Koj tus menyuam daim tawv nqaij puas tuab thiab tawv? Cia peb tham txog Juvenile Systemic Scleroderma!

Koj puas tau pom tias koj tus me nyuam daim tawv nqaij tau hloov pauv me ntsis? Tej zaum daim tawv nqaij tau dhau los ua me ntsis ntxhib, nruj, thiab xav tias txawv ntawm qhov kov? Yog tias koj pom ib yam dab tsi zoo li ntawd, koj yuav tsum txhawj me ntsis. Vim tias, qhov no qee zaum tuaj yeem yog ib qho tsos mob ntawm tus mob hu ua Juvenile Systemic Scleroderma , uas peb tab tom tham txog hnub no. Tsis txhob txhawj, peb yuav tham txog qhov no kom ntxaws.

Kab mob Juvenile Systemic Scleroderma yog dab tsi?

Hais yooj yim xwb, Juvenile Systemic Scleroderma (tseem hu ua Systemic Sclerosis ) yog ib yam mob uas koj tus menyuam daim tawv nqaij tuab dua thiab tawv dua li qub. Xav txog nws zoo li daim roj hmab uas maj mam tuab thiab zoo li yas tawv. Nws tsis yog tsuas yog txwv rau daim tawv nqaij xwb. Qee zaum, nws tuaj yeem cuam tshuam rau lwm yam kabmob hauv tus menyuam lub cev thiab. Lo lus 'systemic' txhais tau tias nws tuaj yeem cuam tshuam rau tus menyuam lub cev tag nrho.

Qhov no yog ib qho kab mob autoimmune . Uas yog, peb lub cev tiv thaiv kab mob, lub cev tiv thaiv kab mob, pib ua yuam kev tawm tsam nws cov hlwb noj qab haus huv. Hauv qhov teeb meem no ntawm Scleroderma, thaum lub cev tiv thaiv kab mob tawm tsam cov hlwb tawv nqaij li no, o lossis o ntawm daim tawv nqaij tshwm sim. Vim yog qhov o no, cov protein hu ua collagen, uas muab rau peb daim tawv nqaij nws qhov elasticity thiab lub zog, pib tsim ntau dhau. Ib yam li qhov caws pliav tsim thaum raug mob, qhov kev tsim collagen ntau dhau no ua rau fibrosis lossis qhov caws pliav zoo li tawv nqaij.

Puas muaj cov hom kab mob Systemic Scleroderma tseem ceeb?

Yog, muaj peb hom tseem ceeb. Cia peb saib seb lawv yog dab tsi.

1. Kab mob tawv nqaij sib txawv (diffuse cutaneous systemic sclerosis): Hom kab mob no, daim tawv nqaij ntawm tus menyuam yuav tuab zuj zus thoob plaws lub cev. Tsis tas li ntawd xwb, tej zaum yuav muaj teeb meem nrog kev ua haujlwm ntawm cov kab mob sab hauv ntawm lub cev. Xav txog, tsis yog tsuas yog caj npab, ceg, thiab lub ntsej muag xwb, tab sis kuj tseem muaj qhov chaw xws li lub hauv siab thiab lub plab pib tuab zuj zus.

2. Kab mob cutaneous systemic sclerosis tsawg (CREST syndrome): Qhov no tshwj xeeb me ntsis. Nws tseem hu ua CREST syndrome . CREST yog ib lo lus luv uas tsim los ntawm kev muab cov tsiaj ntawv thawj zaug ntawm tsib yam ntxwv tseem ceeb ntawm tus mob no ua ke.

• C - Calcinosis: Qhov no txhais tau tias cov calcium tso rau hauv qab daim tawv nqaij thiab ua cov pob me me.
• R - Raynaud tus mob: Qhov no yog thaum cov ntiv tes (tes thiab taw) hloov dawb, xiav, thiab tom qab ntawd liab thaum raug cua txias lossis thaum muaj kev ntxhov siab. Nws nyuaj rau tswj qhov kub ntawm lub cev.
• E - Kev ua haujlwm tsis zoo ntawm txoj hlab pas: Qhov no txhais tau tias lub raj uas nqa zaub mov los ntawm caj pas mus rau lub plab (esophagus) tsis ua haujlwm zoo thaum peb nqos. Qhov no tuaj yeem ua rau mob siab.Tej yam zoo li ntawd yeej tshwm sim tau.
• S - Sclerodactyly: Daim tawv nqaij ntawm cov ntiv tes ua tuab thiab tawv. Cov ntiv tes yuav o thiab tawv, zoo li cov hnyuv ntxwm.
• T - Telangiectasia: Cov hlab ntsha me me hauv daim tawv nqaij loj hlob tuaj, zoo li cov kab laug sab lossis cov pob liab.

3. Kab mob Systemic sclerosis sine scleroderma: Qhov no yog thaum cov kab mob sab hauv ntawm lub cev raug cuam tshuam yam tsis muaj tawv nqaij tuab lossis tawv. 'Sine scleroderma' txhais tau tias 'tsis muaj scleroderma (tawv nqaij tawv)'. Qhov no txhais tau tias txawm hais tias yuav tsis muaj kev hloov pauv tseem ceeb rau daim tawv nqaij, cov kab mob sab hauv yuav raug cuam tshuam.

Leej twg yuav muaj feem mob Juvenile Systemic Scleroderma tshaj? Nws pom muaj ntau npaum li cas?

Tus mob no hu ua Juvenile Systemic Scleroderma yeej muaj feem cuam tshuam rau txhua tus neeg txhua lub hnub nyoog, txawm yog poj niam los txiv neej. Txawm li cas los xij, nws tsis tshua muaj rau cov menyuam yaus, uas yog, cov menyuam yaus hnub nyoog qis dua 10 xyoo, kom muaj tus mob no. Lo lus 'juvenile' nws tus kheej txhais tau tias qhov no yog tus mob uas cuam tshuam rau cov menyuam yaus. Yog tias koj saib cov ntaub ntawv hauv lub tebchaws zoo li Tebchaws Meskas, nws tau hais tias muaj ntawm 5,000 thiab 7,000 tus menyuam yaus uas muaj Scleroderma. Kwv yees li 2% ntawm tag nrho cov pej xeem uas muaj Scleroderma raug cuam tshuam los ntawm tus mob no ua ntej hnub nyoog 10 xyoo. Lwm 7% ntsib tus mob no ntawm hnub nyoog 10 thiab 19 xyoo. Yog li, qhov no suav tias yog tus mob tsis tshua muaj .

Cov tsos mob ntawm Juvenile Systemic Scleroderma yog dab tsi?

Hauv qhov mob no, cov tsos mob tuaj yeem cuam tshuam rau daim tawv nqaij thiab cov kab mob sab hauv ntawm tus menyuam. Tsis tas li ntawd, ntau tus menyuam uas muaj Systemic Scleroderma kuj muaj tus mob hu ua Raynaud's phenomenon .

Cov tsos mob cuam tshuam rau daim tawv nqaij thiab cov nqaij

Ua ntej, cia peb saib seb qhov no cuam tshuam li cas rau daim tawv nqaij thiab cov nqaij cuam tshuam:

• Daim tawv nqaij poob nws qhov elasticity. Nws ua rau ntxhib, nruj, thiab tsis zoo nkauj.
• Cov tes ua haujlwm txo qis. Cov tawv nqaij yuav nruj, tshwj xeeb tshaj yog cov ntiv tes thiab xib teg, ua rau nws nyuaj rau khoov tes thiab tuav cov khoom.
• Cov hlab ntsha liab tshwm sim rau ntawm daim tawv nqaij, tshwj xeeb tshaj yog rau ntawm tes, lub ntsej muag, thiab nyob ib ncig ntawm cov rau tes (telangiectasias). Cov no zoo li cov ntaub me me ntawm kab laug sab.
• Calcinosis yog qhov ua rau muaj cov pob me me ntawm cov calcium uas tso rau hauv qab daim tawv nqaij lossis lwm qhov chaw. Cov no qee zaum yuav tawv.

Thaum xub thawj, daim tawv nqaij ntawm tes thiab taw yuav zoo li o thiab loj zuj zus. Raws li lub sijhawm dhau mus, daim tawv nqaij ntawm tus menyuam yuav nruj, tuab zuj zus, thiab tej zaum yuav muaj cov kab nrib pleb, cov chaw poob qis, lossis cov qhov me me. Piv txwv li, qee tus menyuam cov ntiv tes yuav o zoo li cov hnyuv ntxwm, tom qab ntawd yuav tawv thiab ci ntsa iab.

Cov tsos mob cuam tshuam rau cov kab mob sab hauv

Kab mob Systemic Scleroderma kuj tseem tuaj yeem cuam tshuam rau cov kab mob sab hauv ntawm tus menyuam. Cov tsos mob yuav muaj xws li:

• Cov pob qij txha o, nruj, thiab mob. Zoo li mob pob qij txha.
• Cov qhov txhab ntawm cov ntiv tes. Cov qhov txhab no siv sijhawm ntev heev los kho.
• Teeb meem ntawm lub cev zom zaub mov. Piv txwv li, mob plab, nqos nyuaj, quav xoob (raws plab), thiab mob plab.
• Teeb meem ua pa. Tej zaum koj yuav hnoos tas li lossis ua pa nyuaj.
• Teeb meem raum. Qhov no kuj tseem tuaj yeem ua rau muaj ntshav siab (ntshav siab) .
• Xav tias nkees txhua lub sijhawm. Txawm tias ua ib yam me me los kuj nkees sai sai.
• Cov leeg tsis muaj zog.

Feem ntau, tus mob no tsis mob. Yog li ntawd, qee tus menyuam yaus yuav tsis paub tias lawv muaj Scleroderma. Yog vim li cas tus menyuam uas kuaj pom tias muaj Systemic Sclerosis yuav tsum mus ntsib kws kho mob tsis tu ncua kom kuaj xyuas seb puas muaj ntshav siab, mob ntsws, mob raum, mob plab hnyuv, thiab mob plawv.

Qhov tshwm sim ntawm Raynaud

Qhov no yog ib qho tsos mob tshwj xeeb heev. Raynaud tus mob yog thaum tus menyuam cov ntiv tes thiab cov ntiv taw hloov xim thaum raug cua txias lossis thaum lawv ntxhov siab. Ua ntej lawv hloov dawb , tom qab ntawd xiav , thiab thaum kawg liab . Qhov no yog ib qho tsos mob uas tuaj yeem pom thaum ntxov ntawm tus kab mob. Qee zaum qhov no tuaj yeem yog thawj qhov cim qhia tias muaj Systemic Sclerosis.

Lwm cov tsos mob uas yuav tshwm sim nrog Raynaud's phenomenon muaj xws li:

• Xav tias nkees txhua lub sijhawm
• Mob pob qij txha
• Nyuaj nqos zaub mov
• Mob plab
• Mob hauv siab
• Mob raws plab
• Ua pa nyuaj

Vim li cas Juvenile Systemic Scleroderma thiaj tshwm sim?

Qhov tseeb, qhov ua rau muaj tus kab mob Juvenile Systemic Scleroderma tseem tsis tau paub meej . Txawm li cas los xij, kev tshawb fawb tau qhia tias kev puas tsuaj rau cov hlwb uas nyob sab hauv ntawm peb cov hlab ntsha ua rau cov hlwb txuas hauv daim tawv nqaij, hu ua fibroblasts, ua haujlwm ntau dhau. Cov fibroblasts no yog cov hlwb uas tsim cov protein zoo li collagen. Yog li, cov tsos mob ntawm Systemic Scleroderma yog tshwm sim los ntawm qhov kev tsim cov collagen ntau dhau no.

Vim li cas daim tawv nqaij ntawm tus menyuam thiaj nruj ua luaj?

Hauv tus kab mob Systemic Scleroderma, daim tawv nqaij yuav nruj vim muaj cov protein hu ua collagen ntau dhau hauv cov nqaij ntawm tus menyuam. Raws li peb tau tham ua ntej lawm, txoj haujlwm ntawm lub cev tiv thaiv kab mob yog tiv thaiv lub cev ntawm kev kis kab mob thiab kab mob. Txawm li cas los xij, rau tus menyuam uas muaj Scleroderma, lub cev tiv thaiv kab mob ua haujlwm ntau dhau thiab sim tiv thaiv lub cev nrog nws cov hlwb noj qab haus huv - uas yog, nws tawm tsam nws cov hlwb . Yog li ntawd, tus menyuam cov hlwb pib tsim cov collagen ntau dhau. Cov collagen ntau dhau no tau tso rau hauv daim tawv nqaij thiab cov kabmob sab hauv ntawm tus menyuam, tsim kom muaj qhov tawv, tuab, zoo li qhov caws pliav.

Yuav kuaj mob li cas rau tus kab mob Systemic Scleroderma?

Koj tus menyuam tus kws kho mob yuav kuaj mob Systemic Scleroderma los ntawm kev xav txog ntau yam.

• Cov tsos mob thiab cov cim qhia lub cev, xws li daim tawv nqaij tuab thiab kev hloov pauv ntawm cov ntiv tes.
• Kev hloov pauv tshwj xeeb hauv daim tawv nqaij, xws li cov cheeb tsam tuab, lawv qhov loj me, cov duab, thiab xim.
• Kev kuaj mob thiab kev kuaj lub cev tag nrho yuav muab cov ntaub ntawv hais txog tus menyuam cov mob yav dhau los thiab seb puas muaj leej twg hauv tsev neeg tau muaj cov mob zoo sib xws.

Cov kev kuaj twg siv los kuaj mob Systemic Scleroderma?

Muaj ntau yam kev kuaj mob uas ua los txiav txim seb puas muaj lwm yam mob uas zoo li scleroderma, los txiav txim seb scleroderma ua haujlwm li cas, thiab los txiav txim seb lwm yam kabmob puas cuam tshuam nrog daim tawv nqaij. Kev kuaj rau cov protein autoimmune tuaj yeem muab qee lub tswv yim ntawm kev mob. Tsis tshua muaj, cov kws kho mob ua qhov biopsy ntawm daim tawv nqaij .

Nov yog qee qhov kev ntsuam xyuas ntxiv rau Systemic Scleroderma:

• Kev kuaj ntshav: Ntsuas cov protein uas ua rau lub cev tiv thaiv kab mob tsis ua haujlwm thiab kev ua haujlwm ntawm lub raum.
• Kev kuaj mob X-ray: Nrhiav seb puas muaj kev hloov pauv ntawm daim tawv nqaij, pob txha, thiab cov kab mob sab hauv ntawm tus menyuam (xws li lub ntsws thiab txoj hnyuv).
• Kev ntsuam xyuas los xyuas seb txoj kev nqos hauv txoj hlab pas: Qhov no txhais tau tias saib qhov ua haujlwm ntawm lub raj uas nqa zaub mov los ntawm qhov ncauj mus rau lub plab.
• Kev kuaj xyuas kev ua haujlwm ntawm lub ntsws: Kev kuaj ua pa kom pom tias tus menyuam lub ntsws puas ua haujlwm zoo.
• Kev kuaj lub plawv ultrasound (Echocardiography): Saib seb koj tus menyuam lub plawv ua haujlwm li cas.

Leej twg kuaj pom tias muaj tus kab mob Juvenile Systemic Scleroderma?

Tus kab mob Systemic Scleroderma raug kuaj pom, saib xyuas, thiab kho los ntawm koj tus menyuam tus kws kho mob dav dav, tus kws kho mob rheumatologist uas tshwj xeeb hauv cov mob no, tus kws kho mob tawv nqaij , lossis pab pawg kws kho mob uas tshwj xeeb hauv qee qhov ntawm lub cev (kev zom zaub mov, lub plawv, lub ntsws, lub raum).

Yuav kho tus kab mob Juvenile Systemic Scleroderma li cas?

Lub hom phiaj tseem ceeb ntawm kev kho mob scleroderma yog kom tsis txhob o, tiv thaiv kom tus mob tsis txhob hnyav zuj zus, thiab tiv thaiv kev puas tsuaj rau cov kab mob sab hauv.

Tiv thaiv daim tawv nqaij

Kev tiv thaiv koj daim tawv nqaij pab kom cov ntshav ntws mus rau koj daim tawv nqaij thiab ob txhais ceg tau zoo tshaj plaws. Qhov no tseem ceeb heev rau cov menyuam yaus uas muaj tus kab mob Raynaud . Nov yog qee yam uas koj ua tau los tiv thaiv koj tus menyuam daim tawv nqaij:

• Tsis txhob ua rau cov chaw raug mob raug mob, tshwj xeeb tshaj yog cov ntiv tes thiab cov ntiv taw raug mob.Txawm tias yog ib qho kua muag me me los kuj tuaj yeem ua teeb meem loj heev.
• Tiv thaiv koj tus menyuam txhais tes thiab taw kom tsis txhob raug cua txias. Ua kom chav sov. Thaum lub caij ntuj no (hauv thaj chaw txias dua xws li thaj chaw siab ntawm peb lub tebchaws), hnav khaub ncaws ntxiv rau koj tus menyuam, xws li lub kaus mom nrog lub pob ntseg, hnab looj tes, thiab thom khwm sov. Cov plaub mos mos sov dua li paj rwb lossis cov ntaub ua los ntawm cov khoom siv. Tsis tas li ntawd, nws zoo dua los hnav ntau txheej khaub ncaws nyias dua li ib txheej tuab.
• Tsis txhob haus luam yeeb los yog cia koj tus menyuam haus luam yeeb.
• Tsis txhob muab tshuaj kho mob khaub thuas uas muaj cov khoom xyaw pseudoephedrine rau koj tus menyuam.
• Tiv thaiv koj tus menyuam kom tsis txhob raug tshav ntuj ntau dhau. Siv cov tshuaj pleev thaiv hnub raws li koj tus kws kho mob hais.
• Tsis txhob siv cov xab npum, cov tshuaj txhuam (cov tshuaj ua kom daim tawv nqaij nruj, cov tshuaj txhuam lub cev lossis lub ntsej muag, cov tshuaj ntxuav tes hnyav) rau ntawm koj tus menyuam daim tawv nqaij.
• Siv cov tshuaj pleev kom koj tus menyuam daim tawv nqaij du raws li tus kws kho mob tau hais.

Kev kho lub cev

Cov kev cob qhia txog kev ncab cov leeg thiab kev tawm dag zog uas cov kws kho lub cev thiab cov kws kho mob ua haujlwm ua, tuaj yeem pab tswj tus menyuam txoj kev ywj pheej, kev txav mus los hauv cov pob qij txha, lub zog ntawm cov leeg, thiab cov ntshav ntws mus rau thaj chaw uas raug mob. Cov kev kho mob no kuj tseem tuaj yeem pab tiv thaiv kev sib koom ua ke ntawm cov pob qij txha, uas yog kev ua rau cov pob qij txha tawv. Yog tias tsim nyog, tus kws kho mob yuav pom zoo kom siv cov hlau nplaum lossis cov hlau nplaum.

Kev phais mob

Tsis tshua muaj tej zaum yuav tsum tau phais tes los yog phais kom zoo nkauj kom kho tau qhov mob hnyav ntawm cov pob qij txha los yog daim tawv nqaij los yog cov qhov txhab. Txawm li cas los xij, ua ntej phais, tus mob yuav tsum zoo li qub , txhais tau tias nws tsis ua haujlwm tau ntau xyoo.

Tej zaum koj tus menyuam tus kws kho mob yuav xav txog kev hloov pob txha los ntawm nws tus kheej ua ib txoj kev kho mob. Tam sim no tseem tab tom tshawb nrhiav lwm yam kev kho mob.

Cov tshuaj twg muab rau Systemic Scleroderma?

Koj tus kws kho mob yuav sau ntawv kom koj noj ntau yam tshuaj los kho koj tus menyuam tus mob. Piv txwv li:

• Cov tshuaj Corticosteroids: Txo qhov o ntawm cov leeg nqaij, cov pob qij txha, thiab daim tawv nqaij. Cov tshuaj steroids kuj tseem tuaj yeem pab kho cov theem pib ntawm kev o ntawm cov kabmob sab hauv. Txawm li cas los xij, cov tshuaj steroids feem ntau tsis zoo rau cov theem fibrotic tom qab ntawm systemic sclerosis.
• Cov tshuaj tsis-steroidal anti-inflammatory (NSAIDs): Piv txwv li , ibuprofen thiab naproxenCov tshuaj xws li NSAIDs qee zaum siv los txo qhov o ntawm cov pob qij txha rau cov menyuam yaus uas muaj mob pob qij txha. Txawm li cas los xij, yuav tsum ceev faj kom tsis txhob siv NSAIDs ntau dhau thaum lub raum ua haujlwm tsis zoo.
• Lwm cov tshuaj kho lub cev tiv thaiv kab mob: Cov no yog muab los txo cov kev tiv thaiv kab mob autoimmune thiab tiv thaiv kev o thiab cov caws pliav tom qab.
• Cov tshuaj uas ua rau cov hlab ntsha nthuav dav thiab txhim kho kev ntws ntshav: Cov no yog siv los kho Raynaud tus kab mob .

Yog tias kuv tus menyuam muaj mob Systemic Scleroderma, kuv yuav tsum xav li cas?

Tsis muaj ib txoj kev kho mob tshwj xeeb rau tus kab mob scleroderma. Txawm li cas los xij, koj tuaj yeem pab koj tus menyuam tswj hwm tus mob thiab nyob nrog nws.

Kab mob Systemic Scleroderma yog ib yam kab mob uas mob ntev , mob ntev, thiab maj mam zuj zus. Nws tuaj yeem kav ntev li ntau lub hlis lossis ntau xyoo. Koj tus menyuam txoj kev xav nyob ntawm seb cov tsos mob kis mus rau ntau npaum li cas thiab lub cev (tshwj xeeb tshaj yog daim tawv nqaij thiab cov kab mob sab hauv) raug cuam tshuam ntau npaum li cas.

Cov menyuam yaus uas muaj teeb meem ntawm lub ntsws, lub plawv, lossis lub raum muaj feem yuav muaj teeb meem ntau dua, xws li kev sib koom ua ke thiab kev hloov pauv ntawm cov pob txha. Qhov mob no kuj tseem tuaj yeem cuam tshuam rau kev loj hlob ntawm pob txha ntawm tus menyuam.

Feem ntau tus kab mob Systemic Scleroderma tsis ploj mus tag, tab sis nws tuaj yeem nyob rau tib theem li ob peb xyoos yam tsis muaj kev mob hnyav dua.

Koj yuav muaj sia nyob ntev npaum li cas nrog Juvenile Systemic Scleroderma?

Lub neej ntev ntawm ib tug me nyuam uas kuaj pom tias muaj tus kab mob Systemic Scleroderma yuav nyob ntawm seb tus mob hnyav npaum li cas, tshwj xeeb tshaj yog seb nws puas tau cuam tshuam rau lawv cov kab mob sab hauv. Nws yog ib qho tseem ceeb uas yuav tsum nrog koj tus kws kho mob tham txog qhov no kom nkag siab meej.

Puas tuaj yeem tiv thaiv tau tus kab mob Juvenile Systemic Scleroderma?

Vim tias qhov ua rau muaj qhov no tseem tsis tau paub meej, tsis muaj ib txoj kev tshwj xeeb los tiv thaiv Systemic Scleroderma.

Kuv yuav saib xyuas kuv tus menyuam uas tau kuaj pom tias muaj Systemic Scleroderma li cas?

Cov menyuam yaus uas muaj tus kab mob Systemic Scleroderma yuav tsum ua neej nyob li qub li sai tau. Lawv yuav tsum mus kawm ntawv, ua si, thiab koom nrog cov dej num. Feem ntau, tsis muaj kev txwv rau qhov ntau npaum li cas ntawm kev ua ub no uas cov menyuam yaus ua tau (yog tias nws muaj kev nyab xeeb). Kev tawm dag zog pab tiv thaiv kev qaug zog thiab ua rau cov leeg muaj zog, yooj ywm, thiab ua siab ntev.

Thaum twg kuv yuav tsum coj kuv tus menyuam mus ntsib kws kho mob?

Yuav tsum coj koj tus menyuam mus kuaj mob tsis tu ncua. Saib xyuas seb puas muaj cov tsos mob uas cuam tshuam rau cov kab mob sab hauv. Yog tias koj tus menyuam mob hnyav , muaj teeb meem txav mus los ntawm lawv lub cev, lossis muaj cov tsos mob uas cuam tshuam rau lawv lub neej txhua hnub,Mus ntsib kws kho mob tam sim ntawd.

Kuv yuav tsum nug kuv tus kws kho mob li cas?

Kev nug cov lus nug zoo li no yuav pab koj:

• Kuv tus menyuam tus mob hnyav npaum li cas?
• Kuv yuav pab tiv thaiv kuv tus menyuam daim tawv nqaij li cas hauv tsev?
• Kuv tus menyuam yuav tsum mus kho lub cev ntau npaum li cas?
• Yog tias tus kab mob hnyav zuj zus tuaj, kuv yuav tsum tau saib xyuas cov tsos mob twg?
• Puas yog kuv tus menyuam yuav tsum tau phais?

Puas muaj lwm hom scleroderma?

Ntxiv rau cov hom kab mob Systemic Scleroderma, muaj ob hom kab mob Scleroderma tseem ceeb. Lawv yog:

• Kab mob scleroderma uas nyob ib puag ncig: Hom kab mob no tsuas yog cuam tshuam rau daim tawv nqaij ntawm qee qhov chaw ntawm lub cev xwb. Nws kuj tseem yuav kis mus rau cov leeg nqaij lossis pob txha hauv qab, lossis nws yuav tsis muaj. Nws tsis tshua muaj feem cuam tshuam rau cov kab mob sab hauv.
• Kab mob Systemic scleroderma (tseem hu ua systemic sclerosis): Qhov no yog qhov peb tau tham txog thoob plaws hauv tsab xov xwm no. Hauv qhov mob no, daim tawv nqaij tuaj yeem tuab txhua qhov chaw ntawm lub cev. Ntxiv nrog rau kev hloov pauv ntawm daim tawv nqaij, cov nqaij caws pliav tuaj yeem tsim nyob rau hauv cov kabmob sab hauv xws li lub raum, lub plawv, lub ntsws, thiab lub plab zom mov. Cov menyuam yaus uas muaj kab mob systemic sclerosis yuav muaj kev txav mus los tsawg vim muaj kev hloov pauv ntawm daim tawv nqaij dav dav.

Cov yam tseem ceeb tshaj plaws uas koj yuav tsum nco ntsoov hauv tsab xov xwm no

Kab mob Juvenile Systemic Scleroderma yog ib yam mob tsis tshua muaj rau cov menyuam yaus uas ua rau daim tawv nqaij tuab thiab tawv, qee zaum cuam tshuam rau cov kabmob sab hauv. Nws yog ib yam kab mob autoimmune.

• Cov tsos mob: Tej zaum yuav muaj tawv nqaij nruj, cov ntiv tes o, Raynaud's phenomenon (cov ntiv tes hloov xim thaum huab cua txias), mob pob qij txha, teeb meem zom zaub mov, thiab ua pa nyuaj.
• Ua rau: Txawm hais tias tsis paub meej tias yog vim li cas los xij, nws xav tias yog vim lub cev tiv thaiv kab mob tsis ua haujlwm zoo thiab muaj collagen ntau dhau.
• Kev Kho Mob: Tswj tus kab mob, tiv thaiv daim tawv nqaij, siv kev kho lub cev thiab, yog tias tsim nyog, siv tshuaj. Txawm hais tias tsis muaj kev kho kom zoo tag nrho, cov tsos mob tuaj yeem tswj tau.
• Qhov tseem ceeb tshaj plaws: Yog tias koj tus menyuam muaj cov tsos mob, nrhiav kev pab kho mob tam sim ntawd. Nws yog ib qho tseem ceeb heev uas yuav tsum xa koj tus menyuam mus kuaj mob tsis tu ncua thiab pab lawv ua neej nyob li qub. Tsis txhob txhawj, koj tuaj yeem daws qhov teeb meem no nrog kev pab los ntawm cov kws kho mob.

Scleroderma , cov kab mob ntawm daim tawv nqaij rau menyuam yaus, tawv nqaij nruj, collagen, cov kab mob autoimmune, Raynaud's phenomenon, CREST syndrome