Koj puas feem ntau xav tias nkees thiab qaug zog? Koj puas pom tias nws nyuaj rau ua pa thaum koj taug kev sai dua me ntsis lossis nce ntaiv? Tej zaum koj kuj xav tias koj daim tawv nqaij daj dua li niaj zaus. Cov no tuaj yeem yog cov cim qhia tias tsis muaj ntshav hauv lub cev, uas yog qhov peb hu ua anemia hauv kev kho mob. Tab sis qee zaum qhov ua rau muaj anemia no tuaj yeem yog kab mob nyuaj thiab tsis tshua muaj dua li peb xav. Hnub no peb yuav tham txog ib qho kab mob uas tsis tshua muaj, tab sis tseem ceeb heev uas cuam tshuam nrog cov ntshav. Ntawd yog Pure Red Cell Aplasia, uas peb hu ua PRCA luv luv.
Hais yooj yim xwb, PRCA no yog dab tsi?
Xav txog cov pob txha hauv peb lub cev zoo li lub Hoobkas tsim cov ntshav. Lub Hoobkas no tsim peb hom hlwb uas peb lub cev xav tau: cov qe ntshav liab, cov qe ntshav dawb, thiab cov qe ntshav dawb. Lub luag haujlwm tseem ceeb ntawm cov qe ntshav liab yog nqa cov pa oxygen uas nkag mus rau hauv peb lub ntsws thaum peb ua pa mus rau txhua lub hlwb hauv peb lub cev. Nws zoo li lub tsheb thauj khoom uas xa cov pa oxygen.
Tam sim no, nyob rau hauv rooj plaub ntawm PRCA, lub Hoobkas ua ntshav, uas yog, pob txha pob txha, txo qis lossis tsis tsim cov qe ntshav liab kiag li . Kev tsim cov qe ntshav liab lwm hom (cov qe ntshav dawb thiab cov platelets) tshwm sim li qub. Yog li thaum tus lej ntawm cov qe ntshav liab uas nqa oxygen mus rau lub cev txo qis, cov kab mob hauv peb lub cev tsis tau txais cov pa oxygen uas lawv xav tau. Qhov mob ntshav tsis txaus uas tshwm sim los ntawm qhov no yog qhov teeb meem tseem ceeb ntawm PRCA.
Cov tsos mob twg uas ib tus neeg uas muaj PRCA yuav muaj?
PRCA ua rau muaj cov tsos mob zoo ib yam li cov ntshav tsis txaus, tab sis lawv yuav hnyav dua li cov ntshav tsis txaus ib txwm muaj. Nws yog ib qho tseem ceeb rau koj kom paub txog cov tsos mob no.
| Cov tsos mob | Ib qho lus piav qhia yooj yim |
|---|---|
| Kev qaug zog | Xav tias tsis muaj sia nyob thiab nkees tas li, txawm tias koj tau pw tsaug zog npaum li cas los xij. |
| Ua pa nyuaj (Dyspnea) | Txawm tias ua ib yam haujlwm me me los yog taug kev luv luv xwb los xij, koj yuav xav tias ua tsis taus pa. |
| kiv taub hau | Hnov kiv taub hau, tshwj xeeb tshaj yog thaum sawv ntawm qhov chaw zaum. |
| Daim tawv nqaij daj ntseg | Daim tawv nqaij, daim di ncauj, thiab hauv qab cov rau tes yuav dawb dua li niaj zaus. |
| Mob taub hau ntau zaus | Mob taub hau ntau zaus yog vim lub hlwb tsis tau txais oxygen txaus. |
| Hnov lub suab nrov hauv pob ntseg (Pulsatile tinnitus) | Ib lub suab hu nkauj nrov nrov hauv pob ntseg raws li lub suab ntawm lub plawv dhia. |
| Mob hauv siab (Angina) | Mob hauv siab vim tsis muaj oxygen rau cov leeg nqaij plawv. |
Qhov tseem ceeb tshaj plaws yog, yog tias koj muaj ib lossis ntau yam ntawm cov tsos mob no, tsis txhob ntshai thiab xav tias nws yog PRCA. Cov no kuj tuaj yeem pom hauv cov ntshav tsis txaus. Tab sis yog tias cov tsos mob no tseem muaj, nws yog qhov zoo tshaj plaws mus ntsib kws kho mob thiab tau txais kev qhia.
Vim li cas qhov xwm txheej no hu ua PRCA thiaj tshwm sim?
PRCA tsis yog ib yam kab mob xwb. Muaj ntau yam ua rau muaj. Qee zaum nws kuj tseem yog ib qho kev mob tshwm sim los ntawm lwm yam mob.
1. Teeb meem ntawm lub cev tiv thaiv kab mob (Cov kab mob tiv thaiv kab mob)
Qhov no yog qhov ua rau muaj PRCA. Hais yooj yim xwb, peb lub cev tiv thaiv kab mob, lub cev tiv thaiv kab mob, pib tawm tsam cov hlwb hauv peb cov pob txha uas ua cov qe ntshav liab tsis raug. Piv txwv li cov mob no suav nrog:
- Kab mob Lupus (Systemic Lupus Erythematosus)
- Mob Pob Qij Txha Rheumatoid
- Kab Mob Plab Hnyuv
2. Mob qog noj ntshav
Qee hom mob qog noj ntshav kuj tuaj yeem ua rau muaj PRCA.
- Mob qog ntshav ntsig txog ntshav: Mob qog ntshav Lymphocytic Leukemia (CLL) thiab Mob qog ntshav Lymphocytic Leukemia loj (LGL) yog ob hom mob qog ntshav uas feem ntau cuam tshuam nrog qhov no.
- Cov qog nqaij hlav: Thymoma, yog mob qog nqaij hlav ntawm thymus caj pas, yog qhov mob qog nqaij hlav tseem ceeb uas cuam tshuam nrog PRCA.
3. Kab mob kis thiab kab mob bacterial
Qee yam mob sib kis kuj tuaj yeem ua rau muaj PRCA, ib ntus lossis mus tas li.
- Cov Kab Mob: Parvovirus B19 yog tus kab mob uas paub zoo tshaj plaws. Cov kab mob no ncaj qha tawm tsam cov hlwb pob txha uas yuav dhau los ua cov qe ntshav liab. HIV, Epstein-Barr virus, thiab hepatitis virus kuj tuaj yeem ua rau nws.
- Cov kab mob: Cov mob xws li Group C Streptococcus, Tuberculosis, thiab Bacterial Sepsis kuj tuaj yeem ua rau qhov no.
4. Qee cov tshuaj
PRCA kuj tseem tuaj yeem tshwm sim los ntawm kev phiv tshuaj ntawm qee yam tshuaj. Piv txwv li, Erythrocyte-Stimulating Agents (ESAs), uas yog cov tshuaj uas muab rau cov neeg mob raum kom ua rau cov qe ntshav liab ntau ntxiv, qee zaum tuaj yeem ua rau muaj qhov mob no.
5. Cev xeeb tub
Tsis tshua muaj qee tus poj niam yuav muaj PRCA thaum cev xeeb tub. Zoo hmoo, qhov mob feem ntau yuav ploj mus tom qab tus menyuam yug los.
6. Cov mob caj ces uas muaj thaum yug los
Diamond-Blackfan Anemia yog ib qho mob ntshav tsis tshua muaj uas muaj txij thaum yug los. Feem ntau kuaj pom tias nws yog thaum yau. Cov neeg mob no kuj tuaj yeem muaj PRCA.
Cov kws kho mob kuaj mob no li cas thiaj paub tseeb?
Thaum koj mus ntsib kws kho mob uas muaj cov tsos mob uas tau hais ua ntej lawm, nws yuav kuaj koj thiab, yog tias nws xav tias muaj tus kab mob no, xa koj mus kuaj ntau zaus.
| Kev Ntsuas | Koj pom dab tsi ntawm no? |
|---|---|
| Kev suav ntshav tag nrho (CBC) | Yuav kuaj cov ntshav seb cov qe ntshav liab puas tsawg heev, thiab seb cov qe ntshav dawb thiab cov ntshav platelet puas zoo li qub. |
| Kev suav ntawm cov reticulocyte | Qhov no hais txog cov qe ntshav liab tshiab uas tsis tau loj hlob. Hauv PRCA, tus lej no tsawg heev. Qhov no txhais tau tias tsis muaj cov qe ntshav liab tshiab uas tau tsim. |
| Kev Ntsuas Ntshav Peripheral | Yuav muab ib tee ntshav coj los kuaj hauv qab lub tshuab kuaj lub cev kom paub seb cov qe ntshav liab zoo li cas thiab nws nyob qhov twg. |
| Kev Nqus Pob Txha/Kev Kuaj Mob | Qhov no yog qhov kev kuaj tseem ceeb los xyuas kom meej tias muaj tus kab mob . Ib qho qauv me me ntawm cov pob txha raug coj los ntawm qhov chaw xws li lub duav tom qab siv tshuaj loog. Hauv qhov xwm txheej ntawm PRCA, cov hlwb qia uas ua cov qe ntshav liab tsis pom nyob hauv. |
| Lwm yam kev ntsuam xyuas | Yuav nrhiav tau qhov ua rau muaj tus kab mob no, kev kuaj mob xws li kev kuaj tus kab mob Parvovirus B19 thiab kev kuaj CT (los kuaj seb puas muaj qog nqaij hlav xws li thymoma) yuav ua tau. |
Cov kev kho mob rau PRCA yog dab tsi?
Kev kho mob rau PRCA nyob ntawm seb ua rau muaj tus kab mob li cas. Qhov no txhais tau tias tsis yog txhua tus neeg tau txais kev kho mob zoo ib yam. Tus kws kho mob yuav ua tib zoo kawm koj tus mob thiab xaiv qhov kev kho mob uas tsim nyog tshaj plaws.
- Cov Tshuaj Tiv Thaiv Kab Mob: Yog tias qhov ua rau muaj kab mob yog teeb meem nrog lub cev tiv thaiv kab mob, cov tshuaj no ua haujlwm los tswj lub cev tiv thaiv kab mob uas ua haujlwm ntau dhau. Cov tshuaj Corticosteroids xws li Prednisone thiab Cyclosporine feem ntau siv rau qhov no.
- Kev Hloov Ntshav: Yog tias qhov ntshav tsis txaus heev, yuav tsum muab ntshav rau sab nraud kom rov qab tau cov ntshav sai sai. Txawm li cas los xij, kev hloov ntshav tas li tuaj yeem ua rau cov hlau hauv lub cev nce ntxiv yam tsis tsim nyog. Yog li ntawd, yuav tsum tau kho mob sib cais (chelation therapy) kom tshem tawm cov hlau ntau dhau.
- Kev Phais Mob: Yog tias qhov ua rau muaj tus kab mob yog thymoma, kev kho mob yog phais tshem tawm cov qog (Thymectomy).
- Kev Kho Mob Immunoglobulin: Yog tias PRCA yog tshwm sim los ntawm tus kab mob parvovirus B19, kev kho mob no tawm tsam tus kab mob thiab tiv thaiv nws kom tsis txhob ua rau cov qe ntshav liab puas tsuaj.
- Kev Hloov Cov Ncej Cell:Rau cov neeg uas muaj mob ntshav tsis txaus los ntawm lub cev xws li Diamond-Blackfan Anemia, kev kho mob yuav tsum tau hloov cov hlwb pob txha kom hloov cov hlwb pob txha uas muaj mob.
Puas muaj tej yam tshwm sim ntawm kev kho mob?
Yog, ib yam li kev kho mob twg los xij, tej zaum yuav muaj cov kev mob tshwm sim. Tab sis koj tsis tas yuav txhawj txog lawv. Koj tus kws kho mob yuav qhia koj txog txhua yam no ua ntej pib kho mob. Nws kuj tseem yuav muab cov lus qhia tsim nyog rau koj los tswj cov kev mob tshwm sim.
Piv txwv li, cov tshuaj tiv thaiv kab mob tuaj yeem ua rau koj muaj feem kis kab mob ntau ntxiv, ua rau koj cov ntshav siab ntxiv, thiab ua rau koj qhov hnyav nce ntxiv. Kev hloov ntshav tuaj yeem ua rau kub taub hau thiab ua xua. Yog li ntawd, nws yog ib qho tseem ceeb heev uas yuav tsum tau ua tib zoo saib xyuas cov kev hloov pauv hauv koj lub cev thaum lub sijhawm kho mob.
Thaum koj nyob nrog PRCA, koj yuav tsum paub dab tsi?
Qee zaum PRCA tuaj yeem yog ib qho mob ntev. Qhov no txhais tau tias txawm tias tom qab kho mob lawm los, qee zaum tus kab mob tuaj yeem rov qab los dua. Yog li ntawd, nws yog ib qho tseem ceeb uas yuav tsum nyob hauv kev saib xyuas ntawm kws kho mob.
- Kev Kho Mob Txij Nkawm: Tej zaum ib txhia neeg yuav tsum tau noj tshuaj tiv thaiv kab mob ntxiv rau qhov tsawg tsawg kom tiv thaiv tus kab mob kom tsis txhob rov qab los.
- Kev Soj Ntsuam Tsis Tu Ncua: Nws yog ib qho tseem ceeb uas yuav tsum mus ntsib koj tus kws kho mob tsis tu ncua thiab kuaj koj cov ntshav. Qhov no tuaj yeem pab koj paub thaum ntxov seb tus kab mob puas yuav rov tshwm sim lossis muaj lwm yam teeb meem.
- Kev ua neej noj qab nyob zoo:
- Kev noj zaub mov zoo: Nws yog ib qho tseem ceeb uas yuav tsum noj zaub mov kom sib npaug, suav nrog cov zaub mov uas muaj hlau ntau (zaub paj ntsuab, nqaij, taum pauv, taum pauv). Nug koj tus kws kho mob txog kev noj zaub mov uas zoo rau koj.
- Haus dej kom txaus: Tiv thaiv kom lub cev tsis qhuav dej.
- Tiv thaiv koj tus kheej kom tsis txhob muaj kab mob: Ntxuav koj txhais tes ntau zaus. Ceev faj thaum nyob hauv cov chaw muaj neeg coob coob. Mus txhaj tshuaj tiv thaiv kab mob kom raug.
- Kev Ua Si: Kev ua si ntawm qib uas koj lub cev kam rau. Tsis tas li ntawd, nrog koj tus kws kho mob tham txog qhov no.
Thaum koj hnov txog PRCA, tej zaum koj yuav ntshai. Qhov ntawd yog ib txwm muaj. Tab sis nco ntsoov, nws yog ib qho mob uas kho tau. Qhov tseem ceeb tshaj plaws yog nrhiav kev kho mob sai sai thiab ua raws li kev kho mob raws nraim, tsis txhob tsis quav ntsej cov tsos mob.
Cov Lus Qhia Txog Kev Coj Mus Tsev
- PRCA yog ib qho mob ntshav tsis tshua muaj uas ua rau cov pob txha tsis tsim cov qe ntshav liab.
- Nws cov tsos mob tseem ceeb yog qaug zog tas li, ntsej muag dawb paug, thiab ua pa nyuaj.
- Qhov no tuaj yeem tshwm sim los ntawm teeb meem ntawm lub cev tiv thaiv kab mob, mob qog noj ntshav, kev kis kab mob, thiab qee cov tshuaj.
- Qhov kev kuaj tseem ceeb los xyuas kom meej tias muaj tus kab mob yog kev kuaj cov pob txha.
- Cov kev kho mob sib txawv nyob ntawm seb ua rau muaj tus kab mob li cas, thiab kev kho mob tuaj yeem tswj cov tsos mob.
- Vim tias qhov no qee zaum tuaj yeem rov tshwm sim dua, kev soj ntsuam kho mob mus sij hawm ntev thiab kev kuaj mob tsis tu ncua yog qhov tseem ceeb heev.
- Yog tias koj tseem muaj cov tsos mob zoo li ntshav tsis txaus, tsis txhob ntshai thiab mus ntsib koj tus kws kho mob tam sim ntawd.
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Tsis muaj lus teb tau muab tso tawm. Ntxiv koj cov lus tawm ntawm no thawj zaug.
Ntxiv koj cov lus