Ua kuhikuhi anei kāu kauka iā ʻoe i kēia lāʻau lapaʻau i kapa ʻia ʻo Romidepsin? A i ʻole makemake ʻoe e ʻike i kēia lāʻau lapaʻau? Malia paha ke loaʻa nei kēia lāʻau i kekahi hoaaloha ou. ʻOiai ke kumu, he mea nui loa ka loaʻa ʻana o ka ʻike pololei o kēia ʻano lāʻau lapaʻau. No laila, i kēia lā, e kamaʻilio kākou e pili ana i kēia lāʻau lapaʻau `(Romidepsin)` ma nā ʻōlelo maʻalahi a kikoʻī hoʻi, e like me ke kamaʻilio ʻana me kahi hoaaloha. ʻAʻohe mea e makaʻu ai, e lilo kēia ʻike i mea pono loa iā ʻoe.
He aha ke ʻano lāʻau lapaʻau ʻo Romidepsin? He aha kāna hana?
I ka ʻōlelo maʻalahi, ʻo Romidepsin kahi lāʻau lapaʻau e kōkua i ka pepehi ʻana i nā hunaola kanesa a i ʻole ke kāohi ʻana i ko lākou ulu ʻana. I ka pololei, he ʻano chemotherapy ia. ʻO ke kikoʻī, hoʻohana ʻia kēia lāʻau lapaʻau e mālama i kahi ʻano kanesa i kapa ʻia ʻo Cutaneous T-cell Lymphoma . He inoa paʻakikī iki kēia, akā i ka ʻōlelo maʻalahi, he kanesa ia e ulu ana i loko o kahi ʻano cell immune i kapa ʻia ʻo T-cells i loko o ko kākou ʻili.
Eia nō naʻe, i kekahi manawa e hoʻohana paha nā kauka i kēia lāʻau lapaʻau no nā kūlana ʻē aʻe. No laila, ʻoi aku ka maikaʻi o ka nīnau ʻana i kāu kauka a kauka lāʻau paha i ke kumu i kuhikuhi ʻia ai kēia lāʻau lapaʻau iā ʻoe.
Hiki ke loaʻa kēia lāʻau lapaʻau ma ka mākeke ma lalo o ka inoa inoa `(Istodax)`.
He aha nā mea e pono ai ʻoe e haʻi aku i kāu hui lapaʻau ma mua o ka hoʻohana ʻana i kēia lāʻau?
Ma mua o kou hoʻomaka ʻana e lawe iā Romidepsin, he mea nui loa ia e hāʻawi i kāu hui lapaʻau i kahi moʻolelo piha o kou olakino. Mai hūnā i kekahi mea. No ka mea, ʻo kēlā ʻike e hoʻoholo ai inā kūpono kēia lāʻau lapaʻau iā ʻoe a pehea e hāʻawi ʻia ai. Eia kekahi mau mea āu e haʻi aku ai iā lākou:
- He puʻuwai kūpono ʻole paha kou a i ʻole ka ʻano kuʻina? Ke loli nei anei kou puʻuwai ma ke ʻano maʻamau?
- He maʻi puʻupaʻa kou?
- He maʻi akepaʻa kou?
- Aia kekahi mau ʻano ʻē i nā pae o nā electrolytes i loko o kou koko? Eia kekahi laʻana, he haʻahaʻa a kiʻekiʻe paha nā pae o ka magnesium a i ʻole ka potassium?
- Ua loaʻa paha iā ʻoe kahi hopena maʻamau ʻole a i ʻole ka maʻi ʻaleka i kēia lāʻau lapaʻau (Romidepsin), nā lāʻau lapaʻau ʻē aʻe, nā meaʻai, nā kala, a i ʻole nā mea mālama?
- Ua hāpai ʻoe? A i ʻole ke manaʻolana nei ʻoe e hāpai?
- Ke hānai waiū nei ʻoe i kahi keiki?
Ma ka haʻi ʻana aku i kēia mau mea i kāu kauka, hiki iā lākou ke hoʻēmi i nā hopena i makemake ʻole ʻia āu e loaʻa ai a mālama palekana iā ʻoe.
Pehea e hiki ai iaʻu ke hāʻawi iā ʻoe i kēia lāʻau lapaʻau?
Hāʻawi ʻia kēia lāʻau lapaʻau (Romidepsin) ma ke ʻano he wai ma o kahi aʻa.Kāhea pū mākou i kēia he "infusion". Hana ʻia kēia ma kahi haukapila a i ʻole ke keʻena lapaʻau e kekahi loea mālama ola i loaʻa i ke aʻo kūikawā ma kēia. No laila, ʻaʻole pono ʻoe e hoʻohana ma ka home.
Pono ʻoe e kamaʻilio me kāu kauka pediatric e pili ana i ka hāʻawi ʻana i kēia lāʻau lapaʻau i nā keiki , no ka mea, pono paha lākou i kahi mālama kūikawā.
Inā manaʻo ʻoe ua lawe nui ʻoe i kēia lāʻau lapaʻau, e kāhea koke i kahi kikowaena hoʻomalu lāʻau make a i ʻole ke keʻena pilikia. He mea nui loa kēia.
ʻO ka mea nui loa: Ua kuhikuhi ʻia kēia lāʻau lapaʻau nou wale nō. Mai kaʻana like me kekahi no kekahi kumu.
He aha kāu e hana ai inā e poina ʻoe i kahi mahele o ka lāʻau lapaʻau?
He mea nui loa ia ʻaʻole e haʻalele i kekahi o kāu mau manawa lapaʻau. Inā ʻaʻole hiki iā ʻoe ke hele i kāu manawa i hoʻonohonoho ʻia, e kāhea koke aku i kāu kauka a i ʻole ke kauka lapaʻau. E haʻi aku lākou iā ʻoe i ka mea e hana ai ma hope.
He aha nā mea ʻē aʻe e hiki ke launa pū me kēia lāʻau lapaʻau?
Aia kekahi mau lāʻau lapaʻau e hiki ke hoʻopilikia i ka wā e lawe ʻia ai me Romidepsin. No laila, pono ʻoe e haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau āpau, nā huaora, nā lāʻau lapaʻau lāʻau, a me nā mea hoʻohui meaʻai āu e lawe nei. Pono nō hoʻi ʻoe e haʻi i kāu kauka inā ʻoe e puhipaka, inu waiʻona, a hoʻohana paha i nā lāʻau lapaʻau kū ʻole i ke kānāwai.
ʻO ka mea nui, ua ʻōlelo ʻia ʻaʻole e lawe pū me Romidepsin me nā lāʻau lapaʻau penei:
- Nā lāʻau lapaʻau antiviral no ka maʻi HIV a i ʻole AIDS
- Nā lāʻau lapaʻau no nā maʻi fungal, e like me ketoconazole a me itraconazole
- Nā lāʻau lapaʻau no ka maʻi puʻupuʻu
Eia kekahi, aia kekahi mau lāʻau lapaʻau ʻē aʻe e hiki ke launa pū me `(Romidepsin)`. ʻO ia hoʻi, hiki iā lākou ke hana i nā hopena ʻaoʻao. ʻO kekahi mau laʻana:
- Nā lāʻau hoʻomalu hānau
- ʻO Dexamethasone
- ʻO Dofetilide `(dofetilide)`
- Nā lāʻau lapaʻau no ka puʻuwai kūpono ʻole, e like me amiodarone, bepridil, encainide, flecainide, propafenone, a me quinidine.
- Nā lāʻau lapaʻau i hoʻohana ʻia e mālama i nā kūlana e like me ka maʻi epilepsy (nā hopu ʻana), e.g. carbamazepine, phenobarbital, phenytoin.
- ʻO St. John's Wort (he mea hoʻohui lāʻau kēia)
- ʻO Warfarin (mea hoʻokahe koko)
ʻAʻole piha kēia papa inoa, no laila ʻoi aku ka palekana o ka haʻi ʻana i kāu kauka e pili ana i nā mea āpau āu e lawe nei.
Nā mea e pono ai ʻoe e makaʻala i ka wā e lawe ai i kēia lāʻau lapaʻau
E nānā mau ana kāu hui lapaʻau i kou olakino i kou wā e lawe ana i kēia lāʻau lapaʻau `(Romidepsin)`. No laila,E hōʻoia e hele i nā manawa i koho ʻia e kāu kauka. He lōʻihi paha ka manawa e ʻike ai i nā pono piha o kēia lāʻau lapaʻau, no laila e hoʻomanawanui.
- Nā hoʻāʻo koko: ʻOiai ʻoe e lawe ana i kēia lāʻau lapaʻau, pono paha ʻoe e nānā i nā mea like ʻole i loko o kou koko (hana koko).
- Ka pilikia o ka maʻi: Hiki i kēia lāʻau lapaʻau ke hōʻemi iki i ka pale ʻana o kou kino. ʻO ke ʻano kēia, ʻoi aku ka maʻalahi o kou maʻi ʻana i nā maʻi, ʻoiai nā maʻi. No laila, inā loaʻa iā ʻoe nā hōʻailona e like me ke kuni, ke anu, ka ʻāʻī ʻeha, ka ihu wai, a i ʻole ke anu, e ʻimi koke i ke kōkua lapaʻau. Mai hoʻōla ponoʻī. Eia kekahi, e hoʻāʻo e noho mamao aku mai ka poʻe maʻi i ka hiki.
- Hepatitis B: Inā loaʻa iā ʻoe ka Hepatitis B, e kamaʻilio me kāu kauka ma mua o ka hoʻōki ʻana i kēia lāʻau lapaʻau, no ka mea, e ʻoi aku ka ʻino o nā hōʻailona o ka Hepatitis B ma hope o ka hoʻōki ʻana i kēia lāʻau lapaʻau.
- ʻO ka hāpai ʻana a me ka hānai ʻana i ka waiū (he mea nui loa kēia!):
- No nā wāhine: Mai hāpai i ka wā e lawe ana i kēia lāʻau lapaʻau a no 1 mahina ma hope o ka hoʻōki ʻana i ka lāʻau lapaʻau. Inā ʻoe e hoʻāʻo nei e hāpai, a manaʻo paha ʻoe e hāpai ana ʻoe, e haʻi koke i kāu kauka.
- No nā kāne: Mai ho'āʻo e hānau keiki i ka wā e lawe ana i kēia lāʻau lapaʻau a no 1 mahina ma hope o ka hoʻōki ʻana i ka lāʻau lapaʻau.
- Hiki i kēia lāʻau lapaʻau ke hōʻeha nui i kahi pēpē i hānau ʻole ʻia. No laila, e nīnau i kāu kauka no ka ʻike hou aku e pili ana i kēia.
- Mai hānai i kāu pēpē i ka waiū umauma i ka wā e lawe ana i kēia lāʻau lapaʻau a i ʻole no hoʻokahi pule ma hope o ka hoʻōki ʻana i ka lāʻau lapaʻau.
- Kaohi hānau: Inā ʻoe e hoʻohana ana i ka kaohi hānau, ʻaʻole paha e hana maikaʻi i ka wā e lawe ana i kēia lāʻau lapaʻau. No laila, e kamaʻilio me kāu kauka e pili ana i ka hoʻohana ʻana i kahi ʻano kaohi hānau hou aʻe .
- Ka hānau keiki: Hiki i kēia lāʻau lapaʻau ke hoʻopilikia i kou hiki ke hāpai (i nā wahine) a i ʻole e hānau i kahi keiki (i nā kāne). Inā he mau hopohopo kāu e pili ana i kēia, e kamaʻilio me kāu kauka.
He aha nā hopena ʻaoʻao e hiki ke loaʻa mai kēia lāʻau lapaʻau?
E like me nā lāʻau lapaʻau āpau, hiki i ka `(Romidepsin)` ke hana i kekahi mau hopena ʻaoʻao. Eia naʻe, ʻaʻole loaʻa i nā kānaka a pau. He koʻikoʻi kekahi mau hopena ʻaoʻao a pono ʻoe e haʻi koke i kāu kauka inā ʻike ʻoe iā lākou. He mea maʻamau kekahi a nalowale ma hope o kekahi mau lā.
Nā hopena ʻaoʻao e pono e hōʻike koke ʻia i ke kauka a i ʻole ke kauka lapaʻau:
He mau mea kēia e makaʻala ai. Inā ʻike ʻoe i kekahi mea e like me kēia, e haʻi koke aku i kāu kauka.
- Nā hopena maʻi ʻaleka: ʻŌhūhū ʻili, maneʻo a hives paha, pehu ʻana o ka maka, nā lehelehe a i ʻole ke alelo.
- Nā loli o ke kuʻina o ka puʻuwai:Paʻakikī ka hanu ʻana, ʻeha ka umauma, poniuniu, puʻuwai wikiwiki a ʻano ʻole paha.
- Nā hōʻailona o ka maʻi: kuni, anuanu, ʻū, ʻeha ka puʻu, ʻeha a paʻakikī paha ka mimi ʻana.
- He haʻahaʻa ka helu o nā hunaola koko ʻulaʻula: Pōkole ka hanu, nāwaliwali, manaʻo poniuniu, nāwaliwali, manaʻo nāwaliwali loa a luhi paha.
- ʻO ka Tumor Lysis Syndrome: He ʻano paʻakikī kēia. Hiki ke hana ia ke wāwahi koke nā hunaola kanesa. ʻO nā hōʻailona: ka nausea, ka luaʻi ʻana, ka huikau, ka paʻakikī o ka hanu ʻana, nā hopu ʻana, ka puʻuwai naʻau ʻole, ka mimi ʻeleʻele, ka luhi nui, a me ka ʻeha o nā ʻiʻo a i ʻole nā hono.
- Ke kahe koko ʻana a i ʻole ka ʻeha ʻana ma ke ʻano maʻamau
Nā hopena ʻaoʻao ʻaʻole pono ka mālama lapaʻau (e haʻi i kāu kauka inā hoʻomau kēia mau mea a hoʻopilikia paha):
ʻAʻole maʻamau kēia mau mea he mea koʻikoʻi, akā inā hoʻopilikia lākou iā ʻoe, e haʻi i kāu kauka.
- Nā loli i ka ʻono
- Ka paʻa ʻana o ka ʻōpū
- Ka maʻi pākī
- Ka nele a i ʻole ka nalowale o ka makemake
ʻAʻole paha e komo pū kēia papa inoa me nā hopena ʻaoʻao āpau. Inā loaʻa iā ʻoe kekahi mau hōʻailona ʻē, e nīnau i kāu kauka e pili ana iā lākou. Hiki iā ʻoe ke hōʻike i nā hopena ʻaoʻao i ka FDA (ma ke kelepona ʻana i ka 1-800-FDA-1088).
Ma hea ʻoe e mālama ai i ka lāʻau lapaʻau?
ʻOiai ua hāʻawi ʻia kēia inikini `(Romidepsin)` iā ʻoe ma kahi haukapila a i ʻole ke keʻena lapaʻau, ʻaʻole pono ʻoe e lawe i kēia lāʻau lapaʻau i ka home a mālama paha. ʻAʻohe mea e hopohopo ai.
Eia kekahi mau mea e pono ai ʻoe e hoʻomanaʻo ma kēia ʻatikala:
ʻAe, eia kekahi mau mea e hoʻomanaʻo ai mai nā mea a mākou i kamaʻilio ai:
- He lāʻau lapaʻau ikaika ʻo Romidepsin no ka pale ʻana i ke kanesa. Hoʻohana ʻia ia ma lalo o ka nānā ʻana a ke kauka.
- He mea nui e haʻi i kāu kauka i nā kikoʻī āpau e pili ana i kou kūlana olakino, nā lāʻau lapaʻau ʻē aʻe āu e lawe nei, a me nā mea allergies .
- E mālama pono iā ʻoe iho mai nā maʻi i ka wā e mālama ʻia ai.
- E hahai pono i nā ʻōlelo aʻo e pili ana i ka hāpai ʻana a me ka hānai ʻana i ka waiū . He mea nui loa kēia.
- E makaʻala i nā hopena ʻaoʻao. Inā ʻike ʻoe i kekahi mea koʻikoʻi, e haʻi koke i kāu kauka.
- Mai makaʻu a kānalua paha e nīnau i kāu kauka, kahu maʻi, a kauka lāʻau paha i nā nīnau a hopohopo paha āu e pili ana i kēia lāʻau lapaʻau. Aia lākou ma laila e kōkua iā ʻoe.
E hoʻomanaʻo, he hōʻuluʻulu manaʻo wale nō kēia ʻatikala. ʻAʻole paha e loaʻa nā kikoʻī āpau. Inā he mau nīnau hou aku kāu e pili ana i kēia lāʻau lapaʻau, e kamaʻilio me kāu kauka, kauka lāʻau, a mea lawelawe olakino paha. E hiki iā lākou ke hāʻawi iā ʻoe i ka ʻike āpau āu e pono ai.
Ke makemake nei iā ʻoe e ho'ōla koke!
`ʻO Romidepsin, Istodax, Cutaneous T-cell Lymphoma, chemotherapy, mālama ʻana i ka maʻi kanesa, nā hopena ʻaoʻao, nā pilina lāʻau lapaʻau
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