Thaum koj tus kws kho mob qhia rau koj lossis koj tus menyuam tias koj muaj ib yam mob hu ua Hypophosphatasia (HPP), tej zaum lawv yuav qhia koj kom siv tshuaj tiv thaiv kab mob hu ua Asfotase alfa (Strensiq) ua kev kho mob. Nws yog ib qho ib txwm muaj uas yuav ntshai thiab ntxhov siab me ntsis thaum koj hnov txog tshuaj tiv thaiv kab mob thiab yuav noj nws li cas txhua hnub. Tab sis tsis txhob txhawj. Hauv tsab xov xwm no, peb yuav tham txog cov tshuaj no, yuav siv nws li cas, thiab yuav tsum ceev faj txog dab tsi.
Asfotase alfa (Strensiq) yog dab tsi tiag?
Hais yooj yim xwb, qhov no tsis zoo li cov tshuaj uas peb feem ntau siv. Hauv ib qho mob hu ua Hypophosphatasia (HPP), muaj kev txo qis lossis poob ntawm cov enzyme uas tseem ceeb rau kev loj hlob zoo ntawm cov pob txha thiab cov hniav hauv peb lub cev. Yog li, Asfotase alfa yog ib qho kev kho mob uas muab lub cev nrog cov enzyme txo qis los ntawm sab nraud. Qhov no yog ib qho kev kho mob uas tswj cov tsos mob thiab pab koj ua neej noj qab haus huv, es tsis yog kho tus kab mob kom tag nrho. Hauv lwm lo lus, qhov no yog ib qho kev kho mob uas tswj tus kab mob, tsis yog kev kho mob.
Tej yam yuav tsum qhia rau koj tus kws kho mob ua ntej noj cov tshuaj no
Ua ntej koj pib kho qhov no, koj yuav tsum tham txog cov teeb meem no nrog koj tus kws kho mob.
- Yog tias koj muaj pob zeb hauv lub raum lossis lwm yam mob ntsig txog lub raum.
- Yog tias koj ua xua rau Asfotase alfa lossis lwm yam tshuaj, khoom noj, lossis xim zas.
- Yog tias koj cev xeeb tub lossis tab tom yuav muaj menyuam .
- Yog koj yog ib leej niam pub niam mis .
Cov ntaub ntawv no tseem ceeb heev rau tus kws kho mob kom muab kev kho mob zoo tshaj plaws thiab muaj kev nyab xeeb tshaj plaws rau koj.
Yuav siv cov tshuaj tiv thaiv kab mob li cas kom raug?
Cov tshuaj tiv thaiv no yog muab rau hauv daim tawv nqaij. Tsis txhob ntshai qhov no. Tus kws kho mob lossis tus kws tu mob uas tau kawm tiav yuav piav qhia meej txog txoj hauv kev kom raug los muab qhov no rau koj. Yog li koj yuav tau txais kev cob qhia tsim nyog kom txog thaum koj ua tau koj tus kheej.
- Noj tshuaj kom raug, thaum lub sijhawm raug: Noj tshuaj kom raug, thaum lub sijhawm raug, raws li koj tus kws kho mob tau hais. Tsis txhob nce qhov koob tshuaj lossis siv nws ntau zaus dua li tau hais.
- Cov koob txhaj tshuaj thiab cov koob txhaj tshuaj uas siv lawm: Cov no tseem ceeb heev. Tsis txhob muab cov koob txhaj tshuaj thiab cov koob txhaj tshuaj uas siv lawm pov tseg rau hauv lub thoob khib nyiab. Muaj ib lub thawv tshwj xeeb rau lawv, hu ua 'sharps container.' Yog tias koj tsis muaj ib lub, nug koj tus kws kho mob lossis tus nais maum kom muab ib lub rau koj.
- Siv rau cov menyuam yaus:Cov tshuaj no siv rau cov menyuam yaus thiab cov menyuam mos raws li cov lus qhia ntawm tus kws kho mob. Txawm li cas los xij, muaj cov kev ceev faj tshwj xeeb. Tham nrog koj tus kws kho mob menyuam yaus txog nws.
- Yog tias koj noj tshuaj ntau dhau lawm, yuav ua li cas? Yog tias koj tsis txhob txwm noj tshuaj ntau dua li koj xav tias koj yuav tsum tau, hu rau Lub Chaw Qhia Txog Tshuaj Lom Hauv Tebchaws ntawm Tsev Kho Mob Hauv Tebchaws Colombo tam sim ntawd. Los yog mus rau Chav Kho Mob Thaum Muaj Xwm Ceev (ETU) ntawm tsev kho mob ze tshaj plaws.
- Yog koj tsis nco qab noj ib zaug li cas? Yog koj tsis nco qab noj ib zaug, noj sai li sai tau thaum koj nco qab. Txawm li cas los xij, yog tias yuav luag txog lub sijhawm noj tshuaj tom ntej, hla lub sijhawm uas koj tsis nco qab noj thiab noj koj cov tshuaj tom ntej raws sijhawm teem tseg. Tsis txhob noj ob zaug tib lub sijhawm.
Cov tshuaj no tsuas yog muab rau koj xwb. Tsis txhob muab rau lwm tus.
Cov kev mob tshwm sim ntawm kev noj tshuaj yog dab tsi?
Ib yam li lwm yam tshuaj, Asfotase alfa tuaj yeem ua rau muaj qee yam kev mob tshwm sim. Qee qhov no yog qhov hnyav, thaum lwm tus yog qhov tshwm sim ntau. Nws yog ib qho tseem ceeb uas yuav tsum paub txog cov no.
| Cov teebmeem sab nraud | Kev piav qhia |
|---|---|
| Cov kev mob tshwm sim loj heev uas yuav tsum tau qhia rau koj tus kws kho mob tam sim ntawd | |
| Kev ua xua | Cov tsos mob xws li tawv nqaij ua pob khaus, khaus, o ntawm lub ntsej muag, daim di ncauj, lossis tus nplaig. |
| Ntshav nyob rau hauv cov zis | Mob plab qis lossis mob nraub qaum, mob thaum tso zis, thiab muaj ntshav hauv cov zis. |
| Kev hloov pauv ntawm qhov muag pom kev | Pom kev tsis meej lossis lwm yam kev hloov pauv. |
| Kub taub hau los yog mob khaub thuas | Kub taub hau los yog mob khaub thuas tsis muaj laj thawj. |
| Ntuav | ntuav tas li. |
| Cov kev mob tshwm sim uas feem ntau tsis loj heev (tab sis yuav tsum tau qhia rau tus kws kho mob yog tias lawv tseem muaj) | |
| Mob taub hau, xeev siab, tsis so | Cov no feem ntau tuaj thiab mus. |
| Mob/liab ntawm qhov chaw txhaj tshuaj | Mob, mob nqaij doog, liab, lossis o ntawm qhov chaw txhaj tshuaj. |
| Tawv nqaij tuab los yog pob | Kev txhaj tshuaj rau tib qho chaw txhaj tshuaj ntau zaus yuav ua rau daim tawv nqaij tuab lossis ua qhov. Yog li ntawd, tig qhov chaw txhaj tshuaj. |
Yuav ua li cas khaws cov tshuaj kom raug?
Nws yog ib qho tseem ceeb heev uas yuav tsum khaws cov tshuaj no kom raug.
- Khaws cia rau hauv lub tub yees: Ib txwm khaws cov tshuaj uas tsis tau qhib rau ntawm qhov kub ntawm 2 thiab 8 degrees Celsius, uas yog, rau hauv qhov chaw ib txwm ntawm lub tub yees.
- Tsis txhob khov: Tsis txhob khaws cia rau hauv lub tub yees. Tsis txhob cia cov tshuaj khov.
- Tsis txhob co: Tsis txhob co lub raj mis ua ntej siv.
- Tiv thaiv kom tsis txhob raug lub teeb: Khaws lub raj tshuaj rau hauv nws lub thawv kom txog thaum nws yog lub sijhawm siv nws thiab tiv thaiv nws kom tsis txhob raug lub teeb.
- Tom qab siv: Yuav tsum siv tsis pub dhau ib teev tom qab coj tawm hauv lub tub yees.
- Yog tias tseem muaj tshuaj seem: Yog tias tseem muaj tshuaj seem ntawm lub raj mis uas qhib lawm, muab pov tseg. Thiab, muab cov raj mis tshuaj uas tas sij hawm pov tseg yam tsis tau siv.
Cov Lus Qhia Txog Kev Coj Mus Tsev
- Asfotase alfa yog ib qho enzyme tshwj xeeb kho mob Hypophosphatasia (HPP). Nws tswj tau tus kab mob, tab sis tsis kho tau tag nrho.
- Ua raws li koj tus kws kho mob cov lus qhia kom meej. Noj cov tshuaj kom raug thiab raws sijhawm.
- Tsis txhob hla dhau qhov kev teem caij mus ntsib kws kho mob thiab tej yam xws li kev kuaj ntshav, kev kuaj raum, thiab kev kuaj qhov muag.
- Ceev faj txog cov kev mob tshwm sim loj heev (ua xua, pom kev hloov pauv, ntshav hauv cov zis). Yog tias koj pom ib qho ntawm cov tsos mob no , qhia rau koj tus kws kho mob tam sim ntawd.
- Khaws cov tshuaj no rau hauv lub tub yees kom zoo. Tsis txhob muab cov tshuaj no rau lwm tus.
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Tsis muaj lus teb tau muab tso tawm. Ntxiv koj cov lus tawm ntawm no thawj zaug.
Ntxiv koj cov lus