Tej zaum koj yuav muaj ntau yam pob khaus thiab pob khaus ntawm koj daim tawv nqaij, puas yog? Qee zaum lawv tev tawv thiab khaus heev. Peb feem ntau xav tias cov no tsuas yog kev ua xua ib txwm muaj, eczema, lossis psoriasis. Tab sis qhov teeb meem ntawm daim tawv nqaij uas tsis zoo dua rau ntau xyoo qee zaum tuaj yeem ua rau mob hnyav dua. Qhov ntawd yog ib qho ntawm cov mob tsis tshua muaj uas peb txhua tus yuav tsum paub txog.
Cutaneous T-cell Lymphoma (CTCL) yog dab tsi?
Hais yooj yim xwb, CTCL yog ib hom mob qog ntshav uas tsis tshua muaj neeg paub thiab cuam tshuam rau peb daim tawv nqaij. Daim tawv nqaij yog lub cev loj tshaj plaws hauv peb lub cev. Tus mob qog no cuam tshuam ncaj qha rau peb daim tawv nqaij. Qhov tseeb, nws yog ib pawg mob qog ntshav loj dua hu ua '(non-Hodgkin lymphoma)'.
Tam sim no tej zaum koj yuav xav paub tias mob qog noj ntshav hauv cov ntshav tuaj yeem mus rau ntawm daim tawv nqaij li cas. Zoo, peb cov ntshav muaj ib hom qe ntshav dawb hu ua "lymphocytes". Cov no yog ib feem tseem ceeb ntawm peb lub cev tiv thaiv kab mob. Ib hom qe ntshav dawb no hu ua "T-cells". Hauv CTCL, cov qe ntshav T no dhau los ua cov qe ntshav qog noj ntshav thiab pib faib tsis tuaj yeem tswj tau. Tom qab ntawd cov qe ntshav qog noj ntshav no tuaj rau ntawm daim tawv nqaij thiab sib sau ua ke. Thaum ntawd cov tsos mob ntawm daim tawv nqaij pib tshwm sim.
Tsis txhob ntshai hais tias nws yog mob qog noj ntshav. Muaj ntau tus neeg uas muaj CTCL tuaj yeem tswj tau tus kab mob tom qab kho mob ('kev zam txim'). Yog li ntawd, lawv tuaj yeem ua neej nyob li qub yam tsis muaj kev cuam tshuam ntau. Tab sis nws yog ib qho ib txwm muaj kev nyuaj siab thaum koj pom tias koj muaj mob qog noj ntshav. Koj tus kws kho mob thiab pab pawg kho mob yeej ib txwm nyob ntawd los pab koj.
Cov hom CTCL tseem ceeb yog dab tsi?
Muaj ntau hom CTCL. Tab sis ntawm lawv, muaj ob hom tseem ceeb uas pom. Cia peb nkag siab cov no kom meej.
| Hom mob qog noj ntshav | Kev piav qhia |
|---|---|
| Mycosis fungoides | Qhov no yog hom mob uas feem ntau tshwm sim, cuam tshuam rau kwv yees li ib nrab ntawm cov neeg mob CTCL. Nws qhov tshwj xeeb yog tias nws loj hlob qeeb heev.Ntawm no, cov T-cell mob qog noj ntshav feem ntau tsuas yog nyob rau ntawm daim tawv nqaij xwb. Txawm li cas los xij, qee zaum, qee qhov kuj tuaj yeem mus rau cov qog ntshav thiab cov ntshav. Cov qog noj ntshav uas mus rau cov ntshav li no hu ua Sézary cells. |
| Kab mob Sézary | Qhov no yog ib hom kab mob CTCL uas loj hlob sai heev . Hauv qhov no, koj tuaj yeem pom ntau cov qe ntshav Sézary hauv koj daim tawv nqaij thiab cov ntshav. Qee zaum mycosis fungoides tuaj yeem hnyav zuj zus thiab hloov mus ua Sézary syndrome. Cov neeg uas muaj tus mob no yuav pom kev hloov pauv ntawm cov xim tawv nqaij thoob plaws lawv lub cev. |
Cov tsos mob ntawm tus kab mob no yuav yog dab tsi?
Cov tsos mob ntawm CTCL yuav txawv ntawm ib tus neeg mus rau ib tus neeg. Lawv kuj zoo ib yam li cov kab mob ntawm daim tawv nqaij uas feem ntau pom. Yog vim li ntawd nws thiaj nyuaj rau kuaj mob.
- Cov pob uas tshwm sim rau ntawm daim tawv nqaij. Qee zaum cov no tuaj yeem tawg thiab ua mob.
- Plaub hau poob .
- Ib yam mob zoo li pob khaus uas tshwm thoob plaws lub cev thiab khaus tas li .
- Cov tsos ntawm cov xim tsis zoo ntawm daim tawv nqaij.
- Khaus, qee zaum scaly, plaques uas tau nce los ntawm daim tawv nqaij.
- Kev o ntawm cov qog hauv lub cev ( hauv caj pas , qhov tso, qhov chaw mos, thiab lwm yam).
- Daim tawv nqaij ntawm xib teg thiab xib taws ua tuab thiab ntxhib .
Vim li cas hom kab mob no thiaj tshwm sim?
Peb tau hnov tias hauv CTCL, T-cells dhau los ua cov hlwb qog noj ntshav. Tab sis cov kws kho mob tseem tsis tau paub meej tias vim li cas qhov no tshwm sim. Tab sis muaj ob yam uas xav tias ua lub luag haujlwm.
1. Cov noob caj noob ces hloov pauv: Cov noob caj noob ces tswj kev ua haujlwm ntawm peb cov hlwb. Cov kws tshawb fawb tau pom tias kev hloov pauv (kev hloov pauv) hauv qee cov noob caj noob ces tuaj yeem ua rau muaj tus kab mob no.
2. Kev kis kab mob: Xav txog seb yuav muaj li cas thaum peb lub cev kis tau kab mob hnyav. Peb lub cev tiv thaiv kab mob npaj tawm tsam. Qhov ntawd txhais tau tias peb cov pob txha pib tsim cov qe ntshav dawb, tshwj xeeb tshaj yog cov qe ntshav dawb (lymphocytes), sai heev. Zoo li lub Hoobkas tam sim ntawd nce kev tsim khoom. Thaum koj ua haujlwm sai heev, qee zaum qhov yuam kev tuaj yeem tshwm sim. Yog li ntawd qhov yuam kev hauv DNA ntawm cov qe ntshav tuaj yeem tshwm sim, ua rau muaj feem ntau ntawm cov qe ntshav qog.
Qhov tseem ceeb tshaj plaws yog tias CTCL tsis yog ib yam kab mob sib kis tau. Thiab nws tsis yog ib yam dab tsi uas koj ua tau.
Leej twg muaj feem yuav mob no tshaj?
Cov no tsuas yog cov yam ua rau muaj kev pheej hmoo xwb. Tsis yog txhua tus neeg uas muaj cov no yuav muaj tus kab mob no.
- Rau cov neeg hnub nyoog tshaj 50 xyoo .
- Cov txiv neej muaj feem yuav muaj kev pheej hmoo ntau dua li cov poj niam.
- Rau cov neeg uas lub cev tiv thaiv kab mob tsis muaj zog (piv txwv li, cov neeg uas tau hloov cev nqaij daim tawv).
- Raws li qee qhov kev tshawb fawb, cov neeg ntawm cov neeg African.
Tus kws kho mob nrhiav tau qhov no li cas?
Thaum koj mus ntsib kws kho mob txog teeb meem ntawm daim tawv nqaij, nws yuav xub nug koj txog koj cov tsos mob. Tom qab ntawd lawv yuav kuaj koj daim tawv nqaij kom huv si. Txawm li cas los xij, txhawm rau kom paub tseeb tias koj puas muaj CTCL, yuav tsum tau kuaj ntau zaus.
| Kev Ntsuas | Hais yooj yim xwb... |
|---|---|
| Kev kuaj tawv nqaij | Qhov no yog qhov kev kuaj tseem ceeb tshaj plaws. Qhov ua ntawm no yog muab ib daim tawv nqaij me me los ntawm qhov mob lossis qhov chaw thiab kuaj nws hauv qab lub tshuab microscope. Qhov no tuaj yeem txiav txim siab tau meej tias puas muaj cov hlwb qog noj ntshav. |
| Kev kuaj ntshav | Qhov no pab kuaj xyuas cov qe ntshav qog nqaij hlav (Sézary cells) hauv cov ntshav, nrog rau lwm yam kev txawv txav. |
| Kev kuaj mob qog ntshav | Yog tias muaj ib qho qog ntshav o, yuav muab ib daim me me ntawm nws coj mus kuaj seb puas muaj mob qog noj ntshav tau kis mus rau nws. |
| Kev kuaj duab | Cov kev kuaj xws li CT scan lossis PET scan tuaj yeem txiav txim siab seb tus mob qog noj ntshav puas tau kis mus rau cov kabmob sab hauv lub cev. |
Cov kev kho mob rau CTCL yog dab tsi?
Kev kho mob CTCL yog nyob ntawm seb koj muaj hom mob dab tsi, theem mob dab tsi, thiab koj txoj kev noj qab haus huv tag nrho. Tsis muaj ib txoj kev kho mob uas haum rau txhua tus. Koj tus kws kho mob yuav tsim ib txoj kev npaj kho mob uas zoo tshaj plaws rau koj.
- Cov tshuaj pleev thiab tshuaj pleev uas siv rau ntawm daim tawv nqaij: Cov no yog cov tshuaj pleev uas muaj cov tshuaj xws li cov tshuaj steroids. Cov no tej zaum yuav txaus rau cov neeg mob thaum ntxov.
- Kev kho mob siv lub teeb (Phototherapy): Ib hom teeb ultraviolet (UV) tshwj xeeb raug tsom mus rau daim tawv nqaij kom tua cov hlwb qog noj ntshav.
- Kev siv tshuab hluav taws xob sab nraud (Extracorporeal photopheresis - ECP): Qhov no yog kev kho mob uas nyuaj me ntsis. Hauv qhov no, ib feem ntawm koj cov ntshav raug coj mus, xa mus rau hauv lub tshuab, qhov chaw uas nws raug kho nrog tshuaj thiab lub teeb los kho cov hlwb qog noj ntshav, thiab tom qab ntawd rov txhaj tshuaj rov qab rau hauv koj lub cev.
- Kev Kho Mob Hluav Taws Xob: Cov hluav taws xob muaj zog heev yog siv los rhuav tshem cov hlwb qog noj ntshav hauv daim tawv nqaij.
- Kev Kho Mob Tiv Thaiv Kab Mob: Peb muab cov tshuaj uas txhawb peb lub cev tiv thaiv kab mob thiab ua rau nws tawm tsam cov hlwb qog noj ntshav.
- Kev Kho Mob Siv Tshuaj Kho Mob: Cov tshuaj muaj zog uas tua cov hlwb qog noj ntshav. Cov no tuaj yeem muab ua cov tshuaj ntsiav lossis cov tshuaj txhaj.
Lub neej yuav zoo li cas yog tias muaj tus kab mob no?
Qhov no yog lo lus nug loj tshaj plaws uas txhua tus neeg xav txog. Feem ntau hom CTCL loj hlob qeeb heev. Yog li ntawd, lawv tsis ua rau tuag taus. Txawm hais tias cov kws kho mob tsis tuaj yeem kho tus kab mob no tag nrho, kev kho mob tuaj yeem tswj tau cov tsos mob.
Tiam sis peb kuj yuav tsum nkag siab qhov tseeb. Ib yam li lwm yam mob qog noj ntshav, CTCL tuaj yeem ua rau tuag taus yog tias nws mus txog theem siab heev.
Yog vim li ntawd peb thiaj hais tias nws tseem ceeb heev uas yuav tsum mus ntsib kws kho mob sai li sai tau thaum koj pom muaj kev hloov pauv hauv koj daim tawv nqaij . Thaum koj pib kho mob sai npaum li cas, koj yuav muaj lub neej zoo dua.
Cov kev tshawb fawb tau qhia tias 9 ntawm 10 tus neeg uas kuaj pom tias muaj tus kab mob no thaum tseem yau (theem I lossis II) tseem muaj sia nyob tom qab 10 xyoo. Qhov ntawd yog 90% ntawm cov neeg uas muaj tus kab mob no yuav ciaj sia. Rau cov neeg uas muaj tus kab mob no hnyav heev, tus nqi tsuas yog 53%. Cov no tsuas yog cov ntaub ntawv xwb. Tus neeg zoo tshaj plaws uas paub meej tias koj tus mob yog dab tsi yog koj tus kws kho mob.
Peb yuav ua li cas thiaj saib xyuas peb daim tawv nqaij thiab txo qhov kev pheej hmoo?
Peb ua tsis tau dab tsi los tiv thaiv CTCL, vim tias cov yam uas ua rau muaj tus kab mob no hloov tsis tau. Tiam sis kev ua kom peb lub cev tiv thaiv kab mob muaj zog yog qhov zoo rau txhua yam kab mob.
Tsis tas li ntawd xwb, yog tias koj muaj CTCL, nws yog ib qho tseem ceeb heev uas yuav tsum saib xyuas koj daim tawv nqaij.
- Ua kom koj daim tawv nqaij noo: Siv cov tshuaj pleev kom noo tom qab da dej thiab thoob plaws hnub. Qhov no yuav pab txo qhov qhuav, tawv tawv, thiab khaus.
- Tiv thaiv koj tus kheej kom tsis txhob muaj kab mob ntawm daim tawv nqaij: Siv cov xab npum tsis muaj ntxhiab thiab cov tshuaj ntxhua khaub ncaws. Hnav khaub ncaws uas npog koj daim tawv nqaij thaum tawm mus rau hauv lub hnub, thiab pleev tshuaj pleev thaiv hnub. Hnav khaub ncaws xoob thiab ua pa tau.
- Tsis txhob khawb: Qhov khaus yog qhov teeb meem loj tshaj plaws uas cov neeg mob no ntsib. Thaum lawv khawb, lawv ua rau daim tawv nqaij tawg thiab cov kab mob tuaj yeem nkag mus, ua rau muaj kev kis kab mob. Yog li ntawd, tswj kev khawb ntau li ntau tau. Koj tuaj yeem tau txais kev pab los ntawm kev ua tej yam xws li ntxuav nrog dej txias, da dej hauv dej oatmeal, thiab siv cov tshuaj antihistamines uas koj tus kws kho mob pom zoo.
Lub sijhawm twg zoo tshaj plaws mus ntsib kws kho mob?
Thaum koj pib kho mob lawm, koj tus kws kho mob yuav tsum mus ntsib koj tsis tu ncua. Tab sis yog tias muaj dab tsi zoo li no tshwm sim rau lub sijhawm no, nco ntsoov nrog koj tus kws kho mob tham.
- Yog tias koj pom muaj kev hloov pauv tshiab hauv koj daim tawv nqaij .
- Yog koj xav tias koj daim tawv nqaij muaj kab mob (piv txwv li, nws liab, mob, o, lossis kua paug tawm los).
- Yog tias koj kub taub hau tshaj 100.4 Fahrenheit (38 Celsius) .
Feem ntau, thaum peb muaj pob khaus lossis ib lub qhov ntawm peb daim tawv nqaij, peb xav tias nws yog ib txwm muaj. Tsis muaj leej twg xav tias nws yuav yog mob qog noj ntshav tsawg tsawg li no. Tab sis qhov tseem ceeb tshaj plaws yog, yog tias koj pom kev hloov pauv hauv koj daim tawv nqaij, tsis txhob tsis quav ntsej nws thiab qhia rau kws kho mob. Tej zaum nws yuav tsis yog mob qog noj ntshav. Tab sis yog tias nws yog, pib kho sai li sai tau yog qhov zoo tshaj plaws uas koj tuaj yeem ua rau koj lub neej.
Cov Lus Qhia Txog Kev Coj Mus Tsev
- CTCL yog ib hom mob qog ntshav uas tsis tshua muaj thiab cuam tshuam rau daim tawv nqaij. Nws cov tsos mob zoo ib yam li cov mob ntawm daim tawv nqaij xws li eczema thiab psoriasis.
- Yog tias koj muaj teeb meem ntawm daim tawv nqaij uas tsis zoo dua ntev, tsis txhob tsis quav ntsej lawv thiab mus ntsib kws kho mob.
- Thaum kuaj pom tus kab mob no sai npaum li cas, ces yuav muaj feem ntau dua rau kev kho mob zoo thiab muaj lub neej zoo dua.
- CTCL tsis yog ib yam kab mob sib kis tau. Kev kho mob tuaj yeem tswj tau cov tsos mob thiab ua kom lub neej zoo.
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Tsis muaj lus teb tau muab tso tawm. Ntxiv koj cov lus tawm ntawm no thawj zaug.
Ntxiv koj cov lus