E noʻonoʻo, ʻo kāu keiki, ʻoiai he keikikāne ʻōpiopio, e hoʻomaka koke ana e hiamoe no nā lā he nui. Inā paha ʻoe e hoʻāʻo e hoʻāla iā ia, hoʻi hou ʻo ia i ka hiamoe. Hiamoe mau ʻo ia koe wale nō ka ʻai ʻana a me ka hele ʻana i ka lua. E makaʻu anei kekahi makuahine a makuakāne paha inā ʻike lākou i kahi mea e like me kēia? He mea paʻakikī ke ʻike inā he pilikia noʻonoʻo kēia a i ʻole kekahi maʻi ʻē aʻe. I kēia lā, ke kamaʻilio nei mākou e pili ana i kahi maʻi laha ʻole e hoʻoulu ai i ka hiamoe nui e mau ana no nā lā he nui ma ke ʻano ʻē. ʻO ia ka Kleine-Levin Syndrome, a i ʻole KLS no ka pōkole.
He aha maoli ka Kleine-Levin Syndrome (KLS)?
I ka ʻōlelo maʻalahi, he maʻi hiamoe kakaʻikahi loa ka Kleine-Levin Syndrome (KLS). ʻIke pinepine ʻia ia i nā keikikāne ʻōpio . 70% o ka poʻe i hoʻopilikia ʻia e kēia maʻi e hāʻule ana i loko o kēia māhele.
ʻO ka hōʻailona nui o kēia maʻi, ʻo ia nā manawa hiamoe nui. I loko o kēia mau wā, hiki i ka mea maʻi ke ʻike ʻia he olakino maikaʻi a maʻamau. ʻO ia hoʻi, me ka ʻole o nā hōʻailona.
Pili kēia mau hōʻailona i kahi ʻāpana koʻikoʻi loa o ko kākou lolo. ʻO ia ka hypothalamus . Hoʻomalu kēia ʻāpana liʻiliʻi i nā mea he nui e like me ko kākou hiamoe, ka pōloli, ka make wai, ka makemake e ʻai, a me ka makemake moekolohe. Ua manaʻoʻiʻo ʻia i ka hihia o KLS, ua hoʻopilikia ʻia ka hana o kēia hypothalamus no kekahi manawa.
I ke ʻano lapaʻau, ua hoʻokaʻawale ʻia ʻo KLS ma ke ʻano he maʻi i kapa ʻia ʻo hypersomnia, ʻo ia hoʻi ka hiamoe nui. Eia nō naʻe, no ka mea ua like kekahi o kona mau hōʻailona me nā maʻi noʻonoʻo, i kekahi manawa ua kuhihewa ʻia ʻo ia he maʻi e like me ke kaumaha.
ʻO ka nūhou maikaʻi, e emi mālie ana kēia mau hōʻailona me ka ʻelemakule. He mea kākaʻikahi loa ka ʻike ʻana i nā hōʻailona KLS i kekahi ma luna o 50 mau makahiki.
Aia kekahi kumu kikoʻī no KLS?
ʻAʻole hiki i nā kānaka noiʻi ke ʻōlelo maopopo i ke kumu o ka maʻi, akā ke kānalua nei lākou i kekahi mau mea.
I ka manawa pinepine, ua hele mua kahi hanana o kēia kūlana e kahi maʻi olakino ma lalo, e like me ke anu, ka maʻi palū, a i ʻole kekahi maʻi viral ʻē aʻe .
Eia kekahi, manaʻo kekahi poʻe noiʻi he ʻeha poʻo, he maʻi, a he maʻi autoimmune paha ke kumu. Eia naʻe, ʻaʻole ia he maʻi hoʻoilina. He mea kākaʻikahi loa no kekahi mau lālā o ka ʻohana hoʻokahi ke loaʻa i kēia maʻi.
He aha nā hōʻailona o ka maʻi KLS?
E like me kā mākou i ʻōlelo ai ma mua, i loko o kēia maʻi, ʻike ʻia nā hōʻailona ma ke ʻano o nā hanana 'wikiwiki'. Hiki i kahi hanana ke mau mai hoʻokahi pule a ʻelua mahina . Ma ka awelika, hiki ke loaʻa ma waena o 2 a me 12 mau hanana like i kēlā me kēia makahiki.
I loko o kēia wā, hiki iā ʻoe ke ʻike i nā loli nui i ke ʻano a me ke kino o ka mea maʻi. Ma waho aʻe o ka hiamoe nui, ʻike ʻia nā hōʻailona ʻē aʻe he nui.
| Hōʻailona | Wehewehena |
|---|---|
| Hiamoe nui loa | Hiamoe no kahi o 20 mau hola i ka lā, ʻaʻole e ala aʻe koe wale nō nā mea nui e like me ka ʻai ʻana a i ʻole ka hele ʻana i ka lua. |
| Nā loli ʻano | Ke huhū me ke kumu ʻole, ka hoʻouka kaua ʻana, ka mālama ʻole i nā poʻe ʻē aʻe, ke kaumaha, a me ka hopohopo. |
| Makemake nui | ʻAi nui aku ma mua o kāu ʻai maʻamau. I kekahi manawa e hoʻowalewale ʻia paha ʻoe e ʻai i nā mea ʻē. |
| Ka moekolohe nui | ʻO ka hoʻonui nui ʻia o ka makemake i ka moekolohe a me ke kamaʻilio pinepine ʻana a i ʻole ka hana e pili ana i ia mea. |
| Ka huikau a me ka pakele ʻana mai ka ʻoiaʻiʻo | Manaʻo palaualelo, huikau, a me he moeʻuhane lā ʻoiai ke ala. I kekahi manawa, ʻike paha ʻoe i nā mea ʻaʻole ma laila (hallucinations). |
| Hoʻomanaʻo a me ka nānā ʻana | Ka poina ʻana i nā hanana, ka hiki ʻole ke noʻonoʻo i kekahi mea. |
Ma muli o ka hiki ke hoʻomaka koke kēia mau hanana, me ka ʻole o ka ʻōlelo aʻo , nui ka poʻe me KLS e komo i kahi mea e like me nā mea hoʻonaninani lapaʻau e hōʻike ana i ko lākou kūlana.
Pehea e ʻike ai i kēia maʻi? (Diagnosis)
He mea paʻakikī iki ka ʻike ʻana i kēia no ka mea ʻaʻohe hoʻāʻo koko kikoʻī a i ʻole scan no ia. No laila, hoʻāʻo nā kauka e kāpae i nā kūlana ʻē aʻe i loaʻa nā hōʻailona like. Kāhea mākou i kēia ʻo 'ruling out'.
Hiki ke pili pinepine ʻia ka maʻi KLS me kēia mau kūlana:
- Kaumaha a i ʻole ka maʻi Bipolar
- ʻO Narcolepsy, kahi maʻi hiamoe ʻē aʻe
- ʻEpilepsy
- Sclerosis lehulehu
- Nā puʻupuʻu lolo
- Nā migraines
- Nā hopena ʻaoʻao o kekahi mau lāʻau lapaʻau (e like me, Benzodiazepines) a i ʻole nā lāʻau lapaʻau
No laila, e hiki mai ana kāu kauka i kahi hopena pololei ma ke kamaʻilio ʻana ʻaʻole wale me ʻoe, akā, me kou mau mākua a me nā ʻohana i loaʻa i kēia maʻi.
He aha nā lāʻau lapaʻau no KLS?
ʻAʻohe lāʻau lapaʻau no KLS i kēia manawa. Eia nō naʻe, aia nā lāʻau lapaʻau e hiki ke kōkua i ka kaohi ʻana i nā hōʻailona a hoʻolōʻihi i ka manawa ma waena o nā hanana. ʻO ka pahuhopu nui o ka lāʻau lapaʻau ka hōʻemi ʻana i nā hōʻailona.
No ka kāohi ʻana i ka hiamoe nui, hiki i nā kauka ke kuhikuhi i nā mea hoʻoulu. Eia kekahi laʻana:
- Nā Amphetamine
- Methylphenidate
- Modafinil
Eia kekahi, hoʻohana pinepine ʻia ka lāʻau lithium me ka holomua e kāohi i nā hōʻailona a hoʻolōʻihi i ka manawa ma waena o nā hanana. ʻO Lithium kekahi lāʻau i hoʻohana ʻia e mālama i nā maʻi noʻonoʻo. Ua manaʻoʻiʻo ʻia he pono kēia lāʻau ma muli o nā ʻano like ma waena o KLS a me kekahi mau maʻi noʻonoʻo.
Akā he mea kēia e pono ʻoe e hoʻomanaʻo . ʻAʻole kūpono ke hoʻohana i kekahi o kēia mau lāʻau lapaʻau me ka ʻole o ka ʻōlelo aʻoaʻo a kāu kauka. Hiki i ke kauka ke ʻike pololei i ka maʻi a kuhikuhi i ka lāʻau lapaʻau kūpono i ka nui kūpono.
Leka Lawe-Home
- ʻO ka Kleine-Levin Syndrome (KLS) kahi maʻi laha ʻole e hoʻopilikia nui i nā keikikāne ʻōpio a ke kumu o ka hiamoe nui e mau ana no nā lā.
- ʻO nā hōʻailona ʻaʻole wale ka hiamoe nui, akā, ʻo nā loli hoʻi o ke ʻano, ka makemake nui, a me ka huikau.
- ʻAʻole kēia he maʻi noʻonoʻo, akā he maʻi neurological e pili ana i ka hypothalamus o ka lolo.
- He paʻakikī ka ʻike ʻana i ka maʻi a pono e kāpae i nā maʻi ʻē aʻe me nā hōʻailona like.
- Inā ʻike ʻoe a i ʻole kekahi āu i ʻike ai i kēia mau hōʻailona, mai hopohopo a e ʻimi koke i ke kōkua lapaʻau mai ke kauka kūpono.
- Aia nā lāʻau lapaʻau kūpono e kāohi i nā hōʻailona, akā pono e lawe ʻia ma ke ʻōlelo a ke kauka.
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