Ke mālama ʻia nei ʻoe ma hope o ka ʻike ʻia ʻana me ka B-Cell Lymphoma, i kekahi lā, ʻōlelo mai kāu kauka, "Aia ʻoe i kēia manawa i ke 'remission'." He ʻōlelo hōʻoluʻolu a me ka manaʻolana kēlā. He hanana koʻikoʻi loa ia i kāu huakaʻi mālama. I ka ʻōlelo maʻalahi, ʻo ia hoʻi, ʻaʻole hana hou kāu kanesa, a i ʻole ua haʻalele ia i kou kino.
He aha nā ʻano o ke 'kala ʻana'?
E haʻi aku kāu kauka iā ʻoe aia ʻoe i ke 'kala ʻana' inā hōʻike nā scan ua emi nui ka maʻi kanesa i loko o kou kino, a i ʻole inā ʻaʻohe hōʻailona o ka maʻi kanesa e loaʻa. ʻElua ʻano nui o kēia. E nānā kākou i ke ʻano o lākou.
| ʻAno hoʻokuʻu | He aha kēlā manaʻo? |
|---|---|
| Kala ʻāpana | ʻO ke ʻano kēia, ua liʻiliʻi kou maʻi kanesa lymphoma B-cell ma mua o ka wā ma mua, akā aia nō ia i loko o kou kino. ʻO ke ʻano maʻamau kēia ua emi ka hapalua o ke kanesa. |
| Kala piha ʻana | I kēia hihia, ʻaʻole hiki i kāu kauka ke ʻike i kekahi mau hōʻailona o ke kanesa ma nā scan a i ʻole nā hoʻokolohua ʻē aʻe. Eia nō naʻe, aia nō paha kekahi mau hunaola kanesa i koe i loko o ke kino. Akā ua liʻiliʻi loa lākou ʻaʻole hiki ke ʻike ʻia e nā hoʻokolohua. |
Ke hoʻāʻo nei kēlā me kēia kauka e hoʻihoʻi iā ʻoe i ke kala piha. Me kekahi mau ʻano lymphoma, aia kahi manawa kūpono e hoʻokō ai i kēlā pahuhopu. Akā me nā ʻano ʻē aʻe, ʻoiai ke kala hapa ʻana ua manaʻo ʻia he holomua nui.
ʻO ke ʻano o ke "kala ʻana" ua ho'ōla loa ʻia ʻoe?
Eia kekahi mea nui loa. ʻOiai ʻoe i loko o ke 'remission,' aia kahi manawa e hoʻi hou mai ai kāu lymphoma. Akā no ka mea ʻaʻole hana ka maʻi kanesa i kēlā manawa, hiki paha iā ʻoe ke hoʻōki i ka lāʻau lapaʻau a hoʻomaha paha mai ka lāʻau lapaʻau.
ʻAʻohe mea hiki ke ʻōlelo maopopo i ka lōʻihi o ke kala ʻana , ʻo ia ke kumu e pono ai ʻoe a me kāu kauka e makaʻala iā ia.
No kēia kumu, pono ʻoe e hoʻomau i ka ʻike ʻana i kāu kauka no nā hoʻokolohua e hōʻoia i ka ulu ʻole ʻana o kāu lymphoma a i ʻole e hoʻi mai ana. Hoʻohana wale kekahi mau kauka i ka huaʻōlelo "cured" no nā maʻi i hoʻomaha ʻia no 5 mau makahiki a ʻoi aku paha.
No kekahi poʻe, ʻaʻole e nalowale loa ka lymphoma. Lilo ia i maʻi mau loa, e like me ka maʻi diabetes a i ʻole ka arthritis. I ia mau hihia, pono paha ʻoe e hoʻomau i ka lawe ʻana i kekahi ʻano lāʻau e pale ai i ka laha ʻana o ke kanesa a kāohi i kāu mau hōʻailona.
Pehea e nānā ai ke kauka no ka hoʻi hou ʻana o ke kanesa? (Cancer Relapse)
E nānā pono kāu kauka iā ʻoe no nā hōʻailona o ka lymphoma e hoʻi hou mai ana (relapse). Inā hana ʻia kēlā, pono e hoʻomaka hou ʻia ka lāʻau.
I ka hoʻomaka ʻana, pono ʻoe e ʻike i kāu kauka i kēlā me kēia mau mahina. Akā i kou noho ʻole ʻana i ka maʻi kanesa no nā mahina a i ʻole nā makahiki, e emi paha ke alapine o nā nānā ʻana.
I kēlā me kēia manawa, e nānā ke kauka iā ʻoe a nīnau inā he mau hōʻailona hou kāu. Hiki iā lākou ke hana i nā hoʻokolohua koko a i kekahi manawa CT scans a i ʻole PET scans .
Inā hōʻike kēia mau hoʻokolohua i kekahi mau hōʻailona o ke kanesa, hana ʻia kahi biopsy e hōʻoia inā ua hoʻi maoli ka lymphoma. Ma kēia hoʻokolohua, wehe ke kauka i kahi ʻāpana liʻiliʻi a i ʻole ke kikowaena holoʻokoʻa mai kahi kikowaena lymph a hoʻouna iā ia i kahi lab e nānā i nā hunaola kanesa.
He aha nā hōʻailona o ka hoʻi hou ʻana?
ʻIke pinepine ʻia nā hōʻailona ke hoʻi mai ka lymphoma B-cell (relapse). Loaʻa paha iā ʻoe nā hōʻailona like i loaʻa iā ʻoe i ka wā i loaʻa mua ai ka maʻi, a i ʻole he ʻokoʻa paha kāu mau hōʻailona i kēia manawa.
ʻO ka mea nui, hiki ke hana ʻia kēia mau hōʻailona e nā maʻi ʻē aʻe. No ka laʻana, hiki i ke kuni a me nā ʻōpū pehu ke lilo i mau hōʻailona o kahi maʻi, e like me ka maʻi palū. No laila, mai makaʻu ua hoʻi mai ke kanesa no ka mea ua loaʻa iā ʻoe kēia mau hōʻailona. Akā inā ʻike ʻoe i kahi mea e like me kēia, ʻoi aku ka maikaʻi e ʻike i ke kauka a nānā.
| Nā hōʻailona maʻamau o ka hoʻi hou ʻana o ka lymphoma | |
|---|---|
| Nā ʻōpū lymph pehu (nā hōʻailona) | Ka pehu ʻana o ka ʻāʻī, nā ʻāʻī lima, a i ʻole ka ʻūhā. |
| kuni | Ke kuni e hele mai me ke kumu ʻole. |
| Nā hou o ka pō | E hou nui ana i ka pō a pulu nā pepa moe. |
| Hana paʻakikī | Ka luhi nui, ʻoi aku ma mua o ka maʻamau. |
| Ka emi ʻana o ke kaumaha | Ka pohō kaumaha i manaʻo ʻole ʻia me ka ʻole o ka hoʻoikaika ʻana. |
He aha nā lāʻau lapaʻau no ka hoʻi hou ʻana o ka maʻi?
Hiki i kāu kauka ke ʻōlelo aku e hana hou i ka lāʻau like i hāʻawi ʻia iā ʻoe ma mua, a i ʻole e ʻōlelo paha lākou i kahi lāʻau hou. ʻO ka lāʻau āu e loaʻa ai e hilinaʻi ʻia ma kekahi mau kumu.
- ʻO ke ʻano o ka lymphoma B-cell āu e loaʻa ai.
- He aha nā lāʻau lapaʻau āu i loaʻa ai ma mua a pehea ka holomua o lākou.
- He aha nā hopena ʻaoʻao āu i ʻike ai i nā lāʻau lapaʻau i hala a me ka nui o ko lākou hoʻopilikia iā ʻoe.
- Nā hopena o kāu hoʻāʻo.
- Kou mau hōʻailona.
- ʻEhia ka lōʻihi o ka manawa mai kāu lāʻau lapaʻau hope loa?
ʻO nā hoʻomaʻamaʻa no ka hoʻi hou ʻana o ka lymphoma e hiki ke komo pū me:
- He ʻano chemotherapy ʻokoʻa ia ma mua o ke ʻano ma mua.
- Hoʻōla radiation .
- He hoʻoili ʻana o nā pūnaewele kumu .
- Nā lāʻau lapaʻau i kuhikuhi ʻia .
Eia kekahi, hiki i kāu kauka ke kuhikuhi i ka immunotherapy . Eia kekahi laʻana:
- Nā antibodies monoclonal
- ʻO ka lāʻau lapaʻau CAR T-cell
I ka manawa pinepine, ʻoi aku ka ikaika o ka lāʻau i hāʻawi ʻia i ka wā e hoʻi hou mai ai ka maʻi ma mua o ka lāʻau i hāʻawi ʻia i ka wā i ʻike mua ʻia ai ʻoe me ka lymphoma B-cell.
Leka Lawe-Home
- He ʻanuʻu maikaʻi loa ka 'Remission' i kāu huakaʻi mālama ʻana i ka maʻi kanesa. ʻO ia hoʻi, ʻaʻole hana hou ka maʻi kanesa, a ua emi paha kona nui.
- ʻElua ʻano o ke "Remission": "Partial" a me "Complete".
- ʻO ke ʻano o ke "kala ʻana" ʻaʻole ia he manaʻo mau e "ho'ōla loa ʻia." No laila, he mea nui e ʻike i kāu kauka i ka manawa kūpono no nā hoʻokolohua hahai.
- Inā ʻike hou ʻia nā hōʻailona e like me ke kuni a me nā ʻōpū lymph pehu, mai hopohopo, akā mai hoʻomāmā a nīnau koke aku i kāu kauka no ka ʻōlelo aʻo.
- ʻO ka mea pōmaikaʻi, ʻoiai inā hoʻi hou ka lymphoma (relapse), aia kekahi mau lāʻau lapaʻau kūpono no kēlā. No laila, mai hoʻopau i ka manaʻolana.
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