Loaʻa iā ʻoe a i ʻole kekahi āu i ʻike ai kahi maʻi kanesa i kapa ʻia ʻo multiple myeloma ? Inā pēlā, e pili ana kēia i kahi lāʻau lapaʻau holomua loa a kūikawā. Ua haʻi aku paha kāu kauka iā ʻoe e pili ana i kēia lāʻau lapaʻau. ʻAʻole like ia me ka pila maʻamau. Hoʻohana ia i kāu mau cell ponoʻī e hoʻomaʻamaʻa iā lākou e hakakā i ka maʻi kanesa. E kamaʻilio kākou e pili ana i ia mea ma nā ʻōlelo maʻalahi.
I ka ʻōlelo maʻalahi, he aha kēia lāʻau i kapa ʻia ʻo Idecabtagene Vicleucel?
ʻO kekahi inoa no kēia ʻo ABECMA. ʻAʻole kēia he pila maʻamau a he lāʻau pale paha. He lāʻau kūikawā loa kēia. I ka pololei, he lāʻau kēia e lawe ana i kāu mau hunaola pale ponoʻī, hoʻololi iā lākou i loko o kahi keʻena hoʻokolohua i hiki iā lākou ke hakakā i nā hunaola kanesa , a laila hoʻihoʻi iā lākou i loko o kou kino.
E noʻonoʻo i kēia ʻano. Loaʻa iā mākou nā pūnaewele i loko o ko mākou kino e like me nā koa e ʻike a hoʻouka i nā ʻenemi. Kāhea mākou iā lākou he mau pūnaewele pale. Akā i kekahi manawa he maalea loa kēia mau pūnaewele kanesa. Peʻe lākou mai kēia mau koa.
No laila, ʻo ka hana a kēia lāʻau lapaʻau, lawe ʻoe i kekahi o kēia mau koa (nā pūnaewele pale) mai loko mai o kou kino a hāʻawi iā lākou i ka "hoʻomaʻamaʻa" kūikawā i hiki iā lākou ke ʻike i nā pūnaewele maʻi kanesa. A laila hoʻihoʻi ʻoe i kēlā mau koa i hoʻomaʻamaʻa ʻia i loko o kou kino. I kēia manawa ua ʻike lākou pehea e hele pololei ai i nā pūnaewele kanesa a luku iā lākou. Hoʻōki kēia i ka laha ʻana o nā pūnaewele kanesa, a i ʻole e hoʻolohi nui iā ia.
Pehea e hana ai ke kaʻina hana o ka hāʻawi ʻana i kēia lāʻau lapaʻau?
ʻAʻole kēia he mea hiki ke hana ʻia i hoʻokahi lā. He hana kēia e hana ʻia ana ma kekahi mau ʻanuʻu.
1. Ke hōʻiliʻili ʻana i kāu mau pūnaewele: ʻO ka mea mua āu e hana ai, ʻo ia ke hōʻiliʻili i kekahi mau pūnaewele pale mai kou koko. Hana ʻia kēia ma o kahi mīkini kūikawā. Hana ʻia kēia i kekahi mau pule ma mua.
2. Hoʻololi ʻana i nā pūnaewele (hoʻomaʻamaʻa): A laila hoʻouna ʻia nā pūnaewele i lawe ʻia mai ou aku i kahi keʻena hoʻokolohua kūikawā. Ma laila, hoʻololi ʻia kēia mau pūnaewele i ka genetics i hiki iā lākou ke ʻike a hoʻouka i nā pūnaewele kanesa.
3. Ke hoʻomākaukau ʻana i kou kino: I kekahi mau lā ma mua o ka hoʻihoʻi ʻia ʻana o kāu mau pūnaewele i hoʻomaʻamaʻa ʻia i loko o kou kino, e hāʻawi ʻia ʻoe i kahi papa hana chemotherapy ma ka haukapila. ʻO kēia ke hoʻomākaukau i kou kino e loaʻa i nā pūnaewele hou i hoʻomaʻamaʻa ʻia.
4. Ke lawelawe ʻana i ka lāʻau lapaʻau: ʻO ka mea hope loa, hāʻawi ʻia nā pūnaewele i hoʻomaʻamaʻa ʻia ma o kahi vein ( infusion) .) ua hoʻokomo ʻia i loko o kou kino. Hana ʻia kēia mau mea a pau ma kahi haukapila a i ʻole ke keʻena lapaʻau, ma lalo o ka nānā pono ʻana o kahi hui lapaʻau.
E hāʻawi ʻia ʻoe i kahi puke liʻiliʻi kūikawā (MedGuide) e pili ana i kēia lāʻau lapaʻau. He mea nui loa ia e heluhelu a hoʻomaopopo pono iā ia. Inā he mea āu i maopopo ʻole ai, mai makaʻu e nīnau i ke kauka.
Nā mea e pono ai ʻoe e haʻi i kāu kauka ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau
No kou palekana, he mea nui e haʻi aku i kāu kauka i kahi wehewehe piha o kou kūlana olakino ma mua o ka hana ʻana i kēia lāʻau lapaʻau. E hōʻoia e haʻi aku iā lākou e pili ana i kēia mau mea.
| Kūlana a pilikia paha o ke olakino | No ke aha he mea nui kēlā? |
|---|---|
| Inā loaʻa iā ʻoe kahi maʻi i kēia manawa | Ma muli o ka hopena o ka lāʻau lapaʻau i ka ʻōnaehana pale kino, hiki i kahi maʻi e lilo i mea ʻino aʻe. |
| Inā loaʻa iā ʻoe kahi maʻi mumū | Ma muli o ka hoʻoulu ʻana o kēia lāʻau i ka ʻōnaehana pale kino, aia kahi pilikia o ka hoʻonui ʻia ʻana o ia mau kūlana. |
| Inā ua loaʻa iā ʻoe i kēia manawa a i ʻole e kokoke ana e loaʻa iā ʻoe kahi lāʻau pale | Hiki i kekahi mau lāʻau pale (ʻoiai nā lāʻau pale ola) ke launa pū me kēia lāʻau lapaʻau. |
| Inā he maʻi ʻoe i nā lāʻau lapaʻau ʻē aʻe, nā meaʻai a i ʻole nā mea ʻē aʻe | Inā he moʻolelo kou o nā maʻi allergies, he mea nui e ʻike ka hui lapaʻau i ia mea. |
| Inā hāpai ʻoe a i ʻole e hoʻāʻo nei e hāpai | ʻAʻole lawa ka ʻike e pili ana i ka palekana o kēia lāʻau i ka wā hāpai. Pono e hana i kahi hoʻāʻo hāpai ma mua o ka hoʻomaka ʻana i ka lāʻau e hōʻoia ʻaʻole ʻoe hāpai. |
| Inā hānai waiū ka makuahine i kāna keiki | E kamaʻilio me kāu kauka e pili ana i ka hiki i nā mea hana i loko o ka lāʻau lapaʻau ke hele i kāu pēpē ma o ka waiū umauma. |
Nā mea e makaʻala nui ai i ka wā a ma hope o ka mālama ʻana
Ma hope o ka loaʻa ʻana o kēia lāʻau lapaʻau, pono ʻoe e mālama pono iā ʻoe iho. E nānā pono pū ke kime lapaʻau iā ʻoe.
- Nānā ʻana ma ka haukapila: Ma hope o ka mālama ʻia ʻana, e mālama ʻia ʻoe ma ka haukapila no 7 mau lā ma ka liʻiliʻi a e nānā ke kime lapaʻau iā ʻoe i kēlā me kēia lā.
- Nā hoʻāʻo koko : Pono ʻoe e hana i nā hoʻāʻo koko maʻamau.
- Ke hoʻokele nei a me ka hoʻohana ʻana i nā mīkini: He mea nui loa kēia. Pono ʻoe e pale i ka hoʻokele ʻana a i ʻole ka hoʻohana ʻana i nā mīkini kaumaha no ka liʻiliʻi he 8 mau pule (2 mau mahina) ma hope o ka mālama ʻana, no ka mea hiki i kēia lāʻau ke hoʻopilikia i kou noʻonoʻo ʻana, ka hiki ke hoʻoholo, a me ke kaulike.
- Kāleka ʻEke kālā o ka mea maʻi: E hāʻawi ʻia ʻoe i kahi kāleka kūikawā. E mālama mau me ʻoe . E hōʻike iā ia i kēlā me kēia kauka a me ke kahu maʻi e mālama iā ʻoe. Aia i loko ka ʻike e pili ana i nā hopena ʻaoʻao koʻikoʻi āu e ʻike ai.
- Ka pilikia o ka maʻi: Hoʻonui kēia lāʻau i kou pilikia o ka loaʻa ʻana o nā maʻi. Inā loaʻa iā ʻoe nā hōʻailona e like me ke kuni, ke anu, ka ʻāʻī ʻeha, a i ʻole ke kuni , mai hoʻōla ponoʻī a kāhea koke i kāu kauka . E hōʻemi i kou pili ʻana i ka poʻe maʻi.
- Mai hāʻawi i kekahi mea: ʻAʻole hiki iā ʻoe ke hāʻawi i ke koko, nā ʻōpū, nā ʻiʻo, a i ʻole nā pūnaewele ma hope o ka loaʻa ʻana o kēia lāʻau lapaʻau.
- ʻO nā pilikia ʻē aʻe o ke kanesa: Loaʻa i kēia lāʻau lapaʻau kahi pilikia liʻiliʻi o ka hoʻomohala ʻana i kekahi mau ʻano kanesa ʻē aʻe. E kamaʻilio me kāu kauka e pili ana i kēia.
He aha inā lawe nui wau i ka lāʻau lapaʻau?
ʻOiai ua hāʻawi ʻia kēia lāʻau lapaʻau e kahi hui lapaʻau ma ka haukapila, ʻaʻohe manawa kūpono e loaʻa ai iā ʻoe kahi overdose. Inā he pilikia, e hoʻomaopopo koke ka hui lapaʻau i ka ETU (Emergency Treatment Unit) a i ʻole ke Kikowaena ʻIke Poisons National ma ka Halemai Lahui ʻo Colombo .
He aha nā hopena ʻaoʻao e hiki mai ana?
E like me nā lāʻau lapaʻau ikaika a pau, hiki i kēia ke loaʻa nā hopena ʻaoʻao. Pono kekahi i ke kōkua lapaʻau koke, aʻo kekahi he mea maʻamau.
| Ka hopena ʻaoʻao | Wehewehena |
|---|---|
| Inā ʻike ʻoe i kēia mau hōʻailona, e haʻi koke aku i kāu kauka. | |
| Nā hopena alerika | ʻŌhūhū ʻili, maneʻo, pehu o ka maka, nā lehelehe, ke alelo a i ʻole ka puʻu. |
| ʻO ka maʻi hoʻokuʻu Cytokine (CRS) | Kuni, anu, luhi loa, nausea, ʻeha poʻo, poniuniu, paʻakikī ka hanu ʻana, puʻuwai wikiwiki. (Ma muli kēia o ka hana nui o ka ʻōnaehana pale) |
| Nā pilikia o ka ʻōnaehana nerve | Huikau, paʻakikī i ka hele wāwae, nalowale ke kaulike, nā ʻūlū, paʻakikī i ka ʻōlelo ʻana, nā loli i ka ʻike. |
| Nā hōʻailona o ka maʻi | Kuni, ʻeha kino, ʻeha puʻu, ʻū, ʻeha hoʻōla ʻole, ʻeha i ka wā e mimi ai. |
| ʻO ka ʻeha a i ʻole ke kahe koko maʻamau ʻole | ʻOiai kahi puʻupuʻu liʻiliʻi hiki ke hana i kahi palapū nui, ke kahe ʻana o ke koko mai ka ihu a me nā ʻāʻī. |
| Nā hunaola koko ʻulaʻula haʻahaʻa | Luhi kūikawā, poniuniu, ʻeha poʻo, paʻakikī ka hanu ʻana. |
| ʻAʻole maʻamau kēia mau mea koʻikoʻi, akā inā hoʻomau lākou, e haʻi i kāu kauka. | |
| Nā hopena ʻaoʻao maʻamau | ʻŌpū ʻeha, luhi, ʻeha poʻo, nalowale o ka makemake e ʻai, ʻeha nā ʻiʻo, nausea, pehu o nā kuʻekuʻe wāwae, nā lima, a i ʻole nā wāwae. |
Leka Lawe-Home
- He lāʻau lapaʻau pilikino koʻikoʻi ʻo Idecabtagene Vicleucel e hoʻohana ana i kāu mau hunaola ponoʻī e hakakā i ka maʻi kanesa.
- He lāʻau lapaʻau kēia i hāʻawi ʻia ma kekahi mau ʻanuʻu, ma ka haukapila, ma lalo o ka mākaʻikaʻi koʻikoʻi a ke kauka.
- E makaʻala mau i nā hopena ʻaoʻao koʻikoʻi (CRS, nā maʻi neurological) ma hope o ka mālama ʻana. No laila, he mea nui ka nānā ʻana i ka haukapila.
- E hōʻalo i ka hoʻokele kaʻa a i ʻole ka hoʻohana ʻana i nā mīkini no ka liʻiliʻi he 8 mau pule ma hope o ka lāʻau lapaʻau.
- E mālama mau i ke 'Kāleka ʻEke Uku a ka Mea Maʻi' i hāʻawi ʻia iā ʻoe a hōʻike i nā kauka.
- Inā loaʻa iā ʻoe kekahi mau hōʻailona o ka maʻi, e like me ke kuni a i ʻole ke kuni, e hoʻomaopopo koke i kāu kauka.
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