Ke maʻi pinepine nei hoʻi ʻoe? Hiki paha i kēia ke Selective IgA Deficiency?

Loaʻa pinepine iā ʻoe ke anu, ke kuni, a i ʻole kekahi ʻeha ʻōpū ʻē aʻe? I kekahi manawa manaʻo mākou "he maʻi ʻē aʻe ia." Akā no kekahi poʻe, inā hana pinepine ʻia kēia mau mea, pono mākou e noʻonoʻo i ke kumu. I kēia lā e kamaʻilio mākou e pili ana i kahi kūlana kūikawā iki, akā ʻaʻole nui ka poʻe i ʻike. ʻO ia ka Selective IgA Deficiency, a i ʻole `(Selective IgA Deficiency)`.

He aha ka hemahema IgA koho?

I ka ʻōlelo maʻalahi, loaʻa i ko kākou kino kahi ʻōnaehana pale e pale iā kākou mai nā maʻi. ʻO kekahi koa koʻikoʻi i loko o kēia ʻōnaehana he protein i kapa ʻia ʻo immunoglobulin A, a i ʻole IgA. Noho kēia protein ma luna o nā membrane palupalu o ko kākou mau ala ea, nā maka, ka waha, a me ke ala ʻai (e like me nā ʻōpū), e pale ana iā kākou mai nā germs e hoʻāʻo nei e komo.

I kēia manawa, inā he liʻiliʻi loa a ʻaʻohe paha o ka protein IgA o ke kanaka i loko o ko lākou kino, a laila kapa mākou i kēlā ʻano he Selective IgA Deficiency. Hoʻohana ʻia ka huaʻōlelo "selective" no ka mea e pili wale ana ia i ka IgA. Ua manaʻo ʻia kēia he maʻi immunodeficiency. I kekahi manawa e ʻike ʻoe iā ia i hoʻopōkole ʻia ʻo SIgAD.

No ke aha lā kēia e hana nei? He aha ke kumu?

ʻO ka hapa nui o ka manawa, ua hoʻoilina ʻia kēia maʻi i kapa ʻia ʻo Selective IgA Deficiency. ʻO ia hoʻi, inā loaʻa i kekahi o ka ʻohana kēia hemahema `(IgA)`, a i ʻole he pilikia ʻē aʻe o ka ʻōnaehana pale, aia kahi manawa e loaʻa pū kekahi i kekahi. E noʻonoʻo, inā loaʻa i kekahi o ka makuahine a i ʻole ka makuakāne kēia maʻi, hiki i nā keiki ke loaʻa pū kekahi.

He aha nā hōʻailona o kēia maʻi?

Eia ka mea kupaianaha! He nui ka poʻe i loaʻa i kēia `(Selective IgA Deficiency)`, akā ʻaʻole lākou e hōʻike i kekahi mau hōʻailona. I kekahi manawa ua ʻike ʻia ma ka ulia pōpilikia i ka wā e hoʻāʻo ʻia ai lākou no kekahi maʻi ʻē aʻe.

Eia nō naʻe, ma waena o 25% a me 50% o ka poʻe e loaʻa paha kekahi mau pilikia. Hiki i kekahi o kēia poʻe ke loaʻa i nā maʻi pinepine. ʻO nā wahi maʻamau o ka maʻi:

• ʻAla hanu (nā ala ea i loko o nā māmā) - nā mea e like me ka phlegm pinepine, ke kuʻi, ka bronchitis.
• Nā Sinuses - Sinusis pinepine.
• Nā pepeiao - e like me nā maʻi pepeiao.
• Waha - nā ʻeha waha, nā maʻi ʻāʻī.
• Nā maka - Nā maka ʻulaʻula, nā maʻi.
• ʻŌnaehana hoʻoheheʻe (ʻōpū) - nā mea e like me ka ʻōpū ʻeha, ka maʻi pākī.

E noʻonoʻo, he hoaaloha kāu e loaʻa ana i ka ʻāʻī ʻeha a i ʻole ka ihu wai i hoʻokahi manawa i ka mahina. A i ʻole ua pilikia mau ʻo ia i ka lohe ʻana mai kona wā kamaliʻi mai. Malia paha ʻo kēia hemahema `(IgA)` ke kumu o ia mau mea.

Pehea ka maʻamau o kēia kūlana?

ʻO ka hemahema IgA koho ka mea maʻamau i waena o ka poʻe o ka hanauna ʻEulopa (Caucasians). Wahi a kekahi mau noiʻi, ma kahi o hoʻokahi i loko o 500 mau kānaka e loaʻa paha kēia maʻi. Eia nō naʻe, hiki ke ʻokoʻa kēia mai kahi a i kahi a ma muli o ka lāhui. He kakaikahi ka ʻikepili e pili ana i ka maʻamau o ia ma ko mākou ʻāina.

ʻO wai ka mea i pilikia nui no kēia?

E like me ka mea i ʻōlelo ʻia ma mua, inā loaʻa i kekahi o kou ʻohana kēia hemahema `(IgA)` a i ʻole kahi pilikia ʻōnaehana pale like, ʻoi aku kou pilikia o ka loaʻa ʻana o kēia maʻi. No laila he mea nui e ʻike i ka mōʻaukala olakino o kou ʻohana.

Pehea e ʻike ai nā kauka i kēia? (Diagnosis)

ʻO nā immunologists ka poʻe e nānā pinepine i kēia. Inā loaʻa iā ʻoe nā maʻi pinepine a i ʻole ke manaʻo nei he maʻi autoimmune kou, hiki i kāu kauka ke kauoha i kahi hoʻāʻo koko. Inā hōʻike ka hoʻāʻo i nā pae haʻahaʻa o IgA, hiki ke ʻike ʻia ʻoe me ka Selective IgA Deficiency.

I ka manawa pinepine, i ka hoʻāʻo ʻana i ke koko no kekahi maʻi ʻē aʻe, e like me ka maʻi celiac, loaʻa kēia IgA haʻahaʻa ma kahi ulia.

He aha nā lāʻau lapaʻau no kēia?

ʻO ka mea nui ma ʻaneʻi, ʻaʻole hiki ke ho'ōla loa ʻia ka Selective IgA Deficiency. Akā, mai hopohopo! Hiki ke mālama ʻia kēia maʻi. Hoʻōla nā kauka i nā maʻi ʻē aʻe i hoʻokumu ʻia e kēia hemahema `(IgA)`. No ka laʻana, inā loaʻa iā ʻoe kahi maʻi bacteria, hāʻawi paha lākou iā ʻoe i nā antibiotics.

He nūhou maikaʻi! Hiki i kekahi mau keiki ʻōpio ke ulu aʻe ma mua o kēia maʻi i loko o nā makahiki mua o ke ola, ʻo ia hoʻi hiki i ko lākou mau pae IgA ke hoʻi i ka maʻamau. No laila, inā ʻike mua ʻia kēia, e makaʻala nā kauka iā ia.

He aha nā pilikia ʻē aʻe e hiki ai i kēia ke hana?

ʻO ka hapa nui o ka poʻe me ka Selective IgA Deficiency ua olakino lākou me ka ʻole o nā pilikia nui. Eia nō naʻe, hiki i kekahi poʻe ke loaʻa i nā maʻi pinepine a koʻikoʻi paha. Loaʻa i ka poʻe me kēia maʻi kahi pilikia kiʻekiʻe iki o nā allergies , ʻo ia hoʻi nā hopena maʻamau ʻole i nā mea i ke kaiapuni a i ʻole nā ​​​​meaʻai, a me ka hānō , ʻo ia hoʻi ka pehu ʻana o nā ala ea i loko o nā māmā.

Eia kekahi, hiki i kekahi poʻe ke loaʻa i nā maʻi autoimmune . ʻO ke ʻano kēia, hoʻouka ka ʻōnaehana pale ponoʻī o ke kino i kāna mau hunaola olakino ponoʻī. ʻO kekahi o kēia mau maʻi:

• Maʻi Celiac: ʻO kēia ka wā e ʻai ai ʻoe i nā meaʻai i loaʻa ka gluten (kahi protein i loaʻa i nā palaoa e like me ka palaoa a me ka bale), ka mea e hōʻino ai i kou ʻōpū liʻiliʻi. Me he mea lā he maʻi āpau kou ʻōpū i kēlā mau meaʻai.
• ʻO ka maʻi ʻōpū mumū (IBD): Hoʻoulu kēia i ka mumū a me ka hōʻino ʻana i ka ʻōnaehana hoʻoheheʻe, ʻoiai nā ʻōpū. ʻO nā hiʻohiʻona e komo pū me ka ulcerative colitis a me ka maʻi Crohn.
• Rheumatoid arthritis: ʻO kēia ke kumu o ka mumū o nā hono, ʻo ia hoʻi ka pehu a me ka ʻeha.
• Lupus: He kūlana kēia kahi e hoʻouka ai ka ʻōnaehana pale o ke kino i nā ʻiʻo olakino. Hiki iā ia ke hoʻopilikia i nā wahi he nui, me ka ʻili, nā hono, a me nā puʻupaʻa.

He mea kākaʻikahi loa, hiki i kahi kanaka me Selective IgA Deficiency ke loaʻa i kahi hopena alerika koʻikoʻi a hoʻoweliweli i ke ola i kapa ʻia ʻo anaphylaxis inā hāʻawi ʻia iā lākou ke koko a i ʻole nā ​​​​​​huahana koko i loaʻa iā IgA. ʻOiai he mea kākaʻikahi loa kēia, he mea nui e makaʻala i ia mea. No laila, inā loaʻa iā ʻoe kēia ʻano, he mea nui loa e haʻi i kāu mea mālama ola.

Hiki ke pale ʻia kēia?

Ma muli o ka hoʻoilina, ʻaʻole hiki ke pale ʻia ka Selective IgA Deficiency.

He aha ka wānana no ka poʻe me kēia maʻi?

ʻOkoʻa ka nānā ʻana no ka poʻe me ka Selective IgA Deficiency mai kēlā me kēia kanaka, akā maikaʻi ia ma ke ʻano laulā. Noho ka hapa nui o ka poʻe i nā ola maʻamau.

Eia nō naʻe, e like me ka mea i ʻōlelo ʻia ma mua, hiki i kekahi poʻe ke loaʻa i nā maʻi koʻikoʻi ʻē aʻe ma muli o kēia maʻi. I ka hapanui o nā hihia, he maʻi kēia no ke ola holoʻokoʻa. Eia nō naʻe, e like me ka mea i ʻōlelo ʻia ma mua, hiki i kekahi mau keiki liʻiliʻi ke lanakila loa i kēia maʻi i nā makahiki mua.

Āhea wau e ʻike ai i ke kauka e pili ana i kēia?

Inā loaʻa iā ʻoe nā maʻi pinepine a hoʻi hou paha (no ka laʻana, ka maʻi pneumonia i kēlā me kēia mau mahina, nā maʻi sinus i nā manawa he nui i ka makahiki), e haʻi i kāu kauka . Hiki iā ia ke hana i kahi hoʻāʻo koko e ʻike ai inā he Selective IgA Deficiency kou a i ʻole kekahi pilikia ʻē aʻe o ka ʻōnaehana pale.

He aha nā nīnau āu e nīnau ai i ke kauka e pili ana i kēia?

Inā ua ʻike ʻia ʻoe me ka Selective IgA Deficiency, makemake paha ʻoe e nīnau i kāu kauka i nā nīnau e like me:

• Pehea ke koʻikoʻi o kēia kūlana i kapa ʻia ʻo Selective IgA Deficiency?
• He aha nā pilikia e pono iaʻu e hopohopo nui ai?
• Pono anei au e komo i kahi mea e like me ke kūpeʻe lima "Medic Alert" e hoʻomaopopo iaʻu i kēia maʻi? (ʻOi aku hoʻi i ka noʻonoʻo ʻana i ka pilikia o ka anaphylaxis).

Hiki iaʻu ke hoʻomau i kaʻu hana e like me ka mea maʻamau?

I ka hapanui o nā hihia, ʻaʻole hoʻopilikia ka Selective IgA Deficiency i ke ola o kēlā me kēia lā. Inā loaʻa iā ʻoe kahi maʻi, e haʻi aku kāu kauka iā ʻoe i ka lōʻihi e pono ai ʻoe e pale aku i kekahi mau hana ma hope o ka mālama ʻana.

E hoʻomanaʻo kākou i nā mea nui loa (Leka Lawe-Home)

ʻAe, e hōʻuluʻulu kākou i nā mea nui a mākou i kamaʻilio ai e pili ana i ka Selective IgA Deficiency:

• ʻAʻohe hōʻailona o ka nui o ka poʻe: Nui ka poʻe me kēia maʻi e noho olakino ana me ka ʻike ʻole.
• E makaʻala i nā maʻi pinepine: Inā ʻoe e maʻi pinepine ana, e kamaʻilio me ke kauka.
• ʻOiai ʻaʻole hiki ke ho'ōla ʻia, hiki ke mālama ʻia: Hiki ke kāohi ʻia ma ka mālama ʻana i nā maʻi a me ka nānā ʻana i nā pilikia.
• Hiki mai paha kekahi mau pilikia: E makaʻala i nā maʻi allergies, ka hānō, a me nā maʻi autoimmune.
• Hiki i nā ʻōpio ke ho'ōla: Ke ulu aʻe nei kekahi mau keiki ma mua o kēia maʻi i ko lākou ulu ʻana.
• He mea nui e makaʻala i ka wā e hāʻawi koko ai: Inā loaʻa iā ʻoe kēia maʻi, e hoʻomaopopo i kāu mau kauka.

No laila, ke lana nei koʻu manaʻo he mea pono kēia ʻike iā ʻoe. ʻO ka ʻike ʻana i nā mea e like me kēia e kōkua iā mākou e mālama i ko mākou olakino ponoʻī a me ke olakino o kā mākou poʻe aloha, ʻeā?

ʻO ka hemahema IgA koho, ka hemahema IgA, ka palekana, nā maʻi, nā maʻi autoimmune, genetic, nā hoʻāʻo koko