Qee zaum peb pom tej yam me me uas peb cov menyuam lub qhov muag hloov. Tej zaum ib lub qhov muag zoo li tig mus rau pem hauv ntej me ntsis, lossis tus menyuam feem ntau hais tias nws zoo li tsis meej me ntsis. Txawm hais tias peb xav tias cov no yog tej yam ib txwm muaj, qee zaum yuav muaj ib qho laj thawj tom qab qhov no uas peb yuav tsum tau them sai sai. Ib qho laj thawj zoo li no yuav yog ib qho mob hu ua Optic Glioma. Qhov no yog ib qho qog uas loj hlob hauv lub hlwb. Yog li cia peb tham txog txhua yam hauv cov lus yooj yim hnub no.
Optic Glioma yog dab tsi?
Hais yooj yim xwb, Optic Glioma yog ib hom mob qog hauv hlwb uas loj hlob sai heev . Feem ntau pom muaj rau cov menyuam yaus hnub nyoog qis dua 10 xyoo. Qhov tseeb, tsuas yog muaj li 5% ntawm tag nrho cov qog hauv hlwb thaum yau.
Cov qog no loj hlob nyob ib puag ncig cov hlab ntsha pom kev, uas yog cov hlab ntsha uas txuas peb lub qhov muag mus rau peb lub hlwb. Muaj ib hom cell hauv peb lub hlwb uas pab thiab pub cov cell hlab ntsha, hu ua glial cells. Cov cell no yog qhov chaw uas cov qog no pib.
Thaum cov qog no loj hlob tuaj, nws pib nias rau ntawm lub qhov muag thiab cov hlab ntsha optic. Qhov no tuaj yeem ua rau pom kev tsis meej thiab, yog tias tsis kho kom zoo, txawm tias dig muag . Txawm li cas los xij, vim tias nws tuaj yeem loj hlob loj heev, kev hloov pauv ntawm kev pom kev yuav tsis pom tam sim ntawd. Nws tuaj yeem cuam tshuam rau ib lossis ob lub qhov muag.
Tiam sis qhov xov xwm zoo tshaj plaws ntawm no yog tias, txawm hais tias qhov no yog ib qho mob hnyav heev, nws feem ntau tuaj yeem kho tau tag nrho.
Qhov laj thawj tseem ceeb uas ua rau cov qog no txaus ntshai yog vim lawv qhov chaw nyob hauv lub hlwb. Peb lub paj hlwb optic txuas nrog lub hlwb los ntawm qhov chaw hormone ntawm peb lub cev. Yog li thaum cov qog loj hlob, nws tuaj yeem cuam tshuam rau qhov ntawd thiab. Qhov ntawd txhais tau tias nws tuaj yeem ua rau muaj kev tsis sib npaug ntawm cov tshuaj hormones, teeb meem tswj cov ntsev thiab dej hauv lub cev, thiab cuam tshuam rau tej yam xws li kev noj mov thiab kev pw tsaug zog .
Feem ntau, peb lub hlwb muaj 'ntshav-ntshav thaiv' los tiv thaiv nws. Qhov no yog qhov uas tiv thaiv kev kis kab mob kom tsis txhob mus txog lub hlwb. Vim yog qhov thaiv no, cov qog nqaij hlav zoo li no feem ntau tsis kis mus rau sab nraud lub hlwb mus rau lwm qhov ntawm lub cev. Txawm li cas los xij, tsis tshua muaj, uas yog, tsawg dua 5%, nws muaj peev xwm ua rau cov qog nqaij hlav no kis mus dhau lub hlwb thiab tus txha caj qaum.
Cov tsos mob ntawm qhov no yog dab tsi?
Cov tsos mob ntawm tus mob qog hauv lub hlwb sib txawv nyob ntawm seb nws cuam tshuam rau qhov twg hauv lub hlwb. Yog tias muaj tus mob optic glioma, cov teeb meem pom kev yog cov teeb meem tseem ceeb. Tab sis peb kuj tuaj yeem xav txog cov no ua cov tsos mob ntawm lwm yam kab mob. Cia peb saib seb cov tsos mob tseem ceeb yog dab tsi.
| Cov tsos mob | Piav Qhia Yooj Yim |
|---|---|
| Qhov muag tawm ntawm lub qhov muag (Proptosis) | Ib lossis ob lub qhov muag zoo li tawm ntau dua li qub. Peb hais tias 'ob lub qhov muag tawm zoo li qog'. |
| Teeb meem pom kev | Pom kev tsis meej, nyuaj rau paub cov xim, maj mam poob qhov muag ntawm ib lossis ob lub qhov muag. Cov menyuam yaus sim mus ze ntawm lub TV thiab saib nws. |
| Cov teeb meem ntsig txog cov tshuaj hormones | Qhov hnyav nce lossis poob yam tsis paub meej, kev loj hlob tsis zoo (tsis loj hlob siab), thiab hnub nyoog laus zuj zus. |
| Cov teeb meem ntawm lub cev endocrine | Tej yam xws li tso zis ntau zaus thiab haus dej cawv ntau dhau. |
Muaj ib qho tshwj xeeb ntxiv. Yog tias koj tus menyuam tau kuaj pom tias muaj tus mob caj ces hu ua Neurofibromatosis 1 (NF1) , nws muaj feem yuav mob Optic Glioma ntau dua. Kwv yees li 15% ntawm cov menyuam uas muaj NF1 yuav mob qog no. Tab sis qhov tseem ceeb ntawm no yog tias ntau cov qog uas loj hlob li no yuav ntsws lossis tsis loj hlob ntxiv lawm, tsis muaj kev kho mob. Yog li ntawd, tsis yog txhua tus menyuam uas muaj NF1 yuav xav tau kev kho mob rau qhov no.
Yuav kuaj tus kab mob no li cas?
Yog koj tus kws kho mob xav tias koj muaj tus kab mob no, lawv yuav ua ntau qhov kev kuaj mob kom paub tseeb tias nws muaj. Thaum kuaj pom tus kab mob lawm, tus mob qog yuav raug muab 'qib', lossis kev faib tawm, raws li nws qhov hnyav. Qeb no yog muab los ntawm kev noj ib daim nqaij me me ntawm tus mob qog thiab kuaj nws hauv qab lub tshuab kuaj mob me me. Qeb 1 thiab 2 yog cov qog qib qis. Ob feem peb ntawm tag nrho cov menyuam yaus uas muaj tus kab mob gliomas yog hom no. Qeb 3 thiab 4 yog cov qog qib siab.
Cov kev kuaj mob tseem ceeb hauv qab no yog siv rau kev kuaj mob.
| Kev Ntsuas | Ua dab tsi nrog qhov no? (Ua dab tsi?) |
|---|---|
| Kev kuaj lub cev tag nrho | Nkag siab txog tus menyuam txoj kev noj qab haus huv tag nrho. Xyuas seb nws qhov siab, qhov hnyav, thiab kev loj hlob zoo li cas. |
| Kev ntsuam xyuas qhov muag | Ib tug kws kho qhov muag ntsuas qhov tseeb ntawm tej yam xws li kev pom kev ntawm qhov muag thiab kev pom xim. |
| Kev kuaj CT scan | Qhov no tuaj yeem thaij duab kom ntxaws ntawm lub hlwb thiab cov hlab ntsha uas txuas nrog lub qhov muag. Nws kuj tseem tuaj yeem pab txiav txim seb puas muaj qog thiab nws nyob qhov twg. |
| Kev kuaj MRI | Qhov no zoo ib yam li kev thaij duab CT, tab sis nws siv cov hlau nplaum thiab cov nthwv dej xov tooj cua los tsim cov duab meej dua. Nws muab cov ntsiab lus zoo tshaj plaws txog qhov xwm txheej ntawm lub qog. |
Cov kev kuaj mob no yuav muaj ntau tus kws tshwj xeeb koom nrog. Piv txwv li, kws kho mob menyuam yaus, kws kho mob hlwb, thiab kws phais qhov muag. Lawv txhua tus yuav los ua ke, tshuaj xyuas cov txiaj ntsig ntawm kev kuaj mob, xaus lus kawg, thiab piav qhia rau koj. Yog tias kev kuaj mob tau lees paub, kauj ruam tom ntej yog xaiv txoj kev kho mob zoo tshaj plaws raws li koj tus menyuam txoj kev noj qab haus huv thiab qhov hnyav ntawm qhov mob qog noj ntshav.
Cov kev kho mob rau qhov no yog dab tsi?
Cov kws kho mob xav txog ntau yam thaum xaiv txoj kev kho mob zoo tshaj plaws.
- Tus menyuam lub hnub nyoog, kev noj qab haus huv tag nrho, thiab keeb kwm kev kho mob
- Hom, qhov chaw, thiab qhov loj ntawm lub qog
- Qhov dav ntawm tus kab mob
- Tus menyuam lub cev teb rau cov tshuaj, kev kho mob, thiab kev phais (qhov no tseem ceeb heev rau cov menyuam yaus)
- Qhov ceev uas tus kab mob tuaj yeem loj hlob mus ntxiv
Kev kho mob qog noj ntshav
Cov qog no feem ntau kho nrog tshuaj chemotherapy, uas yog kev muab cov tshuaj rau lub cev uas tua cov qe mob qog, ua rau cov qog me dua, thiab rov qab pom kev zoo.
Kev kho mob niaj hnub no (Kev Kho Mob Rau Lub Hom Phiaj)
Cov kev kho mob tshiab hu ua 'molecularly targeted therapies' kuj ua tau zoo heev. Cov no tsom thiab tawm tsam cov hlwb qog noj ntshav.
Kev Kho Mob Hormone
Yog tias qhov mob qog tau cuam tshuam rau qhov ntawm lub hlwb uas tswj cov tshuaj hormones, kev kho mob hloov tshuaj hormones yuav tsum tau ua kom tswj tau cov tsos mob tshwm sim (piv txwv li, kev loj hlob qeeb).
Kev phais mob
Kev phais mob tsis tshua muaj rau cov qog no. Kev phais tsuas yog xav txog yog tias qhov qog cuam tshuam rau qhov muag pom kev lossis yog tias tus menyuam mob hnyav heev. Yog tias koj tus kws kho mob pom zoo kom phais, nws yuav xa koj mus rau tus kws phais hlwb.
Kev kho mob hluav taws xob
Yog tias tus mob qog tsis teb rau kev kho mob chemotherapy, txoj kev xaiv tom ntej yog kev kho mob hluav taws xob. Qhov no suav nrog kev siv lub tshuab tshwj xeeb los xa cov hluav taws xob muaj zog siab mus rau tus mob qog, rhuav tshem cov hlwb qog thiab ua rau nws me me.
Cov Lus Qhia Txog Kev Coj Mus Tsev
- Optic glioma yog ib hom qog hauv lub hlwb uas tshwm sim hauv menyuam yaus, tab sis feem ntau nws kho tau.
- Yog koj tus menyuam muaj tej yam tsos mob xws li kev hloov pauv ntawm lawv qhov muag pom kev, ib lub qhov muag tawm mus tom ntej, lossis kev hloov pauv ntawm cov tshuaj hormones, saib xyuas lawv. Yog tias koj pom ib yam dab tsi zoo li ntawd, mus ntsib kws kho mob tam sim ntawd.
- Cov kev kuaj mob xws li MRI thiab CT scans yog siv los kuaj mob no. Tsis txhob ntshai, cov no ua tau zoo nyob rau hauv kev saib xyuas ntawm cov kws kho mob.
- Kev kho mob chemotherapy yog kev kho mob uas siv ntau tshaj plaws. Kev phais mob tsis tshua muaj.
- Yog tias koj muaj lus nug lossis kev tsis ntseeg txog qhov no, nws yog qhov zoo tshaj plaws los tham txog txhua yam nrog koj tus kws kho mob.
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Tsis muaj lus teb tau muab tso tawm. Ntxiv koj cov lus tawm ntawm no thawj zaug.
Ntxiv koj cov lus