Koj puas muaj mob thiab kub hnyiab ntawm koj daim tawv nqaij thaum raug tshav ntuj? Rau qee tus neeg, qhov no tsis yog ib txwm muaj, thiab nws tuaj yeem yog ib qho tsos mob ntawm tus mob tsis tshua muaj hu ua Erythropoietic Protoporphyria (EPP) . Rau ib tus neeg uas muaj tus mob no, tshav ntuj yog ib qho kev mob heev. Hnub no, peb yuav tham txog ib yam tshuaj tshwj xeeb uas tau muab los pab cov neeg zoo li no, tab sis nrog txoj hauv kev sib txawv me ntsis.
Kev txhaj tshuaj Afamelanotide yog dab tsi?
Hais yooj yim xwb, Afamelanotide yog ib yam tshuaj uas pab txo qhov kev puas tsuaj rau koj daim tawv nqaij los ntawm lub hnub thiab qhov mob uas nws ua rau. Nws yog siv tshwj xeeb rau cov neeg uas muaj tus mob uas peb tau hais ua ntej hu ua Erythropoietic Protoporphyria (EPP).
Xav txog seb, EPP yog ib yam mob tsis tshua muaj tshwm sim los ntawm kev ua rau caj ces. Hauv qhov no, cov tshuaj hu ua 'protoporphyrin' hauv peb lub cev sib sau ua ke ntau heev hauv cov ntshav. Thaum cov neeg no tawm mus rau hauv lub hnub, cov tshuaj ntawd raug ua haujlwm thiab ua rau daim tawv nqaij puas tsuaj, ua rau mob hnyav thiab o. Cov tshuaj Afamelanotide ua haujlwm los ntawm kev ua kom cov tawv nqaij tiv thaiv cov xim (melanin) ntau ntxiv thiab ua rau nws muaj peev xwm tiv taus lub hnub ci ntau ntxiv. Yog li ntawd, nws muaj peev xwm tawm mus rau qee qhov yam tsis muaj mob. Cov tshuaj no tau muag hauv lub npe SCENESSE .
Tej yam koj yuav tsum qhia rau koj tus kws kho mob ua ntej koj yuav kho qhov teeb meem no
Qhov no tsis yog tshuaj ntsiav los yog tshuaj pleev. Nws yog ib qho me me uas muab tso rau hauv qab daim tawv nqaij. Yog li ntawd, nws yog ib qho tseem ceeb heev uas yuav tsum tham nrog koj tus kws kho mob ua ntej pib kho qhov kev kho mob no. Nco ntsoov qhia rau nws txog cov hauv qab no.
- Txog koj cov kev ua xua: Nco ntsoov qhia rau peb yog tias koj muaj kev ua xua rau Afamelanotide xwb, tab sis rau lwm yam tshuaj, khoom noj, tshuaj tiv thaiv, lossis xim.
- Yog tias koj cev xeeb tub lossis tab tom sim cev xeeb tub: Tseem tsis tau paub meej tias cov tshuaj no yuav cuam tshuam li cas rau cev xeeb tub. Yog li ntawd, nws yog ib qho tseem ceeb uas yuav tsum qhia rau koj tus kws kho mob yog tias koj cev xeeb tub lossis tab tom yuav muaj menyuam hauv lub sijhawm luv luv.
- Yog koj yog niam pub niam mis: Tsis paub meej tias cov tshuaj no puas hla mus rau hauv niam mis. Yog li ntawd, rau kev nyab xeeb ntawm koj tus menyuam, qhia rau koj tus kws kho mob yog tias koj yog niam pub niam mis ua ntej kho mob.
Koj siv cov tshuaj no li cas?
Qhov no tsis yog tshuaj uas koj tuaj yeem nqa mus tsev. Qhov no yog ib qho me me uas cog rau hauv. Qhov cog no, loj li ib lub noob mov, raug muab tso rau hauv qab daim tawv nqaij ntawm koj lub plab los ntawm tus kws kho mob uas tau kawm tiav.
- Qhov chaw ntxig yuav tsum tau khaws cia kom huv thiab qhuav rau 24 teev . Qhov no txhais tau tias nws yuav tsum tsis txhob raug dej.
- Feem ntau tom qab ob lub hlisTus kws kho mob yuav tshem cov hniav cuav qub tawm. Yog tias koj xav tau kev kho mob txuas ntxiv, koj tuaj yeem muab cov hniav cuav tshiab tso rau hauv qhov chaw ntawd.
- Yuav tsum tau ceev faj tshwj xeeb thaum muab cov tshuaj no rau menyuam yaus, yog li nrog koj tus kws kho mob tham txog nws.
Lus Cim Tseem Ceeb: Cov tshuaj no tsuas yog muab rau koj xwb. Tsis txhob muab rau lwm tus siv txawm yog vim li cas los xij.
Yuav ua li cas thaum muaj xwm txheej ceev?
Nco ntsoov, yog tias koj xav tias koj tau noj cov tshuaj no ntau dhau, tsis txhob ntshai. Mus rau chav kho mob ceev (ETU) tam sim ntawd. Los yog, hu rau National Poisons Information Centre ntawm Colombo National Hospital kom tau txais lus qhia.
Tej yam yuav tsum xav txog thaum mus kho mob
Nws yog ib qho tseem ceeb uas yuav tsum tau saib xyuas koj lub cev me ntsis thaum lub sijhawm kho mob no.
- Kev kuaj mob tsis tu ncua: Nco ntsoov mus kuaj mob raws li hnub uas koj tus kws kho mob muab rau koj. Qhia rau koj tus kws kho mob yog tias koj cov tsos mob tsis zoo dua lossis yog tias lawv zoo li hnyav zuj zus.
- Kev kuaj tawv nqaij: Cov tshuaj no yuav ua rau koj cov tawv nqaij, cov quav hnav, thiab cov moles tsaus dua. Yog li ntawd, nws yog ib qho tseem ceeb uas yuav tsum tau kuaj koj cov tawv nqaij tag nrho los ntawm kws kho mob tsawg kawg yog ob zaug hauv ib xyoos .
- Kev rho tawm ntawm cov khoom cog: Tsis tshua muaj, cov khoom cog no, uas nyob hauv qab daim tawv nqaij, tuaj yeem tawm (expel) nws tus kheej. Yog tias koj xav tias cov khoom cog tau tawm los, hu rau koj tus kws kho mob tam sim ntawd.
Cov kev mob tshwm sim uas yuav tshwm sim los ntawm kev siv tshuaj
Ib yam li lwm yam tshuaj, muaj qee yam kev phiv. Cia peb saib seb lawv yog dab tsi. Cov no muaj ob pawg tseem ceeb.
| Hom kev phiv tshuaj | Kev piav qhia |
|---|---|
| Tej yam yuav tsum qhia rau koj tus kws kho mob tam sim ntawd | |
| Kev ua xua | Tawv nqaij ua pob khaus, khaus los yog tawm pob liab, o ntawm lub ntsej muag, daim di ncauj los yog tus nplaig. |
| Mob ntawm qhov chaw cog hniav | Mob heev ntawm qhov chaw ntxig. |
| Tej yam uas feem ntau tsis loj heev, tab sis yuav tsum tau qhia rau kws kho mob yog tias lawv tseem muaj | |
| Ntau yam nta | Hnoos, kiv taub hau, tsaug zog tsis taus, xeev siab, qaug zog. |
| Kev hloov pauv ntawm qhov chaw implant | Liab los yog mob me ntsis/kub hnyiab ntawm qhov chaw ntxig. |
Daim ntawv teev npe no tsis suav nrog txhua yam kev mob tshwm sim uas yuav tshwm sim. Yog tias koj pom muaj dab tsi txawv txawv, thov hu rau koj tus kws kho mob kom tau lus qhia.
Puas muaj teeb meem nrog lwm cov tshuaj?
Tam sim no tsis muaj lus tshaj tawm tias cov tshuaj no ua rau muaj kev sib cuam tshuam nrog lwm cov tshuaj. Txawm li cas los xij, qhov ntawd tsis tau txhais hais tias koj tsis tas yuav qhia koj tus kws kho mob txog txhua yam tshuaj uas koj noj.
Muab daim ntawv teev txhua yam uas koj siv rau koj tus kws kho mob. Nws yuav tsum muaj cov hauv qab no:
- Cov tshuaj kho mob rau lwm yam kab mob
- Cov tshuaj uas tsis yog kws kho mob sau
- Cov tshuaj ib txwm muaj, cov tshuaj ntsuab
- Cov vitamins thiab cov khoom noj khoom haus ntxiv
Tsis tas li ntawd xwb, nco ntsoov qhia rau koj tus kws kho mob yog tias koj haus luam yeeb, haus cawv, lossis siv lwm yam tshuaj yeeb tsis raug cai. Muaj qee yam uas tuaj yeem cuam tshuam nrog koj cov tshuaj.
Cov Lus Qhia Txog Kev Coj Mus Tsev
- Afamelanotide yog ib yam tshuaj tshwj xeeb uas txo qhov mob ntawm cov tawv nqaij uas rhiab heev rau lub hnub uas tshwm sim los ntawm ib yam mob tsis tshua muaj hu ua Erythropoietic Protoporphyria (EPP).
- Qhov no tsis yog tshuaj uas koj coj mus tsev, tab sis yog ib qho tshuaj me me uas tus kws kho mob tau kawm tiav muab tso rau hauv qab daim tawv nqaij.
- Ua ntej pib kho mob, qhia rau koj tus kws kho mob txog txhua yam kev ua xua uas koj muaj, txawm tias koj cev xeeb tub lossis pub niam mis, thiab txhua yam tshuaj uas koj noj.
- Thaum lub sijhawm kho mob, yuav tsum paub txog tej kev hloov pauv ntawm cov xim tawv nqaij. Xyuas koj cov tawv nqaij tsawg kawg yog ob zaug hauv ib xyoos. Yog tias qhov implant poob tawm ntawm nws tus kheej, qhia rau koj tus kws kho mob tam sim ntawd.
- Yog tias koj muaj cov tsos mob ua xua hnyav, xws li lub ntsej muag o, nrhiav kev pab kho mob tam sim ntawd.
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Tsis muaj lus teb tau muab tso tawm. Ntxiv koj cov lus tawm ntawm no thawj zaug.
Ntxiv koj cov lus