What happens to your data when you search for health information online? (Data Privacy Explained)

What happens to your data when you search for health information online? (Data Privacy Explained)

Have you ever used an online health website (like WebMD, for example) to learn about an illness, a cure, or a way to stay healthy? We all do, right? But when you search for such information, have you ever thought about what actually happens to the information you give to those websites? While this may seem like a complicated topic, it is important to be aware of this for your safety.

What is 'personal information'?

Simply put, 'Personal Information' is anything that can directly identify you. This can include many things.

  • Your name, home address, email address, phone number.
  • The `IP ADDress` that you use to identify where you connect to the Internet (this is like your computer's Internet address).
  • What you searched for on that website (e.g., searching for 'good foods for diabetes').
  • Things like the articles you've read and the ads you've clicked on.

In addition, some information is classified as ``Sensitive Personal Information.'' Examples of these are:

  • Your national identity card number, driver's license number.
  • Bank account details, credit card numbers.
  • `GPS` data that shows exactly where you are (`Precise Geolocation`).
  • Details like your race and religion.
  • Information you entered yourself about your health conditions.

However, publicly available information in government records, or data that has been de-identified or aggregated so that you cannot be identified in any way, does not fall into this category of 'personal information'.

How do these websites collect your information?

There are several main methods for this.

1. Directly from you: When you create an account on a website, you give them things like your name and email, right? That's how they collect the information you give them.

2. Indirectly from your activities: This is where it gets a little more complicated. Imagine you read an article about diabetes . Then you start seeing ads for diabetes-related medications and devices on Facebook and other websites. This happens because of cookies and other tracking technologies.

  • What are cookies? These are small data files that are stored in your browser when you visit a website. They can recognize your browser and remember what you do on that site. They are used to show you relevant ads.

3. From other parties: Sometimes these websites buy information about users from other companies to better manage their services and understand user preferences.

What do they do with this information they collect?

They use this collected information for various business purposes. Let's see what the main purposes are.

Purpose of use Simple explanation
Improving services Study how users like you use the website and make it more convenient and useful.
Communicating with you Get your questions answered, and send emails about articles and news you think are important.
Showing advertisements Show ads that match your interests (targeted advertising) both on and off the website (on other websites).
Research and analysis Study user behavior patterns, measure the success of ads, and understand the service as a whole.
Ensuring safety Protect the website and its users from fraudulent activities and other threats.

What rights do you have?

Countries like the United States have strict data privacy laws. These laws give users certain rights. It is very important to be aware of these.

  • Right to Know: You have the right to ask what information a website has collected about you, how it was collected, and with whom it was shared.
  • Right to Delete: You can ask for the personal information we have collected about you to be deleted. However, sometimes they may not be able to fully comply with that request, for reasons such as legal reasons.
  • Right to Correction: If any information about you is incorrect, you have the right to request that it be corrected.
  • Right to Opt-Out of Sale or Sharing: This is a very important right. You can ask us to stop “selling” or “sharing” your information with other parties for purposes such as showing you advertisements.

Many websites have a link at the bottom that says “Do Not Sell or Share My Personal Information” or “AdChoices.” These allow you to control your information.

How to exercise these rights?

Typically, websites like this clearly state how to exercise these rights on their “Privacy Policy” page. They may provide a dedicated phone number or online form for this.

When you make such a request, they may ask you for certain information (e.g., email address, name) to verify that it is you . This is done to protect your information.

Take-Home Message

  • When you search for health information online, it's important to be aware of what happens to the data you enter and the data collected from your activities.
  • Cookies are a technology used to show ads that are relevant to your interests and improve your experience on websites.
  • You have the right to know about your personal information, delete it, correct it, and stop sharing it for advertising.
  • Always read a website's 'Privacy Policy' and 'Cookie Policy'. They detail how your data is managed.
  • If you have any concerns about your health, do not rely solely on internet information, but always consult your doctor for proper advice.

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How to exercise these rights?

Typically, websites like this clearly state how to exercise these rights on their “Privacy Policy” page. They may provide a dedicated phone number or online form for this.

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