Sɔntɛnde, yu kin gɛt smɔl smɔl bɔmp dɛn we kin it ɔlsay na yu bɔdi wantɛm wantɛm, nɔto so? Sɔntɛnde, dɛn tin ya kin tɔn to big big blista dɛn we ful-ɔp wit wata. Pan ɔl we bɔku pipul dɛn kin tink se dis na nɔmal alɛji ɔ sɔntin lɛk we insɛkt bit, dis na sɔntin we dɛn fɔ wɔri bɔt smɔl, bikɔs i kin bi wan sik we dɛn kɔl Bullous Pemphigoid . Di nem kin tan lɛk se i strenj smɔl, bɔt nɔ fred. Tide, wi go tɔk bɔt dis insay wan simpul we we pɔsin kin ɔndastand.
Wetin rili na Bullous Pemphigoid?
Fɔ tɔk am simpul wan, Bullous Pemphigoid na wan sik we nɔ kin apin so ɔltɛm na di skin we kin mek i it bad bad wan ɛn we kin mek blista dɛn we at ɛn ful-ɔp wit wata .
Dɛn blista ya kin smɔl, na wan ples nɔmɔ na di bɔdi, ɔ dɛn kin skata ɔlsay na di bɔdi. Dɛn kin si dɛn mɔ na say dɛn we di skin kin fold. Fɔ ɛgzampul:
- Ɔnda di armpit (axilla) .
- Na di groin eria
- Di bɛlɛ we de na di bɛlɛ
- Na di fold dɛn na di an ɛn leg dɛn
Imajin, yu armpit kin tɔn rɛd wantɛm wantɛm ɛn it bad bad wan fɔ sɔm dez. Afta tu ɔ tri dez, blista dɛn we ful-ɔp wit wata kin bigin fɔ mek na da say de. Na so i kin bigin. Fɔ sɔm pipul dɛm, dɛn blista ya kin kam bak pan di mukɔs mɛmbran dɛm, lɛk insay di mɔt, na di tɔŋ, na di trot, ɔ na di yay.
Dis na dizayd we di imyun sistɛm gɛt? (Autoimmune Disease we pɔsin kin gɛt) .
Yɛs, na so i bi. Bullous Pemphigoid na wan sik we pɔsin kin gɛt we i de fɛt insɛf . Naw yu go mɔs de wɔnda wetin na dat.
Wi bɔdi in imyun sistɛm tan lɛk ami we de protɛkt wan kɔntri. di wok we dis sistεm de du na fכ protεkt wi bכdi frכm sik dεm bay we i de fכt fכrin jεm (baktri, vayrus). Bɔt pan wan sik we pɔsin kin gɛt we i de fɛt insɛf, dis ami kin mistek bigin fɔ atak wi yon sɛl dɛn we gɛt wɛlbɔdi.
insay Bullous Pemphigoid, di imyun sistεm de atak di dilik tisu dεm we de kכnekt di tכp layεr na wi skin (di epidermis) to di layεr we de כnda (di dεmis). dis atak de mek wata kכlכm bitwin di tu layεr dεm, we de mek dεn big, had blista dεm de fכm.
Udat kin gɛt dis sik pas ɔlman?
Pan ɔl we dis sik kin kam pan ɛni ej, i kin kam pan pipul dɛn we dɔn pas 60. Bɔt wan wan tɛm, i kin apin to yɔŋ pipul dɛn. I kin afɛkt man ɛn uman ikwal.
Apat frɔm dat, risach dɔn sho se pipul dɛm wae gɛt sɔm kayn nyurolɔjik disɔda kin gɛt smɔl risk fɔ gɛt Bullous Pemphigoid.
- Dimɛnshɔnal sik
- Dis sik we dɛn kɔl Parkinson
- Strok
- Epilepsy we pɔsin kin gɛt
- Di sik we dɛn kɔl multiple sclerosis
Yu tink se dis kin kil pɔsin?
Bɔku tɛm, if dɛn trit dis sik fayn, dɛn kin ebul fɔ kɔntrol dis sik fayn fayn wan. Bɔt sɔntɛnde, if dɛn blista ya bɔs ɛn gɛt di sik, di sik kin siriɔs. Dis kayn infekshɔn kin denja, mɔ fɔ pɔrsin wae dɔn ol ɔr gɛt ɔda mɛrɛsin (lɛk dayabitis ɔr at sik). So, i go fayn fɔ mek yu go to dɔktɔ jɔs lɛk aw di sik dɔn sho ɛn bigin fɔ trit yu.
Wetin na di men sayn dɛm fɔ dis sik?
Lɛ wi ɔndastand klia wan di sayn dɛm fɔ dis sik frɔm di tebul we de dɔŋ ya.
| Di sayn we de sho se di sik de | Tɔk bɔt |
|---|---|
| I kin it bad bad wan ɛn i kin gɛt rash | Bɔrku tɛm, dis sik kin bigin wit it wae yu nɔr kin ebul fɔ bia. Sɔntɛnde i kin tɔn rɛd ɛn blista lɛk afta yu it krab. |
| Blista dɛn we ful-ɔp wit wata (Bullae) . | Dis na di men sayn we de sho se yu gɛt dis sik. Dɛn blista ya kin big, dɛn kin at, ɛn dɛn nɔ kin bɔs izi wan. Di wata we de insay kin klia ɔ i kin gɛt smɔl blɔd. |
| Afta di blista dɛn dɔn bɔs | We di blista dɛn bɔs, dɛn kin mek smɔl wund (sɔri ɔ ɔlsa). Dɛn wund ya kin mek yu fil pen smɔl. |
| Di skin we de rawnd di blista | Di skin we de rawnd di blista kin bi nɔmal, ɔ i kin rɛd ɛn chenj in kɔlɔ smɔl. |
| Skaring we de mek pɔsin gɛt skata | Di bɛst tin na dat, dɛn blista ya nɔ kin lɛf ɛni big skata afta dɛn dɔn wɛl. |
Wetin kin mek pɔsin gɛt Bullous Pemphigoid?
As wi bin dɔn tɔk bifo tɛm, dis na ɔtoimyun kɔndishɔn. Bɔt dɔktɔ dɛn stil nɔ dɔn fɛn wan patikyula rizin we mek wi imyun sistɛm kin bigin fɔ atak wi yon skin dis we wantɛm wantɛm.
Bɔt dɛn kin tink se sɔm tin dɛn kin bi ‘trig’ fɔ mek di sik bigin.
- Sɔm mɛrɛsin dɛn: Sɔm mɛrɛsin dɛn, mɔ di wan dɛn we dɛn kin yuz fɔ dayabitis, lɛk alogliptin.
- Ultraviolet layt (UV layt): If yu de na di san pasmak.
- Radiation therapy (Ionizing radiation): Dɛn kin gi redyushɔn tɛrapi fɔ sik dɛn lɛk kansa.
Fɔ it ɛn drink kin afɛkt dis?
Dis na prɔblɛm we bɔku pipul dɛn gɛt. Infakt, no sayɛns pruf nɔ de fɔ se dairekt link de bitwin it ɛn Bullous Pemphigoid. Bɔt sɔm sik pipul dɛn kin ripɔt se dɛn sik kin stɔp afta dɛn dɔn stɔp fɔ it sɔm it dɛn (e.g., dairy, gluten).
If yu fil di sem we, i go fayn fɔ mek yu tɔk to yu dɔktɔ bɔt dis. I kin aks yu fɔ kip yu tin fɔ it ɛn si if sɔm it dɛn kin mek yu gɛt di sik.
Di tin we impɔtant pas ɔl na dat Bullous Pemphigoid nɔto sik we pɔsin kin gɛt. I nɔ de skata frɔm pɔsin to ɔda pɔsin tru kɔntakt. So, no rizin nɔ de fɔ mek wi nɔ de nia ɔda pɔsin ɔ fɔ fred di pɔsin.
Aw dɔktɔ kin no dis?
We yu go to dɔktɔ we gɛt dɛn sik ya, i go tek tɛm luk yu skin fɔs. Dɔn dɛn go aks yu sɔm kwɛstyɔn dɛn.
- Ustɛm dɛn sik ya bigin?
- Pus ɔ blɔd de na di blista dɛn?
- Yu bin gɛt fiva?
- Ɛni nyu mɛrɛsin de we yu dɔn bigin fɔ tek?
Afta dat, i fayn fɔ du bɔku tɛst fɔ no if pɔsin gɛt di sik.
| Tɛst | Wetin yu de du? |
|---|---|
| Blɔd tɛst | Dɛn kin tek wan sɛmpul pan yu blɔd ɛn tɛst fɔ si if sɔm patikyula antibodi dɛn de agens di skin. |
| Skin biopsy we dɛn kin du | Dis na di tɛst we rili klia. di skin de numb sכmtεm frכm di εria we di blista de, dεn de tek wan rili sכm pat pan di skin εn egzamin am כnda maykroskכp. afta dat dεn kin kכnfכm di sik bay we dεn luk di we aw di skin layεr dεm de separet εn di we aw di imyun sεl dεm de dכn. |
Wetin na di tritmɛnt dɛm fɔ dis?
Di tritmɛnt kin difrɛn difrɛn wan bay aw di sik tranga. Yu dɔktɔ go disayd di tritmɛnt we go fayn fɔ yu.
Fɔ di wan dɛn we gɛt smɔl sik
If di sik nɔ tu bad ɛn smɔl smɔl blista dɛn de ɔlsay na di bɔdi, dɛn kin yuz stɛroyd krim ɔ ɔntmɛnt pan di blista dɛn .
Fɔ di wan dɛn we gɛt mɔdaret ɔ siriɔs sik
If di sik dɔn skata ɔlsay na di bɔdi ɛn bɔku bɔku blista dɛn de, dɛn kin nid fɔ gi yu mɛrɛsin we dɛn kin it apat frɔm krim.
- Ɔral Kɔtikosterɔyd: Stɛroyd pils lɛk Prɛdnisɔn. dis dεm de kכntro di aktiviti fכ di imyun sistεm εn stכp di fכmeshכn fכ blista kwik kwik wan.
- Steroid-sparing agents: Fɔ ridyus di sayd ɛfɛkt dɛm we pɔsin kin gɛt we i yuz stɛroyd fɔ lɔng tɛm, dɛn kin gi ɔda drɔgs lɛk dapsone, mycophenolate mofetil, ɛn azathioprine bak.
Ɔda tritmɛnt dɛn
Fɔ sɔm pipul dɛn, if stɛroyd mɛrɛsin nɔ fayn, di dɔktɔ kin gi dɛn bak antibayɔtik pils lɛk tɛtrasayklin ɔ dɔksisayklin.
Aw yu go ebul fɔ kɔntrol di sayn dɛm na os?
We yu de tek mɛrɛsin, sɔm tin dɛn de we yu kin du na os fɔ mek yu nɔ it dis ɛn nɔ fil fayn.
| Advays | Wetin mek i impɔtant? (Wetin mek i impɔtant?) |
|---|---|
| Wear klos we nɔ fit we dɛn mek wit natura fayv lɛk kɔtɔn. | Tayt, rɔf klos kin rɔb pan di skin, ɛn mek di it ɛn blista dɛn wɔs. |
| Nɔ yuz di san we de shayn pasmak. Yuz tin fɔ protɛkt yusɛf frɔm di san. | Sɔntɛnde, san layt kin mek di sik dɛn wɔs. |
| Kip di wund dɛn klin. | Wash di blista dɛn wit antiseptik sop ɛn wata, put antibayɔtik ɔntmɛnt we yu dɔktɔ tɛl yu fɔ du, ɛn kɔba am wit bandej we nɔ de adhesive. Dis kin ɛp fɔ mek yu nɔ gɛt di sik. |
| Kip yu skin wet. | If yu yuz gud loshan we de mek yu bɔdi wam, lɛk kokonat ɔyl ɔ shia bɔta, dat kin ɛp fɔ mek yu nɔ dray skin ɛn nɔ it. |
If yu gɛt blista na yu mɔt, tink bɔt dɛn tin ya bak
I kin rili at fɔ it ɔ drink we yu gɛt blista na yu mɔt. Dɛn advays ya go ɛp yu da tɛm de.
- It sɔft it dɛn lɛk sup, mash potato, pudding, ɛn yogɔt.
- It hot it afta i dɔn kol ɔl.
- Nɔ it tin dɛn we at ɛn shap lɛk chips, krak krak, bred krɔm, ɛn raw vɛjitebul ɛn frut dɛn.
- Nɔ it tin dɛn we gɛt asid ɛn spays lɛk laym, tomato, chili, ɛn salsa.
- Nɔ drink rɔm kpatakpata.
Aw lɔng dis sik go las? Wetin go apin afta dat?
Bullous Pemphigoid na wan sik we de stɔp insɛf we kin te fɔ sɔm ia (bɔku tɛm na lɛk 5 ia). I kin ansa bak fayn fayn wan to tritmɛnt.
Bɔt, di sik kin kam pan dis tɛm. Sɔmtɛm, di sayn dɛm kin go ɔlsay (rɛmishɔn). Insay dɛn kayn tɛm ya, yu dɔktɔ kin disayd fɔ ridyus di doz fɔ yu mɛrɛsin ɔ stɔp am fɔ sɔm tɛm. If di sayn dɛm de flay bak (flare-up), yu go nid fɔ bigin tritmɛnt bak.
Ustɛm a fɔ go to dɔktɔ?
If yu gɛt wata blista na yu bɔdi fɔ no rizin, ɛn i de it wit am, go to dɔktɔ wantɛm wantɛm. Nɔr self -treat ɔr ignore de kɔndishɔn. Di kwik we yu no bɔt di sik ɛn bigin fɔ trit yu, na di mɔ yu go gɛt prɔblɛm dɛn.
Mɛsej we dɛn kin kɛr go na os
- Bullous pemphigoid na wan sik we de kam pan di skin we de kam bikɔs di imyun sistɛm de wok. I nɔto sik we pɔsin kin pas.
- Di men sayn dɛm na we yu de it bad bad wan ɛn big, had, wata we ful-ɔp wit wata na di skin.
- Pan ɔl we dis kin apin mɔ pan pipul dɛn we dɔn ol, i kin apin to ɛnibɔdi we ol ɛni ej.
- If yu gɛt dɛn sik ya, go to dɔktɔ wantɛm wantɛm ɛn nɔ gɛs wetin mek yu gɛt dis sik.
- Tritmɛnt kin kɔntrol di sik fayn fayn wan. Bɔt i impɔtant fɔ rili tek tɛm fɔ klin, bikɔs di blista dɛn kin denja if jem dɛn go insay di wund dɛn.
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