtaɖonu ŋu. Emegbe lãmekawo ƒe gbedasiwo ƒe kaka me gblẽna. Abe alesi ne ka ƒe `insulation` gblẽ ene la, ewɔa `short-circuit`. Ɣemaɣie dzesi siwo ŋu míeƒo nu tsoe va yi la dzena.
Woxɔe se be nutomenuwo, siwo dometɔ aɖewoe nye domenyiŋusẽfianu ƒe dɔléle kple dɔlékuiwo abe Epstein–Barr dɔlékui ene, ate ŋu ana dɔlélenutsiŋutetea nadze ame dzi vodadatɔe le mɔ sia nu.
Aleke wowɔa dea dzesi RRMS?
MS ƒe dɔléle didi ate ŋu asesẽ, elabena dodokpɔ ɖeka aɖeke meli si ate ŋu aɖo kpe dɔlélea dzi o. Wò ɖɔkta adzro wò dzesiwo, atikewɔwɔ ŋutinya, ŋutilãmedɔdada, kple dodokpɔ bubu geɖe me tsonu me be yeakpɔ dɔlélea.
Dodokpɔ siwo wowɔna zi geɖe na esiae nye:
- MRI scan: MRI (Magnetic Resonance Imaging) scan si wowɔna le ahɔhɔ̃ kple aklã me ate ŋu ade dzesi teƒe siwo myelin ƒe akɔta gblẽ le (abi) le.
- Lumbar Puncture: Esia bia be woatsɔ aŋe sue aɖe ŋutɔ ade aklã me eye woano ahɔhɔ̃metsi sue aɖe atsɔ akpɔe ɖa be protein siwo koŋ na MS, abe oligoclonal bands ene, le eme hã.
- Ʋudodokpɔ: Wowɔa ʋudodokpɔ be woakpɔ egbɔ be nɔnɔme bubu siwo hea dzesi siwo ɖi MS vɛ la mele ŋuwò o.
- OCT dodokpɔ: ``Optical Coherence Tomography`` nye dodokpɔ si me vevesese mele o si doa ŋku ƒe lãmeka si le ŋkua ƒe megbe kpɔ be MS gblẽe hã.
Nukawoe nye atike siwo wozãna na RRMS?
Togbɔ be womekpɔ atike na RRMS haɖe o hã la, fifia la, atikewɔmɔnu siwo wɔa dɔ ŋutɔ siwo ate ŋu akpe ɖe ŋuwò nàkpɔ dɔlélea gbɔ ahanɔ agbe si sɔ la li fifia.
Taɖodzinu vevi siwo le atikewɔwɔ ŋue nye:
- Ame siwo gagbugbɔna dzea dɔa me ƒe xexlẽme dzi ɖeɖe kpɔtɔ.
- Nusiwo gblẽ le lãmekawo ƒe dɔwɔwɔ ŋu dzi ɖeɖe kpɔtɔ.
- Nuwɔametɔnyenye siwo dɔlélea hena vɛ ƒe gɔmedzedze hehe ɖe megbe.
Woyɔa atike siwo wozãna na esia be dɔléle-trɔtrɔ ƒe atikewɔwɔ (DMTs) . Woate ŋu akpɔ atike siawo le mɔ vovovowo nu.
- Atikewo dodo: Atike siwo wodona ɖe ŋutigbalẽ te alo ɖe lãmeka aɖe me.
- Atike siwo woano: Atike siwo wozãna abe atikekui ene gbesiagbe alo le ŋkeke siwo woɖo ɖi dzi.
- Atike siwo wodona ɖe lãme na ame: Atike siwo wodona ɖe ŋutilãa me to ʋuka aɖe abe saline ene dzi. Woate ŋu ana esiawo zi ɖeka le ɣletia me alo le ɣleti ʋɛ aɖewo ɖesiaɖe me.
Ele vevie be woadze DMT-dɔdamɔnu si sɔ gɔme kaba le dɔlélea kpɔkpɔ vɔ megbe, elabena atike siawo ate ŋu axe mɔ ɖe nusiwo agblẽ le lãmekawo ŋu le etsɔme nu. Ðo dze kple wò ɖɔkta gaglãa tso atikewɔwɔ si nyo na wò kple eƒe nugbegblẽ le ame ŋu ŋu.
Nusiwo nàbia wò ɖɔkta
Esi wònye be RRMS nye dɔléle si nɔa anyi didi ta la, esɔ be nyabiase geɖe nanɔ susu me na wò. Ne èyi wò ɖɔkta gbɔ la, ŋlɔ biabia siawo ɖi.
Ne dzesi yeyewo va dze ŋuwò, ne wò dzesi siwo li xoxo la gagblẽ ɖe edzi, alo ne èkpɔ nugbegblẽ le wò atikewɔwɔa ŋu la, ƒo nu kple wò ɖɔkta kaba.
Nyabiase aɖewo siwo ate ŋu akpe ɖe ŋuwò nàbia wò ɖɔkta:
- MS ƒomevi ka ƒomevie le ŋunye?
- Atikewɔwɔ kae nàkafu nam? Nu ka ta?
- Nukawoe nye atikewɔwɔ ma ƒe nugbegblẽ le ame ŋu?
- Nukae mawɔ ne nye dzesiwo gagblẽ ɖe edzi zi ɖeka (gbugbɔgadze)?
- Aleke mawɔ ade dzesi nusiwo nana nye dzesiwo dzina ɖe edzi?
Agbenɔnɔ kple RRMS ate ŋu asesẽ. Gake ɖo ŋku edzi be menye wò ɖeka koe o. Ne èwɔ atike nyuitɔ, trɔ agbenɔnɔ, eye nèkpe ɖe ŋuwò tso wò atikewɔlawo gbɔ la, àte ŋu anɔ agbe nyui ŋutɔ, si me dzo le. Tagbɔdɔdala ƒe kpekpeɖeŋu didi, ne ehiã, hã ate ŋu akpe ɖe ŋuwò ŋutɔ.
Gbedasi si Wotsɔ Yi Aƒeme
- RRMS ye nye Multiple Sclerosis (MS) ƒomevi si bɔ wu.
- Le afisia la, ɣeyiɣi siwo me dzesiawo gadzena (egbugbɔgadze) kple ɣeyiɣi siwo me dzesiawo dzi ɖena kpɔtɔna (woɖea wo ɖa) ɖɔlia wo nɔewo.
- Togbɔ be womate ŋu adae keŋkeŋ o hã la, atikewɔmɔnu (DMT) siwo wɔa dɔ ŋutɔ li egbea be woatsɔ akpɔ dɔlélea gbɔ nyuie ŋutɔ eye woaɖe nusiwo agblẽ le lãmekawo ŋu dzi akpɔtɔ.
- Dɔlélea didi kaba kple edada le vevie be woaxe mɔ ɖe kuxi siwo ava do mo ɖa le etsɔme nu.
- Ðo dze kple wò ɖɔkta ɣesiaɣi tso wò dzesiwo, atikewɔwɔ, alo kuxi ɖe sia ɖe si ate ŋu anɔ fu ɖem na wò ŋu.
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