E noʻonoʻo ʻoe e ʻakaʻaka ana ʻoe me kāu mau hoaaloha a hāmama koke kou ʻauwae, a kūlou koke paha kou ʻāʻī i mua. A i ʻole ke kamaʻilio huhū nei ʻoe me kekahi, hāʻule koke kou mau kuli a pono ʻoe e noho ma ka papahele. Ua loaʻa anei iā ʻoe kēia ʻike? Mai makaʻu. Eia wau i kēia lā e kamaʻilio e pili ana i kēia maʻi. I ka lāʻau lapaʻau, kapa mākou i kēia cataplexy.
He aha maoli ka cataplexy?
I ka ʻōlelo maʻalahi, ʻo ka cataplexy ka wā e ʻike ai ʻoe i ka nalowale koke a pōkole o ka hana ʻiʻo i kou ala ʻana, i ka wā e ʻike ai ʻoe i kahi manaʻo ikaika e like me ka ʻakaʻaka, ka pīhoihoi, a i ʻole ka huhū. He hōʻailona koʻikoʻi kēia o kahi maʻi hiamoe i kapa ʻia ʻo narcolepsy. ʻO ka Narcolepsy kahi maʻi mau (ola holoʻokoʻa) e hoʻoulu ai i ka hiamoe i ke ao hiki ʻole ke kāohi.
Hiki i ka Cataplexy ke hoʻonāwaliwali i nā ʻiʻo e hiki ke ʻano mai ka liʻiliʻi a i ka koʻikoʻi. No ka laʻana, hiki iā ʻoe ke nalowale wale i ka mana o kou mau ʻiʻo maka, e hoʻomoe ana i kou ʻauwae, a i ʻole e kūlou iki kou ʻāʻī i mua. I nā hihia koʻikoʻi, hiki iā ʻoe ke nalowale i ka mana āpau o kou kino a hāʻule i ka honua.
Akā ʻo ka mea nui loa ma ʻaneʻi, ʻo ia kou ʻike piha ʻana i ka wā e hana ʻia ai kēia . ʻAʻole ʻoe e nalowale ka ʻike e like me kāu e hana ai i ka wā o ka syncope a i ʻole ka hopu ʻana.
ʻO ka maʻamau, he mau kekona wale nō a i kekahi mau minuke wale nō kēia kūlana. A laila e hoʻomaikaʻi ia ma kāna iho. Loaʻa i kekahi poʻe i nā manawa he nui i ka lā, aʻo kekahi poʻe e loaʻa i hoʻokahi a ʻelua paha i ka makahiki.
He aha ka ʻokoʻa ma waena o ka cataplexy a me ka narcolepsy?
He nui ka poʻe e huikau i nā mea ʻelua. ʻO Cataplexy kekahi hōʻailona o ka narcolepsy. ʻElua ʻano nui o ka narcolepsy. Hoʻokaʻawale ʻia nā mea ʻelua ma muli o ka loaʻa ʻana o ka cataplexy a i ʻole.
| ʻAno o ka narcolepsy | Aia kekahi cataplexy? | Wehewehena |
|---|---|---|
| ʻAno Narcolepsy 1 | ʻAe, aia. | Loaʻa i kēia poʻe ka cataplexy. He haʻahaʻa ko lākou pae o ka neurotransmitter orexin (hypocretin) i loko o ko lākou lolo. Hele pū kēia ʻano me ka hiamoe nui i ke ao. |
| ʻAno Narcolepsy 2 | ʻAʻole. | ʻAʻohe cataplexy o kēia poʻe. ʻO ka pae o ka orexin i ko lākou lolo aia ma ka pae kūpono. |
Pehea e hoʻoponopono ai nā keiki i ka wā e hana ai kēia?
He ʻokoʻa iki ka Cataplexy i nā keiki. Hoʻopilikia nui ia i nā ʻiʻo o ka maka, ka ʻauwae, a me nā lihilihi maka. Hiki ke nānā aku me he mea lā e ʻeha ana lākou a e ʻū ana paha me ka hoʻopailua. E hoʻopuka aʻe kekahi mau keiki i ko lākou alelo i loko o kēia manawa.
I ka wā pinepine e hana ʻia ai kēia i kahi keiki ʻōpio, manaʻo nā mākua a i ʻole nā mea ʻē aʻe he hōʻailona ia o ka nānā ʻole, ka hopu ʻana, ka huhū, a i ʻole he ala wale nō e loaʻa ai ka nānā . No laila, inā ʻike ʻoe i kēlā ʻano loli i ʻike ʻole ʻia i ke ʻano o kāu keiki, he mea nui loa ia e lawe koke iā ia i ke kauka .
No ke aha lā kēia e hana nei? He aha ke kumu?
ʻO ke kumu nui o ka cataplexy ʻo ia ka narcolepsy type 1. Hoʻokumu ʻia ia e ka nele o kahi kemika (neurotransmitter ) i loko o ka lolo i kapa ʻia ʻo orexin . Kōkua kēia orexin iā mākou e ala a kāohi i ka hiamoe REM (ka hiamoe hohonu kahi a mākou e moeʻuhane ai) i ka wā e hiamoe ana mākou.
I kēia manawa, he mea maʻamau no kekahi o ko kākou mau ʻiʻo ke komo i loko o kahi kūlana o ka maʻi lolo i ka wā e hiamoe ana kākou ma ka REM. ʻO kēia ke pale aku iā kākou mai ka hana maoli ʻana i nā mea a kākou e moeʻuhane nei a me ka hōʻeha ʻana iā kākou iho. Akā i ka wā e haʻahaʻa ai ka Orexin, ʻoiai ke ala nei kākou, i ka wā e loaʻa ai iā kākou kahi manaʻo ikaika e like me ka ʻakaʻaka, manaʻo ko kākou lolo aia kākou ma ka REM sleep. A laila, ʻo ka maʻi lolo e kū mai ana i ka wā o kēlā hiamoe e kū mai ana i ko kākou ala ʻana. Ua kapa ʻia kēlā he cataplexy.
Pehea e mālama ʻia ai?
Hoʻohana nui ʻia kēia ʻano maʻi me ka lāʻau lapaʻau. ʻO nā lāʻau lapaʻau like i hoʻohana ʻia e kōkua iā ʻoe e ala a kāohi i nā hōʻailona cataplexy e mālama i ka narcolepsy. E nānā kāu kauka iā ʻoe a kuhikuhi i ka lāʻau lapaʻau kūpono loa iā ʻoe.
Aia kekahi mau ʻano lāʻau lapaʻau i ʻāpono ʻia no ka cataplexy:
- Sodium oxybate
- ʻO ka oxybate haʻahaʻa-sodium
- ʻO Pitolisant
Eia kekahi, hiki i nā kauka ke kuhikuhi i nā lāʻau lapaʻau ʻē aʻe no kēia kumu. ʻO ke ʻano kēia, ʻoiai inā ua hoʻolālā maoli ʻia ka lāʻau lapaʻau no kekahi kūlana ʻē aʻe, hana maikaʻi nō hoʻi ia no ka cataplexy. No ka laʻana, hoʻohana ʻia kekahi mau antidepressants (SSRIs, SNRIs, TCAs) no kēia kumu.
ʻO ka mea nui loa, ke hoʻomaka ʻoe i ka lāʻau lapaʻau, he mea nui loa ia e lawe i kāu lāʻau lapaʻau e like me ka ʻōlelo a kāu kauka iā ʻoe . Inā hoʻōki koke ʻoe i ka lawe ʻana i kāu lāʻau lapaʻau, hiki i kāu cataplexy ke lilo i mea koʻikoʻi loa. No laila, inā he mau nīnau kāu e pili ana i kāu lāʻau lapaʻau, e kamaʻilio me kāu kauka e pili ana.
Pehea e hiki ai iaʻu ke mālama iaʻu iho i koʻu ola ʻana me kēia maʻi?
ʻAʻole hiki ke pale ʻia ka Cataplexy i nā manawa a pau, akā nui ka poʻe e hōʻike ana he pinepine ia i nā lā a lākou e luhi loa ai. No laila, ʻo ka hiamoe maikaʻi i ka pō hiki ke kōkua nui i ka kaohi ʻana.
Eia kekahi mau hana maʻalahi e kōkua:
- E hele e hiamoe i ka manawa like i kēlā me kēia lā a e ala aʻe i ka manawa like.
- E mālama i kou lumi moe i ka mālie, ka pouli, a i kahi mahana ʻoluʻolu.
- E wehe i nā mea uila e like me ke TV, kamepiula, a me ke kelepona mai kahi moe.
- E hōʻalo i nā meaʻai kaumaha, ke kofe, a me ka waiʻona ma ka liʻiliʻi he ʻelua hola ma mua o ka moe ʻana.
- E hoʻoikaika kino i ke ao. E kōkua ia iā ʻoe e hiamoe maikaʻi i ka pō.
Eia kekahi, aia kekahi mau mea ʻē aʻe hiki iā ʻoe ke hana:
- E noʻonoʻo e pili ana i ka palekana: Hiki i ka nalowale koke ʻana o ka ʻike ke lilo i mea weliweli, ʻoiai inā ʻoe e hoʻokele ana a hana paha ma nā wahi kiʻekiʻe. E kamaʻilio me kāu kauka e pili ana i kēia a e aʻo e pili ana i nā ala e pale aku ai iā ʻoe iho.
- E haʻi aku i nā poʻe ʻē aʻe e pili ana i kēia: E haʻi aku i kou ʻohana, nā hoaaloha, a me nā poʻe ma ka hana e pili ana i kēia. I ʻike lākou i ka mea e hana nei a mai makaʻu inā loaʻa koke kekahi mea iā ʻoe.
- E kiʻi i ke kākoʻo: Hiki ke paʻakikī ka noho ʻana me kēia maʻi. E hui pū me nā hui kākoʻo kahi e loaʻa ai nā poʻe ʻē aʻe me kēia maʻi. Eia kekahi, inā ke kumu nei kēia iā ʻoe i ka nui o ke kaumaha a me ka hopohopo, mai makaʻu e kamaʻilio me kāu kauka a i ʻole kahi loea olakino noʻonoʻo , e like me ke kauka noʻonoʻo .
Inā loaʻa iā ʻoe a i ʻole kāu keiki kekahi o kēia mau hōʻailona, e ʻike koke i ke kauka. He mau kūlana kēia e hiki ke hoʻomalu maikaʻi ʻia me ka lāʻau lapaʻau.
Leka Lawe-Home
- ʻO Cataplexy ka nalowale ʻana o ka hana o nā ʻiʻo i ka wā o ka manaʻo ikaika. ʻAʻole kēia he ʻōhū a he hopu paha, ʻoiai ke ʻike mau nei ʻoe.
- ʻO kēia kahi hōʻailona koʻikoʻi o ka Narcolepsy Type 1, i hoʻoulu ʻia e ka emi ʻana o ka kemika orexin o ka lolo.
- I nā keiki, hiki ke hōʻike ʻia kēia ma nā ʻano like ʻole, e like me ka helehelena ʻawaʻawa a i ʻole ke alelo e puka mai ana. Inā ʻike ʻoe i kēia mau hōʻailona, e ʻimi koke i ke kōkua lapaʻau.
- Hiki ke hoʻomalu pono ʻia kēia kūlana me ka lāʻau lapaʻau. He mea nui e hahai i nā ʻōlelo a ke kauka.
- He mea nui loa ka hiamoe maikaʻi, e hoʻomaopopo i ka poʻe kokoke iā ʻoe e pili ana i kou kūlana, a e noho palekana.
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