Ua lohe paha ʻoe i nā 'ʻiʻo laumania'? ʻAʻole like kēia me nā ʻiʻo i loko o ko kākou mau lima a me nā wāwae a kākou e hoʻomalu ai me ka ʻike. He ʻano ʻiʻo kūikawā lākou e hana ponoʻī ana i loko o nā ʻōpū i loko o ko kākou kino, e like me ko kākou mau ʻōpū, nā kīʻaha koko, a me ka ʻōpū. E noʻonoʻo, hiki i kahi maʻi kanesa laha koke ke ulu aʻe ma ia wahi. ʻO Leiomyosarcoma ka inoa o kēlā maʻi kanesa, a i ʻole LMS. ʻOiai he paʻakikī iki kēia inoa, ʻo ka hoʻomaopopo ʻana iā ia he mea nui loa ia no ʻoe a me kāu poʻe aloha.
He aha maoli ka leiomyosarcoma (LMS)?
I ka ʻōlelo maʻalahi, he ʻano maʻi kanesa kakaikahi a ikaika hoʻi ka leiomyosarcoma (LMS) e hoʻomaka ana i loko o nā ʻiʻo laumania i loko o ko kākou kino. Loaʻa kēia mau ʻiʻo laumania ma nā wahi he nui o ko kākou kino. Eia kekahi laʻana:
- ʻŌpū mimi
- Nā kīʻaha koko
- ʻōpū nui a me ka ʻōpū liʻiliʻi
- ʻōpū
- ʻōpū
ʻO kēia maʻi kanesa, i kapa ʻia ʻo LMS, no kahi hui nui o nā maʻi kanesa i kapa ʻia ʻo sarcomas palupalu . ʻO kekahi o nā mea weliweli e pili ana i kēia maʻi kanesa, ʻo ia ka ulu wikiwiki ʻana o kēia mau hunaola kanesa. I kekahi manawa, hiki i ka puʻupuʻu ke pālua i ka nui i loko o hoʻokahi mahina. Eia kekahi, hiki i kēia mau hunaola kanesa ke hele ma ke kahe koko a laha i kekahi mau ʻiʻo palupalu o ke kino.
ʻAʻole ʻike kekahi poʻe i kekahi mau hōʻailona i nā pae mua. I ka manawa e ʻike ʻia ai nā hōʻailona, ua lilo paha ka maʻi i mea koʻikoʻi loa. No laila, hiki ke hoʻoweliweli i ke ola. Eia nō naʻe, inā ʻike mua ʻia a mālama pono ʻia, aia kahi manawa kūpono e hoʻōla piha ʻia.
He mea maʻamau ka manaʻo kaumaha a me ka haʻalulu ke ʻike ʻia ʻoe he maʻi kanesa. E hoʻomanaʻo ʻaʻole ʻoe hoʻokahi. Aia kāu hui lapaʻau nou. Hiki iā lākou ke hāʻawi iā ʻoe i kekahi ʻike a kākoʻo paha āu e pono ai.
He aha nā ʻano nui o ke kanesa LMS?
Hiki ke hoʻokaʻawale ʻia ke kanesa LMS i ʻekolu mau ʻano nui, ma muli o kahi e ulu ai.
| ʻAno maʻi kanesa | Kumu a me ka wehewehe ʻana |
|---|---|
| LMS ʻiʻo palupalu Somatic | ʻO kēia ke ʻano LMS maʻamau. Hoʻomohala ia i loko o nā ʻiʻo pili o ke kino. ʻO ka uterine leiomyosarcoma, ka mea e ulu ana i loko o ka uterus, he laʻana maikaʻi ia o kēia. |
| LMS ʻili a i ʻole subcutaneous | Loaʻa kēia ʻano i nā ʻiʻo liʻiliʻi i kapa ʻia ʻo nā ʻiʻo piloerector i loko o ka ʻili a me nā maka. ʻO kēia mau ʻiʻo ke kuleana no ka hoʻonui ʻana a me ka hoʻonui ʻana o ka pupil o ko kākou maka. |
| LMS o kahi kumu vascular | ʻO kēia ke ʻano LMS kakaikahi loa. Hoʻomohala ke kanesa i loko o kahi kīʻaha koko nui, e like me nā aʻa pulmonary a me nā vena cava haʻahaʻa, e alakaʻi ana i nā māmā. |
He aha nā hōʻailona o kēia maʻi kanesa?
ʻOkoʻa loa nā hōʻailona o ke kanesa LMS ma muli o ka nui o ka puʻupuʻu a me kona wahi. ʻAʻole paha e loaʻa i kekahi poʻe kekahi mau hōʻailona i ka wā mua. Eia nō naʻe, i ka ulu ʻana o ka puʻupuʻu, e hoʻomaka paha kekahi mau hōʻailona e ʻike ʻia.
| ʻAno hiʻohiʻona | Nā mea e ʻike ai |
|---|---|
| Nā hōʻailona maʻamau | |
| He puʻupuʻu | He puʻupuʻu paʻa a pehu paha, ʻaʻohe ʻeha. |
| Nā hiʻohiʻona ʻē aʻe | Pehu, kuni, nausea a me ka luaʻi, ʻeha, luhi nui, pohō kaumaha me ke kumu ʻike ʻole ʻia. |
| Inā he maʻi ʻaʻai ia o ka ʻōnaehana hoʻoheheʻe (nā ʻōpū, ʻōpū)... | |
| ʻEha ʻōpū | ʻEha pinepine ka ʻōpū. |
| Nā loli i ka noho | Lilo nā ʻōpala i ʻeleʻele ma muli o ke koko e hele ana ma o lākou. |
| Nā hiʻohiʻona ʻē aʻe | Ka nalowale o ka makemake e ʻai, ka nausea, a me ka luaʻi ʻana. |
| Inā he maʻi ʻaʻai uterine ... | |
| Ke kahe koko ʻano ʻē | Ke kahe koko ʻano ʻē ma waena o nā wā a i ʻole ma hope o ka menopause. |
| Nā hiʻohiʻona ʻē aʻe | ʻO ka makemake pinepine e mimi, ka hoʻokahe ʻana o ka vaginal ma ke ʻano ʻē. |
He aha ke kumu o ka hoʻomohala ʻana o ka LMS?
ʻAʻole i loaʻa i nā kauka ke kumu pololei o kēia. Eia nō naʻe, ua manaʻoʻiʻo ʻia he ʻelua mau kumu nui e pāʻani i kahi kuleana. ʻO kekahi, ʻo ia nā loli genetic hoʻoilina. ʻO kekahi, i ka wā o ke ola, ʻo nā loli maʻamau i loko o nā genes ponoʻī ke kumu o ka ulu ʻana o nā cell maʻamau me ke kāohi ʻole ʻia a lilo i mau cell cancer.
Ua loaʻa i nā kānaka noiʻi kahi pilina ma waena o ke kanesa LMS a me kekahi mau kūlana genetic. ʻO kekahi o kēia mau kūlana:
- ʻO ka maʻi Gardner
- ʻO ka maʻi Gorlin
- ʻO ka retinoblastoma hoʻoilina
- ʻO ka maʻi Li-Fraumeni
- ʻAno Neurofibromatosis 1 (NF1)
- ʻO ka sclerosis tuberous
Pehea e ʻike ai i kēia maʻi?
Inā loaʻa iā ʻoe kekahi mau hōʻailona, e nānā mua kāu kauka iā ʻoe ma ke kino a nīnau e pili ana i kāu mau hōʻailona. A laila, e kauoha lākou i kekahi mau hoʻokolohua kiʻi kūikawā e hoʻoholo ai i ka nui a me ka wahi pololei o ke kanesa.
- Angiography - no ka nānā ʻana i nā kīʻaha koko
- CT scan (Computered tomography - CT scan)
- MRI scan (kiʻi resonance magnetic - MRI)
- Nānā PET
Eia nō naʻe, no ka hōʻoia ʻana i kēia maʻi 100%, pono maoli ka biopsy .
ʻO ka biopsy e pili ana i ka lawe ʻana i kahi ʻāpana liʻiliʻi loa o ka ʻiʻo mai ka puʻupuʻu kanesa a hoʻouna iā ia i kahi keʻena hoʻokolohua no ka hoʻokolokolo ʻana ma lalo o kahi microscope. Nānā kahi pathologist i ka ʻiʻo e hoʻoholo ai inā he kanesa LMS a ʻaʻole paha.
He aha nā lāʻau lapaʻau no LMS?
Aia ka lāʻau lapaʻau i ka nui, ke ʻano, kahi o ke kanesa, a inā ua pālahalaha. Aia kekahi mau koho lapaʻau nui.
- ʻO ke ʻoki kino: I nā manawa āpau e hiki ai, ʻo ke ʻoki kino nui no ka LMS ka wehe loa ʻana i ka puʻupuʻu. ʻO ka pahuhopu ka pale ʻana i ka hoʻi hou ʻana mai o ke kanesa.
- Kemoterapi: Inā nui ka puʻupuʻu, a inā ua pālahalaha nā hunaola kanesa i nā ʻāpana ʻē aʻe o ke kino, hiki i ke kauka ke ʻōlelo aku i ka chemotherapy.
- Lapaʻau radiation: I kekahi manawa hāʻawi ʻia ka lāʻau radiation ma mua o ke ʻoki ʻana e hoʻēmi i ka puʻupuʻu (neoadjuvant therapy). Hoʻohana ʻia nō hoʻi ma hope o ke ʻoki ʻana e pepehi i nā hunaola kanesa i koe (adjuvant therapy).
- Lapaʻau i kuhikuhi ʻia: He ʻano lapaʻau hou kēia. Hoʻohana ia i nā lāʻau lapaʻau e kuhikuhi a hōʻino wale i nā hunaola kanesa. Hiki ke hāʻawi wale ʻia kēia lāʻau lapaʻau a i ʻole me ka hui pū ʻana me nā lāʻau lapaʻau ʻē aʻe.
He aha ka nānā ʻana no kēia maʻi?
ʻOkoʻa loa ka wānana no ka LMS mai kēlā kanaka a kēia kanaka. Hoʻopili nui ʻia ia e ke kahua, ka nui, a me kahi o ke kanesa. ʻO ka mea nui loa, inā ʻike ʻia ka maʻi a mālama ʻia i ka wā mua, hiki ke ho'ōla loa ʻia.
Eia nō naʻe, inā ua ʻike ʻia ka maʻi ma hope o ka manawa, ʻo ia hoʻi, ma kahi pae holomua e like me ka Pae 4, ʻoi aku ka paʻakikī o ka mālama ʻana. I ia hihia, ʻoiai ʻaʻole hiki ke ho'ōla loa ʻia ka maʻi, hiki i ka mālama ʻana ke kāohi iā ia a hoʻolōʻihi i ke ola o ka mea maʻi.
ʻO nā helu ola he mau helu wale nō ia e pili ana i ka ʻikepili mai ka poʻe i loaʻa i kēia maʻi ma mua. No laila, mai hoʻoholo e pili ana i kou wā e hiki mai ana a hopohopo paha e pili ana i ia mea ma muli o kēlā mau helu. ʻO ke kanaka maikaʻi loa e ʻike pono i kou kūlana ʻo ia ke kauka e mālama nei iā ʻoe. E kamaʻilio me ia e pili ana i kēia me ka wehe.
Nā nīnau koʻikoʻi e nīnau aku i kāu kauka
Ke ʻike ʻoe he maʻi ʻaʻai LMS kou, he mea maʻamau ka nui o nā nīnau i loko o kou manaʻo. He mea nui e nīnau i kāu kauka i kēia mau nīnau a loaʻa kahi ʻike maopopo o kou kūlana.
- Aia i hea koʻu maʻi ʻaʻai i loko o koʻu kino?
- Ua laha anei ke kanesa i nā wahi ʻē aʻe?
- I ke kahua hea koʻu maʻi ʻaʻai?
- He aha nā koho lapaʻau e loaʻa iaʻu?
- He aha nā pilikia a me nā hopena ʻaoʻao o kēlā mau lāʻau lapaʻau?
- He aha ka manawa kūpono e hoʻi hou mai ai ke kanesa ma hope o ka mālama ʻia?
- He aha kāu e haʻi mai ai iaʻu e pili ana i ka wā e hiki mai ana o koʻu maʻi?
Ke loaʻa iā ʻoe kahi maʻi laha ʻole e like me kēia, he mea maʻamau ke manaʻo mehameha. Inā hiki iā ʻoe, e hui pū me kahi hui kākoʻo no ka poʻe me kēia ʻano. Hiki iā ia ke lilo i kumu nui o ka ikaika noʻonoʻo. E hoʻomanaʻo, aia mau kāu hui lapaʻau ma laila e kōkua iā ʻoe.
Leka Lawe-Home
- He ʻano maʻi kanesa laha ʻole ʻo Leiomyosarcoma (LMS) e ulu wikiwiki ana i loko o nā ʻiʻo laumania.
- Aia nā hōʻailona ma kahi o ke kanesa. I kekahi manawa ʻaʻohe hōʻailona iki i nā pae mua.
- Inā ʻike ʻoe i nā hōʻailona e like me kahi puʻupuʻu ʻē i loko o kou kino, ʻeha i wehewehe ʻole ʻia, a i ʻole ka pohō kaumaha, e ʻike koke i ke kauka.
- Hiki ke ho'ōla loa ʻia kēia maʻi me ka ʻike mua ʻana a me ka mālama pono ʻana.
- He mea nui e kamaʻilio ākea a me ka ʻoiaʻiʻo me kāu kauka e pili ana i kou kūlana, ka lāʻau lapaʻau, a me ka wā e hiki mai ana. ʻAʻole ʻoe hoʻokahi.
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