Ke haʻalulu nei hoʻi ʻoe me ka hiki ʻole ke kāohi? He Cerebellar Degeneration paha kēia!

Ke manaʻo nei ʻoe i kekahi manawa e nalowale ana kou mana i kou kino? Ke manaʻo nei ʻoe e neʻe ana ʻoe i kou kū ʻana a i ʻole ke hele ʻana, a i ʻole ke manaʻo nei ʻoe ua paʻakikī kāu mau ʻōlelo i kou ʻōlelo ʻana? ʻAʻole wale kēia mau mea i mea maʻamau. Malia paha no kahi pilikia ma kahi ʻāpana liʻiliʻi o ko kākou lolo. ʻO ia ka mea a kākou e kamaʻilio ai i kēia lā.

He aha ka Cerebellar Degeneration? E hoʻomaopopo maʻalahi kākou!

ʻAe, e nānā mua kākou i ke ʻano o kēia cerebellum . Aia kahi ʻāpana liʻiliʻi o kou lolo, ma lalo iki, a mākou e kapa aku nei he cerebellum . He liʻiliʻi ia, akā hana nui ia i nā hana koʻikoʻi. E noʻonoʻo e pili ana iā ia, hoʻomalu ia i kou kaulike , kōkua ia iā ʻoe e kū a hele me ka ʻole o ka luliluli, mālama ia i kāu ʻōlelo akaka, a hana pono ia i kou mau lālā.

I kēia manawa, he aha ka degeneration ? I ka ʻōlelo maʻalahi, ʻo ka degeneration ka hōʻino a i ʻole ka make mālie o nā hunaola nerve i loko o ka cerebellum. No laila, ʻo ka degeneration cerebellar kahi kūlana i hōʻino ʻia ai nā hunaola nerve i loko o ka cerebellum a ʻaʻole hiki ke hana pono.

No ke aha lā kēia e hana nei? He aha nā kumu o kēia?

Aia paha kekahi mau kumu no kēia kūlana. E nānā kākou i nā mea nui.

1. Ka hoʻohana nui ʻana i ka waiʻona a me nā hemahema meaʻai

ʻO kēia ke kumu nui i ʻike pinepine ʻia. Ke inu nui mākou i ka waiʻona, ʻaʻole lawa ka nui o ka wikamina B1 i kapa ʻia ʻo thiamine i ko mākou kino. Malia paha no ka mea ʻaʻole lawa ka nui o ia mea mai ka meaʻai, a i ʻole no ka mea hiki ʻole i ke kino ke omo iā ia. He mea nui loa ka Thiamine no ka hana ʻana o nā hunaola lolo. Ke emi iho, hoʻomaka nā hunaola lolo e hōʻino ʻia.

2. Nā maʻi neurodegenerative

Aia kekahi mau maʻi e make mālie ai nā hunaola aʻalolo i loko o ko kākou iwi kuamoʻo a me nā ʻāpana like ʻole o ka lolo, ʻoiai ka cerebellum.

• He maʻi nui kēia ʻano ʻo Ataxia . Hōʻike ʻia ia e ka nalowale ʻana o ke kaohi a me ka hoʻonohonoho ʻana o ke kino.
• ʻO ka Multiple System Atrophy kekahi maʻi like.
• ʻO kekahi maʻi laha ʻole i kapa ʻia ʻo Creutzfeldt-Jakob Disease kekahi kumu.
• Hoʻopilikia pinepine ka maʻi sclerosis maha (MS) i kēia.

Hiki ke hoʻoilina ʻia kekahi o kēia mau maʻi ʻōnaehana nerve, ʻo ia hoʻi, ua hoʻoili ʻia mai nā mākua a i nā keiki ma o nā genes. Hiki i kekahi ke ulu aʻe i ka wā o ke ola.

3. Nā kūlana e kū mai ana ma muli o ka maʻi kanesa (Paraneoplastic Syndromes)

He moʻolelo paʻakikī kēia. Ke loaʻa i kekahi poʻe nā hunaola kanesa, hoʻāʻo kā lākou ʻōnaehana pale e hakakā i ke kanesa. Eia nō naʻe, i kekahi manawa hoʻomaka hewa kēia ʻōnaehana pale e hoʻouka i nā hunaola olakino i loko o ka lolo. Ke hōʻino ʻia ka cerebellum, kapa mākou ia he Paraneoplastic Syndromes . He mea maʻamau kēia ʻano i nā poʻe me nā maʻi kanesa e like me ke kanesa umauma, ke kanesa ovarian, ke kanesa uterine, ka Lymphoma Hodgkin makua, a me ke kanesa māmā cell liʻiliʻi.

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ʻO wai ka mea i hoʻopilikia nui ʻia e kēia maʻi?

ʻOiai ʻaʻole hiki ke ʻōlelo pololei i ka mea nāna e hoʻomohala i kēia, aia kekahi poʻe i ka pilikia kiʻekiʻe aʻe.

• Eia kekahi laʻana, ʻike pinepine ʻia ke ʻano paraneoplastic i ʻōlelo ʻia ma luna nei i waena o nā wahine ma luna o 50 mau makahiki.
• Akā ma keʻano laulā, ʻoi aku ka nui o nā kāne e loaʻa nā pilikia me ke kaulike a me ka hoʻonohonoho ʻana i ko lākou wā ʻelemakule.
• ʻO ka atrophy cerebral i hoʻokumu ʻia e ka waiʻona a i ʻole ka nele i nā meaʻai e ʻike pinepine ʻia i ka poʻe waena o ka makahiki, ʻoiai hoʻi i ka poʻe i hoʻohana i ka waiʻona no ka manawa lōʻihi.
• Hiki i kēia ʻano ke ʻike ʻia i nā keiki me kekahi mau maʻi hoʻoilina.

"ʻAʻole maʻamau kēia ʻano atrophy o ka lolo. ʻAʻole i emi iho ma mua o 1% o ka poʻe me ka maʻi kanesa e loaʻa i nā kūlana paraneoplastic. Eia nō naʻe, ʻoi aku ka maʻamau o ka atrophy o ka lolo i hoʻoulu ʻia e ka waiʻona."

He aha nā hōʻailona e pono ai mākou e makaʻala?

ʻOkoʻa iki paha nā hōʻailona o kēia maʻi mai kēlā kanaka a kēia kanaka, akā aia kekahi mau hōʻailona maʻamau:

• Ka nalowale o ke kaulike (Nā pilikia kaulike) , ka manaʻo poniuniu a i ʻole ka milo ʻana (Vertigo a i ʻole ka poniuniu). Hiki nō hoʻi ke manaʻo e like me ʻoe e ʻōwili ana ma ka papahele.
• Manaʻo o ka nele o ka ikaika o nā ʻiʻo (Hypotonia) . Hiki i nā lālā ke manaʻo he ola ʻole a palupalu paha.
• Nā pilikia maka: ʻIke ʻana i ʻelua mau mea i ka manawa hoʻokahi (ʻike pālua), nā neʻe wikiwiki a kaohi ʻole ʻia o nā maka (nystagmus).
• ʻAʻole hiki ke hoʻonohonoho pono i nā neʻe ʻana o nā lālā (Ataxia) . Eia kekahi laʻana, ke hiki ʻoe i ke kīʻaha, haʻalulu kou lima, a i ʻole ʻaʻole hiki iā ʻoe ke hiki pono i ke kīʻaha.
• Nā pilikia me nā mākau neʻe lima maikaʻi . Nā mea e like me ka paʻakikī i ke kau ʻana i kou poʻo i luna, ʻaʻole hiki ke hoʻohana pono i kou mau lima a i ʻole kou mau wāwae.
• Ka haʻalulu a i ʻole ka lulu ʻana o nā lālā i ka wā e hoʻāʻo ai e hana i kahi hana .
• He hele wāwae paʻa ʻole a kūlike ʻole paha me kahi hele ākea, e luliluli ana mai kēlā ʻaoʻao a i kēia ʻaoʻao, a me ka hele ʻana me nā wāwae ʻelua i hohola ākea ʻia .

Ma waho aʻe o kēia mau hōʻailona, ​​​​hiki i ka poʻe me ke kūlana paraneoplastic ke loaʻa i kekahi mau hōʻailona ʻē aʻe, ʻoiai:

• Ua emi ka hoʻomanaʻo, ka hiki ke noʻonoʻo, a me ka hiki ke noʻonoʻo (Dementia).
• Lohi a hūpō ka ʻōlelo ʻana (Dysarthria) .

Eia kekahi, hiki i kekahi poʻe me ka cerebral palsy ke loaʻa i nā kūlana ʻē aʻe e like me:

• Ka maʻi hoʻolohe-nele/hyperactivity (ADHD)
• Ka maʻi Autism Spectrum
ʻO ka Schizophrenia-naʻau (Schizophrenia)

Pehea e ʻike ai nā kauka i kēia?

Inā loaʻa iā ʻoe kēia mau hōʻailona, ​​ke ʻike ʻoe i ke kauka, e nīnau mua lākou iā ʻoe i nā nīnau he nui e pili ana i kāu mau hōʻailona. He aha kāu mau hōʻailona, ​​pehea ko lākou koʻikoʻi, pehea lākou e hoʻopilikia ai i kāu mau hana o kēlā me kēia lā, a inā paha ua loaʻa i kekahi o kou ʻohana kēia maʻi.

A laila, e kuhikuhi ke kauka i kekahi mau hoʻokolohua e hōʻoia i ke kūlana:

• ʻO ke kiʻi MRI (Magnetic Resonance Imaging) a i ʻole ke kiʻi CT (Computed Tomography): Lawe kēia i nā kiʻi maopopo loa o ka lolo a me kona mau ʻiʻo. Inā he atrophy o ka lolo, hiki i kēia mau kiʻi ke hōʻike i ke ʻano o ka emi ʻana a me ka emi ʻana o ka cerebellum. Hiki iā lākou ke ʻike i nā pilikia ʻē aʻe, e like me ka puʻupuʻu lolo, a i ʻole nā ​​​​hōʻailona o ka hahau ʻana.
• ʻO ka Spinal Tap / Lumbar Puncture: ʻO ke wai e hoʻopuni ana i ko mākou lolo a me ke kaula spinal ua kapa ʻia ʻo Cerebrospinal Fluid (CSF) . Lawe ʻia kahi hāpana liʻiliʻi o kēia wai a hoʻāʻo ʻia. I kekahi manawa, hiki ke hoʻohana ʻia nā mea o loko o kēia wai e ʻike ai i kahi maʻi autoimmune, e like me ka paraneoplastic syndrome.
• Nā Hoʻāʻo Koko: I kekahi manawa nānā ʻia ke kiʻekiʻe o nā antibodies i loko o ke koko. Hiki ke hoʻokiʻekiʻe ʻia kēia mau antibodies i nā poʻe me ka maʻi kanesa a me nā kūlana paraneoplastic.
• Ka Hoʻāʻo ʻana i ka Genetic: Inā manaʻo ke kauka he ʻano hoʻoilina kēia, hiki iā ia ke hana i nā hoʻāʻo genetic.

Aia kekahi lāʻau lapaʻau piha no kēia? He aha nā lāʻau lapaʻau?

ʻO kaʻoiaʻiʻo, ʻaʻohe lāʻau lapaʻau no ka lolo lolo i kēia manawa . Eia nō naʻe, pili ka lāʻau lapaʻau i ke kumu. Aia kekahi mau lāʻau lapaʻau e kōkua i ka kaohi ʻana i kekahi o nā hōʻailona (e like me ka haʻalulu, ka paʻakikī i ka hele wāwae, a me ka poniuniu).

• Ka mālama ʻana i nā kūlana paraneoplastic:
• Lāʻau lapaʻau no ke kanesa: Chemotherapy , Radiation Therapy .
• Nā lāʻau pale kino .
• ʻO ka lāʻau pale ʻana .
• Hiki ke hoʻohui ʻia ke ʻoki ʻana e wehe i ka puʻupuʻu kanesa, me ka chemotherapy a me ka radiation therapy.

• Lapaʻau no nā kūlana i hoʻoulu ʻia e ka waiʻona:
• E hoʻōki loa i ka inu ʻana i ka waiʻona. ʻO kēia ka mea nui loa.
• Nā hoʻololi i ka ʻai: Pono ʻoe e hoʻohui i nā meaʻai hou aʻe i loaʻa ka thiamine a me nā huaora B ʻē aʻe (e.g., nā palaoa piha, nā ʻiʻo momona, iʻa) i kāu ʻai.
• ʻO ka lawe ʻana i nā mea hoʻohui thiamine .

Me ka nānā ʻole i ke kumu o ka lolo lolo, pono paha nā lāʻau lapaʻau e like me ka hoʻōla kino, ka hoʻōla hana, a i ʻole ka hoʻōla ʻōlelo . Hiki i kēia mau mea ke kōkua:

• E hoʻomohala i nā mākau motor i hiki iā ʻoe ke hana i nā hana o kēlā me kēia lā me ke kūʻokoʻa.
• Hoʻoikaika i nā ʻiʻo a hoʻomaikaʻi i ka hoʻonohonoho ʻana .
• Hoʻomaikaʻi i nā pilikia o ke ale ʻana, nā pilikia o ka ʻōlelo ʻana, a me nā mākau ʻōlelo .

Hiki ke pale ʻia kēia?

Hiki ke pale nui ʻia ka dementia i hoʻoulu ʻia e ka waiʻona ma ka haʻalele ʻana i ka waiʻona . Eia nō naʻe, ʻaʻohe ala i hōʻoia ʻia e pale aku ai i nā ʻano dementia ʻē aʻe.

He aha ka mea e hiki mai ana? Pehea lā e ulu ai ke kūlana?

ʻO ka wānana o kēia maʻi e pili ana i ke kumu kumu.

• ʻO ka mālama ʻana i ka maʻi kanesa, ka haʻalele ʻana i ka waiʻona, a i ʻole ka hoʻololi ʻana i kāu meaʻai hiki ke hoʻolohi a hoʻōki paha i kēia emi ʻana i kekahi manawa.
• Eia nō naʻe, i nā kūlana neurodegenerative ʻē aʻe, hiki i ka maʻi ke holomua i ka manawa ma nā ʻano like ʻole.

I ka holomua ʻana o ka maʻi, hiki i nā kānaka ke nalowale i ka hoʻonohonoho ʻana a lilo i kīnā nui. Pono paha lākou e hoʻohana i ka noho huila a i ʻole kekahi mea kōkua ʻē aʻe e hele ai. Hiki i kēia ke kōkua i ka pale ʻana i ka hāʻule ʻana. Inā ʻaʻole hiki iā lākou ke hana i nā hana o kēlā me kēia lā ma o lākou iho, hiki iā lākou ke nalowale i ko lākou hiki ke noho kūʻokoʻa . Hiki i kekahi ke moe i kahi moe.

Inā loaʻa i nā keiki kēia maʻi, hiki iā lākou ke lohi i ka ulu ʻana .

I ka manawa hea ʻoe e pono ai e ʻike i ke kauka?

Inā ʻike ʻoe i kekahi mau loli a pilikia paha me kou kaulike, ʻōlelo, ʻike, a i ʻole nā ​​hana o kēlā me kēia lā, e ʻike koke i ke kauka . Manaʻo kekahi poʻe he mau loli maʻamau kēia i ko lākou wā ʻelemakule. Eia nō naʻe, hiki iā lākou ke lilo i mau hōʻailona o kahi pilikia koʻikoʻi. No laila, inā he mau hopohopo kāu, ʻoi aku ka maikaʻi o ka nānā ʻana.

He aha nā nīnau āu e nīnau ai i ke kauka?

Inā loaʻa iā ʻoe a i ʻole kekahi o kou ʻohana ka maʻi lolo, he mea maikaʻi ke nīnau i kāu kauka i kēia mau nīnau:

• He aha nā hoʻololi o ke ʻano o ka nohona e hiki iaʻu ke hana e ola maikaʻi ai me kēia maʻi?
• Ma hea e loaʻa ai iaʻu ke kōkua? (e.g. nā hui kākoʻo)
• Pono anei wau e hoʻomaka i ka hoʻoikaika kino, ka hoʻoikaika hana, a i ʻole ka hoʻoikaika ʻōlelo?
• He aha ke kumu o kēia maʻi?
• E laha hou aku anei kēia maʻi? Inā pēlā, pehea ka wikiwiki?

ʻO ka mea nui loa e pono ai mākou e hoʻomanaʻo!

ʻO ka Cerebellar Degeneration kahi maʻi e hoʻopilikia ai i ka ʻāpana o ko kākou lolo e kaohi ana i ke kaulike, ka neʻe ʻana o nā ʻiʻo, a me ka ʻōlelo. Hiki i kēia ke pilikia i ka hele ʻana, ke kamaʻilio ʻana, a me ka hana ʻana i nā hana o kēlā me kēia lā. Nui nā kumu no kēia. Hiki i ka lāʻau lapaʻau a me ka hoʻōla hou ʻana ke kōkua i ka hoʻokele ʻana i nā hopena o kēia maʻi. No laila, he mea nui e ʻimi i ke aʻo lapaʻau inā loaʻa iā ʻoe nā hōʻailona.