Ke ʻike nei ʻoe i nā kiko ʻulaʻula, i kekahi manawa he poepoe ma kou ʻāʻī, umauma, kua, a i ʻole nā lima? He unahi, he unahi, a maloʻo paha? Nui ka poʻe e hopohopo nei no kēia maʻi. He mea maʻamau ke noʻonoʻo inā he maʻi ʻili maʻamau wale nō ia a i ʻole kekahi mea ʻoi aku ka koʻikoʻi. I kēia lā, e kamaʻilio mākou e pili ana i ka Subacute Cutaneous Lupus Erythematosus, a i ʻole SCLE no ka pōkole, kahi ʻano lupus e hoʻopilikia wale ana i ka ʻili. Ke ʻike pono ʻoe i kēia, e maʻalahi loa iā ʻoe ke hoʻoponopono i kēia maʻi.
I ka ʻōlelo maʻalahi, he aha ka SCLE?
ʻAe, e hoʻomaʻalahi kākou i kēia. ʻO SCLE kahi maʻi no kahi hui o nā maʻi i kapa ʻia ʻo lupus, a hoʻopilikia nui ia i ka ʻili. ʻO Lupus kahi maʻi e kū mai ana ma muli o kahi pilikia me ka ʻōnaehana pale o ko mākou kino. ʻO ka maʻamau, ke kaua nei kā mākou ʻōnaehana pale i nā germs e hoʻoulu ai i ka maʻi. Akā i ke ʻano e like me lupus, hoʻomaka hewa kēia ʻōnaehana e hoʻouka i kā mākou mau cell olakino ponoʻī.
He ʻano lupus ka SCLE e hoʻopilikia ana i ka ʻili. Ua kapa ʻia ʻo ia e nā kauka he Cutaneous Lupus Erythematosus (CLE). ʻO ka huaʻōlelo "Subacute" e pili ana i ke ʻano o ka mumū i ʻike ʻia ma kahi biopsy ʻili, ʻo ia hoʻi kahi ʻāpana ʻili liʻiliʻi i lawe ʻia a nānā ʻia.
ʻO ka mea nui, ʻo ka hapalua o ka poʻe me SCLE e loaʻa pū kekahi i ke ʻano lupus maʻamau, ʻo Systemic Lupus Erythematosus, a i ʻole SLE . ʻO ka SLE kahi ʻano e hiki ke hoʻopilikia ʻaʻole wale i ka ʻili, akā i nā ʻōpū kūloko e like me nā puʻupaʻa, ka puʻuwai, a me ka lolo. No laila he mea nui e kamaʻilio me ke kauka inā loaʻa iā ʻoe nā hōʻailona o SCLE.
ʻOkoʻa ke ʻano o ka hopena o kēia maʻi i kēlā me kēia kanaka, no laila hiki ke paʻakikī iki ke ʻike. ʻO ka mea nui loa, ʻo ia ka loaʻa ʻana o ke kauka e hoʻolohe iā ʻoe a loaʻa i ka lāʻau kūpono nāu.
He aha nā ʻano nui o SCLE?
Hiki ke ʻike ʻia ʻo SCLE ma nā ʻano nui ʻelua. He ʻano ʻokoʻa iki kēia mau mea ʻelua. E nānā kākou i ke ʻano o lākou.
| ʻAno SCLE | ʻAno a me nā ʻano |
|---|---|
| ʻO ka SCLE Annular | ʻO kēia ʻano ʻili e hoʻoulu ai i nā ʻāpana ʻulaʻula, unahi, poepoe, a i ʻole apo (plaques) e ʻike ʻia ma ka ʻili. ʻIke pinepine ʻia kēia mau ʻāpana ma nā wahi i hōʻike ʻia i ka lā. Ma hope o ka ho'ōla ʻana o kēia mau ʻāpana, e lilo paha ka ʻili ma ia mau wahi i mea mae iki. Kāhea nā kauka i kēia hypopigmentation . |
| ʻO ka SCLE Papulosquamous | ʻIke ʻia kēia ʻano ʻili e ka hui pū ʻana o nā papules liʻiliʻi a me kahi ʻano unahi. I ka nānā mua ʻana, ua like paha ia me ka eczema a i ʻole ka psoriasis. Hoʻonui nui ʻia kēia ʻano e ka lā . |
He aha nā hōʻailona o ka SCLE?
ʻO ka hōʻailona nui o SCLE ka ʻulaʻula o ka ʻili. ʻIke pinepine ʻia kēia mau mea ma nā ʻāpana o kou kino i hōʻike pinepine ʻia i ka lā, e like me ka ʻāʻī, ka umauma, ke kua, a me nā lima.
Hiki i kēia pōʻino ke like me kēia:
- ʻUlaʻula, ʻano apo, nā kiko oval. I kekahi manawa hiki i kēia mau apo ke hoʻopili kekahi i kekahi a like me kahi ʻano nui.
- ʻIli ʻulaʻula, unahi, maloʻo, unahi. Ua like pinepine kēia me ka psoriasis.
ʻO ka mea maikaʻi loa, ʻaʻole e ʻānai kēia mau kiko a waiho paha i nā ʻeha . Eia nō naʻe, hiki ke noho ka ʻili ma hope o ka ho'ōla ʻana o nā kiko.
He aha nā kumu e kōkua ai i ka ulu ʻana o SCLE?
He mea paʻakikī ke kuhikuhi i hoʻokahi kumu no ka SCLE. He pilikia paʻakikī ia. Manaʻo nā kānaka noiʻi he nui nā kumu e hui pū ana e hoʻokumu i ia mea.
- Nā kumu hoʻoilina: ʻO ke ʻano kēia he pilina hoʻoilina paha. Inā loaʻa kekahi o kou ʻohana i ka lupus, hiki paha iā ʻoe ke pilikia.
- Nā kumu kaiapuni: ʻO ka mea nui o kēia mau mea, ʻo ia ka radiation ultraviolet , ʻo ia hoʻi ka lā. Eia kekahi, ua manaʻoʻiʻo ʻia he hiki i nā mea e like me ka hoʻohana ʻana i ka paka a me nā pesticides ke loaʻa ka hopena.
- Kekahi mau lāʻau lapaʻau: Ma kahi o ka hapakolu o ka poʻe me SCLE e loaʻa i ke kūlana ma hope o ka lawe ʻana i kekahi mau lāʻau lapaʻau. Ua kapa ʻia kēia ʻo "Drug-induced SCLE."
| ʻO kekahi mau lāʻau lapaʻau e hiki ai ke hana i ka SCLE |
|---|
| Nā lāʻau lapaʻau anti-fungal |
| ʻO kekahi mau lāʻau anti-seizure |
| ʻO kekahi mau lāʻau lapaʻau koko, no ka laʻana nā mea hoʻopaʻa ACE |
| Nā lāʻau lapaʻau chemotherapy |
| ʻO kekahi mau lāʻau lapaʻau i hoʻohana ʻia e mālama i ka gastritis (Proton pump inhibitors - PPIs) |
| ʻO kekahi mau lāʻau lapaʻau i hoʻohana ʻia e mālama i nā maʻi e like me ka arthritis (nā mea hoʻopaʻa i ka tumor necrosis factor) |
ʻO wai ka mea i ʻoi aku ka pilikia o ka hoʻomohala ʻana i ka SCLE?
- ʻIke pinepine ʻia i nā wahine ma mua o nā kāne.
- ʻIke pinepine ʻia ia i nā kānaka ma waena o 40 a me 60 mau makahiki.
- ʻOiai he mea maʻamau ia i nā poʻe keʻokeʻo, hiki ke loaʻa kēia ʻano i nā kānaka o kēlā me kēia lāhui.
Ka ʻike ʻana a me ka mālama ʻana i ka maʻi
Inā loaʻa iā ʻoe kēia mau hōʻailona, ʻo ka mea mua āu e hana ai, ʻo ia ke ʻike i ke kauka. Hiki ke kuhikuhi ʻia ʻoe i kahi kauka ʻili a i ʻole he kauka rheumatologist.
Pehea e ʻike ai i ka maʻi?
E nānā ke kauka i kou ʻili a nīnau iā ʻoe e pili ana i kou mau hōʻailona. A laila e hana paha lākou i nā hoʻokolohua aʻe e hōʻoia i ka hōʻailona:
- Biopsy ʻili: Pili kēia i ka lawe ʻana i kahi ʻāpana liʻiliʻi loa o ka ʻili mai kahi mole ma kou ʻili ma lalo o ka anesthesia a nānā iā ia ma lalo o kahi microscope. Hiki i kēia ke kōkua i ka hoʻoholo ʻana inā ua hana ʻia ka mole e SCLE a i ʻole kekahi maʻi ʻili ʻē aʻe.
- Nā hoʻāʻo koko: Hiki ke hana ʻia kekahi mau hoʻāʻo koko.
- Helu koko piha (CBC)
- ʻO ka helu Sed (ESR) a me ka protein C-reactive (CRP) - Nānā kēia mau mea no ka mumū i loko o ke kino.
- Hoʻāʻo antibody antibody (ANA): He hoʻāʻo koʻikoʻi loa kēia no ka ʻike ʻana i ka lupus.
- Nā hoʻokolohua hana puʻupaʻa a me ke akepaʻa
- Ka nānā ʻana i ka mimi
Pehea e mālama ʻia ai ka SCLE?
ʻO ka mea nui a me ka mea mua loa i ka mālama ʻana i ka SCLE ʻo ia ka pale ʻana i ka lā , ʻoiai ʻo ka lā ke kumu nui e hoʻonui ai i kēia maʻi.
Eia kekahi, hiki i kāu kauka ke ʻōlelo i nā ʻaila topical a i ʻole nā lāʻau waha e pili ana i ke koʻikoʻi o kāu mau hōʻailona.
| ʻAno lapaʻau | Nā Laʻana (ma ke kauoha lapaʻau wale nō) |
|---|---|
| Nā steroid topical | ʻO Hydrocortisone, Triamcinolone, Clobetasol |
| Nā ʻaila ʻili ʻē aʻe (nā mea hoʻopale calcineurin topical) | ʻO Takrolimus, Pimecrolimus |
| Nā lāʻau antimalarial waha | Hydroxychloroquine, Chloroquine |
| Nā lāʻau lapaʻau immunosuppressive waha | ʻO Methotrexate, Azathioprine |
| Nā ʻano lāʻau ʻē aʻe | ʻO Dapsone, Retinoids, Monoclonal antibodies (IVIG, Rituximab) |
ʻŌlelo Aʻo: Mai hoʻohana i kekahi o kēia mau lāʻau lapaʻau me ka ʻole o ke aʻo ʻana a ke kauka. ʻO kāu kauka wale nō ke hoʻoholo i ka lāʻau lapaʻau maikaʻi loa nāu.
Pehea e ola ai me ka SCLE?
He maʻi mau loa ka SCLE no ke ola holoʻokoʻa. ʻO ke ʻano kēia, hiki ke hoʻonui ʻia nā hōʻailona i kekahi manawa a emi iho i kekahi manawa. Eia nō naʻe, hiki ke hoʻomalu maikaʻi ʻia a hiki iā ʻoe ke ola i kahi ola maʻamau.
ʻO ka pale ʻana i ka lā ka helu ʻekahi!
ʻO kēia ka mea nui loa hiki iā ʻoe ke hana.
- E hoʻohana i ka sunscreen ākea me SPF 50 a ʻoi aku paha i kēlā me kēia lā ke hele ʻoe i waho i ka lā . He mea pono kēia, ʻoiai i nā lā ao.
- E pale i ka lā ikaika ma waena o 10 am a me 4 pm.
- I ka wā e hele ai i waho i ka lā, e ʻaʻahu i nā lole pale lā, e like me ka pāpale ākea a me nā lole lima lōʻihi.
- E hoʻōki loa i ka hoʻohana ʻana i nā moena tanning.
He lāʻau lapaʻau nō hoʻi ka mālama pono ʻana iā ʻoe iho!
- E hoʻomaopopo i ka maʻi: E heluhelu e pili ana i kēia maʻi mai nā kumu hilinaʻi a e aʻo iā ʻoe iho. E hāʻawi kēia iā ʻoe i kahi ʻike maikaʻi aʻe i nā mea e hana nei i loko o kou kino.
- E huli i ke kauka āu e hilinaʻi nei: Pono paha ʻoe e ʻike pinepine i ke kauka, no laila e hoʻomau i ka ʻimi ʻana i ka lāʻau lapaʻau mai ke kauka nāna e hoʻolohe iā ʻoe a hoʻomaopopo iā ʻoe.
- Kūkulu i kahi ʻōnaehana kākoʻo: ʻO ke kamaʻilio ʻana me nā poʻe i ke kūlana like a me ka kaʻana like ʻana i kāu mau ʻike e hāʻawi iā ʻoe i ka ikaika noʻonoʻo nui.
- E mālama iā ʻoe iho: E ʻai olakino, e hoʻoikaika kino, e hiamoe maikaʻi, a e hoʻokele i ke kaumaha. E kōkua nui kēia mau mea iā ʻoe e hoʻokele i ka maʻi.
Ma muli o kou loaʻa ʻana o ka SCLE a pono ʻoe e pale iā ʻoe iho mai ka lā pinepine, hiki iā ʻoe ke loaʻa i ka nele o ka wikamina D. He manaʻo maikaʻi e kamaʻilio me kāu kauka e pili ana i kēia a lawe i kahi mea hoʻohui wikamina D inā pono.
Leka Lawe-Home
- He maʻi ka SCLE no ke ola holoʻokoʻa e hoʻopilikia ai i ka ʻili i ka lupus.
- ʻO ka hōʻailona nui ka ʻike ʻia ʻana o nā ʻāpana ʻulaʻula, ʻano apo, a unahi paha ma ka ʻili i hōʻike ʻia i ka lā.
- ʻO ka pale ʻana i ka lā ke ʻano koʻikoʻi loa a me ka helu ʻekahi i ka kaohi ʻana i kēia maʻi.
- ʻAʻole maneʻo kēia mau kiko a ʻaʻole hoʻi e hoʻoulu i ka ʻeha, akā hiki iā lākou ke waiho i ke kala ʻili.
- Inā loaʻa iā ʻoe kēia mau hōʻailona, mai hopohopo a e ʻike koke i ke kauka. Me ka mālama pono ʻana a me ka hoʻokele ʻana, hiki iā ʻoe ke ola i kahi ola maʻamau.
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