Ua hoʻomaka koke anei ʻoe e ulu i nā pehu piha i ka wai ma kou ʻili e pohā maʻalahi ana? A i ʻole ua ulu paha ʻoe i nā ʻeha ʻeha i loko o kou waha e paʻakikī ai ka ʻai a inu paha? He mea maʻamau i kekahi ke makaʻu i ka ʻike ʻana i kahi mea e like me kēia. I kēia lā ke kamaʻilio nei mākou e pili ana i kahi maʻi i kapa ʻia ʻo "Pemphigus," kahi i lohe ʻole ʻia e ka poʻe he nui, akā he mea nui loa ia e ʻike e pili ana, a ʻo ia ke kumu o nā hōʻailona e like me kēia.
I ka ʻōlelo maʻalahi, he aha ʻo Pemphigus?
He inoa maʻamau ʻo Pemphigus no kahi hui o nā maʻi e hoʻoulu ai i nā pehu a me nā ʻeha ʻeha ma ka ʻili a me nā membrane mucous ma muli o kahi hana hewa i loko o kā mākou ʻōnaehana pale ponoʻī. Ua kapa ʻia kēia he kūlana autoimmune . ʻO ke ʻano kēia, ua kuhihewa nā pale o ko mākou kino (nā antibody) i kā mākou mau hunaola ʻili olakino. ʻO kēia hoʻouka ʻana ke kumu o nā hunaola ʻili e hoʻokaʻawale kekahi i kekahi a piha i ka wai, e hana ana i nā pehu.
Ke lohe ʻoe i ka huaʻōlelo "mucous membranes," e noʻonoʻo paha ʻoe i ke ʻano o ia mau mea. ʻO ia hoʻi nā membrane palupalu a pulu e uhi ana i ko mākou waha, ihu, maka, puʻu, a me nā ʻōpū. I ka pemphigus, hiki i nā pehu ke hana ʻia i kekahi manawa ma kēia mau wahi, ma mua o ka ʻili.
ʻO ka mea nui loa, ʻaʻole he maʻi lele ka pemphigus . ʻO ka hoʻopā ʻana a i ʻole ka noho ʻana me kahi mea i loaʻa i ka maʻi, ʻaʻole ia e hoʻolaha i nā poʻe ʻē aʻe. Eia naʻe, he maʻi ia no ke ola holoʻokoʻa. Akā, mai hopohopo, me ka mālama pono ʻana i ke olakino, hiki iā ʻoe ke kāohi pono iā ia a ola i ke ola maʻamau.
He aha nā ʻano nui o ka pemphigus?
ʻAʻole hele mai ʻo Pemphigus i kekahi ʻano a i ʻole kekahi. Aia kekahi mau ʻano nui, ma muli o kahi e ʻike ʻia ai nā pehu a me ke kumu o lākou. E nānā kākou i ke ʻano o lākou.
| ʻAno Pemphigus | Wehewehena |
|---|---|
| ʻO ka Pemphigus vulgaris | ʻO kēia ke ʻano maʻamau. Hoʻomaka ia me nā ʻeha ʻeha i loko o ka waha. Hiki iā ia ke paʻakikī i ka ʻai a me ka inu. Ma hope mai, hiki ke ʻike ʻia nā pehu ma ka ʻili. He ʻeha kēia mau pehu a lōʻihi ka manawa e ho'ōla ai. |
| Nā mea kanu Pemphigus | Ua like kēia me ke ʻano i ʻōlelo ʻia ma luna, akā ʻoi aku ka mānoanoa a me ka ʻoi aku ka paʻakikī o nā ʻeha. He mea maʻamau lākou ma nā wahi e pelu ai ka ʻili, e like me nā armpits a me ka groin. |
| ʻO ka pemphigus i hoʻoulu ʻia e ka lāʻau lapaʻau | Hiki i kekahi mau lāʻau lapaʻau, e like me kekahi mau lāʻau antibiotic a me nā lāʻau koko kiʻekiʻe, ke hana i kēia maʻi. Hiki ke ʻike ʻia nā pehu i nā mahina ma hope o ka lawe ʻana i ka lāʻau. |
| ʻO ka Pemphigus erythematosus | He ʻano lupus kēia e pili ana i ka maʻi. ʻIke pinepine ʻia nā pehu ma ke kua o luna, ka umauma, nā papālina, a me ke poʻo. He ʻulaʻula a unahi kēia mau ʻeha. |
| ʻO ka foliaceus Pemphigus | I kēia ʻano, ʻike ʻia nā pehu ma ka papa luna o ka ʻili. No laila, he palupalu loa lākou a pohā maʻalahi. Ke pohā lākou, hana lākou i kahi ʻili a hiki ke pālahalaha ma luna o kahi ākea. ʻIke pinepine ʻia lākou ma ke poʻo, ka maka, ka ʻāʻī, a me ke kua. Kākaʻikahi lākou e hana i loko o ka waha. |
| ʻO ka pemphigus paraneoplastic | ʻO kēia ke ʻano kakaikahi loa a koʻikoʻi loa. Loaʻa ia i nā poʻe i loaʻa i ka maʻi kanesa i loko o ko lākou kino. Hoʻoulu ia i nā ʻeha koʻikoʻi a ʻeha loa ma ka waha a me ka puʻu. Inā ʻike ke kauka i kēia ʻano, e nānā pono lākou no ka maʻi kanesa huna i loko o ke kino. |
ʻO wai ka mea i loaʻa pinepine i kēia maʻi?
ʻOiai hiki i ka pemphigus ke hoʻopilikia i nā kānaka o kēlā me kēia makahiki, ʻoi aku ka maʻamau i nā kānaka ma waena o 40 a me 60 mau makahiki. ʻOi aku ka maʻamau ma kekahi mau wahi o ka honua, e like me ka Middle East, India, a me Brazil.
ʻAʻole kēia he maʻi maʻamau loa. Ma ka honua holoʻokoʻa, hoʻokahi a ʻelima wale nō kānaka i loko o hoʻokahi miliona i ʻike hou ʻia me kēia maʻi i kēlā me kēia makahiki. No laila, ua manaʻo ʻia he maʻi laha ʻole .
He aha nā hōʻailona? Pehea mākou e ʻike ai i kahi kūlana pilikia?
Hiki ke ʻokoʻa iki nā hōʻailona ma muli o ke ʻano o ka pemphigus āu, akā aia kekahi mau hōʻailona maʻamau.
Nā hōʻailona maʻamau
- Nā pehu piha i ka wai ma ka ʻili.
- ʻIli poni a ʻulaʻula paha a puni ka pehu.
- Ke pahū nā blisters, hana lākou i kahi ʻōpala.
- He wai maopopo a i ʻole ke kahe iki ʻana mai nā ʻeha.
- He palupalu loa ka ʻili a puni nā pehu a maʻalahi hoʻi e hemo.
- ʻEha a me ka maneʻo ma kahi o ka ʻeha.
He mau hōʻailona paha kēia o kahi maʻi! - E mālama pono koke!
Ke pahū nā pehu, ʻoi aku ka nui o ka manawa e komo ai nā germs a hoʻoulu i nā maʻi. E nānā i kēia mau hōʻailona:
- Nā pehu i piha i ka pus melemele a keʻokeʻo paha a i ʻole ka wai i puka mai loko mai o lākou.
- Hoʻonui ʻia ka ʻā ʻana a i ʻole ka ʻeha ke hoʻopā ʻia.
- Hoʻonui ʻia ka pehu ʻana a i ʻole ka ʻulaʻula o ka ʻili a puni ka ʻeha.
- Hoʻokumu ʻia kahi ʻili melemele ma luna o ka ʻeha.
- Ke hoʻomau nei ka ho'ōla ʻana o ka ʻeha.
Inā loaʻa iā ʻoe nā hōʻailona o kēia ʻano maʻi, pono ʻoe e hoʻomaopopo koke i kāu kauka .
I kekahi mau hihia koʻikoʻi, hiki ke ʻike ʻia nā hōʻailona e like me ke kuni, ka luhi, a me ka ʻike maka pōwehiwehi .
Pehea e ʻike pololei ai ke kauka i kēia maʻi?
Inā loaʻa iā ʻoe kēia mau hōʻailona, ʻo ka mea mua āu e hana ai, ʻo ia ke ʻike i kahi kauka ʻili. E nānā pono ke kauka i kāu mau hōʻailona, e nīnau iā ʻoe e pili ana i kāu mau hōʻailona, a laila e kauoha i kekahi mau hoʻokolohua e hōʻoia i ka maʻi.
1. Biopsy ʻIli: Pili kēia i ka lawe ʻana i kahi ʻāpana ʻili liʻiliʻi loa mai kahi pehu ma lalo o ka anesthesia a nānā iā ia ma lalo o kahi microscope. Hiki i kēia ke hōʻoia i ka maʻi ma ka nānā ʻana i ke ʻano o ka hoʻokaʻawale ʻana o nā ʻāpana ʻili.
2. Nā Hoʻāʻo Koko: Nānā kēia hoʻāʻo inā loaʻa i loko o kou koko nā antibodies kikoʻī e hoʻoulu ai i kēia maʻi.
Ma muli o nā hopena o kēia mau hoʻokolohua ʻelua e hoʻoholo pono ai ke kauka inā he pemphigus kou, a inā pēlā, he aha ke ʻano.
He aha nā lāʻau lapaʻau no ka pemphigus?
ʻElua mau pahuhopu nui i ka mālama ʻana i ka pemphigus. ʻO kekahi, ʻo ia ke kāohi i ka hoʻokumu ʻana o nā pehu hou, a ʻo kekahi, ʻo ia ka hoʻōla ʻana i nā pehu a me nā ʻeha e kū nei a pale i ka maʻi.
ʻO ka maʻamau, hana ʻia ke kaʻina hana i ʻekolu mau pae:
- Kaʻina hana hoʻomalu: Ma kēia kaʻina hana, hāʻawi ʻia nā lāʻau lapaʻau kiʻekiʻe e kāohi i ka hoʻokumu ʻia ʻana o nā pehu hou a hoʻomaka e ho'ōla i nā pehu e kū nei.
- Ka pae hoʻohui: Ke kāohi nui ʻia nā pehu, mālama ʻia ka nui o ka lāʻau lapaʻau i kahi pae paʻa.
- Kaʻina mālama: Ke kāohi maikaʻi ʻia ka maʻi, hāʻawi ʻia kahi lāʻau lapaʻau haʻahaʻa loa i ka wā lōʻihi e pale ai i ka hoʻi hou ʻana o nā pehu.
Nā lāʻau lapaʻau i hoʻohana pinepine ʻia
- ʻO Corticosteroids: ʻO kēia nā lāʻau lapaʻau nui. Hana lākou ma ka hoʻemi ʻana i ka ʻōnaehana pale o ke kino a me ka kaohi ʻana i ka mumū a me ka pehu. Hiki ke hāʻawi ʻia iā lākou ma ke ʻano he mau pila, nā inikini, a i ʻole nā kirimi.
- Nā lāʻau lapaʻau immunosuppressive: Ma waho aʻe o nā steroids, hāʻawi ʻia kēia mau lāʻau lapaʻau e kaohi hou aku i ka hana o ka ʻōnaehana pale.
- ʻO Rituximab: He lāʻau lapaʻau hou kēia e kuhikuhi ana a luku i nā pūnaewele pale i kapa ʻia ʻo B-cells e hoʻoulu ai i ka maʻi.
- Nā lāʻau antibiotic: Inā loaʻa ka maʻi bacteria i nā pehu, hāʻawi ʻia kēia mau mea e mālama ai iā lākou.
He mea nui: Pono e lawe ʻia kēia mau lāʻau lapaʻau a pau e like me ke kuhikuhi a kāu kauka, ma ke ʻano i kuhikuhi ʻia a no ka manawa i kuhikuhi ʻia. Mai hoʻōki i ka lawe ʻana iā lākou a hoʻololi paha i ka nui. Aia paha kekahi mau hopena ʻaoʻao mai ka lāʻau lapaʻau, no laila e nānā mau kāu kauka iā ʻoe a hana i nā hoʻāʻo koko e nānā iā lākou.
Nā mea e makaʻala ai ma ka home i ka wā e noho ana me ka maʻi
ʻOiai e loaʻa ana ka lāʻau lapaʻau, aia kekahi mau mea hiki iā ʻoe ke hana ma ka home e mālama i kāu mau hōʻailona.
- Inā loaʻa iā ʻoe nā ʻeha waha: E pale i ka ʻai ʻana i nā meaʻai paʻakikī e like me ka mea ʻala, ka ʻawaʻawa, a me nā biscuits paʻakikī. Hiki i kēia mau mea ke hoʻonui i ka ʻeha o nā ʻeha. E ʻai i nā meaʻai palupalu e like me ka sopa, ka porridge, a me ka yogurt.
- Ka mālama ʻana i nā ʻeha: E mālama i nā ʻeha i maʻemaʻe a kau i nā poni kūpono e like me ke kuhikuhi a kāu kauka.
- Ka pale ʻana i ka lā: Hiki i ka lā ke hoʻonui i nā kūlana ʻili. No laila, inā ʻoe e hele ana i waho i ka lā, e hoʻohana i ka sunscreen a e ʻaʻahu i nā lole e uhi ana i kou kino.
- E hoʻohana i nā huahana palekana no ka ʻili: E koho i nā kopa a me nā lotion i ʻala ʻole a kūpono no ka ʻili koʻikoʻi.
Hiki ke hala kekahi mau pule a i ʻole mau mahina e ʻike ai i nā hopena ma hope o ka hoʻomaka ʻana o ka lāʻau lapaʻau. E hoʻomanawanui a hoʻomau i ka lāʻau lapaʻau.
Leka Lawe-Home
- He maʻi ʻili pehu a me ka ʻōpū ʻo Pemphigus i hoʻokumu ʻia e kahi kīnā i loko o ka ʻōnaehana pale ponoʻī o ko mākou kino.
- ʻAʻole kēia he maʻi lele iki . E mālama i nā mea maʻi me ke aloha a me ka lokomaikaʻi.
- ʻOiai he maʻi kēia no ke ola holoʻokoʻa, hiki ke hoʻomalu maikaʻi ʻia me ka mālama lapaʻau kūpono..
- Inā he mau pehu ʻeha a he mau ʻeha paha i loko o kou waha a i ʻole ka ʻili i ho'ōla ʻole ʻia, e ʻimi pono i ke kōkua lapaʻau .
- ʻO ka hahai pono ʻana i ka lāʻau a ke kauka a me ka mālama ʻana i nā ʻeha i ka maʻemaʻe he mea nui ia no ke kāohi ʻana i ka maʻi.
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