Loaʻa i kāu keiki liʻiliʻi ke kanesa? (Kanesa o ke Kamaliʻi) - E makaʻala kākou i kēia!

Ke lohe kākou i ka huaʻōlelo "maʻi kanesa," hoʻohoka iki kākou a pau, ʻeā? ʻAʻohe huaʻōlelo e wehewehe i ka makaʻu a me ka haʻalulu a kākou e manaʻo ai, ʻoiai ke pili kēlā huaʻōlelo me kā kākou keiki ponoʻī. Akā, mai hopohopo. I kēia lā, e kamaʻilio ana kākou e pili ana i ka maʻi kanesa o nā kamaliʻi. He mea nui loa ka loaʻa ʻana o ka ʻike pololei i kēia. No ka mea, i kēia lā, me nā ʻano lapaʻau holomua, ʻoi aku ka nui o ka manawa e ho'ōla ʻia ai nā keiki mai kēia mau maʻi.

He aha ke kanesa o ka wā kamaliʻi?

I ka ʻōlelo maʻalahi, ʻo ke kanesa kamaliʻi he hui o nā kanesa e hoʻopilikia ana i nā keiki ma waena o nā makahiki 0 a me 19. Hoʻokomo pū kēia i nā kanesa pediatric, e hoʻopilikia ana i nā keiki mai ka wā kamaliʻi a hiki i ka 14 mau makahiki, a me nā kanesa ʻōpio, e hoʻopilikia ana i nā keiki ʻōpio mai 15 a 19 mau makahiki.

ʻOiai ma kahi ʻāina e like me ʻAmelika, ma kahi o 15,000 mau keiki i ʻike ʻia me ka maʻi kanesa i kēlā me kēia makahiki. Akā ʻo ka mea maikaʻi loa, mahalo i nā lāʻau lapaʻau hou a kūpono i nā keiki, 8 o 10 mau keiki e ola mau ana ma hope o ʻelima mau makahiki. Eia nō naʻe, pono mākou e hoʻomanaʻo ʻoiai ma hope o kēia mau lāʻau lapaʻau, pono mākou e hoʻomau i ka nānā ʻana i ke olakino o ke keiki.

He aha nā ʻano maʻi kanesa e ulu ai nā keiki?

Hiki ke hoʻokaʻawale ʻia nā maʻi kanesa o nā keiki i ʻekolu mau ʻāpana nui:

1. Leukemia a me Lymphoma

2. Nā puʻupuʻu lolo a me ke kaula kuamoʻo

3. Nā puʻupuʻu paʻa

E nānā kākou i kēlā me kēia me nā kikoʻī hou aku.

1. Leukemia a me Lymphoma

He mau maʻi ʻaʻai koko kēia.

• ʻO ka maʻi leukemia ke ʻano maʻamau o ka maʻi kanesa i nā keiki. Hoʻomaka ia ma ka iwi iwi o ke keiki. E like me kou ʻike, ʻo ka iwi iwi kahi e hana ʻia ai ko kākou mau hunaola koko.
• Hoʻomaka ka Lymphoma i loko o nā hunaola koko o ka ʻōnaehana lymphatic o ke keiki. ʻO ia ke kolu o ke ʻano maʻamau o ka maʻi kanesa i nā keiki.

ʻO nā ʻano leukemia maʻamau i nā keiki:

• ʻO ka maʻi leukemia lymphoblastic koʻikoʻi (ALL) - ʻO kēia ka maʻi kanesa maʻamau i nā keiki.
• ʻO ka maʻi leukemia myeloid koʻikoʻi (AML)

ʻO nā ʻano lymphoma maʻamau i nā keiki:

• ʻO ka lymphoma Hodgkin
• ʻO ka lymphoma Non-Hodgkin - Loaʻa i kēia nā ʻano like ʻole e like me Burkitt lymphoma a me ka lymphoma B-cell nui diffuse.

2. Nā puʻupuʻu lolo a me ke kaula kuamoʻo

ʻO kēia ka lua o ke ʻano maʻamau o ka maʻi kanesa i nā keiki. Hoʻomohala lākou i ka wā e lilo ai nā pūnaewele maʻamau i loko o ka ʻōnaehana nerve waena (CNS) o ke keiki i mau pūnaewele kanesa. Aia nā ʻano like ʻole o kēia, e like me Medulloblastoma a me Glioma. Akā, ʻaʻole koʻikoʻi kēia mau inoa a pau iā ʻoe, ʻo ka mea nui ka ʻike ʻana hiki i ka maʻi kanesa ke ulu ma kēia mau wahi.

3. Nā puʻupuʻu paʻa

Hoʻokumu ʻia nā puʻupuʻu paʻa i ka wā e māhelehele ai, hoʻonui, a hui pū nā hunaola kanesa e hana i puʻupuʻu. Hiki iā lākou ke ulu ma nā wahi āpau o ke kino o ke keiki. Eia kekahi mau laʻana:

• ʻO ke kanesa o ka iwi - e like me ka osteosarcoma a me ka Ewing sarcoma.
• ʻO ka puʻupuʻu o nā cell germ
• ʻO ka maʻi ʻaʻai akepaʻa (Hepatoblastoma)
• ʻO ka Neuroblastoma
• Retinoblastoma (maʻi ʻaʻai maka)
• Rhabdomyosarcoma (ka maʻi ʻaʻai o nā ʻiʻo)
• ʻO ka puʻupuʻu Wilms (ka maʻi ʻaʻai puʻupaʻa)

He aha nā hōʻailona o ke kanesa i nā keiki?

Eia kekahi mea nui loa. Hiki i nā hōʻailona o ke kanesa i nā keiki ke like me nā hōʻailona o nā maʻi ʻē aʻe i nā keiki ʻōpio. E noʻonoʻo e pili ana i ia mea, loaʻa i nā keiki ʻōpio he nui nā poʻo ʻeha, nā ʻōpū ʻeha, a me nā palapū liʻiliʻi. ʻAʻole kēia mau mea a pau he mau hōʻailona o ke kanesa. Eia nō naʻe, inā hoʻomau a ʻoi aku ka ʻino o kekahi o kēia mau hōʻailona, ​​​​pono ʻoe e kamaʻilio me ke kauka e pili ana iā lākou.

I mea e kōkua ai iā ʻoe e aʻo e pili ana i ke kanesa o nā kamaliʻi, ua hana ka Childhood Oncology Group i kahi papa inoa o nā hōʻailona e kōkua iā ʻoe e hoʻomanaʻo i nā leka o ka huaʻōlelo Pelekania ʻo 'CHILDCANCER'. E nānā kākou i ko lākou ʻano:

• C - `Hoʻomau ʻia ka pohō kaumaha me ka wehewehe ʻole ʻia`: Hoʻomau ʻia ka pohō kaumaha me ka wehewehe ʻole ʻia.
• H - `ʻEha poʻo, pinepine me ka luaʻi ʻana i ke kakahiaka nui`: ʻEha poʻo, ʻoiai inā hele pū me ka luaʻi ʻana i ke kakahiaka.
• I - `Hoʻonui ʻia ka pehu ʻana a i ʻole ka ʻeha mau i nā iwi, nā hono, ke kua a i ʻole nā ​​wāwae`: Hoʻonui ʻia ka pehu ʻana a i ʻole ka ʻeha mau i nā iwi, nā hono, ke kua a i ʻole nā ​​wāwae.
• L - `Puʻu a puʻu paha`: Inā loaʻa kahi puʻu a puʻu paha ma ka ʻāʻī, ka umauma, ka ʻāʻī lima, ka ʻōpū, a i ʻole ke pelvis.
• D - 'Ka ulu ʻana o ka palapū nui, ke kahe ʻana o ke koko a i ʻole ka ʻulaʻula': ʻO ka palapū nui, ke kahe ʻana o ke koko (e.g. ke kahe ʻana o ka ihu, ke kahe ʻana o nā ʻāʻī) a i ʻole ka palapū koke ma ka ʻili me ke kumu ʻole.
• C - `Nā maʻi mau, pinepine a mau paha`: Nā maʻi e kū pinepine ana a mau (e laʻa me ke kuni, ka ʻūhā).
• A - 'He keʻokeʻo keʻokeʻo ma hope o ka haumāna': Inā ʻike ʻia ke keʻokeʻo i loko o ka maka, ma hope o ka iris ʻeleʻele (pupil).
• N - `Ka luaʻi mau ʻana, a i ʻole ka luaʻi ʻana me ka ʻole o ka luaʻi ʻana`: Ka luaʻi mau ʻana, a i ʻole ka luaʻi ʻana me ka ʻole o ka luaʻi ʻana.
• C - `Luhi mau (fatigue) a i ʻole ka maeʻele ʻike ʻia (pallor)`: Luhi mau (fatigue) a i ʻole ka maeʻele ʻike ʻia (pallor)`.
• E - `Nā loli o ka maka a i ʻole ka ʻike maka e kū koke mai ana a mau loa`: Nā loli i ka ʻike maka e kū koke mai ana a mau loa (e.g., ka ʻike ʻana i hoʻokahi a ʻelua paha mea, ka ʻike maka pōwehiwehi).
• R - `Fiva hoʻomau a mau paha`: He fiva e hoʻi mai ana a hoʻomau paha (ʻoi aku hoʻi me ka ʻole o ke kumu i ʻike ʻia) ma mua o ke anu maʻamau.

Inā loaʻa i kāu keiki kekahi a ʻoi aku paha o kēia mau hōʻailona, ​​ʻaʻole ia he manaʻo he maʻi kanesa ko lākou. Eia nō naʻe, ʻoi aku ka maikaʻi o ka ʻimi ʻana i ka ʻōlelo aʻoaʻo lapaʻau e kāpae i nā kānalua.

No ke aha e loaʻa ai i nā keiki ka maʻi kanesa?

Loaʻa ke kanesa i ka wā e loli ai ko kākou mau genes (nā mutations) a hana ʻia nā cell maʻamau ʻole. Māhele koke kēia mau cell kanesa maʻamau ʻole, e hoʻokuke ana i nā cell olakino. Inā ʻaʻole mālama ʻia, hiki i kēia kanesa ke laha ma ke kino holoʻokoʻa (cancer metastatic).

ʻO nā kumu like e hoʻoulu ai i ka maʻi kanesa i nā pākeke (ka puhipaka, ka lā, nā kemika) ʻaʻole pili i ka maʻi kanesa i nā keiki. Loaʻa kēia mau loli genetic i nā keiki no nā kumu e noiʻi nei nā mea noiʻi. Hiki ke hana ʻia kēia mau loli ma mua a ma hope paha o ka hānau ʻana o ke keiki.

ʻO ka mea pōmaikaʻi, ua ʻike ʻia nā loli genetic e pili ana i kekahi mau maʻi kanesa o nā kamaliʻi. Kōkua kēia ʻike i nā kauka e koho i ka hoʻolālā lapaʻau kūpono loa no kā lākou keiki.

Aia kekahi mau mea pilikia?

Ua ʻike nā kauka hiki i kekahi mau maʻi hoʻoilina i hoʻoili ʻia ke hoʻonui i ka pilikia o kahi keiki i ka loaʻa ʻana o ka maʻi kanesa. No ka laʻana, ma ʻAmelika Hui Pū ʻIa, ma kahi o 8 a 10 o 100 mau keiki me ka maʻi kanesa he maʻi hoʻoilina e pili ana me ia. ʻO nā hiʻohiʻona e komo pū me ka maʻi Li-Fraumeni a me ka maʻi Down.

ʻAʻole kēia manaʻo e loaʻa i kēlā me kēia keiki me kēia maʻi ka maʻi kanesa. Eia nō naʻe, inā loaʻa i kāu keiki kēia maʻi, hiki i kāu kauka ke ʻōlelo aku i nā hoʻokolohua kanesa.

Pehea e ʻike ai nā kauka i ke kanesa i nā keiki?

Hoʻohana nā kauka i kekahi mau hoʻokolohua e ʻike ai i ka maʻi kanesa:

• Nā hoʻāʻo koko: Nānā kēia i nā ʻano ʻē i loko o nā hunaola koko o ke keiki. Hiki i kēia ke lilo i hōʻailona o ka maʻi kanesa.
• Nā hoʻāʻo kiʻi: ʻAe kēia i ke kauka e ʻike i nā kiʻi o nā ʻōpū a me nā ʻiʻo i loko o ke kino o kāu keiki. ʻO nā laʻana e komo pū me nā CT scans, MRIs, PET scans, a me nā ultrasounds.
• Biopsy: Lawe ʻia kahi laʻana o ka wai a i ʻole ka ʻiʻo mai kahi wahi kānalua a nānā kekahi pathologist iā ia ma lalo o kahi microscope e ʻike inā he mau hunaola maʻi kanesa.
• ʻO ka biopsy iwi a me ka makemake ʻana i ka iwi: Lawe ʻia kahi laʻana o ka iwi e nānā i ka maʻi kanesa.
• ʻO ka puncture lumbar : Pili kēia i ka lawe ʻana i kahi laʻana o ka wai cerebrospinal (CSF) o ke keiki (ka wai maopopo e hoʻopuni ana i ka lolo a me ke kaula spinal) e nānā i nā cell cancer a i ʻole nā ​​​​māka tumor.
• Nā hoʻokolohua hoʻoilina: Ke nānā nei kēia mau mea i nā loli hoʻoilina e pili ana i kekahi mau maʻi kanesa o nā kamaliʻi. Hiki i kēia ke kōkua i ke koho ʻana i ka lāʻau lapaʻau maikaʻi loa.

Pehea e mālama ʻia ai ke kanesa o nā kamaliʻi?

Aia kekahi mau lāʻau lapaʻau no ka maʻi kanesa o nā keiki:

• Kemoterapi: ʻO kēia ka lāʻau lapaʻau maʻamau no ka maʻi kanesa o nā kamaliʻi. Pili ia i ka hāʻawi ʻana i nā lāʻau lapaʻau e pepehi i nā hunaola kanesa. Hoʻōla ʻia ke keiki ma nā pōʻaiapuni. Loaʻa i kēlā me kēia pōʻaiapuni kahi lā o ka lāʻau lapaʻau a me kahi lā o ka hoʻōla ʻana.
• Lapaʻau radiation: Pili kēia i ka hoʻohana ʻana i kahi mīkini e hoʻouna i ka radiation e hoʻēmi a luku paha i ka puʻupuʻu. A i ʻole, hiki ke hoʻokomo ʻia kahi mea e hoʻopuka i ka radiation i ka puʻupuʻu i loko o ke kino o ke keiki.
• Hoʻoili ʻana i nā pūnaewele kumu: He koho paha kēia inā loaʻa i kāu keiki ka leukemia a i ʻole lymphoma. ʻO ka mea mua, hāʻawi ʻia ka chemotherapy nui e pepehi i nā hunaola kanesa. A laila, lawe ʻia nā hunaola koko olakino mai kahi mea hāʻawi a hāʻawi ʻia i ke keiki.
• ʻOki kino: I kekahi manawa hiki i nā kauka ke wehe loa i nā puʻupuʻu paʻa. I kekahi manawa, pono paha ke keiki i nā lāʻau lapaʻau ʻē aʻe me ke ʻoki kino.
• ʻO ka Immunotherapy a me ka lāʻau lapaʻau i kuhikuhi ʻia: He mau lāʻau lapaʻau hou kēia. Kōkua ka Immunotherapy i ka ʻōnaehana pale ponoʻī o ke keiki e hakakā i ke kanesa. Kuhi ka lāʻau lapaʻau i kuhikuhi ʻia i nā hoʻololi genetic kikoʻī i loko o nā hunaola kanesa. Hāʻawi ʻia kēia mau lāʻau lapaʻau i kekahi manawa ma ke ʻano he ʻāpana o kahi hoʻokolohua lapaʻau.

He aha ka hoʻokolohua lapaʻau? He haʻawina ia e hoʻāʻo ai i ka pono o nā lāʻau lapaʻau hou no ka maʻi kanesa. He mea nui loa kēia i ke kaua ʻana i ka maʻi kanesa. Inā ʻaʻole i hāʻawi nā lāʻau lapaʻau ʻē aʻe i ka lawa o ka hōʻoluʻolu, hiki i kāu kauka ke kuhikuhi i kāu keiki i kekahi o kēia mau hoʻokolohua.

Hana ʻia kēia mau mea a pau e hāʻawi i ka mālama maikaʻi loa no kāu keiki.

Āhea wau e ʻimi ai i ke aʻo lapaʻau e pili ana i kaʻu keiki?

E ʻimi i ke kōkua lapaʻau inā ʻo kāu keiki:

• Inā ʻoi aku ka ʻino o nā hopena ʻaoʻao o ka mālama ʻana i ka maʻi kanesa ma mua o kou manaʻo.
• Inā aia kāu keiki i loko o ke "kala ʻana" (me ka ʻole o nā hōʻailona a i ʻole nā ​​​​hōʻailona o ke kanesa), a hoʻomaka ʻoe e ʻike i nā hōʻailona e hoʻi mai ana paha ke kanesa.

I ka liʻiliʻi loa, hiki i nā hōʻailona o ka maʻi kanesa a me nā hopena ʻaoʻao o ka lāʻau ke lilo i mau pilikia olakino. E wehewehe ke kauka o kāu keiki i nā hōʻailona e pono ai ka lāʻau koke.

Hiki ke ho'ōla ʻia ke kanesa o nā kamaliʻi?

Ma nā ʻāina i hoʻomohala ʻia me nā pono hana maikaʻi, ʻoi aku ma mua o 8 o 10 mau keiki me ka maʻi kanesa i hoʻōla ʻia. Hoʻokumu ʻia kēia ma nā helu ola ʻelima makahiki no nā maʻi kanesa maʻamau o nā kamaliʻi.

Hoʻohana ʻia hoʻi ka huaʻōlelo "cure" e wehewehe i kahi maʻi kanesa o ka wā kamaliʻi i hala i ke kala ʻana. No ka laʻana, 9 mai loko mai o 10 mau keiki me ka leukemia lymphoblastic acute (ALL) e hele i ke kala ʻana (ʻaʻohe hōʻailona a i ʻole nā ​​​​hōʻailona o ke kanesa).

Akā, he mea nui e hoʻomanaʻo he mau kuhi wale nō kēia mau helu ola. ʻAʻole lākou e hōʻike i nā kumu kikoʻī e hoʻopilikia i ka ʻike o kāu keiki. No laila he mea nui e kamaʻilio me kāu kauka e pili ana i ka wānana o kāu keiki.

He aha ka manaʻolana e ola ai ke keiki i ho'ōla ʻia mai ke kanesa?

ʻOiai hiki ke ho'ōla pinepine ʻia ka maʻi kanesa o nā kamaliʻi, hiki i nā hopena o ka maʻi ke hoʻopilikia i ke olakino lōʻihi o ke keiki. Wahi a kahi noiʻi hou, ʻo ka poʻe i ola i ka maʻi kanesa o nā kamaliʻi he pōkole iki paha ko lākou ola ma mua o nā poʻe ʻē aʻe. ʻOi aku ka nui o ko lākou pilikia olakino i ka wā makua, e like me ka maʻi puʻuwai, nā maʻi e pili ana i ka hormone, a me nā maʻi kanesa lua.

Akā, ʻaʻole like ka pilikia o kēlā me kēia kanaka. Nui ka hilinaʻi i ke ʻano o ka maʻi kanesa i loaʻa i ke keiki a me ka lāʻau i loaʻa iā lākou. No ka laʻana, ʻoi aku ka nui o nā hopena lohi o nā hoʻoili cell stem. ʻO nā lāʻau e like me ke ʻoki kino a me ka chemotherapy haʻahaʻa, ʻaʻole ia e hoʻoulu i nā pilikia i ka wā e hiki mai ana.

Eia nō naʻe, pono i kēlā me kēia keiki e ho'ōla ana mai ka maʻi kanesa ka mālama lōʻihi. I loko o kēia mālama ʻana, hana ʻia nā hoʻokolohua maʻamau e ʻike i nā hopena ʻaoʻao e hiki mai ana ma hope o ka mālama ʻana.

He aha kaʻu e hana ai e kōkua i kaʻu keiki?

Wahi a nā loea e wehe a ʻoiaʻiʻo i ke kamaʻilio ʻana me kāu keiki e pili ana i ka maʻi kanesa. Hiki i kēia mau kamaʻilio ke paʻakikī. Eia nō naʻe, manaʻoʻiʻo nā loea e pōmaikaʻi nā keiki mai ka ʻike ʻana i ka mea e hana nei iā lākou a me ka mea e hana ai e pili ana i ia mea. Hiki i nā keiki makua a me nā keiki liʻiliʻi ke hoʻomaopopo i nā wehewehe pololei. Inā ʻōpiopio kāu keiki, makemake paha ʻoe e kamaʻilio me kahi loea ola keiki a i ʻole ke kauka noʻonoʻo keiki e pili ana i ke kamaʻilio ʻana me lākou e pili ana i ka maʻi kanesa.

Ma ke ʻano he kahu mālama i kāu keiki, ʻo ʻoe ko lākou ikaika nui loa. ʻIke maikaʻi ʻoe i kāu keiki. E lawe i nā ʻōlelo aʻoaʻo mai iā lākou a kākoʻo iā lākou i kēlā me kēia ʻanuʻu o ke ala.

ʻO ka mea hope loa, nā mea e hoʻomanaʻo ai (Leka Lawe-Home)

I kēlā me kēia makahiki, lohe nā tausani o nā mākua i nā huaʻōlelo "ua loaʻa i kāu keiki ke kanesa." Akā, ʻoi aku ka pinepine o ko lākou lohe ʻana i nā huaʻōlelo "hiki iā mākou ke mālama, a hiki paha ke ho'ōla, i ke kanesa o kāu keiki."Mahalo i nā lāʻau lapaʻau hou, nui aku nā keiki a me nā ʻōpio e ho'ōla nei mai ka maʻi kanesa.

Eia nō naʻe, ʻo ka hoʻōla ʻana he ʻanuʻu hoʻokahi wale nō ia i kahi huakaʻi mālama ola holoʻokoʻa. E aʻo aku ke kime lapaʻau o kāu keiki iā ʻoe e pili ana i ka mālama e pono ai kāu keiki i ka wā a ma hope o ka mālama ʻana. Mai hoʻokuʻu i ka manaʻolana, me ka ʻike kūpono a me ke kākoʻo, hiki iā ʻoe ke kū i kēia pilikia.

ʻO ke kanesa o nā keiki, leukemia, lymphoma, nā puʻupuʻu lolo, nā hōʻailona o ke kanesa, ka mālama ʻana i ke kanesa, ke olakino o nā keiki