Ua holomua anei kāu lāʻau PBC? (Primary Biliary Cholangitis) - E kamaʻilio kāua me ke kauka e pili ana i kēia

Ua ʻike ʻia ʻoe me ka Primary Biliary Cholangitis, a i ʻole PBC no ka pōkole, a ke hoʻomaka wale nei ʻoe i ka lāʻau lapaʻau? A laila he nīnau iki paha kāu i loko o kou manaʻo, he kānalua iki, "E hana maoli anei kēia lāʻau lapaʻau iaʻu? E hoʻomaikaʻi anei ka maʻi?" ʻOiaʻiʻo, ʻaʻole kēia nou wale nō, akā he mea hoʻi ia e manaʻo ai ka poʻe he nui i mālama ʻia no kēia ʻano maʻi. I kekahi manawa, ʻaʻole paha e hana ka lāʻau lapaʻau mua a ke kauka e kuhikuhi ai iā ʻoe. He mea maʻamau loa kēia, mai hopohopo no ia mea. ʻO ka mea nui loa, ʻo ke kamaʻilio ākea me kāu kauka e pili ana i kou manaʻo a me nā hopena o ka lāʻau lapaʻau.

ʻO ka mea mua, e hoʻomaopopo wale kākou, he aha ka PBC?

He mea weliweli iki paha ka inoa iā ʻoe. Akā e mālama maʻalahi kākou. ʻO ka Primary Biliary Cholangitis (PBC) kahi maʻi e hoʻopilikia ai i nā ʻauwai bile liʻiliʻi i loko o kou ake . E noʻonoʻo i kēia mau ʻauwai bile e like me nā paipu i loko o kou kino. Lawe kēia mau paipu i ka bile, kahi wai i hana ʻia i loko o ke ake e kōkua i ka hoʻoheheʻe ʻana i ka meaʻai.

I loko o ka PBC, hoʻouka hewa ka ʻōnaehana pale kino o ko mākou kino i kēia mau ʻauwai bile a luku mālie iā lākou. A laila, ʻaʻole hiki i ke kahe wai bile ke holo pono a paʻa i loko o ke ake. E like me ka wā e paʻa ai kahi paipu wai, piha ka wai ma kahi hoʻokahi a pulu nā mea a puni, hoʻomaka kēia wai e hōʻino i ke ake. Inā ʻaʻole mālama ʻia, i ka hala ʻana o ka manawa, hiki i kēia hōʻino ke hoʻoulu i ka ʻeha o ke ake, a mākou e kapa nei he cirrhosis .

Akā ʻo ka nūhou maikaʻi, aia i kēia manawa he nui nā lāʻau lapaʻau maikaʻi e kāohi i kēia maʻi a hōʻemi i kona pōʻino. Me kāu kauka, hiki iā ʻoe ke hoʻomohala i kahi hoʻolālā lapaʻau kūpono iā ʻoe.

ʻO ka huakaʻi lapaʻau PBC - ʻaʻole holo koke nā mea āpau

He mea kēia e pono ai kākou a pau e hoʻomaopopo. Hiki i ka mālama ʻana i ka PBC ke like me kahi hoʻokolohua i kekahi manawa. ʻO ia hoʻi, no ka mea he ʻokoʻa ke kino o kēlā me kēia kanaka, ʻaʻole hana ka lāʻau like no kēlā me kēia kanaka. ʻO ka lāʻau mua a kāu kauka e hāʻawi ai iā ʻoe ʻaʻole paha e hana e like me kou makemake.

He aha ke ʻano o ia mea? ʻO ia hoʻi, pono ʻoe e makaʻala i nā loli i kou kino, nā hōʻailona, ​​a me kou manaʻo ma hope o ka lawe ʻana i ka lāʻau lapaʻau. A pono ʻoe e haʻi i kāu kauka i kēlā mau mea a pau. A laila wale nō e hiki ai iā ia ke hoʻomaopopo inā e holo pono ana ka lāʻau a inā pono ʻoe e hana i kahi hoʻololi.

ʻO kāu hui mālama PBC - ʻaʻole ʻoe hoʻokahi ma kēia huakaʻi!

He haʻuki hui ka mālama ʻana i kahi maʻi e like me PBC. Nui nā ʻano loea lapaʻau e hiki ke kōkua iā ʻoe. E hoʻomanaʻo, ʻaʻole ʻoe hoʻokahi. E nānā kākou i ka poʻe maʻamau e hana i kēia hui.

Pehea e kamaʻilio ai me ke kauka? - Mai poina e nīnau i kēia mau mea!

He mea nui loa ia e kūkulu i kahi pilina maikaʻi a hilinaʻi hoʻi me kāu Gastroenterologist a i ʻole Hepatologist i hiki iā ʻoe ke nīnau i kāu mau nīnau me ka makaʻu ʻole a kānalua ʻole.

E hoʻomākaukau iki ma mua o ka hālāwai.

He mea kōkua nui iā ʻoe ke hana i kahi hoʻomākaukau iki ma ka home ma mua o kou hele ʻana e ʻike i ke kauka.

• E kākau i kāu mau hōʻailona: E kākau i lalo i loko o kahi puke moʻolelo nā kikoʻī e like me ka wā e ʻike ai ʻoe i ka maneʻo, ka luhi, a me ka ʻeha, a me kou manaʻo.
• E hana i kahi papa inoa o nā nīnau: I kekahi manawa poina iā ʻoe ka mea āu e makemake ai e nīnau i ke kauka, no laila e kākau i lalo i nā nīnau a pau āu e noʻonoʻo nei.
• E haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau ʻē aʻe āu e lawe nei: Inā ʻoe e lawe ana i nā lāʻau lapaʻau ʻē aʻe, nā huaora, a i ʻole nā ​​​​lāʻau lapaʻau kuʻuna ma waho aʻe o ka lāʻau lapaʻau āu e lawe nei no PBC, e hōʻoia e haʻi i kāu kauka e pili ana i ia mea.

Nā mea nui e kūkākūkā ai

Mai kānalua e nīnau i kāu kauka e like me nā mea ma lalo nei. He mea nui loa kēia no kāu huakaʻi lapaʻau.

• "E ke kauka, he aha nā pahuhopu nui o kēia lāʻau lapaʻau? He aha kā mākou e manaʻo ai mai kēia mau lāʻau lapaʻau?"
• " Pehea lā mākou e ʻike pono ai inā e hana pono ana kēia lāʻau lapaʻau? He aha nā hoʻokolohua koko a i ʻole nā ​​scan e pono ai?"
• "Ua loaʻa iaʻu kēia hōʻailona. He hopena ʻaoʻao paha kēia o ka lāʻau lapaʻau? He aha kaʻu e hana ai?"
• "Inā ʻaʻole holo pono kēia lāʻau lapaʻau iaʻu, he aha kā mākou mau koho aʻe? "
• "He aha nā hoʻololi e pono ai iaʻu e hana i kaʻu meaʻai a me ke ʻano o ka nohona ?"

ʻO kēia kamaʻilio ʻana me kāu kauka ke ala maikaʻi loa e hoʻokō ai i kāu hoʻolālā lapaʻau. E haʻi mai iā mākou i nā mea āpau āu e manaʻo nei, kou mau makaʻu, kou mau manaʻolana. A laila, e hui pū, hiki iā ʻoe ke hana i nā hoʻoholo e lawe mai iā ʻoe i nā hopena maikaʻi loa.