Loaʻa iā ʻoe kēia mau loli i loko o kou mau umauma? E makaʻala kākou i kēlā maʻi ʻaʻai umauma mumū weliweli (IBC)!

Ua ʻike anei ʻoe i kahi puʻupuʻu, pehu ʻana, a i ʻole ka lua ʻana o ka ʻili ma kou umauma? I kekahi manawa manaʻo mākou he maʻi maʻalahi ia, akā hiki ke lilo i ʻano maʻi ʻaʻai umauma ʻoi aku ka koʻikoʻi a wikiwiki hoʻi e laha. I kēia lā e kamaʻilio mākou e pili ana i kekahi ʻano maʻi ʻaʻai laha ʻole akā weliweli, ʻo ia hoʻi ka maʻi ʻaʻai umauma mumū, a i ʻole `(Inflammatory Breast Cancer - IBC)`.

He aha ke Kanesa ʻUma Mumū (IBC)?

I ka ʻōlelo maʻalahi, ʻo ka `(Inflammatory Breast Cancer - IBC)` he ʻano maʻi ʻaʻai umauma e ulu wikiwiki ana, a he ʻano ʻē iki. ʻAʻole e like me ka hapa nui o nā maʻi ʻaʻai umauma, ʻaʻole pinepine ia e hana i kahi puʻupuʻu. Akā, lilo ka ʻili o ka umauma i dimpled a mānoanoa, e like me ka ʻili ʻalani. Me kēia, hiki i ka umauma i hoʻopilikia ʻia ke ʻike i ka ʻeha, ka ʻulaʻula, ka pehu, a i kekahi manawa dimpling.

E noʻonoʻo, aia i loko o ko kākou mau umauma kahi wai i kapa ʻia he wai lymph. ʻO nā ʻōmole liʻiliʻi e kōkua ana i kēia kahe wai lymph ua kapa ʻia ʻo ia he mau kīʻaha lymph. Ke ulu ka IBC, ālai nā hunaola kanesa i kēia mau kīʻaha lymph. A laila ʻaʻole hiki i ka wai lymph ke kahe pono, a loaʻa ka mumū i loko o ka umauma. ʻO ia ke kumu e hōʻike ai i nā hōʻailona e like me ka ʻulaʻula a me ka pehu. No ka mea, ua like loa kēia mau hōʻailona me nā hōʻailona o kahi maʻi umauma maʻamau, hiki ke kuhihewa ʻia i kekahi manawa he maʻi.

ʻO ka mea nui loa, ʻo ia ka `(IBC)` he maʻi kanesa e ulu wikiwiki ana. No laila, he mea nui e ʻimi i ka lāʻau lapaʻau i ka wā e ʻike ʻia ai nā hōʻailona. ʻO ka maʻamau, hoʻohana nā kauka i ka hui pū ʻana o ka chemotherapy, ke ʻoki kino, a me ka radiation therapy no kēia.

ʻO wai ka mea i ʻoi aku ka nui o ka pilikia o ka hoʻomohala ʻana i ka IBC?

ʻOiai hiki i kekahi ke hoʻomohala i ka IBC, hiki i kekahi mau mea ke hoʻonui i ka pilikia.

• Kāne: ʻOiai hiki i kekahi ke hoʻomohala i ka IBC, ʻo ia ka mea maʻamau i nā wahine.
• Makahiki: Ke hoʻohālikelike ʻia me nā ʻano maʻi ʻaʻai umauma ʻē aʻe, ʻike pinepine ʻia ka IBC i ka wā ʻōpio. ʻIke pinepine ʻia i nā wahine ma lalo o 40 makahiki . ʻO ka awelika o ka makahiki i ka wā i ʻike ʻia ai he 57 mau makahiki.
• ʻAno: ʻOi aku ka nui o ka poʻe ʻeleʻele e loaʻa i ka maʻi `(IBC)` ma mua o nā keʻokeʻo.
• Kaumaha: ʻOi aku ka nui o ka pilikia o ka poʻe momona a kaumaha paha i ka hoʻomohala ʻana i ka IBC ma mua o ka poʻe me ka helu helu kino maʻamau (BMI).

Pehea ka maʻamau o ka `(IBC)`?

Loaʻa ka IBC i nā ʻano like ʻole ma ka honua holoʻokoʻa. ʻO ia ka mea maʻamau ma nā ʻāina ʻo ʻApelika ʻĀkau. No ka laʻana, ʻo IBC ka 4% o nā maʻi ʻaʻai umauma ma Tunisia a me 11% ma ʻAigupita. Eia nō naʻe, he mea kakaikahi loa ia ma nā ʻāina e like me ʻAmelika Hui Pū ʻIa, kahi e helu ai i 1% a 5% wale nō o nā maʻi ʻaʻai umauma āpau.

He aha nā hōʻailona mua o ka IBC?

No ka mea, ʻaʻole i hana pinepine ʻo IBC i kahi puʻupuʻu e like me nā ʻano maʻi ʻaʻai umauma ʻē aʻe, hiki ke paʻakikī iki ke ʻike mua. Akā, pili pinepine nā hōʻailona mua i ka mumū i loko o ka umauma i hoʻopilikia ʻia. ʻO ia hoʻi ka ʻulaʻula, ka pehu, a me ka ʻeha. Ma muli o kēia, ʻoi aku ka maʻalahi o ka hoʻowahāwahā ʻia ʻana he ʻano maʻi ʻole, e like me ka maʻi.

He aha nā hōʻailona o ka `(IBC)`?

Hiki i nā hōʻailona o IBC ke ulu koke, maʻamau i loko o ʻekolu a ʻeono pule. Hiki i kēia mau hōʻailona ke komo pū me:

• ʻO ka loli o ke kala o ka ʻili (ʻulaʻula, poni, a poni paha), he ʻano like me ka palapū, a i ʻole he ʻulaʻula ma kahi o hoʻokahi hapakolu o ka umauma.
• Lilo ka ʻili o ka umauma i mānoanoa, puka nā lua, a i ʻole lua liʻiliʻi, e like me ka ʻili ʻalani.
• ʻEha, pehu, maneʻo, paʻa, a palupalu paha ma kekahi umauma.
• Ka mehana, ka wela, ke kaumaha, a i ʻole ka hoʻonui ʻia ʻana o kekahi umauma.
• He nipple i hoʻohuli ʻia a i huki ʻia paha.
• Nā kīʻaha lymph pehu kokoke i ka iwi ʻāʻī a i ʻole ma lalo o ka ʻāʻī.

He aha nā kumu o ka `(IBC)`?

ʻO ka hapa nui o nā hihia o IBC ua manaʻo ʻia he invasive ductal carcinoma . ʻO ka ductal carcinoma kahi maʻi kanesa e hoʻomaka ana i loko o nā cell e hoʻopili ana i kāu mau ducts waiū. ʻO ke ʻano o "Invasive" ua pālahalaha ke kanesa ma waho o nā ducts waiū i loko o nā ʻiʻo olakino. ʻAʻole maopopo i nā mea noiʻi ke kumu e lilo ai kēia mau cell i mea ʻino.

Hoʻokumu ʻia ka IBC e nā hunaola kanesa e ālai ana i nā kīʻaha lymph. He mau kahawai liʻiliʻi kēia i loko o ka ʻōnaehana lymphatic e kōkua ana i ka hoʻokahe ʻana i ka wai lymph mai ka umauma. ʻO kēia ālai ʻana ke kumu o ka ʻulaʻula o ka umauma, pehu, a mumū. I nā hihia he nui o ka IBC, laha nā hunaola kanesa (metastasize) ma waho o nā kīʻaha lymph. Hiki i ke kanesa i laha ma kēia ʻano ke hoʻopilikia i kāu mau kino ʻē aʻe a hiki ke paʻakikī ke mālama.

Pehea e ʻike ʻia ai ʻo `(IBC)` a pehea e hoʻoholo ʻia ai ke kahua?

No ka mea, he maʻi laha ʻole ka IBC a ua like nā hōʻailona me ka maʻi umauma maʻamau (mastitis), hiki i kāu kauka ke hāʻawi mua iā ʻoe i nā lāʻau antibiotic e ʻike inā hoʻomaikaʻi kāu mau hōʻailona. E kōkua kēia e hōʻoia ʻaʻole ia he maʻi. Eia nō naʻe, inā kānalua ʻoe he IBC kou,E kauoha ke kauka i kahi biopsy e hōʻoia i ka hōʻailona a me nā hoʻokolohua hou aʻe e ʻike ai inā ua pālahalaha ke kanesa ma ʻō aku o ka umauma.

Pehea e ʻike ai i ka `(IBC)`

ʻO ka hōʻailona:

• Hoʻokolokolo kino: Hiki ke paʻakikī ka ʻike ʻana no ka mea ʻaʻole maʻamau ka IBC i nā puʻupuʻu. I kekahi manawa, e hoʻāʻo ke kauka e kāpae i nā kūlana ʻē aʻe e hoʻoulu ai i nā hōʻailona like, e like me ka mastitis.
• Nā hoʻāʻo kiʻi:
• Mammogram: He X-ray haʻahaʻa ikehu e lawe i nā kiʻi o loko o ka umauma. Hiki i kēia ke ʻike i nā hōʻailona o ke kanesa, e like me nā puʻupuʻu, nā waihona calcium (calcifications o ka umauma), a i ʻole ka mānoanoa o ka ʻili.
• ʻO ke kani ʻana o ka umauma: Hoʻohana kēia i nā nalu kani e kiʻi i nā kiʻi o loko o ka umauma, nā ʻiʻo a puni, a me nā lymph node. Hiki i kēia ke kōkua i ka hoʻoholo ʻana inā ua pālahalaha ke kanesa i nā ʻiʻo kokoke.

Akā, ʻo ka mea pōʻino, hiki i nā maʻi ʻelua ʻo `(IBC)` ke like ke ʻano ma nā hoʻokolohua kiʻi.

• Biopsy: ʻO ke ala wale nō e hōʻoia ai i ka maʻi IBC, ʻo ia ka loaʻa ʻana o kahi biopsy. Ma kēia, lawe kāu kauka i kahi ʻāpana liʻiliʻi o ka ʻiʻo mai kou umauma. Nānā kekahi loea i kapa ʻia he pathologist i ka ʻāpana i loko o kahi keʻena hoʻokolohua e hoʻoholo ai inā he maʻi ʻaʻai ia. Hiki i nā hopena biopsy ke kōkua i ka hoʻoholo ʻana inā kūpono kekahi mau lāʻau lapaʻau i kuhikuhi ʻia no kāu maʻi ʻaʻai.

Ke hoʻoholo nei i ke kahua `(IBC)`

Kōkua nā hopena biopsy i ke kauka e hoʻoholo i ke kahua o ke kanesa, ʻo ia hoʻi, inā ua pālahalaha ke kanesa ma ʻō aku o ka ʻiʻo umauma. I ka manawa e ʻike ʻia ai ka IBC, aia mua ia i ke kahua ʻekolu (Stage III) a i ʻole ke kahua ʻehā (Stage IV).

• Pae III: Ua pālahalaha ke kanesa i nā ʻiʻo umauma a me ka ʻili wale nō.
• Pae IV: Ua pālahalaha ke kanesa i nā ʻōpū ʻē aʻe.

Hiki i ke kauka ke hana i hoʻokahi a ʻoi aku paha o kēia mau hoʻokolohua e ʻike ai inā ua pālahalaha ke kanesa:

• CT scan: Lawe ʻia kekahi mau kukuna X o ka umauma, ka ʻōpū, a me ke pelvis a hui pū ʻia i hoʻokahi kiʻi. Hiki i kēia ke ʻike i nā hōʻailona o ke kanesa i loko o nā iwi a me nā ʻiʻo palupalu.
• ʻO ke scan iwi: Hoʻohana ʻia kahi liʻiliʻi o ka mea radioactive e kiʻi i nā kiʻi o nā iwi. Hiki i kēia ke kōkua i ka ʻike ʻana i nā wahi i hōʻino ʻia e ka iwi i hoʻokumu ʻia e ka laha ʻana o ka maʻi kanesa.
• MRI: Hoʻohana i nā nalu lekiō, nā magnet, a me ke kamepiula e hana i nā kiʻi kikoʻī o loko o ke kino.
• ʻO ka nānā ʻana o ka PET: He kaʻina hana e hoʻohana ana i kahi kala e loaʻa ana nā lāʻau radioactive (tracers) e kiʻi i nā kiʻi o nā ʻano kūloko o ke kino.

He aha nā lāʻau lapaʻau no ka `(IBC)`?

I ka mālama ʻana i ka `(IBC)`ʻO ka hapa nui, hoʻohana ʻia ka hui pū ʻana o ka chemotherapy, ke ʻoki ʻana, a me ka radiation therapy.

• Kemoterapi: Hoʻohana ka kemoterapi no ke kanesa umauma i nā lāʻau lapaʻau e pepehi i nā hunaola kanesa. Hiki ke hāʻawi ʻia kēia mau lāʻau lapaʻau ma ke ʻano intravenous a i ʻole he mau pila. Ke hoʻēmi ʻia nā hunaola kanesa e ka kemoterapi, hiki ke wehe maʻalahi ʻia ma ke ʻoki ʻana. Hiki ke hāʻawi ʻia ka kemoterapi ma hope o ke ʻoki ʻana e pepehi i nā hunaola kanesa i koe.
• ʻO ke ʻoki kino: Pili kēia i ka wehe ʻana i ka umauma holoʻokoʻa i hoʻopilikia ʻia (mastectomy) a me nā lymph node kokoke. ʻAʻole kūpono ke ʻoki kino e wehe wale i ka ʻiʻo umauma no IBC no ka mea e laha koke ana kēia maʻi kanesa.
• Lapaʻau radiation: Hoʻohana kahi mīkini i ka ikehu e luku i nā hunaola kanesa. Ma hope o ke ʻoki ʻana, hiki ke hāʻawi ʻia ka lāʻau radiation e pepehi i nā hunaola kanesa i hala paha.

Ma muli o ke ʻano o nā hunaola kanesa i loaʻa i loko o ka biopsy, hiki ke hāʻawi ʻia iā ʻoe nā lāʻau lapaʻau e like me ka lāʻau lapaʻau i hoʻolālā ʻia, ka lāʻau lapaʻau hormone, a i ʻole ka immunotherapy .

• Lapaʻau i kuhikuhi ʻia: Kuhi kēia i nā nāwaliwali kikoʻī i loko o nā hunaola kanesa a luku iā lākou. No ka laʻana, kōkua kahi protein i kapa ʻia ʻo HER2 i nā hunaola IBC e ulu a hoʻolaha. Hoʻopau ka lāʻau i kuhikuhi ʻia i kēia protein, e paʻakikī ai ka ulu ʻana o nā hunaola kanesa.
• Lapaʻau hormone: Loaʻa i kekahi mau hunaola kanesa nā mea loaʻa hormone. Ulu kēia mau hunaola ke hōʻike ʻia lākou i nā hormones estrogen a me progesterone. Inā loaʻa i kāu mau hunaola kanesa kēia mau mea loaʻa, hiki i kāu kauka ke kuhikuhi i nā lāʻau lapaʻau e ālai i kēia mau hormones.
• Immunotherapy: Kōkua kēia i ka ʻōnaehana pale o kou kino e ʻike a hakakā i nā hunaola kanesa. Ua hōʻike ʻia nā noiʻi e hiki i kekahi mau ʻano immunotherapy ke hoʻonui i ka pono o nā lāʻau lapaʻau IBC ʻē aʻe, e like me ka chemotherapy. Ke hoʻomau nei ka noiʻi ʻana i kēia.

Hiki i kāu kauka ke ʻōlelo aku iā ʻoe e komo i kahi hoʻokolohua lapaʻau. ʻO kahi hoʻokolohua lapaʻau kahi haʻawina e hoʻāʻo ai i ka palekana a me ka pono o nā lāʻau lapaʻau maʻi kanesa hou. ʻO nā lāʻau lapaʻau i holomua i kēia mau hoʻokolohua e lilo paha i mau lāʻau lapaʻau maʻamau ma hope.

He aha nā pilikia e pili ana me ka `(IBC)`?

Hiki i ka mālama ʻana no IBC ke hana i kekahi mau pilikia. No ka laʻana, hiki ke loaʻa ka lymphedema (ka hōʻiliʻili ʻana o ka wai) ma hope o ke ʻoki ʻana e wehe i nā lymph nodes.

Ma muli o ka ulu wikiwiki ʻana o IBC, ua laha paha ke kanesa i nā ʻiʻo ʻē aʻe (metastasized) i ka manawa e ʻike ʻia ai ka maʻi.Inā pālahalaha ke kanesa i nā ʻāpana ʻē aʻe o ke kino, pono paha ʻoe i kahi lāʻau hou aʻe.

Hiki ke pale ʻia ka `(IBC)`?

ʻO ka mea pōʻino, ʻaʻohe ala e pale aku ai i ka IBC. No nā hopena maikaʻi loa, e ʻimi i ka lāʻau lapaʻau i ka wā e ʻike ai ʻoe i nā hōʻailona. Inā ʻike ʻoe i kekahi mau loli i kou mau umauma, e haʻi koke i kāu kauka.

Pehea ka wikiwiki o ka laha ʻana o ka `(IBC)`?

He maʻi ʻaʻai ikaika loa ka IBC e ulu wikiwiki ana. Hiki ke hala i nā pule a i ʻole nā ​​mahina e ulu ai. I ka manawa e ʻike ʻia ai, ua pālahalaha mua ia i ka ʻili o ka umauma a ma ka liʻiliʻi loa ʻo ia ka Pae III.

He aha ka wānana no ka poʻe me IBC?

ʻO ka maʻamau, ulu koke ka IBC a laha i nā ʻiʻo ʻē aʻe ma waho o ka umauma. Hiki iā ia ke hana hou ma hope o ka mālama ʻia ʻana. He mea nui ka ʻike mua a me ka mālama ʻana no ka mālama ʻana i ka maʻi me ka maikaʻi loa.

Ma muli o ka laha koke ʻana o ka IBC a ua ʻike ʻia ma hope o nā maʻi ʻaʻai ʻē aʻe, ʻaʻole maikaʻi ka nānā ʻana no ka poʻe me kēia maʻi e like me nā ʻano maʻi ʻaʻai umauma ʻē aʻe. Eia nō naʻe, ola kekahi poʻe no nā makahiki he nui ma hope o ka ʻike ʻia ʻana me IBC. Hiki i kāu kauka ke wehewehe i ka nānā ʻana ma muli o kou kūlana.

I ka manawa hea ʻoe e ʻike ai i ke kauka inā he kānalua kou no IBC?

Inā ʻike ʻoe i kekahi mau loli i kou mau umauma, ʻoiai inā ʻaʻole ʻoe e manaʻo i kahi puʻupuʻu, e ʻike koke i ke kauka. E hana kāu kauka i nā hoʻokolohua hou aʻe a hoʻoholo inā pono ʻoe e hopohopo e pili ana i ka IBC.

ʻOiai inā loaʻa iā ʻoe nā hōʻailona o IBC a ke lawe nei ʻoe i nā lāʻau antibiotic no ka maʻi umauma, inā ʻaʻole hoʻomaikaʻi kāu mau hōʻailona i loko o hoʻokahi pule, e haʻi koke i kāu kauka.

He aha nā nīnau āu e nīnau ai i ke kauka?

E nīnau i kāu kauka pehea e pili ai kāu hōʻailona maʻi kanesa i kāu mau koho lapaʻau a me nā hopena e hiki mai ana. Eia kekahi mau nīnau e nīnau ai:

• I ke kahua hea koʻu maʻi ʻaʻai umauma?
• ʻO wai nā loea i komo i kaʻu mālama ʻana?
• He aha nā koho lapaʻau āu e paipai nei?
• He aha nā hopena e hiki iaʻu ke manaʻo mai ka lāʻau lapaʻau?
• He aha nā hopena ʻaoʻao a i ʻole nā ​​​​pilikia e pili ana me ka mālama ʻana?
• Hiki iā ʻoe ke kōkua iaʻu e hoʻopili i nā kumuwaiwai e like me nā hui kākoʻo a me ka mālama palliative?

ʻO ka mea hope loa, nā mea e hoʻomanaʻo ai

He ʻano maʻi kanesa laha ʻole ka Inflammatory Breast Cancer (IBC) akā ulu wikiwiki loa. Inā ʻike ʻoe i kekahi mau loli i kou mau umauma, ʻoiai ma hoʻokahi umauma wale nō, e ʻimi koke i ke kōkua lapaʻau. Hiki i kēia mau loli ke hōʻailona o kahi maʻi ʻoi aku ka koʻikoʻi, e like me ka maʻi. Eia nō naʻe, laha koke ka IBC.Inā he mau hōʻailona o IBC kāu mau hōʻailona, ​​hiki i ka hoʻomaka ʻana i ka lāʻau lapaʻau ke hoʻomaikaʻi i kou ʻike. No laila, mai hoʻokaʻulua i ka ʻimi ʻana i ka lāʻau lapaʻau. He waiwai kou ola!

ʻAʻai ʻōpū mumū, IBC, ʻaʻai ʻōpū, ʻaʻai ʻōpū mumū, nā hōʻailona o ka umauma, olakino wahine, mālama ʻana i ka maʻi ʻaʻai