He ʻano "maka bipi" kou i loko o kou mau maka? E aʻo kākou e pili ana i kēia (Bull's Eye Maculopathy)!

Pehea ʻoe? I kēia lā, e kamaʻilio ana mākou e pili ana i kahi maʻi maka i ʻike ʻole ʻia, akā he mea nui loa. I kekahi manawa hiki i ko mākou mau maka ke hoʻololi i ke ʻano o kā mākou ʻike ʻana me ka ʻike ʻole ʻia. Ua lohe anei ʻoe i kahi ʻano e like me kahi pahuhopu ma kahi papa pahuhopu? ʻO ia ka mea e hana ʻia ma kēia kūlana i kapa ʻia ʻo "Bull's Eye Maculopathy". He ʻano ʻē iki ka inoa, ʻeā? Akā, mai hopohopo, e kamaʻilio kākou e pili ana i ia mea me nā kikoʻī a me ka maʻalahi.

He aha ka "Bull's Eye Maculopathy"? I ka ʻōlelo maʻalahi loa...

He maʻi laha ʻole ka Bull's Eye Maculopathy e hoʻonāwaliwali mālie ai nā pūnaewele i loko o ka macula, ka ʻāpana koʻikoʻi o ka retina, a ʻoi aku ka pololei, e palaho.

E noʻonoʻo, inā like kou maka me ke kāmela, ua like ka retina me ke kiʻiʻoniʻoni a i ʻole ka sensor ma hope o ke kāmela. Hoʻopaʻa ʻia nā kiʻi a mākou e ʻike ai ma laila. Ma waenakonu o ka retina, aia kahi wahi liʻiliʻi akā koʻikoʻi loa e kōkua iā mākou e ʻike maopopo a ʻoi i nā mea. ʻO ia ka mea i kapa ʻia ʻo ka macula. Kōkua kēia macula iā mākou e ʻike maopopo i nā kikoʻī liʻiliʻi, e like me ka wā e heluhelu ai mākou i kahi puke, e nānā i ka maka o ke kanaka, a i ʻole ke hoʻopili mākou i kahi kaula lahilahi.

No laila, ma ka "Bull's Eye Maculopathy", i ka wā e hōʻino ʻia ai nā pūnaewele i loko o kēia "macula", i ka wā e nānā ai ke kauka i loko o ka maka, ʻike lākou i kahi ʻano o nā apo i hoʻololi ʻia ke kala i loko o kēlā "macula". Loaʻa kona inoa no ka mea ua like ia me nā apo ma kahi pahuhopu pana pua (ʻano maka bipi). Hiki i kēia kūlana ke alakaʻi i ka nalowale mau loa o ka ʻike.

Hiki ke hoʻoilina ʻia kēia maʻi (ʻo ia hoʻi, i hoʻoili ʻia mai kou mau mākua ma o nā genes). I kekahi manawa, kapa nā kauka i kēia ʻano hoʻoilina o "Bull's Eye Maculopathy" ʻo "Benign Concentric Annular Macular Dystrophy (BCAMD)". Hiki nō hoʻi ke ulu aʻe ma muli o nā maʻi maka ʻē aʻe a i ʻole he hopena ʻaoʻao o ka hoʻohana lōʻihi ʻana i kekahi mau lāʻau lapaʻau .

Hiki ke weliweli kekahi pilikia ʻike maka. Akā hiki i kāu kauka ke kōkua iā ʻoe e ʻike i ke kumu a hāʻawi iā ʻoe i ka lāʻau lapaʻau a me ke kākoʻo āu e pono ai e hoʻoponopono i ke kūlana.

He aha nā hopena o ka Bull's Eye Maculopathy i ka ʻike?

Hoʻokumu ʻia ka Bull's Eye Maculopathy e ka hōʻino ʻia ʻana o nā cell e kōkua iā mākou e ʻike i nā mea. No laila, hiki i kēia ke hoʻopilikia i kou ʻike waena i nā pae like ʻole.

• Hiki i kekahi poʻe ke paʻakikī ke ʻike maopopo i nā kikoʻī liʻiliʻi.
• ʻAʻole paha ʻoe e hiki ke hoʻokaʻawale pono i nā kala, a i ʻole e emi paha kāu ʻike kala.
• Hiki ke emi iho ka ʻike i ka pō.
• I ka nāwaliwali ʻana o ka ʻike waena , hiki ke paʻakikī ke heluhelu i nā puke, hoʻokele kaʻa, a ʻike pololei i nā mea i mua.
• Hiki i kēia maʻi ke hoʻopili i hoʻokahi maka a i ʻole nā ​​​​maka ʻelua.

Akā i ka hapanui o ka manawa, ʻaʻohe pilikia nui o ka poʻe me ka Bull's Eye Maculopathy me ko lākou ʻike peripheral - ʻo ia hoʻi, ka mea hiki iā lākou ke ʻike ma waho o ke kihi o ko lākou maka. Eia nō naʻe, no ka mea he ʻano holomua kēia, hiki i ka ʻike ke ʻoi aku ka ʻino i ka hala ʻana o ka manawa .

ʻO wai ka mea i ʻoi aku ka pilikia o ka hoʻomohala ʻana i ka "Bull's Eye Maculopathy"?

ʻO kahi "mea pilikia" he mea ia e hoʻonui ai i ka manawa kūpono o ka loaʻa ʻana o kahi maʻi. Aia kekahi mau mea pilikia no ka "Bull's Eye Maculopathy":

• Inā loaʻa i kekahi o ka ʻohana ka "Bull's Eye Maculopathy" (he moʻolelo hoʻoilina).
• ʻO ka loaʻa ʻana o nā maʻi maka ʻē aʻe e like me ka macular degeneration .
• ʻO kekahi mau kūlana hoʻoilina , no ka laʻana, ka maʻi Batten a i ʻole ka maʻi Stargardt.
• ʻO ka hoʻohana lōʻihi ʻana i kekahi mau lāʻau lapaʻau, ʻoiai nā mea i hoʻohana ʻia e mālama i nā maʻi autoimmune (nā maʻi autoimmune, ma nā huaʻōlelo maʻalahi, he mau kūlana ia e hoʻouka ai ka ʻōnaehana pale ponoʻī o kou kino i kāu mau hunaola olakino ponoʻī).

Pehea ka maʻamau o kēia ʻano?

He maʻi laha ʻole ka Bull's Eye Maculopathy. Eia kekahi laʻana, ma ʻAmelika Hui Pū ʻIa, he kakaikahi wale nō ka poʻe i loaʻa i kēia maʻi. No laila, mai hopohopo inā ʻike ʻoe i kekahi mau loli i kou ʻike.

He aha nā kumu o ka "Bull's Eye Maculopathy"?

Aia kekahi mau kumu e hiki ai ke hana ʻia kēia:

1. Nā ʻIke Hoʻoilina:

ʻO ka Bull's Eye Maculopathy, i ʻike ʻia hoʻi ʻo BCAMD, he maʻi autosomal dominant. I ka ʻōlelo maʻalahi, inā loaʻa i kekahi o nā mākua kahi gene mutated no ka maʻi, aia he 50% ka manawa e hoʻoilina ai kā lāua keiki i ka maʻi. ʻO kēia mau genes nā ʻāpana o kā mākou DNA e mālama i ka ʻike i loko o ko mākou kino.

2. Nā maʻi ʻē aʻe:

ʻO nā maʻi maka ʻē aʻe, e like me ka cone-rod dystrophy a i ʻole retinitis pigmentosa, hiki ke hana i ka Bull's Eye Maculopathy. Eia kekahi, e like me ka mea i ʻōlelo ʻia ma mua, ʻo ka poʻe me nā maʻi genetic e like me ka maʻi Batten a i ʻole ka maʻi Stargardt e pilikia pū ana i ka loaʻa ʻana o kēia maʻi.

3. ʻAkika:

Hiki i kekahi mau mea, ʻoiai kekahi mau lāʻau lapaʻau, ke hōʻino i nā cell ma ke kikowaena o kou ʻike (ka macula). No ka laʻana, ʻo ka hoʻohana lōʻihi ʻana i nā lāʻau lapaʻau e like me chloroquine a i ʻole hydroxychloroquine, i hoʻohana ʻia e mālama i nā kūlana e like me ka rheumatoid arthritis a i ʻole lupus, hiki ke hana i ka Bull's Eye Maculopathy.

Eia kekahi, hiki i ka poʻe e pono ke hoʻoili koko pinepine ke loaʻa i kahi maʻi i kapa ʻia ʻo hemochromatosis (iron overload). Hiki i kēia ke hōʻino i kou macula.

Pehea e hana ai ka lāʻau lapaʻau `(Hydroxychloroquine)` i ke kumu `(Bull's Eye Maculopathy)`?

ʻAʻole maopopo loa i nā loea pehea e hana ai kēia. Akā, hōʻike ka noiʻi e hiki i ka lāʻau ke hoʻopaʻa i nā pūnaewele i loko o kou retina a hoʻopilikia i ke ʻano o ka hana ʻana o kēlā mau pūnaewele. Hana pinepine kēia i ka wā e lawe ai ʻoe i nā lāʻau kiʻekiʻe no ka manawa lōʻihi. ʻO ia ke kumu e paipai ai nā kauka i nā hoʻokolohua maka maʻamau no ka poʻe e lawe ana i kēia mau lāʻau.

He aha nā hōʻailona o ka "Bull's Eye Maculopathy"?

Hoʻopilikia nui kēia ʻano i ka ʻike. Hiki i nā hōʻailona ke komo pū me:

• ʻIke pōwehiwehi a noe paha.
• Ke ʻike nei i nā kiko ʻeleʻele a i ʻole nā ​​​​​​aka ʻeleʻele i kāu kahua ʻike.
• Ka paʻakikī i ka ʻike ʻana i nā kala a i ʻole ka makapō kala piha.
• Ke ʻike ʻana i nā mea e like me nā kaula e lana ana i mua o nā maka (nā eye floaters) a i ʻole ka ʻike ʻana i nā kukui uila.
• ʻIke haʻahaʻa loa .

E hoʻomanaʻo, mai manaʻo he Bull's Eye Maculopathy kou no ka mea he hoʻokahi a ʻelua paha o kēia mau hōʻailona kou. Hiki i kēia ke lilo i mau hōʻailona o nā maʻi maka ʻē aʻe. No laila, he mea nui e ʻimi i ke kōkua lapaʻau.

Pehea ke ʻano o ka "Bull's Eye Maculopathy" i loko o ka maka?

ʻAʻole kēia he mea hiki iā ʻoe ke ʻike ma ka nānā ʻana i ke aniani. E nānā kekahi kauka maka i kou macula a me ka retina me ka hoʻohana ʻana i kahi mea hana kūikawā i kapa ʻia he ophthalmoscope e hoʻoholo ai inā loaʻa iā ʻoe a ʻaʻole paha.

ʻO ka maʻamau, ʻike ʻia kēia ʻano "maka bipi" ma ke ʻano he kikowaena poepoe a ʻeleʻele me kekahi mau apo kala māmā a puni. Hōʻike ke kikowaena ʻeleʻele i ka retina maʻamau. He ʻano ʻē nā apo a puni. Hiki i kēia mau apo ke ʻalani māmā, poni, a poni paha. Hoʻokumu ʻia kēia mau kala like ʻole e ka hōʻino a i ʻole ka degeneration ma ke kikowaena o ka ʻike (ka macula).

Pehea e ʻike ʻia ai ka maculopathy o ka maka o Bull?

Hiki i kāu kauka ke hana i kekahi mau hoʻokolohua maka e hoʻoholo ai inā loaʻa iā ʻoe ka Bull's Eye Maculopathy. ʻO kekahi o lākou:

• Hoʻāʻo ʻike maka: He hoʻāʻo kēia e ʻike ai i kou ʻike pono ʻana. E noi ʻia ʻoe e heluhelu i kahi pakuhi leka maʻamau (he "Snellen chart") a i ʻole kahi monitor me nā nui like ʻole o nā leka. E hoʻāʻo ʻia kou ʻike me nā maka ʻelua a me kekahi maka i pani ʻia ma kahi kaʻawale.
• Hoʻāʻo kahua ʻike maka:E nānā kēia i kāu ʻike waena a me ka ʻike peripheral. Hiki iā ia ke haʻi iā ʻoe inā he mau wahi makapō kou. Hiki ke noi ʻia ʻoe e nānā i kahi grid o nā laina, a i ʻole e noi ʻia ʻoe e hoʻā i nā kukui a hoʻoneʻe paha i kou mau lima e ʻike i ka mamao e hiki ai iā ʻoe ke ʻike i mua ou a i nā ʻaoʻao.
• Hoʻāʻo ʻike kala: Hōʻike ʻia ʻoe i kahi kiʻi i hana ʻia me nā kiko kala me kahi helu ma waena (hoʻāʻo papa kala). Inā ʻaʻole hiki iā ʻoe ke ʻike i ka helu, he makapō kala paha kou. Hiki iā ʻoe ke hoʻohana i kahi mea i kapa ʻia he anomaloscope e ʻike pehea ʻoe e ʻike ai i ka mālamalama a me ka ʻōlinolino o nā kala.
• Ophthalmoscopy: Pili kēia i ka hoʻonui ʻana i nā pupils me nā kulu maka. A laila, hoʻohana ʻia kahi ophthalmoscope e nānā i kou cornea, lens, retina, macula, optic nerve, a me nā kīʻaha koko e hoʻopuni ana. Ua kapa ʻia kēia hoʻāʻo he fundoscopy.
• Hoʻāʻo Optical coherence tomography (OCT): He hoʻāʻo ʻeha ʻole kēia. Hoʻohana ia i nā nalu māmā e lawe i nā kiʻi kikoʻī loa, ʻekolu-dimensional (3D) o nā papa o kou retina, ʻoiai ka macula, ma waenakonu o kou ʻike. Hiki i kēia hoʻāʻo ke ʻike i ka hōʻino a me ka degeneration i loko o ka macula ma mua a ʻoi aku ka maopopo ma mua o nā hoʻāʻo ʻē aʻe.
• Hoʻāʻo kiʻi autofluorescence fundus (FAF): He ʻano hana kiʻi hou kēia. Hoʻohana ia i kahi kukui polū e nānā i nā cell pigmented i loko o kou retina. Hoʻopili a hōʻike paha kekahi mau cell i kēia kukui ma ke ʻano ʻokoʻa ma mua o nā mea ʻē aʻe. Kōkua kēia i ke kauka e ʻike inā he pōʻino a luku ʻia paha i ka retina.

Hiki ke ho'ōla loa ʻia ka Bull's Eye Maculopathy?

ʻO ka mea kaumaha, ʻaʻohe lāʻau lapaʻau piha i loaʻa no ka "Bull's Eye Maculopathy".

Pehea e mālama ʻia ai ka Bull's Eye Maculopathy?

ʻAʻohe lāʻau lapaʻau i kēia manawa e hiki ai ke hoʻihoʻi i ka ʻike i nalowale ma muli o ka "Bull's Eye Maculopathy." Eia nō naʻe, inā ua hana ʻia ke kūlana e ka lāʻau lapaʻau a i ʻole ka nui o ka hao i loko o ke kino (ʻawaʻawa), ʻo ka hoʻōki ʻana i ka lāʻau lapaʻau a i ʻole ka kaohi ʻana i nā pae hao e hiki ke pale a kaohi paha i ka maʻi mai ka ʻino ʻana.

I ka hapanui o nā hihia, ʻo ka pahuhopu nui o ka lāʻau lapaʻau ke kōkua i nā mea maʻi e ola me nā kūlana e like me ka nalowale o ka ʻike a me ka makapō kala. Hiki i kāu kauka ke ʻōlelo i kēia mau mea:

• ʻenehana kōkua: No ka laʻana, nā mea hoʻonui wikiō, nā mea hoʻolele kiʻi, a i ʻole nā ​​mea heluhelu pale.
• Nā aniani maka a i ʻole nā ​​​​aniani hoʻopili.
• Hoʻōla hou ʻana i ka ʻike haʻahaʻa a i ʻole ka hana lapaʻau: Ke aʻo aku nei kēia iā ʻoe i nā ʻano hana like ʻole a me nā ʻano hana e hana ai i nā hana o kēlā me kēia lā me ka ʻike i hoʻemi ʻia.
• Nā mea kōkua ʻike: Nā mea e like me nā mea hoʻonui lima lima, nā telescope, a i ʻole nā ​​​​aniani kānana mālamalama.

He aha ka manaʻo no kekahi me ka "Bull's Eye Maculopathy"?

ʻO ka nalowale o ka ʻike i hoʻokumu ʻia e ka Bull's Eye Maculopathy he mau loa ia a hiki ke holomua i ka hala ʻana o ka manawa . Eia nō naʻe, e like me ka mea i ʻōlelo ʻia ma mua, inā ua hoʻokumu ʻia ka pōʻino o ka macular e kahi mea ʻawaʻawa, ʻo ka pale ʻana i ka mea ʻawaʻawa e kōkua paha i ka pale ʻana i ke ʻano mai ka ʻino ʻana.

Aia kekahi ala e pale aku ai i ka "Bull's Eye Maculopathy"?

ʻO kaʻoiaʻiʻo, ʻaʻohe ala kikoʻī e pale aku ai i ka ulu ʻana o ka "Bull's Eye Maculopathy".

Eia nō naʻe, no ka mea, aia kekahi mau lāʻau lapaʻau (e like me ka hydroxychloroquine) i kahi pilikia o ke kumu o kēia ʻano, inā e lawe ʻia kēlā mau lāʻau lapaʻau i ka wā lōʻihi, hiki i nā hoʻokolokolo maka mau e like me ka ʻōlelo a ke kauka ke kōkua i ka ʻike mua ʻana i kekahi pōʻino a pale i ka maʻi mai ka ʻino ʻana.

He aha nā nīnau e pono iaʻu e nīnau aku i kaʻu kauka e pili ana i ka "Bull's Eye Maculopathy"?

Inā loaʻa iā ʻoe ka "Bull's Eye Maculopathy", makemake paha ʻoe e nīnau i kāu kauka i kekahi mau nīnau e like me:

• "E ke kauka, aia kekahi mau lāʻau lapaʻau aʻu e lawe nei i kēia manawa e hiki ai ke hoʻonui i kēia maʻi?"
• "Aia kekahi mau mea hoʻohui meaʻai e hiki ke kōkua i ka hoʻomaikaʻi ʻana i koʻu ʻike maka?"
• "Pehea e hiki ai iaʻu ke hana i koʻu ola o kēlā me kēia lā me kēia nalowale o ka ʻike? He aha kekahi mau ala e hiki ai iaʻu ke loaʻa ke kōkua me ia?"
• "Pehea lā wau e ʻike ai inā palekana nō iaʻu ke hoʻokele?"
• "He mau loa anei kēia nalowale ʻana o koʻu ʻike?"
• "Pehea lā ka paʻakikī o ka ʻino ʻana o koʻu ʻike?"

He maʻi laha ʻole ka Bull's Eye Maculopathy. Inā ʻike ʻoe i kekahi mau loli i kou ʻike, ʻaʻole paha ia he kumu o kēia maʻi. Eia naʻe, mai hoʻowahāwahā i kekahi pilikia ʻike. ʻOiai hiki ke hopohopo a hoʻoluhi ka nalowale ʻana o kou ʻike, aia nā ala e hoʻoponopono ai. Hiki i kāu kauka ke kuhikuhi iā ʻoe i nā mea kōkua ʻike, nā lawelawe kākoʻo, a me nā lāʻau lapaʻau āu e pono ai.

Inā ʻike ʻoe i kekahi mau loli i kou ʻike, ka ʻike pōwehiwehi, a i ʻole nā ​​hōʻailona hou ʻē aʻe, e ʻike koke i ke kauka. Me ka nānā ʻole i ke kumu o kou nalowale ʻana o ka ʻike, hiki i ka mālama mua ke lohi, hoʻōki, a hiki paha ke hoʻohuli i nā pilikia ʻike.

Nā mea nui e hoʻomanaʻo (Leka Lawe-Home)

ʻAe, e hōʻuluʻulu kākou i kekahi o nā mea a mākou i kamaʻilio ai i kēia lā e ʻike paha ʻoe he mea nui:

• He maʻi maka laha ʻole ka Bull's Eye Maculopathy kahi i hōʻino ʻia ai ke kikowaena o ka ʻike (macula) i loko o ka maka, e hopena ana i kahi ʻano like me ka "bull's eye".
• Hiki i kēia ke hoʻonāwaliwali i ka ʻike waena. Hiki i kēia ke hoʻopilikia i nā mea e like me ka heluhelu ʻana i nā puke a me ka ʻike ʻana i nā helehelena.
• Hiki ke hana ʻia kēia e nā kumu hoʻoilina, nā maʻi ʻē aʻe, a me ka hoʻohana lōʻihi ʻana i kekahi mau lāʻau lapaʻau .
• ʻAʻohe lāʻau lapaʻau paʻa no kēia maʻi i kēia manawa. Eia nō naʻe, aia nā ala e kōkua ai i ka mālama ʻana i nā hōʻailona a hoʻomaʻalahi i ke ola.
• Inā ʻike ʻoe i kekahi mau loli i kou ʻike, he mea nui e ʻike koke i ke kauka maka. Hiki i ka ʻike koke ʻana a me ka mālama ʻana ke kōkua i ka pale ʻana i ka ʻino ʻana o ke kūlana.

ʻO kou kuleana ka mālama ʻana i kou mau maka. He kukui nui nā maka olakino i ke ola.

ʻO ka Maculopathy o ka maka o Bull, maʻi maka, kikowaena ʻike maka, macula, nalowale o ka ʻike maka, hoʻokolokolo maka, hydroxychloroquine