E ke kauka, loaʻa iā ʻoe kekahi 'Exocrine Pancreatic Insufficiency' a i ʻole EPI e like me kā mākou e kapa nei no ka pōkole? A laila ua ʻike paha ʻoe mai ka ʻike pehea ʻoe e makaʻala ai e pili ana i kāu meaʻai a me kāu mea inu. Pono ʻoe e lawe i ka lāʻau lapaʻau i kuhikuhi ʻia me kēlā me kēia ʻai. No laila, i ka manawa e like me kēia, ke loaʻa iā ʻoe kahi kono i ka pāʻina lā hānau o kahi hoaaloha, a i ʻole e hele i waho no ka ʻaina ahiahi me kou ʻohana, he mea maʻamau ke manaʻo iki i ka makaʻu a me ka hopohopo. ʻO nā nīnau e like me "E loaʻa anei ka meaʻai kūpono iaʻu?", "E hiki anei iaʻu ke lawe i kaʻu lāʻau lapaʻau i ka manawa kūpono?", "E ʻala loa anei ka meaʻai a hoʻonāukiuki i koʻu ʻōpū?" e hiki mai ana i ka noʻonoʻo, ʻaʻole anei? Akā, mai makaʻu iki. ʻAʻole pono ʻoe e hoʻōki i ka launa pū ʻana me nā hoaaloha a me ka leʻaleʻa no ka mea he EPI kou. Me kahi hoʻomākaukau iki a me ka hoʻolālā maikaʻi, hiki iā mākou ke lanakila maʻalahi i kēia. E nānā kākou pehea e hele ai?
KaʻAnuʻu Hana 1: E hana kākou i kahi noiʻi liʻiliʻi e pili ana i ka hale ʻaina.
Ua like kēia me kahi nānā iki ma mua o kou hele ʻana i kahi misionari. ʻO ia hoʻi ka noiʻi ʻana i kahi āu i koho ai e ʻai ma mua o kou hele ʻana. E kōkua nui kēia i ka hoʻolilo ʻana i kāu pāʻina i mea holomua.
E noʻonoʻo ʻoe e hoʻomākaukau ana ʻoe e hele i kahi hale ʻaina kaulana ma Colombo me kāu mau hoaaloha. E hoʻāʻo i kēia mau mea i hoʻokahi a ʻelua paha lā ma mua o kou hele ʻana.
| He aha e hana ai | He aha ka pōmaikaʻi o ia mea? |
|---|---|
| E nānā i ka papa kuhikuhi ma ka pūnaewele. | I kēia manawa, ua loaʻa i nā hale ʻaina he nui kā lākou papa kuhikuhi ma kā lākou pūnaewele a i ʻole nā ʻaoʻao Facebook. Hiki iā ʻoe ke nānā iā lākou e loaʻa ai kahi manaʻo o nā kīʻaha kūpono iā ʻoe. No ka mea, loaʻa iā ʻoe ka EPI, ʻo nā koho maikaʻi loa nā meaʻai haʻahaʻa momona . ʻO ia hoʻi, e ʻimi i ka iʻa i kālua ʻia a i ʻole i kālua ʻia, ka moa, nā mea kanu hou, a me nā huaʻai. |
| E kāhea aku i ka hale ʻaina. | Inā ʻaʻole hiki iā ʻoe ke loaʻa kahi mea ma ka papa kuhikuhi e kūpono iā ʻoe, a inā ʻaʻole ʻoe maopopo, e kāhea pololei iā lākou a nīnau. E wehewehe wale i kou kūlana olakino ("ʻAʻole hiki iaʻu ke ʻae i nā mea e like me ka ʻaila, ka pata, a i ʻole ka tīhi, no laila hiki iā ʻoe ke hana i kahi meaʻai e kūpono iaʻu?"), A nīnau inā hiki iā lākou ke kōkua iā ʻoe. ʻO ka hapa nui o ka manawa, e kōkua lākou iā ʻoe inā ʻoe e hoʻomaopopo iā lākou ma mua. |
| Aia i hea ka lumi holoi ma hope o ka haʻalele ʻana? | I kou hele ʻana i kahi hale ʻaina, e nānā pono i kahi o ka lua. E kōkua kēia iā ʻoe e pale i ka pilikia o ka ʻimi ʻana i kahi lua inā ʻawaʻawa loa ka meaʻai, inā he ʻōpū ʻeha kou, a inā he pilikia paha kāu. |
E hoʻomākaukau kākou penei ma ka home ma mua o ka puka ʻana i waho.
ʻO kahi hoʻomākaukau iki ma ka home ma mua o ka hele ʻana i kahi hale ʻaina e hiki ai ke hoʻomaikaʻi nui i kāu ʻike. He mau mea maʻalahi loa kēia, akā he mea nui loa.
| Pehea e hoʻomākaukau ai | Ka wehewehe a me ke koʻikoʻi |
|---|---|
| E ʻai iki ma mua o kou hele ʻana. | Mai hele i kahi hale ʻaina me ka pōloli. E ʻai i kahi meaʻai māmā a i ʻole kahi meaʻai māmā ma mua o kou hele ʻana. A i ʻole, e lanakila kou pōloli iā ʻoe a hiki iā ʻoe ke makemake i nā meaʻai maikaʻi ʻole e like me nā ʻāpana tīhi palai ma ka papa kuhikuhi. Inā ʻoe e ʻai i kahi mea kiʻekiʻe i ka protein (kahi hua moa i hoʻolapalapa ʻia, kekahi mau chickpeas), ʻaʻole ʻoe e makemake e ʻai iā lākou no ka mea e piha kou ʻōpū. |
| E akahele me nā pila. | E mālama i kāu pancreatic enzyme replacement therapy (PERT) i loko o kahi ʻeke a i ʻole pahu paʻa. ʻAʻole maikaʻi ka wela no kēia mau lāʻau lapaʻau. Inā ʻoe e hele ana i waho i ke ao, mai waiho i kāu lāʻau lapaʻau ma kahi wela, e like me ka dashboard a i ʻole i loko o ka ʻāpana mīkina lima o kāu kaʻa. Hiki i nā mahana ma luna o 25 degere Celsius (77 F) ke hōʻino i kēia mau lāʻau lapaʻau a hoʻolilo iā lākou i mea emi ka maikaʻi. ʻOi aku ka maikaʻi o ka mahana o ka lumi. |
| E hoʻomākaukau i nā mea hou e pono ai. | He pilikia ko kekahi poʻe i ka moni ʻana i ka lāʻau lapaʻau. Inā ʻoe e kāwili i ka pauka i loko o kāu ʻōmole lāʻau lapaʻau me kahi mea e like me ka applesauce a i ʻole ka yogurt, e mālama iā ia i loko o kahi pahu liʻiliʻi. He manaʻo maikaʻi nō hoʻi e lawe i kahi ʻōmole wai keu, no ka mea, pono paha ʻoe e kali i kahi mea lawelawe e hoʻopiha hou i kāu kīʻaha wai. |
E noʻonoʻo i kēia mau mea i ke kauoha ʻana i ka meaʻai.
ʻAe, ua hele ʻoe i ka hale ʻaina. Loaʻa iā ʻoe ka papa kuhikuhi ma ka lima. I kēia manawa ke hele mai nei ka ʻāpana koʻikoʻi. He mea nui loa ke akamai i ke kauoha ʻana i ka meaʻai.
Mai makaʻu e nīnau i nā nīnau i ke kauā.
Inā makemake ʻoe e ʻike i kahi meaʻai, mai hilahila e nīnau e pili ana i ke ʻano o ka hana ʻia ʻana a me nā mea i hoʻokomo ʻia i loko.
- "Ke hoʻokomo nei ʻoe i ka nui o ka kirīmi/ʻaila i loko o kēia kari?"
- "Ua palai ʻia kēia iʻa a ua kālua ʻia paha?"
- "He aha ka mea i loko o ka ʻaʻahu salakeke?"
E nīnau i nā nīnau e like me kēia a koho i ka mea kūpono loa iā ʻoe.
E noi i nā hoʻololi i nā meaʻai
I ka manawa pinepine, e mākaukau ke kuke e hana i nā hoʻololi liʻiliʻi i ke kīʻaha e like me kāu mau pono.
- "Hiki iā ʻoe ke lawe mai i ka ʻaila/mea ʻono i loko o kahi kīʻaha liʻiliʻi ʻokoʻa?" (A laila hiki iā ʻoe ke hoʻohui i ka nui āu e makemake ai).
- "Hiki iā ʻoe ke kālua a hoʻomoʻa paha i kēia ma kahi o ka palai ʻana?"
- "Hiki iā ʻoe ke hana i nā mea kanu me ka ʻole o ka pata?"
E hoʻomanaʻo, ʻo kou olakino ka mea nui loa, no laila mai makaʻu e noi i kāu mea e makemake ai me ka maopopo, akā me ka akahai.
Mai poina e lawe i kāu lāʻau lapaʻau!
ʻO kēia ke kānāwai koʻikoʻi loa i ka wā e ʻai ai i waho me EPI. Pono ʻoe e lawe i ka lāʻau enzyme (PERT) i kuhikuhi ʻia e kāu kauka me ka nahu mua o kāu ʻai .
I ka ʻōlelo maʻalahi, aia i loko o kēia mau lāʻau nā enzymes e kōkua iā ʻoe e hoʻoheheʻe i ka meaʻai āu e ʻai ai. Inā ʻoe e lawe i kēia mau lāʻau ma mua pono o kou hoʻomaka ʻana e ʻai, e hui maikaʻi nā enzymes me ka meaʻai a kōkua i ke kaʻina hana hoʻoheheʻe. Inā ʻoe e lawe i ka lāʻau ma hope o kou pau ʻana i ka ʻai ʻana, ʻaʻole ia e kōkua nui. No laila, e hōʻoia e lawe i kāu lāʻau i ka wā e kau ai ka meaʻai ma ka papaʻaina, ma mua o kou lawe ʻana i kāu nahu mua.
Mai hilahila i ka lawe ʻana i kāu lāʻau lapaʻau i mua o nā poʻe ʻē aʻe ma ka papa ʻaina. He mea nui ia no kou olakino. Hiki iā ʻoe ke hana maʻalahi me ka ʻole o ka hoʻopilikia ʻana i kekahi.
Leka Lawe-Home
- ʻO ka loaʻa ʻana o ka EPI, ʻaʻole ia he manaʻo e hoʻōki ʻoe i ka leʻaleʻa me kou ola kaiaulu a me nā hoaaloha.
- E hana i kahi hoʻolālā liʻiliʻi ma mua o ka hele ʻana e ʻai. E nānā i ka papa kuhikuhi o ka hale ʻaina a kāhea aku inā pono.
- Ma mua o ka haʻalele ʻana i ka home, e ʻai i kahi meaʻai māmā, e hoʻopaʻa pono i kāu mau lāʻau lapaʻau, a e lawe i kahi ʻōmole wai keu.
- I ke kauoha ʻana i ka meaʻai, mai makaʻu e nīnau a noi i nā hoʻololi e kūpono iā ʻoe.
- ʻO ka mea nui loa: Mai poina e lawe i kāu lāʻau enzyme (PERT) me ka nahu mua o kāu ʻai.
- Inā he mau kānalua a nīnau paha kāu e pili ana i kēia, e kamaʻilio me kāu kauka a e ʻimi i ka ʻōlelo aʻo.
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