E noʻonoʻo, ua hauʻoli loa kāu keiki a maʻamau a hiki i nehinei. Akā i kēia kakahiaka ua ala ʻo ia a lilo i kanaka ʻokoʻa loa. Uē koke ʻo ia, huhū, ʻaʻole makemake e haʻalele iā ʻoe no kekahi manawa ... a i kekahi manawa hana hou i ka mea like. Ke ʻike nei i kahi mea e like me kēia, makaʻu loa nā makuahine a me nā makuakāne, ʻeā? ʻO ke kumu o kēia paha kekahi mea āu i noʻonoʻo ʻole ai. ʻO ia ke ʻano i kapa ʻia ʻo PANDAS Syndrome. E kamaʻilio kākou e pili ana i kēia me ka maʻalahi a me ka maopopo.
He aha maoli ka PANDAS Syndrome?
I ka ʻōlelo maʻalahi, he maʻi neurological a me psychiatric ka PANDAS e kū mai ana i kekahi mau keiki ma hope o ko lākou loaʻa ʻana i ka maʻi strep throat. ʻO ka huaʻōlelo PANDAS he acronym no Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections. ʻOiai paha e like me ka paʻakikī o ka inoa, he maʻalahi loa ke kumu.
Manaʻo kā mākou mau kauka he maʻi autoimmune kēia. ʻO ia ke ʻano. Ke loaʻa i kahi keiki ka bacteria strep, hoʻomaka ka ʻōnaehana pale o ko mākou kino, ʻo ia hoʻi ka ʻōnaehana pale, e hakakā me kēia bacteria. Akā i kekahi manawa, ua like loa kekahi mau ʻāpana o kēia mau bacteria strep me nā ʻāpana o nā cell olakino i loko o ko mākou lolo. No laila , hoʻomaka kā mākou ʻōnaehana pale, ka mea e hele hihiu ana, e hoʻouka i ka bacteria a, ma ke kuhihewa, hoʻomaka e hoʻouka i kā mākou mau cell lolo olakino. ʻO ia ka manawa e ʻike ai mākou i kēia mau loli koke o ke ʻano.
ʻIke pinepine ʻia kēia ʻano maʻi i nā keiki ma waena o 3 a me 12 mau makahiki. Eia nō naʻe, hiki ke loaʻa i nā keiki makua. He ʻano kakaikahi loa kēia. No laila, he mea nui loa ia e makaʻala piha i kēia ma mua o ka hopohopo.
He aha nā hōʻailona o kēia? Pehea ʻoe e ʻike ai?
ʻO ke ʻano nui o PANDAS, ʻo ia ka hoʻomaka koke ʻana o nā mea āpau, kokoke i ka pō hoʻokahi. Hoʻololi nui ke ʻano o ke keiki. Hiki i kēia mau hōʻailona ke mau no kekahi mau lā a i ʻole mau pule. I kekahi manawa hiki iā lākou ke emi a laila e ʻike hou ʻia.
E nānā i ka papa ma lalo no nā hōʻailona nui.
| ʻAno hiʻohiʻona | Nā mea hiki ke ʻike ʻia mai kahi keiki |
|---|---|
| Nā loli o ka hana (e like me OCD) | Nā ʻano hana hoʻomake e like me ka holoi lima pinepine ʻana, ka nīnau ʻana i ka nīnau like i nā manawa he nui, a me ka nānā mau ʻana inā ua laka ʻia nā puka (Obsessive-Compulsive Disorder - OCD) |
| Nā pilikia naʻau | Ka makaʻu nui i ka hoʻokaʻawale ʻia ʻana mai nā mākua mai (ka hopohopo no ke kaʻawale ʻana), ka huhū koke ʻana, ka uē ʻana, a me ka ʻakaʻaka me ka manaʻo ʻole. |
| Nā neʻe kino (Tics) | Nā neʻe koke a ʻoniʻoni hoʻi e like me ka ʻimo ʻana me ke kāohi ʻole ʻia, ka wili ʻana o ka ʻāʻī, a me ka hāpai ʻana i ka poʻohiwi. |
| Nā pilikia hoʻonaʻauao | Paʻakikī i ke kākau ʻana, kaha kiʻi ʻana, hiki ʻole ke noʻonoʻo i ka hana kula, e hōʻike ana i nā hōʻailona o ADHD. |
| Nā hiʻohiʻona ʻē aʻe | Ka nalowale ʻana o ka makemake e ʻai, nā pilikia hiamoe, ka pulu ʻana i ka moena, ka ʻeha o nā hono, a me ka ʻike i ka mālamalama. |
He aha ka ʻokoʻa ma waena o PANS a me PANDAS?
Ua lohe paha ʻoe i ka huaʻōlelo PANS. ʻO PANDAS kahi maʻi e pili ana i kahi māhele ākea i kapa ʻia ʻo PANS (Pediatric Acute-Onset Neuropsychiatric Syndrome). Loaʻa i nā PANS nā hōʻailona like me PANDAS. Eia naʻe, ʻaʻole pono ia e hana ʻia e ka maʻi strep. Hiki ke hana ʻia ʻo PANS e nā maʻi ʻē aʻe, nā kumu kaiapuni, a i ʻole nā pilikia ʻē aʻe me ka ʻōnaehana pale.
Pehea e ʻike ai ke kauka i ka PANDAS?
Hiki ke paʻakikī ka ʻike ʻana i ka PANDAS no ka mea ʻaʻohe hoʻāʻo kikoʻī e hōʻoia i ia mea. E nānā pono kāu kauka i kāu keiki, e nīnau iā ʻoe e pili ana i kāu mau hōʻailona, a e kāpae i nā kūlana ʻē aʻe. Hiki ke hana ʻia nā hoʻāʻo aʻe:
- He hoʻāʻo ka swab ʻāʻī e nānā ai no ka bacteria strep.
- Nā hoʻāʻo koko e nānā i ka hana o ka ʻōnaehana pale.
- I kekahi manawa he scan lolo.
- E ʻimi i ke kōkua o kahi loea olakino noʻonoʻo e hōʻoia i ʻaʻohe pilikia olakino noʻonoʻo ʻē aʻe.
ʻO ka mea nui, inā ʻaʻole i loaʻa i ke keiki a ʻaʻohe paha i loaʻa i kēia manawa kahi maʻi strep, ʻaʻole hiki ke lilo i PANDAS. Akā, ʻo kēlā mau hōʻailona he maʻi i kapa ʻia ʻo PANS. No laila, he mea nui e ʻike i ke kauka a ʻimi i ka ʻōlelo aʻo i kēlā me kēia hihia.
He aha nā lāʻau lapaʻau no kēia?
ʻO ka wikiwiki o ka ʻike ʻia ʻana a me ka mālama ʻia ʻana o kēia maʻi, ʻoi aku ka maikaʻi o ka manawa e hoʻōla ai ke keiki. ʻO ka maʻamau, pili ka lāʻau lapaʻau i ka hui pū ʻana o ka lāʻau lapaʻau a me ka therapy.
| ʻAno lapaʻau | I ka ʻōlelo maʻalahi... |
|---|---|
| Nā lāʻau lapaʻau | ʻO ka mea mua āu e hana ai, ʻo ia ka hāʻawi ʻana i nā lāʻau antibiotic e pepehi i ka maʻi strep. Pono ʻoe e lawe i kēia mau mea no hoʻokahi a ʻelua pule. |
| Ka Lapaʻau Hana Noʻonoʻo (CBT) | Kōkua kēia i ka hoʻomalu ʻana i nā ʻano OCD a me nā makaʻu o ke keiki. Aʻo ia i ke keiki pehea e hana ai me kēlā mau manaʻo. |
| Nā lāʻau anti-inflammatory | Hiki ke hāʻawi ʻia nā pila steroid a i ʻole NSAID e like me ka ibuprofen e hōʻoluʻolu i ka ʻōnaehana pale kino overactive. |
| Nā lāʻau hoʻēmi kaumaha | Hiki ke hāʻawi ʻia nā lāʻau SSRI e kāohi i nā hōʻailona OCD. Eia nō naʻe, pono e hoʻohana wale ʻia ma lalo o ka nānā ʻana a ke kauka , no ka mea, hiki iā lākou ke hana i nā hopena ʻaoʻao i nā keiki me PANDAS. |
| IVIG / Plasmapheresis | Inā ʻaʻole holomua nā lāʻau ʻē aʻe, a koʻikoʻi loa nā hōʻailona, hoʻohana ʻia kēia mau ʻano hana e 'hoʻonohonoho hou' i ka ʻōnaehana pale. He mau lāʻau paʻakikī loa kēia. |
E ʻoi aku ka maikaʻi o kēia kūlana? He aha kā mākou e hana ai ma ke ʻano he mau mākua?
ʻAe, ʻo kēia ka nūhou maikaʻi loa. Hoʻōla piha ka hapa nui o nā keiki me ka mālama kūpono. Ma hope o ka hoʻōla ʻia ʻana o kahi maʻi strep, e emi mālie nā hōʻailona i loko o kekahi mau mahina. Akā i kekahi manawa hiki iā lākou ke hoʻomaikaʻi a laila hoʻi hou mai.
ʻO ka mea nui loa, inā loaʻa hou i kāu keiki kahi maʻi strep, ʻoi aku ka nui o ka hiki ke hoʻi hou mai nā hōʻailona PANDAS. No laila, ʻo kāu kuleana ke pale i kāu keiki mai nā maʻi.
E hana i kēia mau mea:
- E hoʻomaʻamaʻa i nā hana hoʻomaʻemaʻe maikaʻi , e like me ka holoi pinepine ʻana i kou mau lima a me ka noho mamao aku mai ka poʻe maʻi.
- E hoʻololi pinepine i kou pulumu niho.
- I kekahi manawa, hiki i nā lālā ʻē aʻe o ka ʻohana ke loaʻa i ka bacteria strep me ka ʻole o nā hōʻailona (nā mea lawe). Inā pono, e kamaʻilio me kāu kauka e pili ana i ka hoʻāʻo ʻana i nā mea āpau o kou ʻohana.
Paipai kekahi mau kauka i nā lāʻau antibiotic lōʻihi e pale aku i nā maʻi e hiki mai ana, aʻo kekahi e paipai i ka tonsillectomy, akā ke noiʻi ʻia nei ka pono o kēia mau ʻano hana.
Leka Lawe-Home
- He maʻi neurological a me ka noʻonoʻo maoli ka PANDAS Syndrome i hiki ke hoʻoulu ʻia e ka maʻi strep strep.
- ʻO ka hōʻailona nui ka loli koke a koʻikoʻi i ke ʻano o ke keiki olakino ma mua.
- Inā ʻike ʻoe i kēia mau hōʻailona i kāu keiki, mai hopohopo a hopohopo paha, akā e ʻike koke i ke kauka lapaʻau.
- Me ka mālama kūpono, hoʻōla piha ka hapa nui o nā keiki.
- He mea nui ka pale ʻana i kāu keiki mai ka loaʻa hou ʻana o ka maʻi ʻāʻī i mea e pale ai i ka hoʻi hou ʻana mai o ka maʻi.
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