Ke ʻike nei ʻoe i nā puʻupuʻu ma kou kino? Hiki paha iā Follicular Lymphoma. E kamaʻilio kākou e pili ana i ia mea!

E noʻonoʻo, ʻōlelo mau ʻo Samantha Akka ua luhi loa ʻo ia, a hou ʻo ia i ka pō. I kekahi manawa ʻōlelo pū ʻo ia ua loaʻa iā ia kahi puʻupuʻu liʻiliʻi ma kona ʻāʻī. ʻOiai ʻaʻole i noʻonoʻo ʻia kēia mau mea i ko kākou ola o kēlā me kēia lā, hiki iā lākou ke lilo i mau hōʻailona o kahi maʻi e like me Follicular Lymphoma. Mai hopohopo, e kamaʻilio maʻalahi mākou e pili ana i kēia, ma ke ʻano hiki iā ʻoe ke hoʻomaopopo.

He aha ka Lymphoma Follicular?

I ka ʻōlelo maʻalahi, he ʻano kanesa lohi loa ka ulu ʻana o ka lymphoma follicular. I ka pololei, he kanesa ia e ulu ana i loko o kā mākou mau lymph cell. Hiki iā ia ke ulu i loko o kou mau lymph nodes - a i ʻole, e like me kā mākou e kapa nei iā lākou, kou mau lymph nodes - a i ʻole kou iwi iwi, a i ʻole i loko o nā ʻōpū kūloko ʻē aʻe. ʻO ka mea kupaianaha, hiki i kekahi poʻe ke loaʻa i kēia maʻi me ka ʻole o ka hōʻike ʻana i nā hōʻailona . ʻO ia ke kumu e manaʻo ai nā kauka he maʻi mau loa ia. ʻO ka nūhou maikaʻi, aia nā lāʻau lapaʻau no ia mea. Eia naʻe, i kekahi manawa hiki i ka maʻi ke hoʻi hou mai ma hope o ka lāʻau lapaʻau. Akā manaʻo nā kauka ʻaʻole mamao loa ka manawa e hiki ai ke ho'ōla loa ʻia kēia maʻi me nā lāʻau lapaʻau hou.

ʻO wai ka mea i loaʻa pinepine i kēia maʻi?

Wahi a nā helu helu, ma kahi o ʻekolu a ʻehā mau kānaka mai kēlā me kēia haneli tausani (ma kahi o 3.5) e loaʻa paha kēia maʻi. ʻOi aku ka nui o ka poʻe ma luna o 65 mau makahiki e loaʻa i kēia maʻi ma mua o ka poʻe ʻōpio. Ua ʻike ʻia hoʻi he ʻoi aku ka nui o ka loaʻa ʻana o kēia maʻi i nā kāne ke hoʻohālikelike ʻia me nā wahine.

Pehea ka hopena o ka Follicular Lymphoma i koʻu kino?

ʻO ka lymphoma follicular kahi ʻano o ka lymphoma B-cell , kahi ʻano o ka lymphoma non-Hodgkin . No laila, hiki iā ia ke hōʻike i nā hōʻailona o ka lymphoma non-Hodgkin, e like me nā lymph nodes pehu, ke kuni, a me ka hou ʻana i ka pō .

Eia nō naʻe, ua ʻike ʻia ka nui o ka poʻe me ka maʻi ma mua o ka loaʻa ʻana o kekahi mau hōʻailona . No kekahi mea ʻaʻohe ona hōʻailona a olakino maikaʻi, ʻaʻole paha e hoʻomaka koke nā kauka i ka lāʻau. Akā, e hele lākou me kahi hoʻolālā i kapa ʻia ʻo 'watchful waiting' a i ʻole 'active surveillance' . ʻO ia hoʻi, ke nānā mau nei nā kauka i kou olakino a me nā hōʻailona.

Hiki i kēia maʻi ke hoʻopilikia iā ʻoe ma ka noʻonoʻo ma mua o kona hoʻopilikia ʻana iā ʻoe ma ke kino. Ua hōʻike ʻia kahi noiʻi hou nei ua loaʻa i ka poʻe me ka lymphoma follicular a me nā lymphomas lohi like e ulu ana i ka hopohopo nui ma muli o ka maopopo ʻole o ka 'Āhea e ʻike ʻia ai nā hōʻailona?' a 'Āhea e hoʻomaka ai ka lāʻau lapaʻau?'

He maʻi koʻikoʻi anei ka Follicular Lymphoma?

ʻAe, ʻo ia ka lymphoma follicular maoli.Hiki iā ia ke lilo i maʻi olakino koʻikoʻi a paʻakikī hoʻi. Aia kekahi mau kumu no kēia:

• Hoʻololi: I kekahi manawa, hiki i ka lymphoma follicular ke hoʻololi i kahi ʻano maʻi ʻoi aku ka ikaika i kapa ʻia ʻo diffuse large B-cell lymphoma (DLBCL) . Hiki i kēia ke hana i nā hōʻailona hou a ʻoi aku ka koʻikoʻi a me ka laha ʻana o ke kanesa i nā ʻāpana ʻē aʻe o ke kino. Ma kahi o 3 pakeneka (3%) o ka poʻe me ka lymphoma follicular e hoʻololi i DLBCL. E noʻonoʻo i ka paʻakikī o ka loaʻa koke ʻana o kahi maʻi koʻikoʻi.
• Hoʻi hou: ʻO kekahi pilikia me kēia maʻi, ma hope o ka mālama ʻana, hiki i nā hōʻailona ke hoʻomaha, a laila e ʻā hou ma hope o kekahi manawa. ʻO kēia pōʻaiapuni o ka hoʻomaha-hoʻi hou-kala ʻana e paʻakikī ai i ka poʻe me kēia maʻi ke manaʻo ua 'pau' lākou. I nā huaʻōlelo ʻē aʻe, pono lākou e noho mau me ka makaʻu iki i loko o ko lākou mau naʻau.

He aha nā hōʻailona o ka Lymphoma Follicular?

Aia kekahi mau hōʻailona maʻamau e ʻike ʻia ma kēia maʻi. Akā e hoʻomanaʻo, ʻoiai inā loaʻa iā ʻoe kēia mau hōʻailona, ​​ʻaʻole ia he manaʻo ua loaʻa iā ʻoe kēia maʻi. Akā, he mea nui e makaʻala i kēia mau mea.

• Nā ʻōpū lymph pehu ma ka ʻāʻī, nā armpits, a i ʻole ka ʻāpana groin me ka ʻole o ka ʻeha. Kāhea mākou iā lākou he mau ʻōpū lymph pehu, ʻo ia lākou.
• Ke kuni me ka ʻole o kekahi maʻi a maʻi ʻē aʻe.
• ʻO ka emi ʻana o ke kaumaha me ke kumu ʻole. Pono ʻoe e hopohopo, ʻoiai inā ua emi ʻoe he 10% a ʻoi aku paha o kou kaumaha kino i nā mahina 6 i hala .
• Ka hou ʻana a me ke anu. ʻOi loa aku inā nui kou hou ʻana a pulu kou wahi moe i ka pō (ka hou ʻana i ka pō) a hoʻomau ia, he hōʻailona paha ia o kahi maʻi.
• Luhi. ʻAʻole kēia he luhi maʻamau. He luhi nui ia e paʻakikī ai ka hana ʻana i nā hana maʻamau o kēlā me kēia lā .

He aha ke kumu o ka Lymphoma Follicular?

ʻO kaʻoiaʻiʻo, ʻaʻole i ʻike nā kānaka noiʻi i nā kumu kikoʻī a pau o kēia maʻi. Akā ua ʻike lākou ma kahi o 85 pakeneka (85%) o nā hihia, ʻo ke kumu nui o kēia maʻi nā loli i loko o kā mākou mau chromosomes . Ma muli o kēia mau loli, ʻano ʻē, a i ʻole ke kanesa, hoʻomaka nā pūnaewele e māhele a hoʻonui me ka ʻole o ke kaohi.

Pehea e ʻike ai nā kauka i ka lymphoma follicular?

Hoʻohana nā kauka i kekahi mau hoʻokolohua e hoʻoholo pono ai inā loaʻa iā ʻoe kēia maʻi a ʻaʻole paha.

• Biopsy: Pili kēia i ka lawe ʻana i kahi ʻāpana liʻiliʻi mai kahi kīpē lymph i pehu ʻia.He hoʻokolokolo microscopic ia e ʻike ai inā he mau hunaola kanesa. ʻO kēia ke ala nui e hōʻoia ai i ka maʻi .
• ʻIke PET (Positron Emission Tomography - PET scan): Hiki i kēia ʻike ke hōʻike i ke ʻano o ka hana ʻana o nā hunaola kanesa, ka mamao o ko lākou laha ʻana, a me ke ʻano o ke kanesa.
• CT scan (Computed Tomography - CT scan): Kōkua kēia i nā kauka e ʻike i kahi o ke kanesa i loko o ke kino, pehea kona nui, a pehea e pane ai i ka lāʻau lapaʻau.

He aha nā pae o ka Lymphoma Follicular?

E like me nā maʻi kanesa āpau, he ʻokoʻa nā pae o ka lymphoma follicular. Hoʻohana nā kauka i kēia mau pae e hoʻoholo i ke ʻano o ka lāʻau lapaʻau maikaʻi loa. ʻEhā mau pae nui (I a IV):

• Pae I: Aia ke kanesa ma hoʻokahi a ʻoi aku paha nā wahi o ka lymph node . Ma kahi o 25 pakeneka (25%) o nā hihia lymphoma follicular i ʻike ʻia i kēia pae.
• Pae II: Aia ke kanesa ma ʻelua a ʻoi aku paha mau wahi o ka lymph node ma luna a ma lalo paha o ka diaphragm (ka ʻiʻo e hoʻokaʻawale i ko kākou umauma a me ka ʻōpū). Ma kahi o 15 pakeneka (15%) o nā maʻi i ʻike ʻia i kēia pae.
• Pae III: Aia ke kanesa i loko o nā lymph nodes ma nā ʻaoʻao ʻelua o ka diaphragm (ma luna a ma lalo) . Ma kahi o 26 pakeneka (26%) o nā maʻi i ʻike ʻia i kēia pae.
• Pae IV: Ua pālahalaha ke kanesa ma ʻō aku o nā lymph nodes, i ka iwi iwi a i ʻole nā ​​ʻōnaehana ʻē aʻe . Ma kahi o 27 pakeneka (27%) o nā maʻi i ʻike ʻia i kēia pae holomua loa.

Pehea e mālama ʻia ai ka Lymphoma Follicular?

ʻAʻole hoʻohana nā kauka i ka lāʻau like no nā kānaka a pau i ka wā e mālama ai i ka lymphoma follicular. Hoʻoholo ʻia ka lāʻau e nā kumu he nui, me ke kūlana o ka mea maʻi a me ke kahua o ka maʻi. I kekahi manawa, hoʻohana ʻia ka hui pū ʻana o ke 'kali makaʻala' a me nā lāʻau ʻē aʻe.

• Ke kali makaʻala a i ʻole ka nānā ʻana: Inā ʻōlelo kāu kauka i kēia ʻano hana, pono ʻoe e ʻike pinepine i kāu kauka, e hana i nā hoʻokolohua kino, nā hoʻāʻo koko, a me nā scan . ʻO ke ʻano kēia o ke kali ʻana a ʻike ʻia nā hōʻailona a i ʻole e ʻoi aku ka ʻino o ka maʻi.
• Lapaʻau radiation: Hiki ke hoʻohana ʻia kēia ʻano radiation therapy i ka wā mua o ka maʻi, i ka wā e kaupalena ʻia ai ke kanesa i hoʻokahi wahi. Hoʻohana ia i nā kukuna ikehu kiʻekiʻe e luku i nā hunaola kanesa.
• Ka lāʻau lapaʻau antibody monoclonal:He ʻano paʻakikī kēia lāʻau lapaʻau. I ka ʻōlelo maʻalahi, hoʻohana ia i kahi ʻano antibody i hana kūikawā ʻia i loko o kahi keʻena hoʻokolohua . Hiki i kēia mau antibodies ke loaʻa nā hunaola kanesa a luku iā lākou.
• ʻO Chemotherapy: He mea kēia a ka poʻe he nui e lohe ai i ka wā e kamaʻilio ai e pili ana i ka mālama ʻana i ka maʻi kanesa. Pili ia i ka hoʻohana ʻana i nā lāʻau lapaʻau kūikawā e luku i nā hunaola kanesa . Hiki ke hāʻawi wale ʻia ka chemotherapy a i ʻole me ka hui pū ʻana me nā lāʻau ʻē aʻe.
• Lapaʻau i hoʻolālā ʻia: ʻO nā lāʻau lapaʻau i hoʻohana ʻia i kēia ʻano lapaʻau e hoʻolālā a hoʻouka wale i nā hunaola kanesa, me ka ʻole o ka hōʻeha ʻana i nā hunaola olakino maʻamau . Hiki i kēia ke hōʻemi i nā hopena ʻaoʻao.
• Immunotherapy: He lāʻau lapaʻau hoihoi loa kēia. Hana ia ma ka hoʻoulu ʻana i kāu ʻōnaehana pale ponoʻī e hakakā i ka maʻi kanesa. Hoʻonui ia i ka hana ʻana o nā cell e hakakā i nā cell cancer, a i ʻole kōkua ia i nā cell olakino e ʻike a hoʻouka i nā cell cancer.
• Ka hoʻoili ʻana o ka iwi ʻiʻo/kelepona kumu: Inā hoʻi hou ka lymphoma follicular ma hope o ka chemotherapy, hiki i nā kauka ke ʻōlelo aku i kēia lāʻau lapaʻau. Pili kēia i ka hoʻololi ʻana i ka iwi ʻiʻo maʻi me ka iwi ʻiʻo olakino a i ʻole nā ​​​​kelepona kumu.

Hiki ke pale ʻia ka lymphoma follicular?

ʻO ka mea pōʻino, ʻaʻole i loaʻa i nā kānaka noiʻi kahi ala kikoʻī e hōʻemi ai i ka pilikia o ka loaʻa ʻana o kēia maʻi. Inā he mau hopohopo a kānalua paha kāu e pili ana i kēia, ʻo ka mea maikaʻi loa e hana ai, ʻo ia ke ʻike i kāu kauka a kamaʻilio e pili ana i kou mōʻaukala olakino a me ka mōʻaukala olakino ʻohana. A laila hiki i ke kauka ke hāʻawi iā ʻoe i ka ʻōlelo aʻoaʻo e pono ai.

ʻEhia ka lōʻihi e hiki ai iā ʻoe ke ola me ka Follicular Lymphoma?

E like me kā mākou i kūkākūkā ai ma mua, he maʻi lohi ka ulu ʻana o ka lymphoma follicular. ʻO ia hoʻi, hiki iā ʻoe ke ola me kēia maʻi no ka manawa lōʻihi. Ua hōʻike ʻia nā noiʻi e pili ana i ka hapalua (ma kahi o 50%) o ka poʻe i ʻike ʻia me kēia maʻi e ola ana no kahi o 20 mau makahiki . Eia kekahi, ma kahi o 90% o nā maʻi e ola nei i 5 mau makahiki ma hope o ka ʻike ʻia ʻana o ka maʻi. No laila ke hōʻike nei kēia ʻoiai he maʻi make kēia, aia kahi manawa e ola ai me ia.

Pehea e hiki ai iaʻu ke mālama iaʻu iho?

He mea nui loa ka mālama ponoʻī i ka wā e noho ana me ka maʻi kanesa. Eia kekahi mau mea e hiki ke kōkua iā ʻoe i kou wā e mālama ai i kēia maʻi:

• E hoʻomohala i nā ʻano ʻai maikaʻi a me ka hoʻoikaika kino.E nīnau i kahi meaʻai olakino a kauka paha e pili ana i kahi papaʻai olakino e kūpono iā ʻoe. He mea maikaʻi loa nō hoʻi ka hoʻoikaika kino ʻana i ka hiki no ke kino.
• He hōʻailona maʻamau ka luhi o kēia maʻi, a hiki nō hoʻi ke lilo i hopena ʻaoʻao o ka lāʻau lapaʻau. No laila e hoʻolohe i kou kino. Ke luhi ʻoe, e hoʻomaha ʻaʻole wale i ka wā hiki iā ʻoe, akā i ka wā e pono ai.
• Pono paha ʻoe e noho me kēia maʻi kanesa no ka manawa lōʻihi . He nūhou maikaʻi maoli kēlā. Eia nō naʻe, hiki i ka noho ʻana me kahi maʻi mau ke paʻakikī i ka noʻonoʻo. No laila, ʻo ke kamaʻilio ʻana me kahi mea lapaʻau a i ʻole ke komo ʻana i kahi hui kākoʻo no ka poʻe me kēia maʻi hiki ke kōkua nui i kou olakino noʻonoʻo. He ikaika nui nō hoʻi ia e ʻike ʻaʻole ʻoe hoʻokahi.

Āhea wau e ʻike ai i kaʻu kauka?

Ma hope o kou ʻike ʻia ʻana me ka lymphoma follicular, e hoʻonohonoho kāu kauka i nā manawa hoʻopaʻa e nānā i kou kūlana a me ka mālama ʻana. E mālama pono i kēia mau manawa.

Eia nō naʻe, inā ʻike ʻoe i kekahi mau loli i kou kino a i ʻole nā ​​hōʻailona hou (nā hōʻailona lymphoma follicular), e ʻike koke i kāu kauka a haʻi iā lākou e pili ana i ia mea. ʻO ka wā mua e ʻike ʻia ai, ʻo ka maʻalahi ka mālama ʻana.

Leka Hoʻihoʻi Hope Loa

Hoʻoweliweli mai ka huaʻōlelo kanesa iā kākou, ʻeā? ʻOiai me kahi kanesa e ulu mālie ana e like me Follicular Lymphoma, ʻaʻole ia he mea maʻalahi. ʻAʻole paha ʻoe e loaʻa i kekahi mau hōʻailona no nā makahiki. Akā i ka wā e ʻike ʻia ai nā hōʻailona, ​​pono paha ʻoe e hele i loko o kahi pōʻaiapuni o ka mālama ʻana, ka hoʻomaha ʻana, ka hoʻi hou ʻana, a me ka mālama hou ʻana. E noʻonoʻo paha ʻoe, 'Āhea wau e hoʻopau ai i kēia?'

Akā ʻo ka mea nui loa, ʻaʻole e haʻalele i ka manaʻolana. Ke hoʻāʻo mau nei nā kānaka noiʻi e ʻimi i nā lāʻau lapaʻau hou e hoʻolilo i kēia maʻi i maʻi hiki ke ho'ōla ʻia.

Inā loaʻa iā ʻoe ka Follicular Lymphoma, e kamaʻilio me kāu kauka a e maopopo e pili ana i kāu mau koho lapaʻau. Mai makaʻu e nīnau i nā nīnau. Me ka ʻike kūpono a me ke kākoʻo, e hoʻoikaika ʻia ʻoe e kū i kēia pilikia!

ʻO ka Lymphoma Follicular, Lymphoma, Kanesa, Nā Pūnaehana Lymph, Nā Hōʻailona, ​​Ka Lāʻau, Lymphoma B-Cell