Loaʻa i kāu keiki kēia ʻano pilikia maka? E aʻo kākou e pili ana i ka maʻi Coats.

Ua ʻike anei ʻoe i kahi mea ʻokoʻa ke nānā aku ʻoe i nā maka o kāu keiki liʻiliʻi? Malia paha he ʻano ʻē kekahi maka, a he ʻano pōwehiwehi paha ko lākou ʻike? Inā ʻike ʻoe i kekahi mea e like me ia, mai hoʻomāmā. I kēia lā e kamaʻilio mākou e pili ana i kahi pilikia e hiki mai ana i kou manaʻo i ia manawa, a ʻo ia hoʻi kahi maʻi i kapa ʻia ʻo Coats Disease . He maʻi maka laha ʻole kēia e pili pinepine ana i nā keiki ʻōpio, ʻoi aku hoʻi nā keikikāne.

He aha ka maʻi Coats? E hoʻomaopopo maʻalahi kākou.

I ka ʻōlelo maʻalahi, ʻo ka maʻi Coats kahi maʻi e kū mai ana i ka wā e ulu pono ʻole ai nā kīʻaha koko i loko o ka maka o kāu keiki. Hoʻopilikia kēia i ka retina, ʻo ia ke kua o ka maka. E noʻonoʻo i kēia ʻano: inā like ko kākou maka me ke kāmela, ua like ka retina me ke kiʻiʻoniʻoni i loko. Ke komo ka mālamalama i ka maka, ʻike ia i nā kiʻi a hoʻouna i nā leka i ka lolo ma o kēia retina.

No laila, i ka maʻi Coats, pehu a wili nā kīʻaha koko liʻiliʻi i loko o ka retina, a hoʻomaka lākou e kahe a hoʻokahe paha i nā wai e like me ka plasma . Ua like kēia me kahi paipu wai he lua i loko a ke kahe nei ka wai. ʻOiai ʻaʻole paha e hōʻino nui koke, i ka hala ʻana o ka manawa, hiki i kēia kahe ke hōʻino i ka retina a hoʻopilikia i ka ʻike.

ʻO ka maʻamau, hoʻopilikia kēia maʻi i hoʻokahi maka. Eia naʻe, ʻaʻole hiki ke hoʻopilikia pinepine i nā maka ʻelua i ka manawa like. ʻOiai ʻo ka hapa nui o ka ʻike ʻia ʻana i nā keiki ʻōpio a me nā ʻōpio, hiki ke loaʻa i kēlā me kēia makahiki. Hiki i kēia ke alakaʻi i ka nalowale o ka ʻike, nā pilikia koʻikoʻi e like me ka retinal detachment, a me ka makapō ma ia maka. No laila, he mea nui e ʻike koke i ke kauka inā ʻike ʻoe i kekahi mau loli i nā maka a i ʻole ka ʻike o kāu keiki.

He aha kēia mau hōʻailona? Pehea ʻoe e ʻike ai iā lākou?

ʻAʻole paha e hōʻike ka maʻi Coats i kekahi mau hōʻailona i nā pae mua. Eia nō naʻe, i ka holomua ʻana o ka maʻi, hiki i ke keiki ke hōʻike i nā hōʻailona e like me:

• Ke emi mālie nei ka ʻike: Manaʻo paha kāu keiki ʻaʻole hiki iā ia ke ʻike maopopo i kekahi maka. E ʻike paha ʻoe i nā mea e like me ka neʻe kokoke ʻana i ka wā e nānā ana i ke TV a i ʻole ka ʻūmiʻi ʻana i ka wā e heluhelu ana i kahi puke.
• Strabismus: Me he mea lā ua huli ʻia kekahi maka i kahi ʻaoʻao ʻē aʻe ma mua o kekahi.
• ʻEha maka: Hiki i kekahi mau keiki ke hoʻopiʻi i ka ʻeha maka.
• Leukocoria: He hōʻailona ʻano ʻē kēia. Ke nānā ʻoe i ka haumāna o ka maka o kāu keiki, a i ʻole e kiʻi i kahi kiʻi, ʻike ʻia paha he keʻokeʻo a he kālā paha. I kekahi manawa ua kapa ʻia kēia he "maka pōpoki." Inā ʻike ʻoe i kēia hōʻailona, ​​​​pono ʻoe e ʻike koke i ke kauka.

E noʻonoʻo, i ka wā e pāʻani ana kāu keiki kāne, ʻike ʻoe ʻaʻole hiki iā ia ke ʻike maopopo me kekahi maka, a i ʻole ke kiʻi ʻoe i kahi kiʻi i ka pō, aia kahi wahi keʻokeʻo ma ka iris ʻeleʻele o kekahi maka. ʻO ia ka mea e hiki ke hana ʻia ma ʻaneʻi.

He aha nā pae o ka maʻi Coats?

Ua māhele ʻia ka maʻi Coats i kekahi mau pae, ma muli o ke ʻano o kona holomua ʻana, ua like ia me kahi alapiʻi.

• Pae 1: ʻO kēia ke kahua maʻalahi loa. Maanei, hiki i ke kauka maka ke ʻike he mau kīʻaha koko kūpono ʻole ko ke keiki i loko o ka maka, akā ʻaʻole i loaʻa i ke keiki kekahi ʻeha a i ʻole nā ​​​​hōʻailona ma muli o lākou.
• Pae 2: Maanei e hoʻomaka ai ke kahe ʻana o ke wai mai nā kīʻaha koko ʻē. Hiki i kēia ke hoʻopilikia pinepine i ka ʻike o ke keiki.
• Pae 3: Ke hiki ka maʻi i kēia pae, hoʻomaka ka retina o ke keiki e hemo. He kūlana koʻikoʻi kēia.
• Pae 4: I ka pae ʻehā, hiki i nā maka o ke keiki ke loaʻa i ka glaucoma , kahi maʻi e piʻi ai ke kaomi i loko o ka maka.
• Pae 5: ʻO kēia ke kahua koʻikoʻi loa a hope loa o ka maʻi Coats. I kēia manawa, hiki i ka maka i hoʻopilikia ʻia ke lilo i makapō loa.

ʻO ka mea nui loa, ʻoiai ke ʻano o ka maʻi, ʻo ka wikiwiki o ka ʻike ʻia a me ka mālama ʻia ʻana, ʻoi aku ka nui o ka manawa e mālama ai i ka ʻike o ke keiki.

No ke aha e kū mai ai ka maʻi Coats?

ʻO ka ʻoiaʻiʻo, ʻaʻole i hiki i nā loea ke loaʻa ke kumu no ka maʻi Coats (idiopathic ). ʻO ia hoʻi, hiki pinepine ia me ka manaʻo ʻole, me ke kumu ʻole.

ʻO kekahi mea nui ʻē aʻe, ʻaʻole he maʻi hoʻoilina ka maʻi Coats. ʻO ia hoʻi, ʻaʻole ia he maʻi hoʻoilina i hoʻoili ʻia mai kēlā hanauna a i kēia hanauna. ʻOiai inā ʻaʻohe o kou ʻohana i loaʻa iā ia, hiki nō i kāu keiki ke loaʻa iā ia. Eia kekahi, no ka mea ua loaʻa i kekahi o kāu mau keiki, ʻaʻohe pono e hopohopo e loaʻa pū kekahi mau keiki ʻē aʻe iā ia.

ʻO wai ka mea i ʻoi aku ka paʻakikī o ka loaʻa ʻana o kēia? (Nā kumu pilikia)

ʻOiai hiki i kekahi ke loaʻa i ka maʻi Coats, ʻoi aku ka nui o ka pilikia o kekahi poʻe.

• Ua ʻike ʻia he ʻekolu manawa ka nui o ka loaʻa ʻana o kēia maʻi i nā keikikāne ma mua o nā kaikamahine.
• Ke nānā nei i ka makahiki:
• Hoʻomaopopo pinepine nā kauka i kēia i nā keiki a me nā ʻōpio ma lalo o 16 mau makahiki .
• He mea kākaʻikahi loa, hiki i kekahi mau pēpē ke hānau ʻia me kēia maʻi, a i ʻole hiki ke ʻike ʻia i kekahi mau mahina ma hope o ka hānau ʻana.
• Ua hōʻike ʻia hoʻi he hapakolu o ka poʻe me ka maʻi Coats he mau pākeke ma luna o 30 mau makahiki .

Pehea e ʻike ai ke kauka i kēia? (Diagnosis)

Ke ʻike ʻoe i ke kauka, ʻoiai he kauka maka , ma hope o ka ʻike ʻana i kahi mea ʻokoʻa i nā maka o kāu keiki, ʻo ka mea mua āna e hana ai, ʻo ia ke nānā pono i nā maka o ke keiki.

• Nānā ʻo ia i nā maka o ke keiki mai waho a me loko me ka hoʻohana ʻana i nā mea hana kūikawā.
• Hana ʻia kahi hoʻāʻo ʻike maka e nānā i ka ʻike o ke keiki. Pili kēia i ke ana ʻana i ka ʻike ma ka hōʻike ʻana iā lākou i nā leka a me nā kiʻi a me ka heluhelu ʻana iā lākou.

Eia kekahi, hiki ke hana ʻia hoʻokahi a ʻoi aku paha o nā hoʻokolohua kiʻi kūikawā e hōʻoia i ka maʻi Coats:

• ʻO ke scan Optical Coherence Tomography (OCT) : Lawe kēia i ke kiʻi o kahi ʻāpana kea o ka retina.
• Hoʻāʻo Angiography: Pili kēia i ka hoʻokomo ʻana i kahi kala kūikawā i loko o kahi aa koko i kou lima a me ka lawe ʻana i nā kiʻi i kona hele ʻana ma o nā kīʻaha koko i loko o kou maka . Hiki iā ʻoe ke ʻike maopopo i nā leaka.
• ʻO ke scan Ultrasound: Hiki i kēia ke nānā aku i loko o ka maka.
• ʻO kahi scan MRI (Magnetic Resonance Imaging).
• ʻO ka scan CT (Computed Tomography scan).

ʻAe kēia mau hoʻokolohua i ke kauka e ʻike pono i ka mea e hana nei i loko o ka maka, ka nui o ka hōʻino ʻia o nā kīʻaha koko, a inā paha e liki ana ka wai.

He aha nā lāʻau lapaʻau?

ʻO ke ʻano o ka mālama ʻana no ka maʻi Coats e pili ana i ke kahua o ka maʻi i loko o ke keiki. No ka laʻana, inā ʻike mua ʻia ka maʻi (kahua 1 a i ʻole ke kahua mua 2) , ʻaʻole paha e pono i ke keiki kekahi lāʻau lapaʻau. I kēlā mau hihia, e nānā mau ke kauka maka i nā maka o ke keiki a nānā i nā loli i loko o nā kīʻaha koko ma ka retina.

Eia nō naʻe, inā he koʻikoʻi nā hōʻailona o ke keiki, a inā paha ua ʻoi aku ka koʻikoʻi o ka maʻi, aia nā lāʻau lapaʻau e like me:

• Cryotherapy: Pili kēia i ka hoʻohana ʻana i ke anu nui e hoʻopaʻahau a luku i nā kīʻaha koko maʻamau, a laila e pale iā lākou mai ka hoʻokahe ʻana i ke wai.
• Lapaʻau Lāʻau: Hiki i ke kauka maka ke hoʻokomo pololei i kahi lāʻau anti-VEGF (Anti-vascular endothelial growth factor) i loko o ka retina o ke keiki. Kōkua kēia lāʻau i ka pale ʻana i ke kahe ʻana o ke wai mai kēlā mau kīʻaha koko a pale i ka hemo ʻana o ka retina.
• ʻOki kino: Inā aia ke keiki i kahi pae koʻikoʻi o ka maʻi, a inā paha ua ulu aʻe kahi kūlana e like me ka retinal detachment, pono paha ke ʻoki kino e hoʻoponopono i ka pōʻino.

He aha kaʻu e manaʻo ai inā loaʻa i kaʻu keiki ka maʻi Coats?

ʻO ka hopena o ka maʻi Coats i nā maka a me ka ʻike o ke keiki e pili ana i ka wā i ʻike ʻia ai ka maʻi a me ka maikaʻi o ka pane ʻana o ka maka i ka lāʻau lapaʻau. Ua ʻike ʻia nā noiʻi ʻo ka ʻelemakule o ke keiki i ka wā i ʻike ʻia ai ka maʻi, ʻo ka emi ʻana o ka hiki ke holomua i kahi pae ʻoi aku ka koʻikoʻi .

Inā ʻike mua ʻia ka maʻi Coats (pae 1 a i ʻole 2), ʻaʻole paha e loaʻa i ke keiki nā hopena koʻikoʻi a lōʻihi. Eia nō naʻe, me ka mālama ʻia ʻana, hiki nō i ka maka i hoʻopilikia ʻia ke loaʻa i kekahi kekelē o ka nalowale ʻana o ka ʻike (ʻike haʻahaʻa).

Inā ua holomua ka maʻi i kahi pae ʻoi aku ka koʻikoʻi, ʻoi aku ka nui o ka makapō i ka maka i hoʻopilikia ʻia. ʻO ia ke kumu e paipai aku ai mākou iā ʻoe e ʻike koke i ke kauka, ʻoiai inā ʻike ʻoe i kahi loli iki.

He aha nā pilikia ʻē aʻe e hiki ai i kēia ke hana?

I ka wā o ka maʻi Coats, ua nui ka pilikia o ke keiki i ka hoʻomohala ʻana i nā maʻi maka ʻē aʻe, e like me:

• ʻO ka glaucoma
• Nā Cataracts
• Uveitis ( ka mumū o nā ʻiʻo i loko o ka maka)
• Hoʻololi ʻana o ke koko

No laila, he mea nui loa e hahai pono i nā ʻōlelo a ke kauka a e hele i nā hoʻokolohua i ka manawa.

Hiki ke pale ʻia ka maʻi Coats?

Ma muli o ka hiki ʻole ʻana o kēia maʻi me ke kumu ʻole, me ke kumu ʻole, ʻaʻohe mea hiki iā mākou ke hana e pale aku ai i ka maʻi Coats.

Eia nō naʻe, i ka manawa e ʻike ʻia ai ka maʻi, he mea nui e loaʻa nā hoʻokolohua maka maʻamau e like me ka ʻōlelo a ke kauka maka e nānā i nā loli i ka retina o ke keiki. E kōkua kēia i ka ʻike ʻana i kekahi ʻino o ka maʻi a hana i nā hana e pono ai.

Āhea wau e ʻike ai i ke kauka?

Inā ʻike ʻoe i kekahi mau loli i nā maka a i ʻole ka ʻike o kāu keiki, e ʻike koke i ke kauka a i ʻole ke kauka maka. Mai hoʻokaʻulua.

Eia kekahi, inā ʻike ʻoe i kekahi o kēia mau hōʻailona, ​​e hele koke i ka keʻena pilikia o ka haukapila :

• Ka nalowale koke ʻana o ka ʻike.
• ʻEha nui o ka maka.
• Hiki ke wehewehe ʻia e like me ka ʻike ʻana i nā kukui uila a i ʻole ka ʻike ʻana i nā mea lana i mua o nā maka.

He aha nā nīnau āu e nīnau ai i ke kauka?

Ke hele ʻoe e ʻike i ke kauka, makemake paha ʻoe e nīnau i nā nīnau e like me kēia:

• I ke kahua hea o ka maʻi Coats kaʻu keiki?
• ʻEhia pinepine e pono ai iaʻu e hele mai no nā hoʻokolohua hahai?
• Pono anei ke keiki i ka lāʻau lapaʻau?
• He aha ke ʻano o ka lāʻau lapaʻau e pono ai iā ia?
• Pehea ka nui o ka hopena o ka maʻi Coats i kona ʻike?

E nīnau i nā nīnau e like me kēia a e hoʻopau i kou mau kānalua a pau. E wehewehe ke kauka i nā mea āpau iā ʻoe.

He aha ka ʻokoʻa ma waena o ka maʻi Coats a me Retinoblastoma?

ʻO ka maʻi Coats a me Retinoblastoma ʻelua mau kūlana e hoʻopilikia ai i ka retina o nā keiki ʻōpio.

• ʻO ka maʻi Coats kahi kūlana e ulu kūpono ʻole ai nā kīʻaha koko i loko o ka retina o ke keiki, e hoʻoheheʻe ana i ka wai i loko o ka maka.
• He ʻano maʻi kanesa laha ʻole ka Retinoblastoma e ulu ana ma ka retina. ʻOiai he maʻi kanesa ia, inā ʻaʻole i pālahalaha ka puʻupuʻu ma waho o ka maka, hiki i ka hapa nui o nā keiki ke ola me ka ʻole o ka maʻi kanesa ma hope o ka mālama ʻia ʻana.

Ua like loa nā hōʻailona mua o nā maʻi ʻelua. ʻO ka mea nui, hiki ke ʻike ʻia ke ʻano keʻokeʻo o ka iris ʻeleʻele (leukocoria) ma nā mea ʻelua. No laila, inā ʻike ʻoe i kekahi mau loli a i ʻole nā ​​​​hōʻailona i nā maka o kāu keiki, he mea nui e ʻike koke i kahi ophthalmologist e ʻike pono i ke ʻano o ia mea. Hiki i ke kauka ke hana i nā hoʻokolohua a haʻi pololei iā ʻoe i kahi o kēia mau maʻi ʻelua.

Leka Lawe-Home

He maʻi laha ʻole ka maʻi Coats e hoʻopilikia ana i nā kīʻaha koko liʻiliʻi ma ka retina, ke kua o ka maka o kāu keiki. Hoʻopilikia kēia i ka wai e kahe mai kēlā mau kīʻaha koko, e hōʻino ana i ka ʻike.

ʻO ka mea nui e hoʻomanaʻo ai, ʻo ke ala maikaʻi loa e hōʻemi ai i ka hopena o kēia maʻi i nā maka a me ka ʻike o ke keiki, ʻo ia ka loaʻa ʻana o ka maʻi i kona wā mua.

No laila, inā ʻike ʻoe i kahi loli iki loa i nā maka o kāu keiki a i ʻole ke ʻano o kā lākou ʻike ʻana i nā mea, mai hoʻowahāwahā iā ia a e ʻike koke i ke kauka a i ʻole ke kauka maka. Inā ʻike mua ʻia, ʻoi aku ka nui o ka manawa e hiki ai ke hoʻōla ʻia ka ʻike o kāu keiki me ka lāʻau lapaʻau. Mai hopohopo, aia nā kauka ma laila e kōkua iā ʻoe a me kāu keiki.

ʻO ka maʻi ʻaʻahu, nā maʻi maka o nā keiki, nā kīʻaha koko i loko o ka maka, retina, nalowale o ka ʻike, ka mālama ʻana i nā maka, ke olakino o ke keiki