Ua ʻike mākou he paʻakikī ke ola ʻana me ka Multiple Sclerosis (MS) i kekahi manawa. Hiki iā ʻoe ke manaʻo ua kaumaha ʻia e nā hōʻailona mau a me nā ʻōhū koke. Eia nō naʻe, aia nā lāʻau lapaʻau hou e hiki ke kōkua i ka hoʻokele ʻana i kēia kūlana. ʻO Ofatumumab kekahi o ia mau lāʻau lapaʻau. No laila i kēia lā, e kamaʻilio kākou e pili ana i kēia lāʻau, pehea e hana ai, a me nā mea e makaʻala ai i ka wā e hoʻohana ai.
He aha ke ʻano lāʻau lapaʻau ʻo Ofatumumab?
I ka ʻōlelo maʻalahi, he lāʻau lapaʻau ʻo Ofatumumab i hoʻohana ʻia no ka mālama ʻana i ka Multiple Sclerosis (MS). ʻO Kesimpta ka inoa inoa i hoʻohana pinepine ʻia no ia mea.
E noʻonoʻo, i loko o MS, hoʻouka hewa ka ʻōnaehana pale ponoʻī o ko mākou kino, ʻo ia hoʻi ka ʻōnaehana pale kino , i kā mākou ʻōnaehana nerve ponoʻī. ʻO kēia ke kumu o nā hōʻailona o MS. Hana ʻo Ofatumumab ma ka hoʻolohi ʻana i ka ʻōnaehana pale kino ikaika loa a me ka hōʻoluʻolu ʻana. Hiki i kēia ke hōʻemi i ka nui o nā flare-up.
ʻO ka mea nui, ʻaʻole kēia he lāʻau lapaʻau no MS. Eia nō naʻe, hiki iā ia ke kōkua iā ʻoe e kaohi i ka maʻi, hōʻemi i nā hōʻailona, a ola i kahi ola maʻamau.
Nā mea e pono ai ʻoe e haʻi i kāu kauka ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau
Ma mua o ka hoʻoholo ʻana inā kūpono kēia lāʻau lapaʻau iā ʻoe, he mea nui e kūkākūkā i kekahi mau mea me kāu kauka. Inā pili kekahi o kēia mau mea iā ʻoe, e hōʻoia e haʻi iā lākou.
- Nā maʻi o kēia manawa: E haʻi mai iā mākou inā loaʻa iā ʻoe kahi maʻi liʻiliʻi e like me ke anu a i ʻole ka maʻi palū, a inā loaʻa iā ʻoe a i ʻole ua loaʻa iā ʻoe kahi maʻi viral e like me ka Hepatitis B , chickenpox, a i ʻole herpes.
- Nā pilikia o ka ʻōnaehana pale: Inā he nāwaliwali a maʻi ʻē aʻe kou o ka ʻōnaehana pale, koe wale nō ʻo MS.
- Nā lāʻau pale: Inā ua loaʻa iā ʻoe kahi lāʻau pale i kēia manawa koke nei, a i ʻole ke hoʻolālā nei e loaʻa i hoʻokahi i ka wā e hiki mai ana, ʻoiai nā lāʻau pale ola, pono ʻoe e haʻi i kāu kauka.
- Nā maʻi ʻaleka: Inā he maʻi ʻaleka kou iā Ofatumumab a i ʻole kekahi lāʻau lapaʻau ʻē aʻe, meaʻai, a mea hoʻoluʻu paha.
- Hāpai: Inā hāpai ʻoe, e hoʻāʻo ana e hāpai, a i ʻole manaʻo paha ua hāpai ʻoe, he mea nui loa kēia.
- Ka hānai waiū ʻana: Inā he makuahine ʻoe e hānai waiū ana i kahi keiki.
Pehea e pono ai iaʻu ke hoʻohana i ka lāʻau lapaʻau?
Hāʻawi ʻia kēia lāʻau lapaʻauMa ke ʻano he inikini ma lalo o ka ʻili. He mea ʻē paha kēia i ka wā mua, akā mai hopohopo. Na kāu kauka a i ʻole kahi kahu maʻi i aʻo ʻia e hōʻike iā ʻoe pehea e hāʻawi ai iā ʻoe iho i kēia inikini.
E heluhelu pono i nā KUHI NO KA HOʻOHANA ʻANA e hele mai me kēia lāʻau lapaʻau. Inā he mau nīnau kāu, mai kānalua e nīnau i kāu kauka.
ʻO kekahi mea nui ʻē aʻe, ʻaʻole loa e hoʻolei i nā nila a me nā syringe i hoʻohana ʻia i loko o ka ʻōpala. Aia kahi pahu kūikawā no lākou (pahu ʻoi) . Inā ʻaʻohe āu, e nīnau i kāu kauka pehea e loaʻa ai. He mea nui loa kēia no kou palekana a me ka palekana o haʻi.
Nā mea e makaʻala nui ai i ka wā e lawe ai i ka lāʻau lapaʻau
ʻOiai e lawe ana i kēia lāʻau lapaʻau, he mea maikaʻi e makaʻala iki aku i kou olakino.
Nā hoʻokolohua lapaʻau maʻamau
E haʻi aku kāu kauka iā ʻoe e hele mai no nā nānā ʻana i nā manawa maʻamau. Hiki iā ia ke kauoha i kekahi mau hoʻāʻo koko . He mea nui e hana mau i kēia mau mea me ka ʻole o ka haʻalele ʻana iā lākou.
Ka pilikia o ka maʻi
No ka mea, hoʻemi kēia lāʻau lapaʻau i ka hana o ka ʻōnaehana pale, ʻoi aku paha ka nui o ka loaʻa ʻana o nā maʻi. No laila,
- Inā ʻike ʻoe i nā hōʻailona e like me ke kuni, ka ʻūlū, ka ʻeha ʻāʻī, a me ke kuni , mai lāʻau ponoʻī ʻoe a e kāhea koke aku i kāu kauka.
- E ho'āʻo e noho mamao aku mai ka poʻe maʻi.
- Inā loaʻa iā ʻoe kahi ʻeha a ʻaʻole e ho'ōla koke, e haʻi i kāu kauka e pili ana i ia mea.
He maʻi lolo kakaikahi loa akā koʻikoʻi
Mai hopohopo i kēia, akā he mea nui e ʻike. He mea kākaʻikahi loa, i kekahi mau maʻi, hiki i kēia lāʻau lapaʻau ke hoʻoulu i kahi maʻi lolo koʻikoʻi i kapa ʻia ʻo Progressive Multifocal Leukoencephalopathy (PML) . Hiki i kēia ke hoʻoweliweli i ke ola. No laila, inā ʻike ʻoe i kekahi o kēia mau hōʻailona, e ʻimi koke i ke kōkua lapaʻau.
- Nā pilikia ʻike (ʻike maka pōwehiwehi, ʻike pālua)
- Nā pilikia noʻonoʻo a hoʻomanaʻo paha
- Paʻakikī i ka ʻōlelo ʻana
- Ka paʻakikī i ka hele ʻana a i ʻole ke kū ʻana, ka nalowale o ke kaulike
Inā ʻike ʻoe i kekahi o kēia mau hōʻailona a ʻaʻole hiki ke kamaʻilio me kāu kauka, e hele i ka Emergency Treatment Unit (ETU) o ka haukapila kokoke loa i ka hikiwawe loa.
Ka hāpai ʻana a me ka hānai ʻana i ka waiū
He mea nui loa kēia.
- He mea nui e pale i ka hāpai ʻana i ka wā e lawe ana i kēia lāʻau lapaʻau, a no 6 mau mahina ma hope o ka hoʻōki ʻana i ka lāʻau lapaʻau .
- Inā hāpai ʻoe i kēia manawa, hiki i ke pēpē i loko o ka ʻōpū ke ʻeha nui .
- Inā ʻoe e hoʻolālā ana e loaʻa kahi keiki, e kamaʻilio me kāu kauka e pili ana i ke ʻano palekana loa ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau.
Nā hopena ʻaoʻao hiki ke loaʻa
E like me nā lāʻau lapaʻau āpau, hiki i kēia ke loaʻa nā hopena ʻaoʻao. He koʻikoʻi kekahi o lākou, he mea maʻamau kekahi. Hiki iā ʻoe ke aʻo hou aʻe e pili ana iā lākou ma ka papa ma lalo nei.
| Ka hopena ʻaoʻao | Ka wehewehe a me nā mea e hana ai |
|---|---|
| Nā hopena ʻaoʻao e pono e hōʻike koke ʻia i kāu kauka | |
| Nā hopena alerika | ʻŌhūhū ʻili, maneʻo, pehu o ka maka, nā lehelehe, ke alelo a i ʻole ka puʻu. Hiki i kēia mau mea ke koʻikoʻi, no laila e ʻimi koke i ke kōkua lapaʻau. |
| Nā maʻi | Kuni, anu, ʻū, ʻeha puʻu, nā ʻeha ʻaʻole e ho'ōla ʻia, ka maʻi mimi a i ʻole ka ʻeha, a me nā ʻeha kino. Inā loaʻa iā ʻoe kekahi o kēia mau mea, e haʻi koke i kāu kauka. |
| ʻAʻohe mea e hopohopo ai (akā e haʻi i kāu kauka inā hoʻomau ia) | |
| ʻEha hope | He mea maʻamau kēia, akā inā koʻikoʻi a hoʻomau paha, e haʻi i kāu kauka . |
| ʻEha poʻo | Hiki ke hana ʻia i ka wā mua o ka lāʻau lapaʻau. |
| ʻEha ma kahi i hoʻokomo ʻia | He mea maʻamau ke ʻike i ka ʻulaʻula, ka maneʻo, a i ʻole ka ʻeha iki ma kahi i inikini ʻia. |
Pehea ʻoe e mālama ai a hoʻolei aku i ka lāʻau lapaʻau?
- Ka Mālama ʻana: ʻOi aku ka maikaʻi o ka mālama ʻana i kēia lāʻau lapaʻau i loko o ka pahu hau . Mai hoʻopaʻahau. E mālama iā ia i loko o kāna pahu kumu. E lawe mai ia mai loko mai o ka pahu hau 15-30 mau minuke ma mua o kou hoʻolālā ʻana e hoʻokomo iā ia. Mai lūlū i ka lāʻau lapaʻau i kēlā me kēia manawa. Inā ʻaʻole hiki iā ʻoe ke mālama iā ia i loko o ka pahu hau, hiki ke mālama ʻia i ka mahana o ka lumi a hiki i 7 mau lā. Eia nō naʻe, e mālama iā ia i loko o ka pahu kumu, i pale ʻia mai ka mālamalama, a mai hoʻohana i nā koena ma hope o 7 mau lā.
- Ka Hoʻolei ʻana: Pono e hoʻolei maluhia ʻia nā lāʻau lapaʻau i pau ka manawa a i ʻole makemake ʻole ʻia. E kūkākūkā me kāu kauka e pili ana i ke ala maikaʻi loa no kēia.
ʻO ka mea hope loa, mai hopohopo inā ʻaʻole ʻoe e lawe i kahi lāʻau. E kāhea koke i kāu kauka a nīnau i ka mea e hana ai ma hope. Eia kekahi, e haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau ʻē aʻe (e like me nā steroids e like me Prednisolone ) a me nā huaora āu e lawe nei, no ka mea, hiki i kekahi mau mea ke launa pū me kēia lāʻau.
Leka Lawe-Home
- He lāʻau lapaʻau ʻo Ofatumumab e kōkua ai i ka kaohi ʻana i ka MS a hōʻemi i ka holomua o ka maʻi, akā ʻaʻole ia he lāʻau lapaʻau.
- Ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau, e haʻi i kāu kauka e pili ana i kou mau kūlana olakino āpau, ʻoiai nā maʻi, nā allergies, a me nā hoʻolālā hāpai.
- ʻOiai e lawe ana i ka lāʻau lapaʻau, e makaʻala i nā hōʻailona o ka maʻi e like me ke kuni a me ke kuni. Eia kekahi, e ʻimi koke i ke kōkua lapaʻau inā loaʻa iā ʻoe nā hōʻailona koʻikoʻi e like me nā pilikia me ka ʻike, ka ʻōlelo, a i ʻole ka hele wāwae.
- Mai hāpai loa i ka wā e lawe ana i kēia lāʻau lapaʻau a no 6 mau mahina ma hope o ka hoʻōki ʻana.
- Mai kaʻana like i kāu lāʻau lapaʻau me nā poʻe ʻē aʻe. E mālama pono iā ia a e hoʻolei pono i nā nila i hoʻohana ʻia.
- E kamaʻilio ākea me kāu kauka e pili ana i nā pilikia a i ʻole nā kānalua āu e loaʻa ai.
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