Ke manaʻo nei ʻoe i kekahi manawa e nalowale mālie ana kou mana i kou kino? ʻAʻole ʻoe kaulike i kou hele ʻana, lohi loa nā mea āpau, me he mea lā e haʻalulu ana kou leo ... ʻOiai he mau mea maʻamau kēia e hana ʻia i kou wā ʻelemakule, i kekahi manawa hiki iā lākou ke lilo i hōʻailona o kahi maʻi a mākou e kamaʻilio nui ʻole ai, akā he mea nui e makaʻala. I kēia lā ke kamaʻilio nei mākou e pili ana i kahi maʻi ʻōnaehana nerve kakaʻikahi akā koʻikoʻi: Multiple System Atrophy, a i ʻole MSA.
I ka ʻōlelo maʻalahi, he aha ka Multiple System Atrophy (MSA)?
ʻO ka Multiple System Atrophy (MSA) kahi maʻi e hoʻopilikia ai i kā mākou ʻōnaehana nerve. Hoʻopilikia ia i nā kaʻina hana aunoa o ko mākou kino, no ka laʻana, ka kaohi ʻana i nā neʻe ʻana a me ka mālama ʻana i ke kaulike . He maʻi laha ʻole ia.
ʻO ka mea kaumaha, ʻaʻohe lāʻau lapaʻau piha no kēia maʻi. Akā, mai hopohopo, me ka mālama pono ʻana i nā lāʻau lapaʻau a me nā hoʻololi liʻiliʻi i ko kākou nohona , hiki ke hoʻomalu ʻia kēia mau hōʻailona a hiki ke maʻalahi ke ola.
He aha nā hōʻailona o MSA?
Hoʻomaka pinepine nā hōʻailona o kēia maʻi e ʻike ʻia ma waena o nā makahiki 50 a me 60. Hoʻohuihui kekahi poʻe i nā maʻi ʻelua no ka mea ua like iki nā hōʻailona mua me nā maʻi o Parkinson .
| Nā hōʻailona mua nui | |
|---|---|
| Nā pilikia neʻe | Ka neʻe lohi o ke kino, ka ʻoʻoleʻa o nā ʻiʻo, a me ka haʻalulu. |
| Kaulike | Ka nalowale o ke kaulike a me ka hele wāwae ʻole i ka wā e hele ana a i ʻole e hana ana i ka hana. |
| Paʻakikī i ka ʻōlelo ʻana | Nā mea e like me ka leo haʻalulu a me ka hū ʻole o nā huaʻōlelo. |
| Nā pilikia koko | Ka mae ʻana a i ʻole ka poniuniu, ʻoiai ke kū koke ʻana mai ka noho ʻana. |
| Nā pilikia o ka ʻōnaehana mimi | Ka pono koke e mimi a i ʻole ka hiki ʻole ke hoʻokuʻu loa i ka ʻōpū mimi. |
Ma waho aʻe o kēia, hiki ke loaʻa nā hopena ʻē aʻe.
Ma waho aʻe o kēia mau hōʻailona nui, hiki ke hoʻopilikia ʻia nā kaʻina hana ʻē aʻe i loko o ke kino.
- Ua emi ka hou ʻana , ka waimaka , a me ka salivation.
- Ka paʻa ʻana o ka ʻōpū a i ʻole ka hiki ʻole ke kaohi i ka neʻe ʻana o ka ʻōpū .
- ʻO ka hana ʻino o ka ʻōpū (ED).
- Ke hoʻōki nei i ka hanu ʻana i ka wā hiamoe (sleep apnea) a i ʻole ka hana ʻana i waho o ka hiamoe, e like me ka uē ʻana a i ʻole ke kuʻi ʻana i kou mau lima a me kou mau wāwae.
- Hanu ʻū.
- Nā lima a me nā wāwae anu a ʻeleʻele paha.
- Ka paʻakikī i ka hoʻokele ʻana i nā manaʻo, ka hopohopo, a i ʻole ke kaumaha.
ʻElua ʻano nui o ka maʻi MSA.
Ma muli o kāu mau hōʻailona nui, e hoʻoholo kāu kauka i ke ʻano o ka MSA āu.
| ʻAno MSA | Nā hiʻohiʻona nui |
|---|---|
| ʻAno Parkinsonian (MSA-P) | ʻO kēia ke ʻano maʻamau. Ua like loa nā hōʻailona nui me ka maʻi o Parkinson. ʻO ka ʻoʻoleʻa o nā ʻiʻo, ka lohi o ka neʻe ʻana, ka haʻalulu, a me nā pilikia kaulike nā mea nui. |
| ʻAno Cerebellar (MSA-C) | ʻO ka hōʻailona nui ka nalowale o ka hoʻonohonoho ʻana a me ke kaulike. Hiki iā ia ke pilikia i ka ʻōlelo ʻana, ka moni ʻana, a me ka ʻike maka pōwehiwehi. |
Pehea e ʻike ai i kēia maʻi?
Hiki ke paʻakikī iki ka ʻike ʻana i ka MSA i ka wā mua no ka mea, e like me kā mākou i ʻōlelo ai ma mua, ua like loa kona mau hōʻailona me ka maʻi o Parkinson. No laila, pono ʻoe e ʻike i kahi neurologist .
E nānā kāu kauka iā ʻoe, e kamaʻilio e pili ana i kāu mau hōʻailona, a e nānā i nā loli i kou lolo a me kou ʻōnaehana nerve. No ka hōʻoia ʻana inā he MSA a Parkinson paha kāu, hiki iā lākou ke hana i kēia mau hoʻokolohua:
- Hoʻāʻo Autonomic: He hoʻāʻo kūikawā e nānā i ka hana o ka ʻōnaehana nerve.
- MRI scan: No ka ʻike inā he mau loli i loko o ka lolo.
- Ana o ke koko: Ana ʻia ke koko i ka wā e noho ana a kū ana.
- Hoʻāʻo ECG: No ka nānā ʻana i nā hōʻailona uila o ka puʻuwai.
- Nā hoʻāʻo hou: Ke hoʻāʻo nei pehea e hou ai ke kino.
He aha ke kumu o ka MSA?
I ka ʻōlelo maʻalahi, hoʻomohala ke kanaka me MSA i kahi hōʻiliʻili o kahi protein kūikawā i loko o nā pūnaewele e kākoʻo ana i nā pūnaewele nerve i loko o ka lolo. ʻO kēia ke kumu o ka emi mālie ʻana a make paha o nā ʻāpana o ka lolo a me ke kaula spinal. Wahi a nā loea, ʻaʻole ʻike ʻia ke kumu pololei o kēia maʻi.
Nā pilikia e hiki mai ana ma muli o ka maʻi
No nā mea he nui, hiki i nā hōʻailona ke lilo i mau pilikia koʻikoʻi i loko o kekahi mau makahiki, no laila he mea nui e ʻike i kēia mau mea.
- Ka paʻakikī e hana i nā hana o kēlā me kēia lā.
- Nā pilikia hanu, ʻoiai nā kūlana e like me ka 'Sleep apnea'.
- Hāʻule pinepine.
- Hoʻonui mālie ka paʻakikī o ka neʻe ʻana, e koi ana i ka hoʻohana ʻana i ka noho huila a i ka hopena hiki ʻole ke ala i waho o kahi moe.
- Ka lolo ʻana o nā kaula leo.
- ʻAʻole hiki ke ale i ka meaʻai.
- Nā maʻi māmā e like me ka niumonia.
- Nā maʻi ʻōpū mimi.
- Nā ʻūpā koko.
ʻOkoʻa ka lōʻihi o ka manawa e hiki ai i ke kanaka ke ola me ka maʻi mai kēlā kanaka a kēia kanaka. Hiki i kekahi poʻe ke ola no 15 mau makahiki a ʻoi aku paha. ʻO ka make pinepine ma muli o nā pilikia mai nā pilikia hanu.
Pehea e mālama ai a hoʻokele
ʻOiai ʻaʻohe lāʻau lapaʻau kūikawā no MSA, ʻo ka pahuhopu nui o ka mālama ʻana, ʻo ia ke kāohi i nā hōʻailona a hoʻolilo i ke ola i mea ʻoluʻolu e like me ka hiki.
Nā lāʻau lapaʻau a me ka mālama olakino
- ʻO nā lāʻau lapaʻau e like me ka levodopa, ka mea i hoʻohana ʻia e mālama i ka maʻi o Parkinson, hiki i kekahi manawa ke kōkua i ka kaohi ʻana i nā haʻalulu, ka ʻoʻoleʻa, a me nā neʻe lohi.
- Hiki i ke kauka ke kuhikuhi i nā lāʻau lapaʻau e like me 'droxidopa', 'fludrocortisone', a i ʻole 'midodrine' e kaohi i ke koko.
- I kekahi manawa pono paha kahi pacemaker e hoʻoponopono i ka helu o ka puʻuwai.
- Hiki i nā lāʻau lapaʻau e like me mirabegron a i ʻole oxybutynin ke kōkua i ka kaohi ʻana i ka mimi. I kekahi manawa pono paha kahi catheter e kōkua iā ʻoe e hoʻohele i ka mimi.
- Loaʻa pū nā lāʻau lapaʻau no ka hana moekolohe.
Nā lāʻau lapaʻau
- Hiki i ka hoʻoikaika kino a me ka hoʻoikaika kino ke mālama i nā ʻiʻo ikaika a maʻalahi.
- Hiki i ka hana hoʻoponopono hana ke kōkua iā ʻoe e aʻo pehea e hana ai i nā hana o kēlā me kēia lā me ka maʻalahi.
- Kōkua ka ʻōlelo lapaʻau i nā pilikia hele wāwae a me ka ʻōlelo ʻana.
Nā mea hiki iā ʻoe ke hana iā ʻoe iho ma ka home
Hiki i kēia mau mea ke kōkua i ka maʻalahi o kou ola, akā mai poina e kamaʻilio me kāu kauka ma mua o ka hana ʻana i kekahi mea.
- No ka hoʻonui ʻana i ke koko, e hoʻohui i kahi paʻakai hou aʻe i kāu meaʻai a inu i ka wai he nui.
- Ke komo ʻana i nā kāʻei hoʻopaʻa kūikawā e kōkua i ke kahe koko.
- E pale i ke ala koke ʻana mai ka noho ʻana a i ʻole ka moe ʻana. E ala mālie.
- E hoʻokiʻekiʻe iki i ke poʻo o ka moena i ka wā e hiamoe ana.
- E ʻai i nā meaʻai momona i ka fiber, nā mea kanu, a me nā huaʻai no ka paʻa ʻana o ka ʻōpū.
- E pale i ka wela nui ʻana o ke kino.
- E neʻe i ka hiki ke pale aku i nā ʻūpā koko.
Leka Lawe-Home
- He maʻi koʻikoʻi ka Multiple System Atrophy (MSA) e hoʻopilikia ana i ka ʻōnaehana nerve.
- Ma muli o ke ʻano like o nā hōʻailona mua me ka maʻi o Parkinson, he mea nui e ʻike i kahi neurologist e ʻike pololei i ka maʻi.
- ʻOiai ʻaʻohe lāʻau lapaʻau piha no kēia maʻi, hiki i nā lāʻau lapaʻau, nā hana lapaʻau, a me nā loli o ke ʻano o ka nohona ke kaohi i nā hōʻailona a hoʻomaʻalahi i ke ola.
- Inā loaʻa iā ʻoe a i ʻole kekahi āu i ʻike ai kēia mau hōʻailona, mai hopohopo a e ʻimi koke i ke kōkua lapaʻau. He mea nui loa ke kākoʻo a me ke aloha o nā ʻohana i ka mea maʻi i kēia manawa.
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