Ke haʻi aku kāu kauka iā ʻoe he maʻi kou i kapa ʻia ʻo PBC (Primary Biliary Cholangitis), he tausani paha kāu mau nīnau e holo nei i loko o kou manaʻo. He mea maʻamau ke noʻonoʻo, "He aha ke ʻano o kēia maʻi? He aha ka mea e hiki mai ana i koʻu ola? He aha kaʻu e hana ai i kēia manawa?" He mea maʻamau ka makaʻu a me ka hopohopo ke ʻike ʻoe he maʻi hiki ʻole ke hoʻōla ʻia kēia, he maʻi lōʻihi. Akā, mai hopohopo, ʻaʻole pono ʻoe e hele wale ma kēia huakaʻi. Inā maopopo iā ʻoe kēia maʻi a kūkulu i kahi ʻōnaehana kākoʻo e hiki ke kōkua iā ʻoe, hiki iā ʻoe ke ola i kahi ola ikaika a hauʻoli me kēia maʻi. E nānā kākou pehea e loaʻa ai ka ikaika a me ka ʻike āu e pono ai no kēia huakaʻi.
ʻO kāu alakaʻi mua a maikaʻi loa: ʻO kāu kauka
Ke aʻo ʻoe e pili ana i kēia maʻi, ʻo ke kanaka hiki ke pane maikaʻi loa i kāu mau nīnau ʻo ia kāu kauka. No laila, he mea nui loa ia e kūkulu i kahi pilina maikaʻi a ikaika me kāu hui lapaʻau.
E noʻonoʻo, ehia mau nīnau āu e pili ana i kēia maʻi, kona ʻano, pehea e pili ai i kou ola, nā lāʻau lapaʻau āu e pono ai e lawe, ka ʻai, ka hoʻoikaika kino? E kamaʻilio me kāu kauka e pili ana i kēia mau mea āpau me ka makaʻu ʻole a me ka wehe ʻana. Mai hoʻokuke iā lākou me he mau pilikia liʻiliʻi lā. E hoʻolohe i nā mea a pau ma kou manaʻo.
E maʻalahi iā ʻoe ke hana i kēia mau mea:
- E kākau i kāu mau nīnau: Ma mua o kou hele ʻana e ʻike i ke kauka, e kākau i nā nīnau a pau āu e makemake ai e nīnau i loko o kahi puke. I kekahi manawa ke ʻike mākou i ke kauka, poina iā mākou ka mea a mākou i makemake ai e nīnau. Ke kākau ʻoe iā lākou e like me kēia, ʻaʻole ʻoe e poina i kekahi o kēlā mau nīnau.
- E kākau i nā memo: E kākau i lalo i nā mea a pau a ke kauka e ʻōlelo ai, e like me nā kuhikuhi āna e hāʻawi ai iā ʻoe, nā kikoʻī o ka lāʻau lapaʻau, a me nā hoʻokolohua āu e pono ai e hana. E kōkua ia iā ʻoe e nānā hou iā ia ke hoʻi ʻoe i ka home.
- E ʻōlelo: Inā ʻaʻole ʻoe e maopopo i kekahi mea, mai makaʻu e nīnau hou. "E Kauka, ʻaʻole au i maopopo i kāu mea i ʻōlelo ai. Hiki iā ʻoe ke wehewehe hou ma ke ʻano maʻalahi?"
Ma ke komo ikaika ʻana i kāu kaʻina hana lapaʻau ma kēia ʻano, e hiki iā ʻoe ke hoʻoponopono i kēia maʻi me ka kaohi hou aku , me ka makaʻu ʻole.
E akahele loa i ka wā e ʻimi ai i ka ʻike ma ka Pūnaewele!
I kēia mau lā, ʻo ka pūnaewele ka mea mua a mākou e huli ai i ka wā e ʻimi ai i ka ʻike e pili ana i kekahi mea. Hiki i ka pūnaewele ke lilo i wahi maikaʻi loa e loaʻa ai ka ʻike e pili ana iā PBC. Eia naʻe, ua like ia me ka pahi kaua ʻoi lua. ʻAʻole pololei nā ʻike a pau ma ka pūnaewele. I kekahi manawa, hiki i ka ʻike hewa a alakaʻi hewa ke hoʻopilikia iā ʻoe a hōʻino i kou olakino.
Mai waiho i nā mea āpau iā "Kauka Google." Ma mua o ka hoʻoholo hope ʻana e pili ana i kekahi ʻike āu e loaʻa ai ma ka pūnaewele, e kamaʻilio me kāu kauka e pili ana i ia mea.
Hiki i kekahi mau pūnaewele ke hoʻopuka i nā hoʻolaha wahaheʻe e like me "E ho'ōla kēia lāʻau i kou maʻi i loko o ʻehiku lā." A i ʻole, hiki iā lākou ke alakaʻi hewa iā ʻoe me nā ʻano lāʻau like ʻole i hōʻoia ʻole ʻia e ka ʻepekema. Mai hoʻopunipuni ʻia e kēia mau mea.
No laila, pehea mākou e loaʻa ai kahi pūnaewele hilinaʻi?
No ka loaʻa ʻana o ka ʻike maikaʻi a hilinaʻi hoʻi, pono ʻoe e nānā i nā pūnaewele i mālama ʻia e nā keʻena olakino aupuni, nā haukapila kaulana, a me nā kula lapaʻau o ke kulanui. Nui nō hoʻi ka ʻike waiwai ma nā pūnaewele o nā hui kākoʻo maʻi honua. No ka laʻana, hiki ke ʻōlelo ʻia nā hui e like me ka American Liver Foundation a me ka PBCers Organization.
Ke nānā ʻoe i ka ʻike ma kahi pūnaewele, e nīnau iā ʻoe iho i kēia mau nīnau e ʻike ai inā he hilinaʻi ia.
| He mea e noʻonoʻo ai | ʻO ka nīnau āu e nīnau ai iā ʻoe iho |
|---|---|
| Nā Pahuhopu Kūʻai | Ke hoʻāʻo nei kēia pūnaewele e kūʻai aku i kekahi huahana a lawelawe paha? Kākoʻo ʻia e kekahi hui waiwai? |
| Manaʻo kūʻē | Ke hōʻike wale nei kēia pūnaewele i nā manaʻo o kahi kanaka a hui paha? |
| Hōʻoia lapaʻau | Ua loiloi ʻia anei ka ʻike ma ʻaneʻi e kekahi loea lapaʻau? Ua hōʻoia ʻia anei kēia ʻike e nā haʻawina ʻepekema? |
| Kuleana a me ka kuleana | Hiki iā ʻoe ke ʻike maopopo i ka mea nona kēia pūnaewele a me ka poʻe a nā kauka e nānā nei i ka ʻike? |
| He hihiʻo kaulike | Ke hōʻike nei kēia pūnaewele i ka ʻike kaulike mai nā manaʻo like ʻole ma kahi kumuhana? |
He ikaika nui nō hoʻi ka hoʻomaopopo ʻana i kou ʻohana a me kou mau hoaaloha.
I ke ola ʻana me kahi maʻi lōʻihi e like me kēia, ʻo ke kākoʻo o kou ʻohana a me nā hoaaloha pili kou ikaika nui loa. Akā i mea e kōkua ai iā ʻoe, pono lākou e makaʻala i kēia maʻi.
E kamaʻilio ākea me lākou e pili ana i kou kūlana a me kou manaʻo. E wehewehe iā lākou ʻaʻole he maʻi lele ka PBC a pehea e hiki ai ke hoʻopilikia i kou nohona. E maʻalahi iā lākou ke kōkua iā ʻoe ke maopopo iā lākou e luhi paha ʻoe i kekahi mau lā a ʻaʻole paha hiki ke ʻai i kekahi mau meaʻai. He manaʻo maikaʻi nō hoʻi e lawe mai i kāu kāne, wahine, a i ʻole kahi lālā o ka ʻohana pili me ʻoe ke hele ʻoe e ʻike i ke kauka.
Mai poina e pili ana i ke olakino noʻonoʻo ma kēia huakaʻi.
He mea maʻamau ke kaumaha, ka hopohopo, a i kekahi manawa huhū paha ke ʻike ʻoe he maʻi kou e like me PBC. Mai ho'āʻo e hoʻoponopono wale i kēia mau manaʻo. ʻO ke kamaʻilio ʻana e pili ana i kou mau manaʻo me kahi mea āu e hilinaʻi ai hiki ke lilo i kumu hōʻoluʻolu nui. Hiki i kēia ke lilo i kāu hoa, he hoaaloha pili, a i ʻole he lālā o ka ʻohana.
I ke ola ʻana me kahi maʻi e like me kēia , he mea nui ke olakino noʻonoʻo e like me ke olakino kino . ʻAʻole hiki iā ʻoe ke olakino me ka ʻole o ka puʻuwai hauʻoli.
Inā manaʻo ʻoe e pilikia ana ʻoe i ka hoʻokele ʻana i kou hopohopo a me ke kaumaha, e kamaʻilio me kāu kauka e pili ana i ia mea. Inā pono, e kuhikuhi ʻo ia iā ʻoe i kahi loea noʻonoʻo no ke kōkua. ʻAʻohe kumu e hilahila ai a makaʻu paha i ia mea.
Leka Lawe-Home
- ʻOiai ʻo ka ʻike ʻia ʻana me PBC hiki ke lilo i mea paʻakikī ke hoʻololi i ke ola, me ka ʻike kūpono a me ke kākoʻo, hiki iā ʻoe ke neʻe i mua me ka ikaika.
- Pono kāu kauka e lilo i kumu nui a hilinaʻi nui ʻia no ka ʻike e pili ana i kou kūlana olakino.
- E akahele loa i ka wā e ʻimi ai i ka ʻike ma ka Pūnaewele. E hoʻohana mau i nā pūnaewele hilinaʻi wale nō a kūkākūkā i ka ʻike āu e loaʻa ai me kāu kauka.
- ʻO kou ʻohana a me kou mau hoaaloha kou ikaika nui loa. E kamaʻilio ākea me lākou e pili ana i kou kūlana a e ʻimi i kā lākou kākoʻo.
- He mea nui ka mālama ʻana i kou olakino kino e like me kou olakino noʻonoʻo. Mai kānalua e ʻimi i ke kōkua loea inā pono.
- E hoʻomanaʻo, ʻaʻole ʻoe hoʻokahi ma kēia huakaʻi!
💬 Comments (0)
ʻAʻohe manaʻo i kau ʻia. Hoʻohui i kāu manaʻo ma ʻaneʻi no ka manawa mua.
Hoʻohui i kāu manaʻo