E aʻo kākou e pili ana i nā papa Sirolimus. Ua kuhikuhi ʻia anei kēia lāʻau lapaʻau iā ʻoe?

Ua kuhikuhi anei kekahi kauka i kahi pila i kapa ʻia ʻo 'Sirolimus' iā ʻoe a i ʻole kekahi āu i ʻike ai? Inā pēlā, he mea nui loa ia e ʻike pono i ke ʻano o kēia lāʻau. No ka mea, ʻaʻole like kēia me ka lāʻau no ke anu maʻamau a i ʻole ka maʻi palū, he lāʻau ia e pono e hoʻohana ʻia me ka mālama kūikawā, a he mau hopena ʻaoʻao a me nā pilikia. No laila, e kamaʻilio kākou e pili ana i kēia me nā kikoʻī hou aku, ea?

He aha kēia lāʻau lapaʻau i kapa ʻia ʻo 'Sirolimus'?

I ka ʻōlelo maʻalahi, ʻo Sirolimus kahi lāʻau lapaʻau e hōʻemi ana i ka hana o ka ʻōnaehana pale o kou kino. E noʻonoʻo, i ka wā e loaʻa ai i kekahi kahi hoʻoili kino hou e like me ka puʻupaʻa a i ʻole ke akepaʻa, hoʻāʻo ka ʻōnaehana pale o ke kino e hōʻole i kēia kino hou. ʻIke ʻia me he mea lā ua hōʻea mai kahi ʻenemi. ʻO ia ka manawa e pono ai nā lāʻau lapaʻau e like me Sirolimus. ʻO ia hoʻi, hoʻohana nui ʻia ia e pale i ke kino mai ka hōʻole ʻana i kahi kino i hoʻoili hou ʻia.

Hoʻohana ʻia nō hoʻi ia e mālama i kahi maʻi māmā laha ʻole i kapa ʻia ʻo lymphangioleiomyomatosis (LAM). Loaʻa pinepine ʻia ma lalo o ka inoa inoa ʻo Rapamune. Eia nō naʻe, i kekahi manawa e kuhikuhi paha kāu kauka i kēia lāʻau lapaʻau no nā kumu ʻē aʻe. No laila, inā he mau nīnau kāu, ʻoi aku ka maikaʻi o ka nīnau ʻana i kāu kauka a mea kūʻai lāʻau paha.

He aha kāu e haʻi aku ai i kāu hui lapaʻau ma mua o ka hoʻohana ʻana i kēia lāʻau?

He mea nui loa kēia. Ma mua o kou hoʻomaka ʻana e lawe iā Sirolimus, pono ʻoe e haʻi i kāu kauka e pili ana i kou kūlana olakino piha. ʻO kēia no ka mea ʻaʻole kūpono kekahi mau kūlana me kēia lāʻau lapaʻau, a i ʻole pono ʻoe e makaʻala kūikawā iā ia.

Inā loaʻa iā ʻoe kēia mau mea, e ʻōlelo pono ia:

• Inā loaʻa iā ʻoe ka maʻi diabetes Mellitus) .
• Inā he moʻolelo kou o ka maʻi puʻuwai a i ʻole ka hāʻule ʻana o ka puʻuwai .
• Inā he kiʻekiʻe kou cholesterol a i ʻole triglycerides i loko o kou koko.
• Inā loaʻa iā ʻoe kahi maʻi i kēia manawa (e like me ke kuni, ke anu, a i ʻole ka maʻi ʻōpū urinary).
• Inā he maʻi kou i ke akepaʻa .
• Inā ua loaʻa iā ʻoe kahi maʻi allergy a i ʻole kahi hopena kūikawā i ka sirolimus, nā lāʻau lapaʻau ʻē aʻe, nā meaʻai, nā kala, a i ʻole nā ​​​​mea mālama.
• Inā hāpai ʻoe a i ʻole e hoʻāʻo nei e hāpai .
• Inā he makuahine hānai waiū ʻoe.

Ma ka haʻi ākea ʻana i kēia mau mea e hiki ai i ke kauka ke mālama iā ʻoe ma ke ala kūpono loa.

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Pehea pololei ʻoe e hoʻohana ai i kēia lāʻau lapaʻau?

He mea nui loa e hahai i nā ʻōlelo kuhikuhi pololei no ka hoʻohana ʻana i kēia lāʻau.

• Pono e lawe ʻia kēia pila me ke aniani wai.
• Mai uhaʻi, kuʻi, a nau paha i ka papa. E ale holoʻokoʻa.
• E hoʻohana i ka lāʻau lapaʻau e like me ke kuhikuhi ʻana ma ka lepili lāʻau.
• Inā ʻoe e lawe i kēia lāʻau lapaʻau me ka meaʻai, e lawe pū me ka meaʻai i kēlā me kēia lā. ʻO ia hoʻi, mai hoʻololi ma waena o ka lawe ʻana ma mua o ka ʻai ʻana i hoʻokahi lā a ma hope o ka ʻai ʻana i kekahi lā aʻe. E lawe iā ia ma ke ʻano like.
• Mai lawe pū i kēia lāʻau me ka wai pomelo. Hiki i ka wai pomelo ke hoʻopilikia i ke ʻano o ka hana ʻana o kēia lāʻau.
• Inā ʻoe e lawe nei i ka lāʻau lapaʻau ʻo cyclosporine, pono ʻoe e lawe i kēia lāʻau lapaʻau ʻo Sirolimus ma ka liʻiliʻi he 4 mau hola ma hope o ka lawe ʻana i ka cyclosporine.
• E ho'āʻo e lawe i kāu lāʻau lapaʻau i ka manawa like i kēlā me kēia lā, i ka manawa like i kēlā me kēia lā . ʻO ia ka manawa e loaʻa ai iā ʻoe ka mea nui loa mai ka lāʻau lapaʻau.
• Mai lawe ʻoe ma mua o ka mea a ke kauka e ʻōlelo ai, a i ʻole e hoʻōki i ka lawe ʻana iā ia me ka wā ʻole o ka manawa. Mai hoʻōki i ka lawe ʻana i ka lāʻau lapaʻau me ka ʻole o ke aʻo ʻana a ke kauka.

Inā hāʻawi ʻoe i kēia lāʻau lapaʻau i nā keiki:

Hiki ke kuhikuhi ʻia kēia lāʻau lapaʻau i nā keiki a hiki i ka 13 mau makahiki i kekahi mau hihia i koho ʻia. Eia nō naʻe, pono e mālama ʻia nā hana palekana kūikawā. No laila, inā ʻoe e hāʻawi ana i kēia lāʻau lapaʻau i kāu keiki, e kūkākūkā pono i kēia me kāu kauka pediatric a loaʻa ka ʻōlelo aʻo.

Ke loaʻa iā ʻoe kēia lāʻau lapaʻau mai ka hale kūʻai lāʻau lapaʻau, e loaʻa iā ʻoe kahi MedGuide (Alakaʻi Lapaʻau) . E loaʻa iā ʻoe kēia me kēlā me kēia kauoha a me kēlā me kēia manawa e loaʻa ai iā ʻoe kahi hoʻopihapiha. E heluhelu pono i nā kuhikuhi. Loaʻa iā ia ka nui o ka ʻike koʻikoʻi.

Ka nui o ka lāʻau:

Inā manaʻo ʻoe ua lawe nui ʻoe i kēia lāʻau lapaʻau, e kāhea koke i kahi kikowaena hoʻomalu lāʻau make a i ʻole ka lumi pilikia o ka haukapila .

Mea nui: Nou wale nō kēia lāʻau lapaʻau. Mai kaʻana like i kāu lāʻau lapaʻau me nā poʻe ʻē aʻe, ʻoiai inā loaʻa iā lākou nā hōʻailona like me ʻoe.

He aha kāu e hana ai inā e hala ʻoe i kahi manawa hoʻopaʻa lāʻau lapaʻau?

Inā ʻoe e poina i kahi lāʻau lapaʻau, e lawe koke iā ia i kou hoʻomanaʻo ʻana. Eia nō naʻe, inā kokoke ka manawa no kāu lāʻau lapaʻau aʻe, e kāpae i ka lāʻau lapaʻau i poina a lawe i kāu lāʻau lapaʻau aʻe e like me ka hoʻonohonoho ʻana. Mai lawe i ʻelua lāʻau lapaʻau i ka manawa hoʻokahi. Eia kekahi, inā ʻoe e poina i kahi lāʻau lapaʻau a luaʻi paha ma hope o ka lawe ʻana i ka lāʻau lapaʻau, e kāhea i kāu kauka a i ʻole ke kauka olakino no ka ʻōlelo aʻo.

He aha nā mea ʻē aʻe e hiki ke launa pū me kēia lāʻau lapaʻau?

He mea kēia e makaʻala nui ai. He lāʻau lapaʻau ʻo Sirolimus i hiki ke launa pū me nā lāʻau lapaʻau ʻē aʻe, nā meaʻai, a me nā mea hoʻohui. Hiki i kēia mau pilina ke hoʻololi i ke ʻano o ka hana a Sirolimus, hoʻonui i nā hopena ʻaoʻao, a i ʻole e hoʻololi i ke ʻano o ka hana a nā lāʻau lapaʻau ʻē aʻe āu e lawe nei.

Mai lawe pū me Sirolimus me kēia mau lāʻau lapaʻau:

• ʻO kekahi mau ʻano antibiotics: e like me clarithromycin, erythromycin, a me telithromycin.
• Wai huaʻai (ua ʻōlelo mua wau i kēia, he mea nui ia!)
• Nā lāʻau lapaʻau no nā maʻi fungal: e like me itraconazole, ketoconazole, posaconazole, voriconazole.
• ʻO ka Mifepristone ), RU-486
• rifabutin, rifampin

Hiki i kēia lāʻau lapaʻau ke launa pū me nā lāʻau lapaʻau penei:

• ʻO Boceprevir
• ʻO ka Bromocriptine
• ʻO Carbamazepine
• ʻO Cimetidine
• ʻO Cisapride
• ʻO Clotrimazole
• ʻO 'Cyclosporine' (ma waho aʻe o ka manawa i ʻōlelo ʻia, aia paha he mau pilina ʻē aʻe)
• ʻO Danazol
• ʻO Diltiazem
• ʻO ka Fluconazole
• ʻIninavir
• ʻO ka Metoclopramide
• ʻO Nicardipine
• ʻO ka Phenobarbital
• ʻO Phenytoin
• ʻO ka Rifapentine
• ʻO ka Ritonavir )
• ʻO ka wort ʻo St. John (he lau nahele kēia)
• ʻO ka lāʻau lapaʻau ʻo Telaprevir
• ʻO ka Troleandomycin
• Nā lāʻau pale
• ʻO Verapamil

ʻAʻole i hoʻokomo ʻia nā pilina āpau ma kēia papa inoa. No laila, e haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau āpau āu e lawe ai (i kauoha ʻia, kūʻai ʻia ma luna o ke kauka, lāʻau lapaʻau, huaora, mea hoʻohui meaʻai), inā ʻoe e puhipaka, inu waiʻona, a hoʻohana paha i nā lāʻau lapaʻau ʻē aʻe. Hiki i kekahi mau mea ke launa pū me kāu lāʻau lapaʻau.

He aha kaʻu e makaʻala ai i ka wā e hoʻohana ai i kēia lāʻau lapaʻau?

E nānā pinepine kāu kauka i kou olakino ʻoiai ʻoe e lawe ana iā Sirolimus.

• He mea nui e ʻike pinepine i kāu kauka a loaʻa nā hoʻāʻo koko . E kōkua kēia i kāu kauka e hoʻoholo pehea e hoʻopilikia ai ka lāʻau lapaʻau iā ʻoe a inā kūpono ka nui o ka lāʻau iā ʻoe.
• Hiki i kēia lāʻau lapaʻau ke hoʻonui i kāu mau pae cholesterol a lipid paha. Inā hana kēia, pono paha ʻoe e lawe i kahi lāʻau lapaʻau ʻokoʻa no kēlā.
• Inā loaʻa iā ʻoe ke anu a i ʻole kekahi maʻi ʻē aʻe i ka wā e lawe ana i kēia lāʻau lapaʻau, e haʻi koke i kāu kauka. Mai mālama ponoʻī. Hiki i kēia lāʻau lapaʻau ke hōʻemi i ka hiki o kou kino ke hakakā i nā maʻi.
• Hiki i kēia lāʻau lapaʻau ke hoʻonui i kou pae kō koko. Inā loaʻa iā ʻoe ka maʻi diabetes, e nīnau i kāu kauka inā pono ʻoe e hana i kekahi hoʻololi i kāu meaʻai a lāʻau lapaʻau paha.
• Hiki i kēia lāʻau lapaʻau ke hoʻonui iki i kou pilikia o ka loaʻa ʻana o kekahi mau ʻano maʻi kanesa. E kamaʻilio me kāu kauka e pili ana i kēia. Mai hopohopo, akā he mea nui e makaʻala.
• Ma muli o kēia lāʻau lapaʻauHiki i kou ʻili ke lilo i mea ʻoi aku ka maʻalahi i ka lā. No laila, e pale i ka hoʻopili ʻana i ka lā i ka hiki. Inā ʻoe e hele i waho, e ʻaʻahu i nā lole e uhi ana i kou ʻili, e hoʻohana i ka sunscreen, a pale i nā kukui lā a i ʻole nā ​​​​​​hale tanning.
• Pono nā wāhine o ka wā hānau keiki e hoʻohana i kahi ʻano kaohi hānau kūpono loa ma mua o ka hoʻomaka ʻana i kēia lāʻau lapaʻau, ʻoiai e lawe ana, a no 12 mau pule ma hope o ka hoʻōki ʻana i ka lāʻau lapaʻau.

He aha nā hopena ʻaoʻao e hiki ke loaʻa mai kēia lāʻau lapaʻau?

E like me nā lāʻau lapaʻau āpau, hiki iā Sirolimus ke hana i kekahi mau hopena ʻaoʻao. ʻAʻole loaʻa i nā kānaka a pau, akā he mea maikaʻi ke makaʻala iā lākou.

Nā hopena ʻaoʻao e pono e hōʻike koke ʻia i ke kauka a i ʻole ke kauka lapaʻau:

• Nā hopena maʻi: ka ʻili ʻulaʻula, ka maneʻo a i ʻole ka hives, ka pehu ʻana o ka maka, nā lehelehe a i ʻole ke alelo.
• Paʻakikī ka hanu ʻana.
• ʻĀʻī, kuni, ʻeha puʻu. (He mau hōʻailona paha kēia o kahi maʻi)
• Mimi ʻeleʻele.
• Puʻuwai wikiwiki a kūpono ʻole.
• Manaʻo poniuniu a poʻo māmā paha.
• Ke koko kiʻekiʻe.
• Ka ʻike ʻia ʻana o nā kiko ʻulaʻula liʻiliʻi ma ka ʻili.
• Nā hōʻailona o ke kō koko kiʻekiʻe: Manaʻo nui ka makewai a pōloli paha ma mua o ka maʻamau, pono e mimi pinepine. Hiki paha iā ʻoe ke ʻike i ka luhi nui a i ʻole ka ʻike pohihihi.
• Ka pehu ʻana, ka paʻa ʻana o ka wai i loko o ke kino.
• Paʻakikī i ka mimi ʻana.
• Ke kahe koko ʻana a i ʻole ka palapū maʻamau ʻole.
• Manaʻo nāwaliwali loa.

Nā hopena ʻaoʻao ʻaʻole pono ka mālama lapaʻau, akā pono e hōʻike i ke kauka inā hoʻomau a hoʻopilikia paha:

• ʻEha kino, ʻehaʻeha.
• ʻAkika.
• Ka maʻi ʻōpū (ʻeha ʻōpū).
• Ka luaʻi, ka luaʻi.
• ʻO ka ʻeha o ka ʻōpū.
• Haʻalulu.
• ʻAʻole hiki ke hiamoe.

ʻAʻole paha e komo pū kēia papa inoa me nā hopena ʻaoʻao āpau. Inā loaʻa iā ʻoe kekahi mau hōʻailona ʻē, e ʻimi i ke aʻo lapaʻau. Hiki iā ʻoe ke hōʻike i nā hopena ʻaoʻao i ka FDA ma 1-800-FDA-1088.

Ma hea kahi e mālama ai i kaʻu lāʻau lapaʻau?

• E mālama iā ia mai ka hiki ʻana aku o nā keiki. He mea nui loa kēia.
• E mālama ma ka mahana o ka lumi (20 a 25 kekelē Celsius / 68 a 77 kekelē Fahrenheit). E pale mai ka wela loa a i ʻole ke anu.
• E hoʻolei i ka lāʻau lapaʻau i pau ka lāʻau. Mai mālama i ka lāʻau lapaʻau i hoʻohana ʻole ʻia ma hope o kona pau ʻana.

Leka Hoʻihoʻi Hope Loa

ʻAe, ua kamaʻilio nui kākou e pili ana iā Sirolimus, ʻeā? E hoʻomanaʻo, ʻo ka mea nui loa, ʻo ia ka hoʻohana ʻana i kēia lāʻau lapaʻau e like me ke kuhikuhi a kāu kauka.

I ka pōkole:

* E lawe i ka lāʻau lapaʻau e like me ka ʻōlelo a kāu kauka iā ʻoe, i ka manawa kūpono, i ka nui kūpono.

* E hāʻawi i kāu kauka i ka wehewehe piha ʻana no kou kūlana olakino a me nā lāʻau lapaʻau a me nā mea hoʻohui ʻē aʻe āu e lawe nei.

* Mai lawe i kēia lāʻau lapaʻau me ka wai hua waina.

* E makaʻala i nā hopena ʻaoʻao, a inā ʻike ʻoe i kekahi mea ʻē, e haʻi koke i kāu kauka.

* E heluhelu pono i ka MedGuide i hāʻawi ʻia iā ʻoe.

* Mai hāʻawi i kāu lāʻau lapaʻau i nā poʻe ʻē aʻe.

Me he mea lā he mea paʻakikī iki ka hoʻohana ʻana i kēia lāʻau lapaʻau. Akā, mai hopohopo. Inā he mau nīnau a hopohopo paha kāu, e nīnau i kāu kauka a kauka lāʻau paha. Ua mākaukau lākou e kōkua iā ʻoe. ʻO kou olakino ka mea nui loa iā lākou!

ʻO Sirolimus, Sirolimus, ʻōnaehana pale kino, hoʻoili kino, LAM, Rapamune, nā hopena ʻaoʻao lāʻau, nā pilina lāʻau