Ðe nèsena le ɖokuiwò me ɣeaɖewoɣi abe ɖe nèle ŋusẽ kpɔm ɖe ye ŋutɔ yeƒe ŋutilã dzi vivivi enea? Ne èle avu wɔm kple dadasɔ esime nèle zɔzɔm, nèle sesem le ɖokuiwò me abe ɖe nusianu si nèwɔna la le ʋuʋum blewu ene, alo nède dzesii be yeƒe gbe le ʋuʋum la, àte ŋu asusui be tsitsi ƒe dzesi siwo sɔ koe nye esiawo. Gake esiawo ate ŋu anye nɔnɔme aɖe si ŋu ƒã hafi woƒoa nu tsoe gake wòle vevie be woase egɔme la ƒe dzesiwo ɣeaɖewoɣi. Egbea la, míele nu ƒom tso lãmekawo ƒe dɔléle sesẽ aɖe si mebɔ o si woyɔna be Multiple System Atrophy, alo MSA ŋu.
Ne míagblɔe bɔbɔe la, nukae nye Multiple System Atrophy (MSA)?
Multiple System Atrophy (MSA) nye dɔléle aɖe si kpɔa ŋusẽ ɖe wò lãmekawo dzi. Ekpɔa ŋusẽ ɖe wò ŋutilã ƒe dɔwɔwɔ le eɖokui si (si le eɖokui si) dzi koŋ, abe ʋuʋu si melɔ̃na o dzi ɖuɖu kple wò ŋutilã ƒe dadasɔ me léle ɖe asi ene . Wodae ɖe hatsotso me be enye nɔnɔme si mebɔ o.
Nyateƒenya si sesẽe nye be fifia la, atike aɖeke meli na MSA o. Ke hã, mègatsi dzodzodzoe o; ne wowɔ atike na wò nyuie eye nèwɔ asitɔtrɔ suesuesuewo le wò agbenɔnɔ ŋu , àte ŋu akpɔ dzesiawo gbɔ nyuie eye nàna wò agbenɔnɔ nanyo ɖe edzi.
Nukae nye MSA ƒe dzesiwo?
Zi geɖe la, dzesiawo dzea egɔme dzena le ƒe 50 va ɖo ƒe 60. Esi wònye be zi geɖe la, dzesi gbãtɔwo srɔ̃a Parkinson ƒe dɔléle ( Parkinson ƒe dɔléle ) tɔ ta la, nɔnɔme eveawo tɔtɔna ɣeaɖewoɣi.
| Dzesi Gbãtɔ Gbãtɔwo | |
|---|---|
| Ʋuʋu ƒe Nyawo | Ŋutilã ƒe ʋuʋu blewu, lãmekawo ƒe sesẽ, kple abɔ kple afɔwo ƒe ʋuʋu. |
| Le te | Dadasɔ alo nuwɔwɔ aduadu ƒe bu, si wɔnɛ be wowɔa nu manyatalenu geɖe wu le dɔ siwo wowɔna edziedzi me. |
| Nuƒoƒo ƒe Sesẽwo | Gbe si le ʋuʋum alo le ʋuʋum kple nuƒoƒo si me mekɔ o. |
| Ʋusɔgbɔdɔ Ŋuti Nyawo | Alɔ̃madɔmadɔ alo taɖuame, vevietɔ ne ètsi tre kabakaba tso teƒe si nèbɔbɔ nɔ anyi. |
| Aɖuɖɔtoe me Kuxiwo | Aɖuɖɔtoe ƒe didi vevie kpata alo tsinyegoea ɖeɖe keŋkeŋ sesẽ. |
Ŋusẽkpɔɖeamedzi bubuwo
Le dzesi gbãtɔ siawo megbe la, ate ŋu akpɔ ŋusẽ ɖe ŋutilã ƒe dɔwɔwɔ vevi bubuwo hã dzi:
- Fifia dzi ɖe kpɔtɔ , eye aɖatsi alo aɖuɖɔ ƒe dodo dzi ɖe kpɔtɔ.
- Dɔmeɖui alo tsinyegoe dzi ɖuɖu ƒe kuxiwo .
- Tsitretsitsi ƒe Dɔmawɔmawɔ nyuie (ED).
- Yagbɔgbɔ ƒe tɔtɔ le alɔ̃dɔdɔ me (alɔ̃dɔdɔ ƒe gbɔgbɔtsixetsixe), alo drɔ̃ewo wɔwɔ to ɣlidodo alo abɔ kple afɔ siwo le ʋuʋum me.
- Toɣliɖeɖe alo gbɔgbɔ sesẽ.
- Asi kple afɔ siwo fa miamiamia, siwo ƒe amadede trɔ.
- Seselelãme, dzimaɖitsitsi, alo blanuiléle dzi ɖuɖu sesẽ.
MSA ƒomevi vevi evee li
Le wò dzesi vevitɔwo nu la, wò ɖɔkta akpɔe ɖa be MSA ƒomevi si le ŋuwò.
| MSA Ƒomevi | Dzesi Veviwo |
|---|---|
| Parkinson ƒe Dɔléle Ƒomevi (MSA-P) . | Esiae nye nɔnɔme si bɔ wu. Eƒe dzesiwo sɔ kple Parkinson ƒe dɔlélea tututu, eye lãmekawo ƒe sesẽ, ʋuʋu blewu, ʋuʋudedi, kple dadasɔ ƒe nyawo fiana. |
| Ahɔhɔ̃mekawo ƒe Ƒomevi (MSA-C) . | Nusi ɖe dzesi enye be womegawɔa nu aduadu o eye womeda sɔ o. Ate ŋu ana nuƒoƒo nasesẽ na ame, nu mimi ƒe kuxiwo, kple nukpɔkpɔ si me kɔ o hã. |
Aleke wokpɔa dɔléle sia dzea sii?
MSA ƒe dɔléle didi ate ŋu asesẽ le eƒe gɔmedzedze elabena abe alesi míegblɔe ene la, zi geɖe la, eƒe dzesiwo srɔ̃a Parkinson ƒe dɔlélea. Le susu sia ta la, ele vevie ŋutɔ be nàbia Ahɔhɔ̃ŋutinunyala .
Wò ɖɔkta ado wò ŋutilã kpɔ, adzro wò dzesiwo me tsitotsito, eye wòada ahɔhɔ̃mekawo ƒe tɔtrɔ ƒe dzesi ɖesiaɖe kpɔ. Be woaɖo kpe edzi nenye be MSA alo dɔléle bubu aɖe le ŋuwò la, woate ŋu awɔ dodokpɔ siwo gbɔna:
- Dodokpɔ si wowɔna le eɖokui si: Dodokpɔ tɔxɛ siwo wowɔna tsɔ léa ŋku ɖe alesi wò lãmeka siwo le wo ɖokui si le dɔ wɔm ŋu.
- MRI scan: Be woalé ŋku ɖe ahɔhɔ̃a ƒe wɔwɔme ƒe tɔtrɔwo ŋu.
- Ʋu ƒe sisi dzi kpɔkpɔ: Wò ʋu ƒe sisi me léle kpɔ ne èbɔbɔ nɔ anyi, mlɔ anyi, eye nèle tsitrenu.
- ECG: Be nàlé ŋku ɖe wò dzi ƒe elektrikŋusẽ ƒe dzesiwo ŋu.
- Fifia dodokpɔwo: Be nàda alesi wò ŋutilã wɔa fifiae kpɔ.
Nukae hea MSA vɛ?
Kpuie ko la, le amesiwo ŋu MSA le gome la, protein aɖe koŋ ƒoa ƒu ɖe lãmenugbagbevi siwo doa alɔ lãmeka siwo le ahɔhɔ̃a me la me. Esia wɔnɛ be ahɔhɔ̃a kple aklã ƒe akpa aɖewo gblẽna vivivi alo ƒuna. Le eŋutinunyalawo ƒe nya nu la, womese nusi tututu tae nusia dzɔna la gɔme bliboe haɖe o.
Kuxi siwo ate ŋu ado mo ɖa
Le ame geɖe gome la, dzesiawo ate ŋu ava zu nya sesẽwo le ƒe ʋɛ aɖewo ko me, eyata ele vevie be woanya afɔku siawo:
- Gbesiagbe dɔwɔnawo dzi kpɔkpɔ sesẽ.
- Yagbɔgbɔ sesẽ, vevietɔ nɔnɔmewo abe alɔ̃dɔdɔ ƒe gbɔgbɔtsixetsixe ene.
- Amewo ƒe anyidzedze enuenu.
- Ʋuʋu ƒe seɖoƒe si le dzidzim ɖe edzi, si va hiã be bunɔkeke nanɔ ame ŋu mlɔeba eye emegbe wòahiã be woatsɔe ade aba dzi.
- Gbe ƒe ka ƒe lãmetutudɔ.
- Nu mimi ƒe kuxiwo (dysphagia).
- Aklãdɔlélewo abe aklãdɔ ene.
- Aɖuɖɔtoe me dɔlélewo.
- Ʋu ƒe sisi.
Agbenɔƒe si wokpɔa mɔ na le MSA dɔlélea didi vɔ megbe la toa vovo le ame ɖekaɖekawo gome. Ame aɖewo ate ŋu anɔ agbe ƒe 15 alo esi wu nenema. Zi geɖe la, lãmesẽkuxiwo dona tso gbɔgbɔtsixetsixe me.
Atikewɔwɔ Kple Edzikpɔkpɔ
Esi wònye be atike aɖeke meli na MSA o ta la, atikewɔwɔ ƒe taɖodzinu vevitɔe nye be wòaɖu dzesiawo dzi eye wòana wò agbenɔnɔ naɖe dzi ɖi alesi nàte ŋui.
Atikewo Kple Atikewɔwɔ ƒe Nudede Nyawo Me
- Atikewo abe `levodopa`, si wozãna zi geɖe na Parkinson ƒe dɔlélea, ateŋu akpeɖeŋu be woakpɔ ʋuʋudedi, sesẽ, kple ʋuʋu blewu gbɔ.
- Wò ɖɔkta ateŋu aŋlɔ atikewo abe `midodrine` alo `fludrocortisone` be wòakpe ɖe ŋuwò nàɖu ʋu ƒe sisi dzi.
- Le go aɖewo me la, ate ŋu ahiã be woatsɔ dzitodzito ƒe mɔ̃ aɖe awɔ dɔe be wòaɖɔ dzi ƒe tsotso ɖo.
- Le tsinyegoe dzi ɖuɖu gome la, atikewo abe `mirabegron` alo `oxybutynin` ateŋu awɔ dɔ nyuie. Ðewohĩ àva hiã be woatsɔ catheter awɔ dɔe mlɔeba.
- Atikewo hã li woatsɔ ada tsitretsitsi ƒe dɔmawɔmawɔ nyuie.
Atikewɔwɔ ƒe mɔnuwo
- Lãmesẽfefe: Kamedede be wò lãmekawo nasẽ eye woanɔ te ɖe nɔnɔmewo nu.
- Dɔwɔwɔ ƒe atikewɔwɔ: Mɔnu siwo akpe ɖe ŋuwò nàtrɔ ɖe nɔnɔmewo ŋu ahawɔ gbesiagbedɔwo bɔbɔe wu.
- Nuƒoƒo ƒe atikewɔwɔ: Kpekpeɖeŋunana le nuƒoƒo ƒe kuxiwo kple nu mimi ƒe nyawo gbɔ kpɔkpɔ me.
Aƒeme Belélename Ŋuti Aɖaŋuɖoɖowo
Asitɔtrɔ siawo ate ŋu akpe ɖe ŋuwò be wò gbesiagbedɔwo nanɔ bɔbɔe vie. Gake taflatse bia gbe wò ɖɔkta hafi nàwɔ tɔtrɔ gã aɖeke.
- Dzi tsi kple dze nono ɖe edzi (ne wò ɖɔkta da asi ɖe edzi) be wòakpe ɖe ŋuwò nàdzi ʋu ƒe sisi ɖe dzi.
- Do compression stockings be wòakpe ɖe ʋu ƒe sisi ŋu.
- Ƒo asa na tsitretsitsi kpata tso mlɔƒe alo anyinɔƒe. Tso blewu.
- Na wò aba ƒe ta nakɔ ne èle alɔ̃ dɔm.
- Ƒo nuɖuɖu siwo me fibre sɔ gbɔ ɖo, amagbe siwo me aŋgbawo le, kple atikutsetsewo be nàɖu dɔmeɖui dzi.
- Ƒo asa na dzoxɔxɔ si gbɔ eme.
- Nɔ dɔ dzi alesi nàte ŋui be wòakpe ɖe ŋuwò nàxe mɔ ɖe ʋu ƒe sisi nu.
Gbedasi si Wotsɔ Yi Aƒeme
- Multiple System Atrophy (MSA) nye ahɔhɔ̃mekawo ƒe dɔléle si yia ŋgɔ eye wòsẽna ŋutɔ.
- Esi wònye be dzesi gbãtɔwo ɖi Parkinson ƒe dɔléle ta la, ahɔhɔ̃ŋutinunyala gbɔ yiyi be woakpɔ dɔlélea nyuie le vevie.
- Togbɔ be atike aɖeke meli o hã la, atikewo, atikewɔmɔnuwo, kple asitɔtrɔ le agbenɔnɔ ŋu ate ŋu akpɔ dzesiawo gbɔ eye wòana wò agbenɔnɔ nanyo ɖe edzi.
- Ne wò alo ame aɖe si nènya ɖe dzesi siawo fia la, mègahe ɖe megbe le atikewɔlawo ƒe aɖaŋuɖoɖo didi me o. Le mɔzɔzɔ sia me la, ƒomea ƒe lɔlɔ̃ kple kpekpeɖeŋu xɔ asi ŋutɔ.
MSA, Multiple System Atrophy, Ahɔhɔ̃mekawo ƒe dɔléle, Parkinson ƒe dɔléle, Dadasɔ ƒe bu, Ʋuʋu ƒe kuxiwo, Ʋuʋudedi
