ʻO ka lāʻau pale Pegcetacoplan (EMPAVELI): Pehea e kāohi ai i kahi maʻi koko kakaikahi (Pegcetacoplan Injection)

Loaʻa iā ʻoe a i ʻole kekahi āu i ʻike ai kahi maʻi koko laha ʻole i kapa ʻia ʻo Paroxysmal Nocturnal Hemoglobinuria , a i ʻole PNH no ka pōkole? He mea paʻakikī paha ia, akā i ka ʻōlelo maʻalahi, he ʻano ia e haki ai nā hunaola koko ʻulaʻula i loko o ko kākou kino i ka wā mua. Hiki i kēia ke alakaʻi i nā pilikia he nui, me ka anemia, ka luhi, a me nā ʻūpā koko. No laila i kēia lā e kamaʻilio mākou e pili ana i kahi lāʻau pale i kapa ʻia ʻo Pegcetacoplan (puana ʻia: peg-seta-co-plan) i lawe mai i ka manaʻolana hou i nā poʻe he nui i loaʻa i kēia ʻano.

He aha ʻo Pegcetacoplan? Pehea e hana ai?

E noʻonoʻo i ko kākou mau hunaola koko ʻulaʻula e like me nā kaʻa liʻiliʻi e lawe ana i ka oxygen ma ke kino holoʻokoʻa. I loko o ke kanaka me PNH, manaʻo hewa ka ʻōnaehana pale (ka pūʻali koa e pale aku iā kākou mai ka maʻi) ʻo kēia mau hunaola koko ʻulaʻula ka ʻenemi a hoʻouka a luku iā lākou. ʻO kēia ma muli o kahi hana hewa i loko o kahi ʻāpana o ka ʻōnaehana pale i kapa ʻia ʻo ka ʻōnaehana Complement .

ʻO kēia kahi e komo mai ai kahi lāʻau i kapa ʻia ʻo Pegcetacoplan. Ua like kēia lāʻau pale me kahi mea pale akamai. Hana ia ma ka hoʻōki ʻana i ka ʻāpana o ka ʻōnaehana pale e hoʻouka hewa ana a pale i kā mākou mau hunaola koko ʻulaʻula. Kāohi kēia i ka haki ʻana o nā hunaola koko ʻulaʻula a hōʻemi nui i nā hōʻailona o ka PNH.

Nā mea e pono ai ʻoe e haʻi i kāu kauka ma mua o ka hoʻohana ʻana i kēia lāʻau lapaʻau

No ka mea he lāʻau lapaʻau koʻikoʻi kēia, he mea nui e kūkākūkā ākea i kekahi mau mea me kāu kauka ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau. No kou palekana ponoʻī, mai hūnā i kēia mau mea.

• Loaʻa iā ʻoe kekahi mau maʻi i kēia manawa? E haʻi i kāu kauka e pili ana i kekahi mau maʻi, e like me ke kuni, ke anu, ke kuni, a i ʻole ka ʻeha o ka puʻu.
• He mau maʻi ʻē aʻe kāu? ʻAʻole wale i kēia lāʻau lapaʻau, akā, i kekahi lāʻau lapaʻau ʻē aʻe, meaʻai, a mea hoʻomalu paha, e ʻoluʻolu e hoʻomaopopo mai iā mākou e pili ana iā lākou.
• Ua hāpai ʻoe? A i ʻole ke hoʻolālā nei ʻoe e hāpai? He mea nui e ʻimi i ke aʻo lapaʻau ma mua o ka hoʻoholo ʻana e hoʻohana i kēia lāʻau i ka wā hāpai.
• He makuahine hānai waiū ʻoe? Pono ʻoe e kamaʻilio me kāu kauka e pili ana i ka hoʻohana ʻana i kēia lāʻau lapaʻau i ka wā e hānai waiū ana.

Pehea e hoʻohana ai i ka lāʻau lapaʻau?

He pana ʻo Pegcetacoplan hiki iā ʻoe ke hāʻawi iā ʻoe iho ma ka home. He inikini subcutaneous ia. Me he mea lā he mea weliweli iki paha i ka wā mua, akā mai hopohopo.

ʻO ka maʻamau, e hōʻike maopopo aku kāu kauka a i ʻole kekahi kahu maʻi i aʻo ʻia iā ʻoe pehea e lawelawe pono ai i kēia lāʻau pale.

• Pehea e hoʻomākaukau ai i kahi ʻōmole lāʻau lapaʻau.
• ʻO ka nui kūpono o ka lāʻau lapaʻau e lawe ai i loko o ka syringe.
• Nā wahi injection kūpono (ʻo ka ʻōpū pinepine, ka ʻūhā).
• Pehea e hoʻomaʻemaʻe ai i ka ʻili.

E kōkua lākou iā ʻoe e hoʻomaʻamaʻa i kēia mau mea a pau. Loaʻa nā hopena maikaʻi loa ma ka loaʻa ʻana o ka lāʻau pale e like me ke kauoha a ke kauka, i nā lā i hoʻonohonoho ʻia, a ma kahi o ka manawa like .

Ka hoʻolei palekana ʻana i nā nila a me nā syringe

Aia kahi pahu ʻoi kūikawā i hana kūikawā ʻia no kēia kumu. Hiki iā ʻoe ke nīnau i kāu kauka a i ʻole ka hale kūʻai lāʻau lapaʻau kahi āu e loaʻa ai kāu lāʻau lapaʻau no hoʻokahi. E nīnau iā lākou pehea e hoʻolei palekana ai i ka pahu ke piha.

Nā mea e makaʻala ai i ka wā e hoʻohana ai i ka lāʻau lapaʻau

Pono ʻoe e mālama iki i kou olakino i ka wā e lawe ana i kēia lāʻau.

• Nā hoʻokolohua lapaʻau maʻamau: E noi pinepine kāu kauka iā ʻoe e hana i nā hoʻokolohua koko. E hōʻoia e hana i kēia mau mea e ʻike ai pehea e hana ai ka lāʻau lapaʻau. E hōʻoia e hele i nā manawa i koho ʻia e kāu kauka.
• E pale iā ʻoe iho mai nā maʻi: ʻOiai ke kāohi nei kēia lāʻau i ka hana o kahi ʻāpana o ka ʻōnaehana pale, hiki ke hoʻonui iki ʻia ka pilikia o ka loaʻa ʻana o kekahi mau maʻi. No laila, inā ʻike ʻoe i nā hōʻailona e like me ke kuni, ke anu, ka ʻāʻī ʻeha, ke kuni, nā ʻeha ʻaʻole e ho'ōla, a i ʻole ka ʻeha i ka wā e mimi ai , mai hoʻōla ponoʻī a kāhea koke i kāu kauka . E hōʻemi i kāu kipa ʻana i nā wahi i maʻi ai ka poʻe.

Nā hopena ʻaoʻao hiki ke loaʻa o ka lāʻau lapaʻau

E like me nā lāʻau lapaʻau āpau, hiki iā Pegcetacoplan ke hana i kekahi mau hopena ʻaoʻao. Pono e hōʻike koke ʻia kekahi o kēia mau mea, aʻo kekahi ʻaʻole koʻikoʻi loa.

He aha inā e hala iaʻu kahi mahele lāʻau lapaʻau?

Inā ʻoe e poina i kahi lāʻau lapaʻau, e lawe koke iā ia i kou hoʻomanaʻo ʻana. Eia nō naʻe, inā kokoke ka manawa no kāu lāʻau lapaʻau aʻe, e kāpae i ka lāʻau lapaʻau i poina a lawe i kāu lāʻau lapaʻau aʻe i ka manawa i hoʻonohonoho ʻia. Mai lawe i ʻelua lāʻau lapaʻau i ka manawa hoʻokahi.

He aha inā lawe nui wau i ka lāʻau lapaʻau?

Inā manaʻo ʻoe ua lawe nui ʻoe i kēia lāʻau lapaʻau, ʻo ka hana koke e hele i ka haukapila kokoke loa i ka Emergency Department (ETU) a i ʻole e kelepona i ke National Poisons Information Centre ma ka Colombo National Hospital .

Pehea e mālama ai i ka lāʻau lapaʻau?

• E mālama i kēia lāʻau lapaʻau i loko o ka pahu hau . Mai mālama i loko o ka pahu hau/pahu hau hohonu.
• E lawe i ka lāʻau pale mai loko mai o ka pahu hau ma kahi o 30 mau minuke ma mua o ka hāʻawi ʻana a e hoʻokahe i ka mahana o ka lumi.
• He mea maikaʻi ke mālama i loko o ka pahu kumu i loaʻa ai, i mea e pale ai mai ka mālamalama.
• E mālama i kahi hiki ʻole i nā keiki a me nā holoholona ke kiʻi aku.
• Mai hoʻohana i ka lāʻau lapaʻau i pau ka lā.

Nou wale nō kēia lāʻau lapaʻau. Ua kuhikuhi ʻia e kāu kauka, no laila , mai kaʻana like me kekahi.