Koj puas xav tias koj lub ntsws raug kev nyuaj siab ntau dhau? Cia peb tham txog Chronic Thromboembolic Pulmonary Hypertension (CTEPH)!

Puas muaj tej lub sij hawm koj xav tias ua tsis taus pa me ntsis, los yog muaj tej yam txawv txawv hauv koj lub hauv siab? Tej zaum qhov siab hauv cov hlab ntsha hauv koj lub ntsws siab me ntsis. Qhov no yog ib qho mob tshwj xeeb hu ua '(Chronic Thromboembolic Pulmonary Hypertension)' los yog '(CTEPH)'. Tsis txhob txhawj, peb yuav tham txog qhov no yooj yim, hauv txoj kev uas koj nkag siab tau.

Qhov no yog dab tsi (CTEPH)? Cia peb nkag siab meej!

Hais yooj yim xwb, CTEPH yog qhov ntshav siab nce ntxiv tsis zoo li qub hauv cov hlab ntsha me me hauv lub ntsws. Nws zoo li qhov siab hauv cov yeeb nkab dej. Tab sis qhov laj thawj tseem ceeb rau qhov no yog tias koj tau muaj ntshav txhaws hauv koj lub ntsws ua ntej (peb hu qhov no ua Pulmonary Embolism) thiab cov ntshav txhaws tsis yaj zoo . Thaum ntawd qhov siab no nce ntxiv.

Leej twg yuav muaj feem mob CTEPH ntau dua?

Qhov no tseem ceeb heev. CTEPH tsuas yog tshwm sim rau cov neeg uas muaj keeb kwm ntawm pulmonary embolism . Yog tias koj muaj kev siab siab hauv koj lub ntsws tab sis tsis muaj ntshav txhaws, nws yuav tsis yog CTEPH, tab sis yog lwm yam mob. Yog li nws tseem ceeb heev kom nkag siab txog qhov txawv no.

Tus mob no feem ntau tshwm sim li cas?

CTEPH yog ib qho mob uas tsis tshua muaj . Piv txwv li, hauv lub tebchaws zoo li Tebchaws Meskas, tsuas muaj li ntawm 5,000 tus neeg mob tshiab tau tshaj tawm txhua xyoo. Txawm li cas los xij, vim tias qee zaum nws tsis raug kuaj pom zoo, tus lej yuav ntau dua. Yog li ntawd, nws yog ib qho tseem ceeb heev uas yuav tsum paub txog cov tsos mob.

CTEPH muaj feem cuam tshuam li cas rau koj txoj kev noj qab haus huv?

Thaum lub siab hauv koj lub ntsws nce ntxiv, tshwj xeeb tshaj yog thaum muaj CTEPH, sab xis ntawm koj lub plawv yuav hnov ​​​​​​qhov siab ntau . Xav txog, koj lub plawv yuav tsum ua haujlwm hnyav dua los tso cov ntshav mus rau koj lub ntsws. Qhov tshwm sim yog tias qee cov ntshav uas tsis muaj oxygen txaus yuav daig hauv koj lub plawv thiab siv sijhawm ntev mus txog koj lub ntsws. Qhov no tuaj yeem ua rau koj lub cev muaj cov pa oxygen tsawg. Qhov no yog ib qho mob hnyav heev, puas yog?

Vim li cas qhov "(CTEPH)" no thiaj tshwm sim? Dab tsi yog cov ua rau?

Qhov laj thawj tseem ceeb rau qhov no yog vim cov ntshav txhaws uas tsim nyob rau hauv cov hlab ntsha me me hauv lub ntsws tsis yaj kom zoo. Thaum qhov no tshwm sim , cov nqaij zoo li caws pliav tsim nyob rau qhov chaw uas cov ntshav txhaws nyob. Qhov caws pliav no ua rau cov hlab ntsha nqaim, zoo li cov yeeb nkab dej raug txhaws. Thaum qhov nqaim no nce ntxiv, qhov siab kuj nce ntxiv.

Cov yam uas ua rau muaj tus kab mob CTEPH yog dab tsi?

Muaj qee yam kev pheej hmoo uas tuaj yeem pab txhawb rau kev loj hlob ntawm `(CTEPH). Cia peb saib seb lawv yog dab tsi:

• Muaj lwm hom ntshav uas tsis yog Hom O.
• Muaj kev kis kab mob rau hauv cov pob txha (Osteomyelitis).
• Qee hom mob qog noj ntshav.
• Cov kab mob plab hnyuv ntev, piv txwv li, cov mob zoo li '(Inflammatory Bowel Disease)'.
• Ua ib tug poj niam. (Cov poj niam muaj feem yuav mob no ntau dua li cov txiv neej.)
• Kev kis kab mob ntawm cov nqaij plawv vim yog lub tshuab pacemaker.
• Koj lossis ib tug neeg hauv koj tsev neeg muaj keeb kwm ntawm cov teeb meem ntshav txhaws, xws li Antiphospholipid Syndrome.
• Tau raug tshem lub qhov ntswg tawm ua ntej lawm (Splenectomy).
• Kev siv tshuaj kho mob thyroid hormone hloov.

Tsis yog txhua yam no cuam tshuam rau txhua tus, tab sis lawv tau raug txheeb xyuas tias yog cov yam ua rau muaj kev pheej hmoo.

Cov tsos mob ntawm '(CTEPH)' yog dab tsi?

Ib tug neeg uas muaj CTEPH yuav muaj cov tsos mob xws li:

• Kev mob hauv siab los yog nruj .
• Hnoos ntshav (qhov no yog ib qho tshwm sim tsis tshua muaj).
• Cov ntiv tes thiab cov ntiv taw muaj xim xiav (Cyanosis).
• Hnov kiv taub hau .
• Ua tsis taus pa.
• Xav tias nkees heev ('Qaug zog') .
• Zoo li koj lub hauv siab dhia ceev heev, peb hu qhov no tias "Lub Plawv Ntshaws".
• Ua pa nyuaj , tshwj xeeb tshaj yog thaum ua ib yam dab tsi lossis taug kev.
• Ob txhais ceg o, uas yog vim muaj dej ntau hauv lub cev (edema).

Tsis txhob xav tias koj muaj CTEPH tsuas yog vim koj muaj ib lossis ob yam ntawm cov tsos mob no xwb. Tab sis yog tias cov tsos mob no tseem muaj, nws yog qhov zoo tshaj plaws mus ntsib kws kho mob.

Yuav kuaj mob li cas rau tus kab mob no (CTEPH)?

Thaum koj mus ntsib kws kho mob, nws yuav ua qee qhov kev kuaj mob kom paub tseeb tias koj muaj CTEPH, xws li:

• Ib qho kev kuaj uas saib qhov ua pa thiab cov ntshav mus rau hauv lub ntsws (`(Lung ventilation-perfusion scan - V/Q scan)`).
• Ib qho "Pulmonary Angiogram" yog ib qho kev kuaj uas kuaj xyuas seb puas muaj cov ntshav txhaws lossis cov hlab ntsha nqaim hauv cov ntsws.
• Kev Ntsuas Kev Ua Haujlwm ntawm Lub Ntsws.
• Ib daim Transthoracic Echocardiogram (TTE) zoo li kev ntsuas ultrasound ntawm lub plawv.

Tom qab cov kev kuaj thawj zaug no, tej zaum yuav xav tau kev kuaj ntxiv kom paub tseeb tias tus kab mob CTEPH raug kuaj pom thiab txiav txim siab seb nws mob hnyav npaum li cas. Cov no suav nrog:

• Kev ntxig txoj hlab ntshav rau sab xis ntawm lub plawv yog ib qho kev kuaj uas ntsuas qhov siab los ntawm kev ntxig ib lub raj me me rau hauv sab xis ntawm lub plawv.
• Tshawb xyuas cov hlab ntsha hauv lub ntsws siv cov txheej txheem thaij duab siab heev xws li CT Pulmonary Angiography (CTPA) lossis Digital Subtraction Angiography.
• Ib daim duab MRI.
• Ib qho "Kev Ntsuas Kev Nyuaj Siab Thaum Ua Si" uas kuaj xyuas lub plawv ua haujlwm thaum lub sijhawm ua si.

Cov kev kuaj no yog cov uas tso cai rau cov kws kho mob txiav txim siab seb koj puas muaj CTEPH thiab nws nyob rau theem twg.

Cov kev kho mob rau '(CTEPH)' yog dab tsi?

Kev kho mob rau CTEPH feem ntau yuav tsum tau phais lossis ua lwm yam zoo sib xws. Muaj ob txoj kev xaiv tseem ceeb:

1. Kev phais plawv sab hauv lub ntsws : Qhov no yog ib txoj kev phais qhib. Hauv txoj kev phais no, cov ntshav txhaws qub thiab cov nqaij caws pliav uas daig hauv cov hlab ntsha ntawm lub ntsws raug phais tshem tawm. Qhov no yog ua los sim rov qab cov ntshav ntws mus rau lub ntsws.

2. ``(Kev phais mob ntsws siv lub npas loj)''Hauv qhov no, ib lub npas me me raug txuas rau qhov kawg ntawm ib lub raj ntev (catheter), uas raug xa mus rau hauv cov hlab ntsha nqaim hauv lub ntsws. Lub npas raug cua kom thawb cov nqaij caws pliav mus rau ib sab, ua rau cov hlab ntsha dav dua.

Kev xaiv ib qho ntawm ob txoj kev no yog raws li ntau yam, xws li tus neeg mob tus mob thiab qhov chaw ntawm cov ntshav txhaws.

Puas muaj lwm txoj kev kho mob?

Yog, tej zaum yuav muaj ib txhia neeg ua tsis tau phais mob no. Rau cov neeg ntawd, lossis rau cov neeg uas tseem muaj kev nyuaj siab hauv lawv lub ntsws tom qab phais mob, lawv tuaj yeem muab tshuaj hu ua '(Riociguat)' . Qhov no yog tshuaj uas muab rau kev mob ntshav siab hauv lub ntsws. Qhov no pab txo cov tsos mob.

Puas tiv thaiv tau CTEPH?

CTEPH yog ib qho teeb meem ntawm ntau yam mob nkeeg. Muaj tej yam uas peb tswj tsis tau. Tiam sis qhov tseem ceeb tshaj plaws uas koj ua tau yog saib xyuas koj lub ntsws kom zoo . Qhov ntawd txhais tau tias tso tseg yog tias koj haus luam yeeb thiab nyob deb ntawm kev haus luam yeeb yog qhov tseem ceeb heev.

Cov neeg mob uas muaj CTEPH yuav zoo li cas?

Qhov no yog xov xwm zoo tshaj plaws! Kev phais mob Pulmonary Endarterectomy thiab Pulmonary Balloon Angioplasty tuaj yeem kho tau CTEPH tag nrho . Muaj ntau tus neeg uas tau txais cov kev kho mob no tau txais txiaj ntsig zoo heev.

Txawm li cas los xij, txawm tias muaj cov txiaj ntsig zoo no los xij, qee tus neeg mob yuav muaj kev ntxhov siab, kev ntxhov siab, thiab kev nyuaj siab. Qhov no tuaj yeem muaj tseeb tshwj xeeb rau cov neeg uas tsis tsim nyog rau kev kho mob uas tau hais los saum toj no. Yog tias koj tab tom ntsib ib qho ntawm cov kev ntxhov siab no, nrog koj tus kws kho mob tham. Lawv tuaj yeem mloog koj cov kev txhawj xeeb thiab pom zoo cov kev kho mob uas yuav pab koj zoo dua.

Thaum nyob nrog "(CTEPH)" yog dab tsi?

• Tej zaum koj yuav tau noj cov tshuaj uas ua rau cov ntshav nyias mus tas koj lub neej .
• Yog koj noj tshuaj zoo li Warfarin, tej zaum koj yuav tsum tsis txhob noj tej yam khoom noj (xws li taum pauv thiab broccoli, uas muaj vitamin K ntau). Nug koj tus kws kho mob txog qhov no.
• Kev tawm dag zog me me , xws li kev taug kev, tuaj yeem pab ntau tus neeg rov qab muaj zog thiab noj qab nyob zoo. Koj tus kws kho mob kuj tseem yuav pom zoo kom muaj kev tawm dag zog uas muaj kev saib xyuas (kev kho mob ntsws).

Thaum kawg, nco ntsoov qhov no.

Mob Ntshav Siab Hnyav (Chronic Thromboembolic Pulmonary Hypertension - CTEPH) yog ib yam mob tsis tshua muaj uas ua rau cov ntshav siab hauv cov hlab ntsha ntawm lub ntsws nce ntxiv, tab sis nws yog ib yam kab mob uas kho tau yog tias kuaj pom thaum ntxov thiab kho kom zoo . Yog tias koj muaj ib qho ntawm cov tsos mob no, tsis txhob yig mus nrhiav kev pab kho mob. Nco ntsoov tias, nrog kev kho mob kom zoo, feem ntau cov neeg tuaj yeem rov zoo. Yog li ntawd tsis txhob ntshai. Ua raws li koj tus kws kho mob cov lus qhia kom zoo, thiab koj yuav rov zoo sai sai!

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