Koj puas feem ntau xav tias koj tus menyuam luv dua li lwm tus menyuam hnub nyoog li nws? Qee zaum qhov laj thawj rau qhov no yuav yog vim peb lub cev tsis tsim cov tshuaj hormones loj hlob txaus, uas yog cov tshuaj hormones tseem ceeb rau kev loj hlob. Hauv tsab xov xwm no, peb yuav tham txog cov tshuaj tshwj xeeb uas cov kws kho mob pom zoo kom kho qhov mob no, uas tsuas yog siv tau ib zaug ib lub lim tiam xwb.
Cov tshuaj no hu ua Lonapegsomatropin li cas?
Hais yooj yim xwb, Lonapegsomatropin (feem ntau hu ua SKYTROFA ) yog ib hom tshuaj hormones uas ua haujlwm ntev. Nws yog tsim los pab cov menyuam yaus uas tsis muaj zog vim tsis muaj cov tshuaj hormones loj hlob hauv lawv lub cev kom loj hlob siab dua.
Qhov no yog muab rau tus menyuam ua ib qho kev txhaj tshuaj hauv qab daim tawv nqaij. Hloov chaw ntawm kev txhaj tshuaj hormones loj hlob txhua hnub, qhov no yog muab ib zaug ib lub lim tiam . Qhov no yog qhov yooj yim heev rau cov menyuam yaus thiab cov niam txiv.
Tej yam koj yuav tsum qhia rau koj tus kws kho mob ua ntej pib noj cov tshuaj no
Ua ntej muab cov tshuaj no rau koj tus menyuam, nws yog ib qho tseem ceeb heev uas yuav tsum piav qhia txog koj tus menyuam txoj kev noj qab haus huv. Tshwj xeeb yog tias muaj ib qho ntawm cov mob hauv qab no, nws yog ib qho tseem ceeb uas yuav tsum qhia rau lawv txog nws.
| Kev noj qab haus huv lossis teeb meem | Kev piav qhia |
|---|---|
| Mob qog noj ntshav | Yog tias tus me nyuam tam sim no muaj mob qog noj ntshav lossis tau kho mob qog noj ntshav ua ntej lawm. |
| Kab mob ntshav qab zib | Ib qho mob uas muaj cov ntshav qab zib ntau ntxiv. |
| Prader-Willi syndrome | Qhov no yog ib qho mob caj ces tsis tshua muaj. |
| Ua pa nrov nrov los yog ua pa tsis taus thaum pw tsaug zog (pw tsaug zog apnea) | Tshwj xeeb tshaj yog tias tus me nyuam pw tsaug zog nrov nrov lossis tsis ua pa ib pliag thaum pw tsaug zog. |
| Txo qis kev ua haujlwm ntawm cov qog adrenal | Kev ua haujlwm ntawm cov qog adrenal qis. |
| Cov theem thyroid qis | Cov thyroid qis. |
| Kab mob Scoliosis | Muaj ib qho nkhaus sideways hauv tus txha nraub qaum. |
| Ib qho kev phais mob tsis ntev los no | Yog koj tau phais loj lossis muaj xwm txheej. |
| Teeb meem pom kev | Yog tias koj muaj teeb meem pom kev tsis meej. |
| Kev ua xua | Yog tias koj muaj kev tsis haum tshuaj rau cov tshuaj no, lwm cov tshuaj hormones loj hlob, lossis lwm yam tshuaj lossis khoom noj. |
| Cev xeeb tub los yog pub niam mis | Yog koj cev xeeb tub, tab tom sim cev xeeb tub, lossis pub niam mis (qhov no yuav siv tau rau cov ntxhais hluas, vim feem ntau muab rau cov menyuam yaus). |
Cov tshuaj tiv thaiv kab mob no siv li cas?
Cov tshuaj no yog muab ua ib qho kev txhaj tshuaj rau hauv qab daim tawv nqaij (subcutaneously). Koj tus kws kho mob lossis tus nais maum yuav qhia koj yuav ua li cas muab nws. Nco ntsoov siv tsuas yog cov tshuaj uas tau sau tseg raws li cov lus qhia . Txuas ntxiv siv nws kom txog thaum koj tus kws kho mob hais kom koj tsum.
Tseem ceeb heev:Tsis txhob muab cov koob txhaj tshuaj thiab cov koob txhaj tshuaj uas siv lawm pov tseg rau hauv lub thoob khib nyiab. Yuav tsum muab tso rau hauv lub thawv yas tshwj xeeb uas tuab thiab tshem tau. Yog tias koj tsis muaj, nug koj tus kws kho mob seb yuav ua li cas thiaj tau ib qho.
Hais txog hnub nyoog uas muab tshuaj rau ib tug menyuam, nws tuaj yeem muab rau cov menyuam yaus hnub nyoog li ib xyoos raws li qee qhov xwm txheej. Txawm li cas los xij, tsuas yog koj tus kws kho mob thiaj li txiav txim siab tau.
Yuav ua li cas yog tias koj noj tshuaj ntau dhau?
Yog koj xav tias koj tus menyuam tau noj tshuaj ntau dua li qhov tau teev tseg, hu rau Lub Chaw Qhia Txog Tshuaj Lom Hauv Tebchaws ntawm Tsev Kho Mob Colombo National tam sim ntawd . Txwv tsis pub, coj koj tus menyuam mus rau Chav Kho Mob Thaum Muaj Xwm Ceev (ETU) ze tshaj plaws yam tsis muaj kev ncua.
Yog tias kuv tsis nco qab noj tshuaj ib zaug li cas?
Yog koj txhaj tshuaj tiv thaiv tsis tau rau hnub uas teem tseg hauv lub lim tiam, tsis txhob txhawj. Muab tshuaj sai li sai tau thaum koj nco qab. Tab sis yog tias yuav luag txog lub sijhawm rau koj cov koob tshuaj tom ntej, tsuas yog muab cov tshuaj uas tau teem tseg rau lub sijhawm ntawd xwb. Hais yooj yim, koj tuaj yeem muab cov tshuaj tiv thaiv no 2 hnub ua ntej lossis 2 hnub tom qab hnub teem tseg. Txawm li cas los xij, yuav tsum muaj qhov sib nrug tsawg kawg yog 5 hnub ntawm ob koob tshuaj. Tsis txhob muab ob npaug lossis ntau dua koob tshuaj tsuas yog vim koj tsis nco qab.
Tej yam yuav tsum ceev faj thaum siv cov tshuaj
- Kev kuaj mob tsis tu ncua: Nco ntsoov coj koj tus menyuam mus rau tsev kho mob raws li hnub uas tus kws kho mob tau teem tseg kom paub seb lawv tus mob zoo li cas. Tej zaum yuav siv sijhawm me ntsis kom pom cov txiaj ntsig ntawm cov tshuaj no.
- Kev kuaj ntshav: Thaum lub sijhawm kho mob, tus kws kho mob yuav tsum tau kuaj xyuas tej yam xws li koj tus menyuam cov ntshav qab zib thiab cov tshuaj hormones.
- Kev kuaj qhov muag: Tej zaum yuav tsum kuaj xyuas koj tus menyuam qhov muag ua ntej thiab thaum lub sijhawm kho mob.
- Lwm cov tshuaj: Qhia rau koj tus kws kho mob txog lwm yam tshuaj, cov vitamins, thiab cov tshuaj ntsuab uas koj tus menyuam noj. Tshwj xeeb tshaj yog cov tshuaj rau ntshav qab zib, cov tshuaj hormones (xws li cov tshuaj tswj kev yug menyuam), thiab cov tshuaj steroids (prednisone, cortisone) tuaj yeem cuam tshuam nrog cov tshuaj no.
Tej zaum yuav muaj tej yam tshwm sim tsis zoo
Ib yam li lwm yam tshuaj, cov tshuaj no muaj qee yam kev phiv. Qee yam ntawm lawv tuaj yeem ua rau mob hnyav, yog li nws tseem ceeb heev uas yuav tsum paub txog lawv.
| Cov kev mob tshwm sim uas yuav tsum tau qhia rau koj tus kws kho mob lossis ETU tam sim ntawd | |
|---|---|
| Kev ua xua | Tawv nqaij ua pob khaus, khaus, o ntawm lub ntsej muag, daim di ncauj lossis tus nplaig, ua pa nyuaj. |
| Lub cev o (Edema) | Hnyav nce sai sai, pob luj taws, taw, tes o, ua pa nyuaj. |
| Mob Pancreatitis | Mob plab heev (tshwj xeeb tshaj yog mob nraub qaum), mob hnyav zuj zus tom qab noj mov lossis thaum kov lub plab, kub taub hau, xeev siab, ntuav. |
| Ntshav qab zib nce ntxiv | Xav tias tshaib plab dua, nqhis dej dua, lossis tso zis ntau dua li niaj zaus, xav tias nkees heev, lossis pom kev tsis meej. |
| Lwm cov tsos mob hnyav | Mob taub hau hnyav, pom kev hloov pauv, mob duav lossis mob hauv caug, daim tawv nqaij tuab lossis nyias ntawm qhov chaw txhaj tshuaj. |
| Cov kev mob tshwm sim uas feem ntau tsis tas yuav tsum tau kev qhia los ntawm kws kho mob (tab sis qhia rau koj tus kws kho mob yog tias lawv tseem muaj) | |
| Cov cim qhia txog kev kis kab mob | Kub taub hau, mob khaub thuas, hnoos, mob caj pas. |
| Mob nqaij thiab mob pob qij txha | Mob pob qij txha, cov leeg nqaij ntswj, lossis mob. |
Koj khaws cov tshuaj li cas kom zoo?
Khaws cov tshuaj no kom deb ntawm cov menyuam yaus thiab cov tsiaj txhu.
- Tso rau hauv lub tub yees (qhov zoo tshaj plaws): Khaws cia rau hauv lub tub yees (tsis yog lub tub yees khov). Tshem tawm ntawm lub thawv li 15 feeb ua ntej txhaj tshuaj. Siv tsis pub dhau 4 teev tom qab sib tov cov tshuaj.Koj yuav tsum tau siv nws. Yog tias nws tau ntau tshaj 4 teev, muab pov tseg.
- Khaws cia rau qhov kub thiab txias hauv chav tsev: Yog tias tsim nyog, cov tshuaj no tuaj yeem khaws cia rau qhov kub thiab txias hauv chav tsev (ntawm 15-30 Celsius) txog li 6 lub hlis. Txawm li cas los xij, yog tias tsim nyog, cov tshuaj uas tseem tshuav yuav tsum raug pov tseg tom qab 6 lub hlis txij li hnub uas tau muab rho tawm hauv lub tub yees lossis thaum hnub tas sij hawm dhau mus (qhov twg los ua ntej).
- Tsis txhob cia cov tshuaj khov.
Cov Lus Qhia Txog Kev Coj Mus Tsev
- Lonapegsomatropin yog ib qho tshuaj txhaj tshwj xeeb uas muab ib zaug ib lub lim tiam rau cov menyuam yaus uas tsis muaj cov tshuaj hormones loj hlob. Tsuas yog siv raws li tus kws kho mob pom zoo xwb.
- Ua ntej pib kho mob, qhia rau tus kws kho mob txog txhua yam mob thiab tshuaj uas koj tus menyuam muaj.
- Kawm paub txhaj tshuaj tiv thaiv kab mob kom raug. Pov tseg cov koob txhaj tshuaj thiab cov koob txhaj tshuaj uas siv lawm kom zoo rau hauv lub thawv ntse.
- Yog tias koj muaj tej yam kev mob tshwm sim loj xws li mob taub hau hnyav, pom kev tsis meej, mob plab hnyav, lossis o, nrhiav kev pab kho mob tam sim ntawd.
- Cov tshuaj no tsuas yog rau koj tus menyuam xwb. Tsis txhob muab rau lwm tus.
- Khaws cov tshuaj kom zoo, ntawm qhov kub thiab txias. Pov tseg cov tshuaj uas tas sij hawm lawm kom zoo.
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Tsis muaj lus teb tau muab tso tawm. Ntxiv koj cov lus tawm ntawm no thawj zaug.
Ntxiv koj cov lus