Ðe nèsena le ɖokuiwò me ɣeaɖewoɣi be yemegale ŋusẽ kpɔm ɖe yeƒe ŋutilã dzi o vivivia? Mèda sɔ ne èle zɔzɔm o, nusianu nɔa blewu ŋutɔ, edzena abe wò gbe le ʋuʋum ene... Togbɔ be esiawo nye nusiwo sɔ siwo dzɔna ne èle tsitsim hã la, ɣeaɖewoɣi la, woate ŋu anye nɔnɔme aɖe si ŋu míeƒoa nu tsoe fũ o ƒe dzesi, gake ele vevie be míanɔ ŋudzɔ. Egbea míele nu ƒom tso lãmekawo ƒe dɔléle si mebɔ o gake wòsẽa ŋu alea ŋu: Multiple System Atrophy, alo MSA.
Kpuie ko la, nukae nye Multiple System Atrophy (MSA)?
Multiple System Atrophy (MSA) nye dɔléle si gblẽa nu le míaƒe lãmekawo ŋu. Ekpɔa ŋusẽ ɖe míaƒe ŋutilã ƒe dɔwɔwɔ le eɖokui si dzi, le kpɔɖeŋu me, ekpɔa ŋusẽ ɖe míaƒe ʋuʋu dzi eye wòda sɔ . Enye dɔléle si mebɔ kura o.
Nublanuinya lae nye be womekpɔ atike blibo aɖeke na dɔléle sia haɖe o. Gake megatsi dzi o, ne wowɔ atike nyui na mí eye míewɔ tɔtrɔ suesuesuewo le míaƒe agbenɔnɔ me , woate ŋu aɖu dzesi siawo dzi eye agbea nanɔ bɔbɔe wu.
Nukae nye MSA ƒe dzesiwo?
Zi geɖe la, dɔléle sia ƒe dzesiwo dzea egɔme tso ƒe 50 va ɖo ƒe 60. Ame aɖewo tɔtɔa dɔléle eveawo elabena dzesi gbãtɔawo sɔ kple Parkinson ƒe dɔlélea tɔ vie.
| Dzesi gbãtɔ veviwo | |
|---|---|
| Ʋuʋu ƒe kuxiwo | Ŋutilã ƒe ʋuʋu blewu, lãmekawo ƒe sesẽ, kple ʋuʋudedi. |
| Le te | Dadasɔ kple manyamanya ƒe amemabumabu ne èle zɔzɔm alo le dɔ wɔm. |
| Nuƒoƒo sesẽ | Nuwo abe gbe si le ʋuʋum kple nyawo ƒe ɖiɖi ene. |
| Ʋu ƒe sisi ƒe kuxiwo | Alɔ̃madɔmadɔ alo taɖuame, vevietɔ ne ètsi tre kpata tso anyinɔƒe. |
| Aɖuɖɔtoe me kuxiwo | Aɖuɖɔɖɔɖɔ ƒe hiahiã kpata alo ŋutetemanɔamesi be wòakɔ tsinyegoea me keŋkeŋ. |
Tsɔ kpe ɖe esia ŋu la, nu bubuwo ate ŋu agblẽ nu le ame ŋu.
Tsɔ kpe ɖe dzesi vevi siawo ŋu la, nu vevi bubuwo hã ate ŋu akpɔ ŋusẽ ɖe ŋutilãa me.
- Fifia , aɖatsi , kple aɖuɖɔ dodo dzi ɖe kpɔtɔ.
- Dɔmeɖui alo ŋutetemanɔamesi be wòaɖu aɖuɖɔ ƒe ʋuʋu dzi .
- Tsitretsitsi ƒe Dɔmawɔmawɔ nyuie (ED).
- Gbɔgbɔ dzudzɔ le alɔ̃ me (alɔ̃dɔdɔ ƒe gbɔgbɔtsixetsixe) alo fefewɔwɔ le alɔ̃ me, abe ɣlidodo alo wò abɔwo kple afɔwo ƒoƒo ene.
- Ʋuʋudedi.
- Asi kple afɔ siwo fa alo woƒe amadede trɔ.
- Seselelãme, dzimaɖitsitsi, alo blanuiléle dzi ɖuɖu sesẽ.
MSA dɔléle ƒomevi vevi eve li.
Wò ɖɔkta anɔ te ɖe wò dzesi veviwo dzi anya MSA ƒomevi si le ŋuwò.
| MSA ƒomevi | Nu vevi siwo le eme |
|---|---|
| Parkinson ƒe dɔléle ƒomevi (MSA-P) . | Esiae nye ƒomevi si bɔ wu. Dzesi veviawo ɖi Parkinson ƒe dɔlélea ŋutɔ. Lãmetsiwo ƒe sesẽ, ʋuʋu blewu, ʋuʋudedi, kple dadasɔ ƒe kuxiwoe nye nu vevitɔwo. |
| Ahɔhɔ̃mekawo ƒe ƒomevi (MSA-C) . | Dzesi vevitɔe nye be womegate ŋu wɔa nu ɖekae o eye womeda sɔ o. Ate ŋu ana nuƒoƒo, nu mimi, kple nukpɔkpɔ nasesẽ hã. |
Aleke woawɔ anya dɔléle sia?
MSA didi ate ŋu asesẽ vie le gɔmedzedzea me elabena abe alesi míegblɔe va yi ene la, eƒe dzesiwo ɖi Parkinson ƒe dɔlélea ŋutɔ. Eyata ahiã be nàyi ahɔhɔ̃ŋutinunyala gbɔ .
Wò ɖɔkta ado wò kpɔ, aƒo nu tso wò dzesiwo ŋu, eye wòadi tɔtrɔ siwo ava wò ahɔhɔ̃ kple lãmekawo me. Be woaɖo kpe edzi be MSA alo Parkinson ƒe dɔléle le ŋuwò la, woate ŋu awɔ dodokpɔ siwo gbɔna:
- Dodokpɔ si wowɔna le eɖokui si: Dodokpɔ tɔxɛ aɖe si léa ŋku ɖe lãmekawo ƒe dɔwɔwɔ ŋu.
- MRI scan: Be woakpɔe ɖa be tɔtrɔ aɖewo le ahɔhɔ̃a me hã.
- Ʋu ƒe sisi dzidzedze: Wodzidzea ʋu ƒe sisi ne wobɔbɔ nɔ anyi hele tsitrenu.
- ECG dodokpɔ: Be woalé ŋku ɖe dzia ƒe elektrikŋusẽ ƒe dzesiwo ŋu.
- Fifia dodokpɔwo: Dodokpɔ le alesi ŋutilãa fifia ŋu.
Nukae hea MSA vɛ?
Kpuie ko la, amesi ŋu MSA le la tua protein tɔxɛ aɖe si ƒoa ƒu ɖe lãmenugbagbevi siwo doa alɔ lãmeka siwo le ahɔhɔ̃a me la me. Esia nana ahɔhɔ̃a kple aklã ƒe akpa aɖewo vuvu vivivi alo kuna. Eŋutinunyalawo gblɔ be womenya nusi tututu gbɔ nɔnɔme sia tso haɖe o.
Kuxi siwo ate ŋu ado mo ɖa le dɔlélea ta
Le ame geɖe gome la, dzesiawo ate ŋu ava zu kuxi sesẽwo le ƒe ʋɛ aɖewo ko me, eyata ele vevie be woanya nu tso nusiawo hã ŋu.
- Gbesiagbedɔwo wɔwɔ sesẽ.
- Yagbɔgbɔ sesẽ, vevietɔ nɔnɔmewo abe `Alɔ̃dɔdɔ ƒe gbɔgbɔtsixetsixe`.
- Amewo ƒe anyidzedze enuenu.
- Ʋuʋu ƒe sesẽ dzina ɖe edzi vivivi, eye wòhiãna be woazã bunɔkeke eye mlɔeba megate ŋu fɔna tso aba dzi o.
- Gbeɖiɖimɔ̃wo ƒe lãmetutudɔ.
- Nuɖuɖu mimi ƒe ŋutete manɔamesi.
- Aklãdɔlélewo abe aklãdɔ ene.
- Aɖuɖɔtoe me dɔlélewo.
- Ʋu ƒe sisi.
Ɣeyiɣi didi si ame ate ŋu anɔ agbe kple dɔlélea toa vovo tso ame ɖeka gbɔ yi bubu gbɔ. Ame aɖewo ate ŋu anɔ agbe ƒe 15 alo esi wu nenema. Zi geɖe la, kuxi siwo dona tso gbɔgbɔtsixetsixe me gbɔe ku tsona.
Alesi woawɔ atike kple alesi woawɔ akpɔ egbɔe
Esi wònye be atike aɖeke meli koŋ na MSA o ta la, atikewɔwɔ ƒe taɖodzinu vevitɔe nye be woaɖu dzesiawo dzi eye woana agbea naɖe dzi ɖi alesi woate ŋui.
Atikewo kple atikewɔwɔ
- Atikewo abe levodopa, si wozãna tsɔ daa Parkinson ƒe dɔlélea ene, ate ŋu akpe ɖe ame ŋu ɣeaɖewoɣi be wòaɖu ʋuʋudedi, lãmekasese, kple ʋuʋu blewu dzi.
- Ðɔkta ateŋu aŋlɔ atikewo abe `droxidopa`, `fludrocortisone`, alo `midodrine` be woatsɔ akpɔ ʋu ƒe sisi dzi.
- Ɣeaɖewoɣi la, ate ŋu ahiã be woatsɔ dzitodzito ƒe mɔ̃ aɖe awɔ dɔe be wòaɖɔ dzi ƒe tsotso ɖo.
- Atikewo abe mirabegron alo oxybutynin ene ate ŋu akpe ɖe ame ŋu le aɖuɖɔtoe dzi ɖuɖu me. Ɣeaɖewoɣi la, ahiã be woatsɔ aɖuɖɔtoe aɖe akpe ɖe ŋuwò nàɖe aɖuɖɔ.
- Atikewo hã li na gbɔdɔdɔ ƒe dɔmawɔmawɔ nyuie.
Atikewɔwɔ ƒe mɔnuwo
- Lãmesẽfefewɔwɔ kple kamedede ate ŋu ana lãmekawo nasẽ eye woate ŋu atrɔ ɖe nɔnɔmewo ŋu.
- Dɔwɔwɔ ƒe atikewɔwɔ ate ŋu akpe ɖe ŋuwò nàsrɔ̃ alesi nàwɔ gbesiagbedɔwo bɔbɔe wu.
- Nuƒoƒo ƒe atikewɔwɔ kpena ɖe ame ŋu le azɔlizɔzɔ kple nuƒoƒo ƒe kuxiwo me.
Nu siwo wò ŋutɔ nàte ŋu awɔ le aƒeme
Nu siawo ate ŋu akpe ɖe ŋuwò be wò agbe nanɔ bɔbɔe vie, gake mègaŋlɔ be be yeaƒo nu kple wò ɖɔkta hafi awɔ nane o.
- Be ʋu ƒe sisi nadzi ɖe edzi la, tsɔ dze vi aɖe kpe ɖe wò nuɖuɖu ŋu eye nàno tsi geɖe.
- Afɔkpa tɔxɛ siwo wotsɔna ƒoa ʋue dodo be wòakpe ɖe ʋu ƒe sisi ŋu.
- Ƒo asa na fɔfɔ kpata tso anyinɔƒe alo mlɔƒe. Tso blewu.
- Abati ƒe ta dodo ɖe dzi vie ne èle alɔ̃ dɔm.
- Ðu nuɖuɖu siwo me fibre sɔ gbɔ ɖo, amagbewo, kple atikutsetsewo hena dɔmeɖui.
- Ƒo asa na dzoxɔxɔ si gbɔ eme na ŋutilãa.
- Ʋuʋu alesi nàte ŋui be ʋu nagaxe o.
Gbedasi si Wotsɔ Yi Aƒeme
- Multiple System Atrophy (MSA) nye dɔléle sesẽ aɖe si nɔa ŋgɔ yim, si gblẽa nu le lãmekawo ŋu.
- Esi wònye be dzesi siwo dzena le gɔmedzedzea me sɔ kple Parkinson ƒe dɔlélea ta la, ele vevie be woayi ahɔhɔ̃ŋutinunyala gbɔ hafi anya dɔlélea nyuie.
- Togbɔ be womekpɔ atike na dɔléle sia bliboe o hã la, atikewo, atikewɔmɔnuwo, kple agbenɔnɔ ƒe tɔtrɔ ate ŋu aɖu dzesiawo dzi eye wòana agbenɔnɔ nanɔ bɔbɔe.
- Ne dzesi siawo le wò alo ame aɖe si nènya ŋu la, mègatsi dzodzodzoe eye nàdi atikewɔlawo ƒe aɖaŋuɖoɖo kaba ale si nàte ŋui. Ƒomea me tɔwo ƒe kpekpeɖeŋu kple lɔlɔ̃ le vevie ŋutɔ na dɔnɔa le ɣeyiɣi sia me.
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