Koj puas tau pom tias muaj ib txhia neeg muaj cov pob liab me ntsis ntawm lawv lub ntsej muag, sab plhu, lossis taub hau? Qee zaum cov no tsis khaus lossis mob. Txawm hais tias ntau tus neeg xav tias qhov no yog ib qho mob ntawm daim tawv nqaij, qhov no tuaj yeem yog ib qho mob uas xav tau kev saib xyuas ntxiv me ntsis. Hnub no peb tab tom tham txog ib qho mob hu ua 'Discoid Lupus' uas ua rau muaj cov tsos mob no. Txawm hais tias qhov no yog lub npe tsis paub meej, nws tseem ceeb heev uas yuav tsum paub txog nws.
Hais yooj yim xwb, Discoid Lupus yog dab tsi?
Discoid Lupus, hu ua 'Discoid Lupus Erythematosus (DLE),' yog ib yam mob uas cuam tshuam ncaj qha rau peb daim tawv nqaij. Nws yog ib feem ntawm 'Cutaneous Lupus Erythematosus (CLE)' kev faib tawm ntawm lupus. Lo lus 'Cutaneous' txhais tau tias 'cuam tshuam rau daim tawv nqaij.' Qhov no txhais tau tias cov hom lupus no feem ntau cuam tshuam rau peb daim tawv nqaij.
Ib tug neeg uas muaj tus kab mob discoid lupus yuav muaj cov qhov txhab uas puag ncig, liab, me ntsis tsa, thiab tuab rau ntawm daim tawv nqaij, tshwj xeeb tshaj yog rau ntawm lub ntsej muag, sab plhu, qhov ntswg, thiab taub hau. Cov no yuav tawv tawv dhau sijhawm. Qhov no kuj hu ua mob lupus tawv nqaij ntev. Mob ntev txhais tau tias mob ntev.
Yog li ntawd, 'Lupus' yog dab tsi?
Thaum peb tham txog 'lupus', peb feem ntau hais txog ib yam kab mob hu ua 'Systemic Lupus Erythematosus (SLE).' Qhov no yog hom lupus uas feem ntau pom. Kwv yees li 70 ntawm 100 tus neeg mob lupus muaj tus mob no.
Tam sim no, saib seb, thaum discoid lupus (DLE) feem ntau cuam tshuam rau daim tawv nqaij, hom hu ua SLE cuam tshuam rau tag nrho lub cev. Qhov ntawd yog lub ntsiab lus 'systemic'. Nws yog ib qho kab mob autoimmune . Hais yooj yim, peb lub cev tiv thaiv kab mob, lub cev tiv thaiv kab mob, mus haywire thiab pib tawm tsam peb cov hlwb noj qab haus huv thiab cov nqaij. Qhov no ua rau o, lossis o, thoob plaws lub cev.
Ib tug neeg uas muaj SLE feem ntau yuav muaj cov tsos mob zoo li no:
- Kub taub hau uas los tsis muaj laj thawj
- Mob pob qij txha thiab o
- qaug zog tas li
- Mob hauv siab
- Cov tsos ntawm ntau yam pob thiab cov kab mob ntawm daim tawv nqaij
- Kev rhiab heev rau lub hnub ci (photosensitivity)
Qhov tseem ceeb yog tias tsis yog txhua tus neeg uas muaj tus kab mob discoid lupus yuav muaj tus kab mob systemic lupus erythematosus (SLE), uas cuam tshuam rau tag nrho lub cev. Peb mam li tham txog qhov ntawd me ntsis tom qab.
Cov hom mob lupus (CLE) twg uas cuam tshuam rau daim tawv nqaij?
Zoo li peb tau hais ua ntej lawm, mob lupus discoid yog ib hom mob lupus uas cuam tshuam rau daim tawv nqaij. Muaj peb hom tseem ceeb. Txhua hom muaj cov qauv tawv nqaij sib txawv me ntsis.
| Hom mob lupus | Qhov xwm txheej ntawm cov tawv nqaij |
|---|---|
| Lupus Discoid | Cov pob khaus puag ncig, tuab, liab, thiab zoo li npib. Feem ntau tshwm sim rau ntawm lub ntsej muag, pob ntseg, thiab taub hau. |
| Kab mob Lupus subacute | Cov pob khaus zoo li lub nplhaib los yog cov nplai. Feem ntau tshwm sim rau ntawm lub hauv siab, nraub qaum, thiab caj dab. |
| Mob Lupus Mob Cutaneous | Qhov no yog qhov uas muaj cov pob khaus "butterfly rash" nto moo. Cov pob khaus liab, zoo li kub hnyiab tshwm sim thoob plaws sab plhu thiab lub qhov ntswg. |
Puas muaj ib tug neeg mob tau ntau tshaj ib hom mob lupus?
Yog, nws tuaj yeem tshwm sim. Ib txhia neeg tsuas muaj ib hom mob lupus xwb. Qhov ntawd txhais tau tias ib txhia neeg tsuas muaj mob SLE xwb, thiab lwm tus tsuas muaj mob DLE xwb. Tab sis qee zaum ib tug neeg tuaj yeem muaj ntau hom mob lupus tib lub sijhawm.
Tiam sis nco ntsoov qhov no. Feem ntau cov neeg uas muaj tus kab mob discoid lupus (DLE) tsis muaj tus kab mob systemic lupus erythematosus (SLE), uas cuam tshuam rau tag nrho lub cev. Kwv yees li 5% ntawm cov neeg uas muaj DLE, lossis kwv yees li 5 ntawm 100, tom qab ntawd yuav muaj tus kab mob SLE. Tsis tas li ntawd, kwv yees li ib feem plaub (25%) ntawm cov neeg uas muaj SLE yuav muaj cov qhov txhab ntawm daim tawv nqaij zoo ib yam li cov uas pom hauv tus kab mob discoid lupus. Yog li muaj kev sib txuas ntawm ob yam mob, tab sis tsis yog txhua tus neeg uas muaj ib qho yuav muaj lwm yam mob.
Dab tsi ua rau mob discoid lupus? Leej twg muaj feem yuav mob tshaj?
Qhov tseeb, cov kws kho mob tseem tsis tau paub meej tias yog vim li cas lupus, suav nrog discoid lupus. Tab sis nws yog qhov tseeb tias nws yog los ntawm qee yam tsis raug nrog peb lub cev tiv thaiv kab mob. Tsis tas li ntawd, tus kab mob no feem ntau kis mus rau hauv tsev neeg . Qhov no txhais tau tias yog tias ib tug neeg hauv koj tsev neeg muaj tus kab mob autoimmune zoo li lupus, koj kuj tseem yuav muaj kev pheej hmoo.
Cia peb saib seb leej twg muaj feem yuav mob discoid lupus ntau dua.
| Qhov ua rau muaj kev pheej hmoo | Kev piav qhia |
|---|---|
| Txiv neej thiab poj niam | Cov poj niam muaj feem yuav mob no ntau dua li cov txiv neej. |
| Hnub nyoog | Feem ntau nws tshwm sim rau cov neeg hnub nyoog ntawm 15 thiab 44. Nws yog qhov tshwj xeeb tshaj yog rau cov poj niam hnub nyoog 30 thiab 40 xyoo. |
| Xim tawv nqaij/haiv neeg | Kev tshawb fawb tau qhia tias cov neeg uas muaj daim tawv nqaij tsaus dua (piv txwv li, cov neeg African lossis Asian) muaj feem yuav mob no ntau dua li cov neeg uas muaj daim tawv nqaij dawb dua . |
Cov tsos mob thiab teeb meem ntawm tus kab mob discoid lupus yog dab tsi?
Cov tsos mob tseem ceeb yog cov qhov txhab discoid uas peb tau tham txog ua ntej.
- Qhov Chaw: Feem ntau pom ntawm lub taub hau thiab lub ntsej muag, tab sis kuj tuaj yeem tshwm sim rau lwm qhov ntawm lub cev, tshwj xeeb tshaj yog cov chaw uas raug tshav ntuj.
- Cov yam ntxwv: Cov pob no feem ntau tsis mob, thiab lawv tsis khaus . Lawv liab, me ntsis tsa, thiab qee zaum muaj cov tawv nqaij zoo li pob khaus rau ntawm qhov chaw.
- Cov mob tom qab: Tom qab cov pob no zoo lawm, lawv yuav ua rau muaj qhov txhab thiab hloov xim . Qee zaum daim tawv nqaij yuav hloov dawb lossis xim av/dub.
Tej yam teeb meem uas yuav tshwm sim
- Plaub Hau Poob: Yog tias cov pob no tshwm sim rau ntawm lub taub hau, cov plaub hau hauv thaj chaw ntawd tuaj yeem poob tawm. Qhov phem tshaj plaws yog tias yog muaj qhov caws pliav hauv thaj chaw ntawd, cov plaub hau loj hlob yuav nres mus tas li .
- Kev pheej hmoo ntawm mob qog nqaij hlav ntawm daim tawv nqaij:Yog tias koj muaj cov pob discoid lupus ntev heev, muaj qhov kev pheej hmoo me me ntawm kev mob qog nqaij hlav ntawm daim tawv nqaij hauv cov cheeb tsam ntawd. Tshwj xeeb tshaj yog tias cov pob no tshwm sim hauv qhov ncauj, tej zaum yuav muaj kev pheej hmoo ntawm kev mob qog nqaij hlav ntawm daim tawv nqaij hu ua squamous cell carcinoma.
- Chilblain Lupus: Qhov no yog ib qho mob tsis tshua muaj. Hauv qhov mob no, cov xim av lossis cov pob liab tshwm sim ntawm daim tawv nqaij thaum raug cua txias. Cov no tuaj yeem mob heev.
Yuav kuaj mob li cas?
Yog koj muaj cov tsos mob no, qhov zoo tshaj plaws uas yuav tsum ua yog mus ntsib kws kho mob tawv nqaij . Nws yuav kuaj koj thiab ua cov kev kuaj mob kom paub tseeb tias koj muaj mob.
Qhov no hu ua kev kuaj tawv nqaij . Qhov no suav nrog kev rho ib daim tawv nqaij me me los ntawm thaj chaw uas muaj tshuaj loog. Tom qab ntawd xa mus rau chav kuaj mob thiab kuaj hauv qab lub tshuab microscope. Los ntawm kev saib cov kev hloov pauv hauv cov hlwb ntawd, peb tuaj yeem paub tseeb tias nws yog discoid lupus lossis lwm yam kab mob ntawm daim tawv nqaij.
Cov kev kho mob yog dab tsi?
Kab mob Discoid lupus tsis kho tau tag nrho. Txawm li cas los xij, kev kho mob tuaj yeem pab tswj cov tsos mob, tiv thaiv kev rov tshwm sim tshiab, thiab pab koj ua neej nyob li qub. Koj tus kws kho mob yuav sau ntawv kho mob rau koj raws li qhov hnyav ntawm koj cov tsos mob.
Qee cov kev kho mob tseem ceeb uas siv tau teev tseg hauv qab no.
| Hom kev kho mob | Kev ua haujlwm thiab piv txwv |
|---|---|
| Cov Tshuaj Pleev Steroid | Cov no yog cov tshuaj pleev uas siv ncaj qha rau ntawm daim tawv nqaij. Lawv txo qhov o thiab o ntawm daim tawv nqaij. Piv txwv li: 'fluocinolone acetonide', 'hydrocortisone butyrate'. |
| Cov Tshuaj Tiv Thaiv Kab Mob Malaria | Cov no yog cov tshuaj uas koj noj. Tsis txhob xav tsis thoob, cov tshuaj siv rau mob malaria kuj zoo heev rau mob lupus. Lawv pab txo cov tawv nqaij thiab txo qhov qaug zog. Piv txwv li: 'hydroxychloroquine (Plaquenil®)'. |
| Cov tshuaj tswj kev tiv thaiv kab mob (Calcineurin Inhibitors) | Cov no kuj yog hom tshuaj pleev. Lawv tswj kev ua haujlwm ntawm lub cev tiv thaiv kab mob rau qee qhov thiab txo qhov o. Piv txwv li: 'tacrolimus', 'pimecrolimus'. |
| Lwm cov tshuaj tiv thaiv kev o | Yog tias tus kab mob hnyav dua, cov kws kho mob kuj tseem yuav sau ntawv kom noj cov tshuaj xws li dapsone thiab methotrexate. |
Tseem Ceeb: Tej kev kho mob no tsuas yog yuav tsum pib nrog kev qhia los ntawm kws kho mob xwb . Tsis txhob siv tshuaj koj tus kheej.
Yuav ua li cas thiaj tiv thaiv tau qhov teeb meem loj zuj zus?
Nov yog yam uas txhua tus neeg uas muaj tus kab mob discoid lupus yuav tsum paub. Kwv yees li 70% ntawm cov neeg mob lupus, cov tsos mob yuav hnyav zuj zus thaum raug lub teeb ultraviolet (UV) los ntawm lub hnub. Qhov no txhais tau tias cov pob tshiab yuav tshwm sim, cov pob uas twb muaj lawm yuav liab, lossis loj zuj zus. Qhov no tseem ceeb heev rau ib tus neeg nyob hauv lub tebchaws zoo li peb lub tebchaws uas muaj hnub ci ntau thoob plaws hauv ib xyoos.
Yuav kom tiv thaiv koj tus kheej ntawm lub hnub thiab tiv thaiv kom tus kab mob tsis txhob loj zuj zus, ua cov hauv qab no:
- Siv tshuaj pleev thaiv hnub txhua hnub ua ntej tawm mus rau hauv lub hnub. Xaiv cov tshuaj pleev thaiv hnub uas tiv thaiv tau ntau yam (UVA thiab UVB) uas muaj tsawg kawg yog SPF 30 .
- Nws yog ib lub tswv yim zoo kom siv tshuaj pleev thaiv hnub tsis yog thaum tawm mus xwb, tab sis kuj thaum nyob hauv tsev, tshwj xeeb tshaj yog tias koj nyob ze ntawm lub qhov rais.
- Rov pleev tshuaj pleev thaiv hnub txhua 4 teev. Rov pleev ua ntej tawm hws lossis mus rau hauv dej.
- Tsis txhob siv lub hnub ci ntsa iab tshaj plaws ntawm 10 teev sawv ntxov thiab 4 teev tsaus ntuj ntau li ntau tau.
- Thaum mus sab nraud, siv tej yam xws li khaub ncaws tes ntev, kaus mom dav, thiab lub kaus .
- Txawm tias cov teeb fluorescent hauv tsev tuaj yeem tso tawm qee cov teeb UV, yog li tsis txhob nyob hauv cov teeb zoo li no ntev dhau.
- Tsis txhob siv cov txaj pw tanning .
Yog koj ua raws li cov kauj ruam no kom raug, koj yuav tswj tau koj cov tsos mob tau zoo heev.
Cov Lus Qhia Txog Kev Coj Mus Tsev
- Discoid lupus yog ib hom mob lupus uas mob mus ntev thiab feem ntau cuam tshuam rau daim tawv nqaij.
- Qhov no ua rau cov pob liab, puag ncig, zoo li npib tshwm sim rau ntawm lub ntsej muag thiab taub hau. Feem ntau cov no tsis mob lossis khaus.
- Txawm hais tias nws tsis tuaj yeem kho tau tag nrho los xij, cov tsos mob tuaj yeem tswj tau zoo heev nrog kev kho mob.
- Yuav tsum tiv thaiv hnub! Siv tshuaj pleev thaiv hnub txhua hnub thiab zam kom tsis txhob raug tshav ntuj kub heev yog qhov tseem ceeb heev kom tiv thaiv kab mob kom tsis txhob hnyav zuj zus.
- Yog tias koj muaj cov pob zoo li no ntawm koj daim tawv nqaij, mus ntsib kws kho mob tawv nqaij kom tau lus qhia.
- Tsis txhob khawb los yog khaws cov qhov tawv nqaij uas muaj qhov txhab. Qhov no yuav ua rau muaj qhov caws pliav thiab kis kab mob.
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Tsis muaj lus teb tau muab tso tawm. Ntxiv koj cov lus tawm ntawm no thawj zaug.
Ntxiv koj cov lus