Ke hopohopo nei ʻoe e pili ana i nā kiko ʻē a me nā ʻeha ma kou ʻili? E aʻo kākou e pili ana i ka Mycosis Fungoides.

Ua loaʻa koke anei iā ʻoe kahi ʻulaʻula a i ʻole ka ʻulaʻula unahi ma kou ʻili, ʻoiai ma nā wahi i hōʻike ʻole ʻia i ka lā, e like me kou ʻōpū a i ʻole kou ʻūhā? Hiki iā lākou ke ʻā a like paha me ka eczema. ʻOiai he nui ka poʻe e manaʻo nei he pilikia ʻili maʻamau kēia, i kekahi manawa hiki ke lilo i hōʻailona mua o kahi maʻi ʻili kakaikahi i kapa ʻia ʻo Mycosis Fungoides. Mai hopohopo, e kamaʻilio mākou e pili ana i kēia me nā kikoʻī.

I ka ʻōlelo maʻalahi, he aha ka Mycosis Fungoides?

Hōʻike ka inoa i kahi maʻi fungal, akā ʻaʻole. ʻO Mycosis Fungoides kahi maʻi maoli i hoʻokumu ʻia e nā pūnaewele T, kahi ʻano koko keʻokeʻo i loko o ko mākou koko, e lilo ana i mau hunaola kanesa.

E noʻonoʻo i kēia ʻano, ua like kēia mau pūnaewele T me nā koa i loko o ko mākou kino. ʻO kā lākou hana ke pale iā mākou mai nā maʻi ma ke kaua ʻana i nā germs e like me nā virus a me nā bacteria e komo i loko o ke kino. Akā i loko o kēia maʻi, lilo kēia mau pūnaewele T like i mau pūnaewele maʻi kanesa a hoʻomaka e hoʻopilikia i ko mākou ʻili.

No loko kēia maʻi o kahi hui o nā maʻi kanesa i kapa ʻia ʻo Cutaneous T-cell Lymphoma (CTCL) . ʻO ia hoʻi, he lymphoma T-cell ia e hoʻopilikia ai i ka ʻili. No laila, e hoʻomanaʻo, ʻaʻole kēia he maʻi kanesa ʻili, he maʻi kanesa koko ia e hoʻopilikia ai i ka ʻili. ʻAʻole nā ​​​​​​ʻili, akā, ʻo nā T cell i loko o ke koko e lilo i mau cell kanesa ma aneʻi.

He aha nā hōʻailona o kēia maʻi? Pehea e loli ai mai ke kahua a i ke kahua?

ʻAʻole hiki koke mai nā hōʻailona Mycosis Fungoides. ʻIke ʻia lākou ma nā pae, me nā loli i ka ʻili. Eia naʻe, ʻaʻole i ʻike nā kānaka a pau i kēia mau pae āpau. Loaʻa paha i kekahi poʻe kekahi mau pae i ka manawa hoʻokahi.

I mea e maʻalahi ai ka hoʻomaopopo ʻana, e nānā kākou i kēia mau pae.

Ke lilo kēia ʻano i mea koʻikoʻi, hoʻomaka ka nui o nā pūnaewele T kanesa e kaʻapuni i loko o ke koko. Ua kapa ʻia kēia mau pūnaewele he mau pūnaewele Sézary . Inā nui loa kēia mau pūnaewele i loko o ke koko, hiki i ke ʻano ke ulu i kahi ʻano i kapa ʻia ʻo Sézary Syndrome . Hiki i kēia ke hana i kahi ʻulaʻula ma ke kino holoʻokoʻa.

No ke aha lā e hana ʻia ai kekahi mea e like me kēia?

ʻAʻole ʻike ʻia ke kumu kikoʻī o kēia , akā manaʻoʻiʻo nā loea he kuleana ko nā hoʻololi ʻana o ka genetic. I ka ʻōlelo maʻalahi, ua manaʻo ʻia ʻo nā hewa i loko o ka DNA i loko o kā mākou mau cell ke kumu o ka lilo ʻana o nā cell T i maʻi kanesa.

Akā, ʻo ka mea nui , ʻaʻole i hoʻoili ʻia kēia mau loli genetic mai kēlā hanauna a i kēia hanauna. ʻO ia hoʻi, ʻaʻole ʻoe e hoʻomohala iā lākou no ka mea ua loaʻa i kou mau mākua. Ke noiʻi nei nā kānaka noiʻi inā hiki i kekahi mau mea ʻawahia a i ʻole nā ​​maʻi ke kumu i kēia.

Pehea e ʻike ai ke kauka i kēia?

Hiki ke paʻakikī iki ka ʻike ʻana i kēia maʻi no ka mea i nā pae mua, ua like loa kona mau hōʻailona me nā maʻi ʻili maʻamau e like me ka eczema a i ʻole ka psoriasis. No laila, he paʻakikī ke ʻike inā he Mycosis Fungoides ma ka nānā wale ʻana i ka ʻili.

No laila, e hana kāu kauka i kekahi mau hoʻokolohua hou aʻe e hōʻoia a kāpae paha i kēia maʻi.

• ʻO ka biopsy ʻili: ʻO kēia ka hoʻāʻo koʻikoʻi loa. Pili ia i ka lawe ʻana i kahi ʻāpana liʻiliʻi o ka ʻiʻo mai ka ʻāpana i hoʻopilikia ʻia o ka ʻili a hoʻāʻo iā ia ma kahi keʻena hoʻokolohua.Ua nānā ʻia kēia hāpana ʻiʻo no nā hunaola kanesa e pili ana i ka Mycosis Fungoides. Pono paha e hana i kekahi mau hoʻokolohua biopsy e ʻike ai i nā hunaola kanesa pololei.
• Nā hoʻāʻo koko: Lawe ʻia kahi hāpana koko a nānā ʻia nā loli i loko o nā hunaola koko a me kekahi mau māka kemika.
• Nā kaʻina hana kiʻi: Hiki ke hana ʻia nā hoʻokolohua e like me ka CT scan a i ʻole PET scan e ʻike ai inā ua pālahalaha ke kanesa i nā lymph nodes a i ʻole nā ​​​​​​ʻōpū kūloko ʻē aʻe.

Pehea e hoʻoholo ʻia ai ke kahua o ka maʻi?

Ke ʻike ʻia ka maʻi, e hoʻoholo nā kauka i kona 'kahua'. He hoʻokaʻawale kēia i ka mamao o ka laha ʻana o ke kanesa a me kona koʻikoʻi, mai ke kahua I a i ka IV. He mea nui loa kēia i ka hoʻolālā ʻana i ka lāʻau lapaʻau maikaʻi loa nāu.

I ke koho ʻana i kēia pae, ua noʻonoʻo ʻia nā mea aʻe:

• Ka nui o nā ʻeha ʻili (nā kiko, nā paila, nā paila).
• ʻEhia ka nui o ka ʻili i pālahalaha ai kēia mau ʻeha.
• Ua pālahalaha anei ke kanesa i nā lymph nodes?
• Ua komo anei nā hunaola kanesa i loko o ke koko?
• Ua laha anei i nā ʻōpū ʻē aʻe ma waho aʻe o ka ʻili?

He aha nā lāʻau lapaʻau no kēia?

ʻO ka mālama ʻana no Mycosis Fungoides e pili ana i ke kahua o ka maʻi a me nā loli i kou ʻili. ʻO ka pahuhopu nui o ka hapa nui o nā lāʻau lapaʻau, ʻo ia ke kāohi i nā hōʻailona a mālama i kou ola maikaʻi.

Hiki i kāu kauka ke kuhikuhi i nā lāʻau lapaʻau e like me kēia:

• Lapaʻau ʻili i kuhikuhi ʻia: ʻO kēia nā lāʻau lapaʻau i hoʻopili pololei ʻia i nā wahi i hoʻopilikia ʻia o ka ʻili. ʻO kēia nā gels topical, steroids, retinoids, a me ka phototherapy .
• Lapaʻau ʻōnaehana: He mau lāʻau lapaʻau kēia i hāʻawi ʻia ma ke ʻano he mau pila a i ʻole intravenous. Hoʻopilikia lākou i nā hunaola kanesa ma ke kino holoʻokoʻa. ʻO nā laʻana e komo pū me nā lāʻau lapaʻau e like me methotrexate .
• Immunotherapy: ʻO kēia ka hoʻoulu ʻana i kā mākou ʻōnaehana ponoʻī e ʻike a luku i nā hunaola kanesa.
• Lapaʻau i hoʻolālā ʻia: ʻIke pololei kēia mau lāʻau lapaʻau a luku wale i nā hunaola kanesa, a laila e hōʻemi ana i ka hōʻino ʻana i nā hunaola maʻamau.
• Lapaʻau radiation: ʻO ka hoʻohana ʻana i nā kukuna ikehu ikaika e luku i nā hunaola kanesa a hoʻōki paha i ko lākou ulu ʻana.

ʻO ka chemotherapy, ka lāʻau lapaʻau a mākou e lohe pinepine ai ke kamaʻilio mākou e pili ana i ka maʻi kanesa, ʻaʻole hoʻohana nui ʻia no kēia maʻi no ka mea ʻaʻole ia he hopena maikaʻi loa no kēia maʻi a he nui nā hopena ʻaoʻao.

Pehea lā ke ʻano o ke ola me kēia maʻi?

ʻO kēia maʻiʻAʻohe lāʻau lapaʻau i kēia manawa. Akā, mai hopohopo. Me ka ʻike mua ʻana a me ka mālama ʻana, hiki i nā poʻe he nui ke ola i kahi ola maʻamau me ka ʻole o nā hōʻailona no nā makahiki.

ʻO kāu wānana e pili ana i nā kumu he nui, ʻo ka mea nui loa ʻo ia ke kahua o ka maʻi.

Wahi a nā helu helu, inā ʻike ʻia i nā pae mua (early-stage), ʻo ka likelika o ke ola ʻana he 10 mau makahiki he 95%. Inā lilo ka maʻi i mea koʻikoʻi (advanced-stage), hiki ke hoʻemi ʻia kēia manawa i ʻekolu a ʻelima mau makahiki. Akā e hoʻomanaʻo he mau helu wale nō kēia. Nui nā mea e hoʻopilikia i kēia, e like me kou mau makahiki a me ke olakino holoʻokoʻa. No laila, ʻo kāu kauka wale nō ke hāʻawi iā ʻoe i ka wehewehe maikaʻi loa o kou kūlana.

Hiki ke pale ʻia kēia? He aha kaʻu e hana ai?

ʻAʻohe ala i hōʻoia ʻia e pale aku ai i ka ulu ʻana o Mycosis Fungoides. Akā aia kekahi mau mea hiki iā ʻoe ke hana e hōʻemi i ka pilikia o ka holomua ʻana o ka maʻi i kahi pae koʻikoʻi. ʻO ia hoʻi, e hele i nā nānā lapaʻau maʻamau.

ʻO ka mea nui loa, ʻo ia ke nānā pono i kou ʻili iā ʻoe iho ma ka liʻiliʻi hoʻokahi manawa i ka mahina. E hele i ke aniani a nānā i kou kino holoʻokoʻa. E ʻimi i nā kiko hou, nā ʻiole, nā warts, a i ʻole nā ​​​​loli i ke kala a i ʻole ka nui o nā mea e kū nei. Inā ʻike ʻoe i kekahi mau loli, mai hoʻowahāwahā iā lākou a e ʻike koke i kahi dermatologist. ʻO ka wikiwiki o kou ʻike ʻana iā lākou, ʻoi aku ka holomua o ka lāʻau.

Nā nīnau e nīnau aku ai i kāu kauka

Inā ua ʻike ʻia ʻoe me kēia maʻi, nui paha nā nīnau i loko o kou manaʻo. Mai hūnā i kekahi mea, e nīnau i kāu kauka.

• He aha nā koho lapaʻau e loaʻa iaʻu?
• Aia kekahi mau hopena ʻaoʻao i kēia mau lāʻau lapaʻau?
• He aha ka manawa kūpono e hoʻi hou mai ai ka maʻi ma hope o ka mālama ʻia ʻana?
• He aha ka mea e hana ʻia inā ʻaʻole wau e loaʻa i ka lāʻau lapaʻau?
• He aha kaʻu e hana ai e pale aku i ka hoʻi hou ʻana mai o ka maʻi?