Yu dɔn ɛva notis se sɔm pipul dɛn gɛt wan rɛd ples we tan lɛk bɔtaflay akɔdin to dɛn chɛst ɛn nos? Ɔ se afta dɛn dɔn spɛn sɔm tɛm na di bad bad san na Sri Lanka, wan rash kin kɔmɔt na dɛn skin wantɛm wantɛm? Dɛn tin ya nɔto jɔs prɔblɛm dɛn we kin apin to pɔsin in skin. Sɔntɛnde, dɛn tin ya kin bi sayn dɛn we de na do fɔ se prɔblɛm de insay wi bɔdi. Tide wi de tɔk bɔt wan sik wae de sho dis kayn sik, wae bɔrku pipul nɔr kin no bɔt, bɔt i rili impɔtant fɔ no bɔt. Dat na Cutaneous Lupus we dɛn kɔl Cutaneous Lupus.
Wetin na Cutaneous Lupus?
Fɔ tɔk am simpul wan, cutaneous lupus na wan sik we de ambɔg wi skin. Naw yu go mɔs de wɔnda wetin na dis "autoimmune" tin. Okay, mek a ɛksplen am dis we.
Imajin se wi kɔntri in ami de fɔ protɛkt wi frɔm ɛnimi dɛn we de na do. Semweso, wi bɔdi gɛt bak wan imyun sistɛm. I wok na fɔ protɛkt wi frɔm sik dɛn bay we i de fɛt ɛnimi dɛn lɛk jem, vayrɔs, ɛn baktri dɛm we de kam insay di bɔdi frɔm ɔdasay.
Bɔt, pan wan sik we de mek pɔsin nɔ ebul fɔ du sɔntin, sɔntin we rili bad kin apin. Wi yon bɔdi in difɛns sistɛm, di imyun sistɛm, kin kɔnfyus. I nɔ ebul fɔ no udat na padi ɛn udat na ɛnimi. So bifo i atak fɔrina jem dɛn, i kin bigin fɔ atak wi yon wɛlbɔdi sɛl dɛn . I tan lɛk se wi yon ami de atak wi yon pipul dɛn.
Insay cutaneous lupus, di imyun sistɛm kin atak wi skin sɛl dɛm, we kin mek di skin inflamɛns ɔltɛm, we kin mek wi gɛt sɔm sayn dɛm lɛk rash, spat, it, ɛn swel.
Dis na di sem sik we ɔlman no bɔt we dɛn se lupus?
Nɔ, yu go dɔn yɛri bɔt wan sik we dɛn kɔl Systemic Lupus Erythematosus (SLE). Dat na wan kayn lupus bak. Bɔt insay SLE, di imyun sistɛm nɔ de atak di skin nɔmɔ. I kin afɛkt wi ɔl bɔdi bak, ivin di men pat dɛn lɛk di jɔyn dɛn, di blɔd vesel dɛn, di kidni dɛn, ɛn di at.
Cutaneous Lupus Erythematosus (CLE) na wan kayn lupus we de fכs fכ di skin. Bɔt sɔm tɛm, pɔsin we gɛt CLE kin gɛt SLE leta. So, i rili impɔtant fɔ no ɛni sayn fɔ lupus na di skin.
Mɛmba se, di cutaneous lupus (CLE) na tu to tri tɛm pas di systemic lupus (SLE).
Difrɛn kayn lupus de?
Yes, cutaneous lupus kin kam ɛn go. Fɔ sɔm pipul dɛm, di sayn dɛm kin kam ɛn go. Fɔ ɔda pipul dɛn, dɛn kin kɔntinyu fɔ gɛt di sayn dɛm, sɔm dez nɔr kin tranga ɛn sɔm dez kin tranga pasmak. Dɛn kin sheb dis sik akɔdin to aw lɔng di sayn dɛm kin te ɛn di kayn skin lɛsin dɛm. Lɛ wi luk di men kayn dɛn.
| Tayp fɔ di sik we dɛn kɔl lupus | Nature ɛn di kwaliti dɛn we pɔsin gɛt |
|---|---|
| Kronik Kutanɛs Lupus we nɔ de mɛn | Na dis kayn sik, de sik kin teik lɔng tɛm, sɔmtɛm dɛn kin teik ɔl yu layf. Dɛn nɔ kin go kpatakpata. Sɔntɛnde, skata ɔ skin kin chenj afta di spat dɛn dɔn wɛl. Diskoid lupus na di sכbtayp we kכmכn pas כl. |
| Akyu Cutaneous Lupus we de mek pɔsin gɛt sik | Dis na tin bak we pɔsin kin gɛt fɔ ɔl in layf. Bɔt di sayn dɛn nɔ kin de ɔltɛm. Dɛn kin apia wantɛm wantɛm ɛn nɔ de igen afta sɔm tɛm. Bɔt dɛn kin apia bak. Bɔku tɛm, dɛn nɔ kin lɛf skata. Di rash we tan lɛk bɔtaflay (malar rash) we wi bin tɔk bɔt na dis kayn. |
| Subakut Kutan Lupus we de na di bɔdi | Na dis kayn, di sayn dɛm nɔr kin te, bɔt dɛn kin kam bak. Fɔ ɛgzampul, dɛn sayn ya kin apin ɛvri ia insay di sɔmma we di san kin strɔng. Dɛn kin afɛkt wan layt we dip smɔl pas di say we di skin de. |
Wetin na di sayn dɛm fɔ dis sik?
Cutaneous lupus kin mek yu gɛt difrɛn kayn sik dɛn na yu skin. Sɔm sayn dɛm kin spɛshal fɔ lupus. Dɛn kin si ɔda wan dɛn pan ɔda sik dɛn na di skin. Lɛ wi tek wan luk pan di men sayn dɛm.
Di sayn dɛm we dɛn kin si bɔku tɛm
- Rɛd, skel pat dɛn: Dɛn wan ya kin bi diskoyd ɔ anul, mɔ na say dɛn we di san de shayn .Dɛn kin si dɛn mɔ na di ed, nɛk, ɛn an. Na pipul dɛm wae gɛt dak skin, dɛn spat ya kin tan lɛk pɔpul ɔr brawn.
- Malar Rash: Dis na di sayn wae bɔrku pipul kin tink bɔt wae dɛn kin tink bɔt lupus. Na rɛd rash we de kɔmɔt na di chɛst ɛn brij na di nos, we tan lɛk bɔtaflay we de spre in wing dɛn.
- di skin in kɔlɔ kin chenj: Afta di say dɛn we di blemish dɛn we bin de bifo dɔn wɛl, di skin kɔlɔ na dɛn say dɛn de kin layt (hypopigmentation) ɔ dak (hyperpigmentation).
- Fɔtosɛnsitiviti: Pipul dɛn we gɛt lupus kin gɛt bɔku sik dɛn na dɛn skin we dɛn de na di san. Ivin if yu de na di san fɔ shɔt tɛm, i kin mek yu gɛt rash, ɛn di rash kin rili bad.
- Di ia we de lɔs: If lupus spat (discoid lesions) de na di skel, i kin gɛt skata ɛn mek di ia lɔs fɔ ɔltɛm.
- Sɔl insay di mɔt ɔ nos: Smɔl sos we nɔ de pen kin apin na di ruf na di mɔt, insay di chɛst, ɔ insay di nos.
- I kin it ɛn swel na di skin: Sɔm spat kin kam wit it ɛn swel, mɔ we de rawnd di yay (ɛdima).
Wetin mek dis kin apin? Wetin na di tin dɛn we kin mek pɔsin gɛt dis sik?
As wi bin dɔn tɔk, dis na sik we pɔsin kin gɛt we i de fɛt insɛf. Dis min se na mistek we wi mek na wi yon imyun sistɛm de mek i apin. Sayɛnsman dɛn stil nɔ shɔ 100% wetin mek dis kin apin. Bɔt dɛn biliv se tin dɛn we dɛn jɔyn togɛda kin ɛp fɔ du sɔntin.
Dɛn na tin dɛn we kin mek pɔsin gɛt jɛnɛtiks ɛn di tin dɛn we kin mek pɔsin gɛt di envayrɔmɛnt .
Fɔ tɔk am simpul wan, sɔm pipul dɛn kin gɛt smɔl chans fɔ gɛt dis kayn sik na dɛn jin. Bɔt di sik nɔ kin jɔs bikɔs dɛn gɛt da kayn prɔblɛm de. We pɔsin we gɛt da jɛnɛtik prɛdispɔzishɔn de gɛt sɔm tin dɛn we de arawnd am, i kin mek di imyun sistɛm wok ɛn mek di sik apia.
di pawaful envayroment trig fכ cutaneous lupus na ultraviolet (UV) radiation , we min se fכ de pan san layt כ atifishal layt sכs lεk fluorescent layt.
Ɔda tin dɛn we kin mek di prɔblɛm bɔku:
- Fɔ bi uman: Uman dɛn kin gɛt bɔku risk fɔ gɛt lupus pas man dɛn, mɔ di tɛm we di ɛstrojen lɛvɛl bɔku.
- Heredity: If pɔrsin na yu famili gɛt lupus ɔr ɔda autoimmune disease, yu kin gɛt smɔl risk bak.
- Fɔ gɛt ɔda sik dɛn we pɔsin kin gɛt we i de fɛt insɛf: Pipul dɛn we gɛt ɔda sik dɛn we pɔsin kin gɛt we i de fɛt, lɛk tayroyd sik ɛn rεumatoid at, kin gɛt bɔku risk fɔ gɛt lupus.
- Yuz sɔm mɛrɛsin dɛn fɔ lɔng tɛm:Sɔm mɛrɛsin dɛn lɛk ay blɔd prɛshɔn mɛrɛsin ɛn ɛpilepsi mɛrɛsin kin mek pɔsin gɛt tin dɛn we tan lɛk lupus we dɛn yuz am fɔ lɔng tɛm.
- Bɔrku strɛs na yu maynd ɔr bɔdi: Sɔmtɛm wae yu gɛt siriɔs strɛs na yu bɔdi, lɛk wae yu gɛt siriɔs infekshɔn ɔr aksidɛnt, kin mek yu gɛt dis sik.
- Smok: Smok na strɔng tin wae kin mek pɔrsin gɛt lupus ɛn de sik kin wɔs.
Aw dɔktɔ kin fɛn dis?
If yu gɛt dɛn sik ya na yu skin, di bɛst tin fɔ du na fɔ go to dɔktɔ, i go fayn fɔ mek yu go to dɔktɔ we de mɛn yu skin . I go aks yu bɔt yu sik dɛn ɛn tek tɛm chɛk yu skin.
Sɔm lupus rash (lɛk di malar rash) kin no wantɛm wantɛm. Bɔt bikɔs sɔm spat dɛn tan lɛk ɔda sik dɛn na di skin, dɛn kin nid fɔ du ɔda tɛst fɔ no if pɔsin gɛt di sik.
- Skin Biopsy: Dis na fɔ tek smɔl mɛrɛsin we de mek pɔsin nɔ fil fayn frɔm wan say ɛn tek smɔl pat pan di skin ɛn chɛk am ɔnda maykroskɔp. Dis kin ɛp fɔ no if ɛni chenj de na di skin sɛl dɛn we gɛt fɔ du wit lupus.
- Dairekt Immunofluorescence: Dis na spεshal tεst bak we dεn kin du pan skin bayopsi. I kin no if pruf de fɔ se di imyun sistɛm de atak di skin.
- Blɔd tɛst: Sɔntɛnde, yu dɔktɔ go tɛl yu bak fɔ du sɔm blɔd tɛst. Dɛn kin du dɛn tin ya fɔ chɛk fɔ si if sayn dɛn de fɔ SLE, we na wan sik we de afɛkt di bɔdi in insay pat dɛn, apat frɔm di lupus we de na di skin.
Wetin na di tritmɛnt dɛm fɔ dis?
di fכs εn imכtant tin fכ se na dat, stil nכ mכd de f כ di kכtan lupus, biכs i riliyt to di fכnshכn fכ wi כwn imyun sistεm.
Bɔt nɔ wɔri! Dis nɔr min se yu fɔ sɔfa wit dɛn kayn sik ya sote go. If yu gɛt di rayt tritmɛnt ɛn chenj yu layf , yu kin ebul fɔ kɔntrol yu sik dɛn fayn fayn wan ɛn liv nɔmal layf.
Dɛn kin no di tritmɛnt plan bay wae yu tink bɔt di kayn lupus wae yu gɛt, aw yu de fil bad, ɛn aw dɛn de afɛkt yu layf.
Di men we fɔ trit pɔsin ɛn di instrɔkshɔn dɛn na:
1. San protɛkshɔn: Dis na di tin we impɔtant pas ɔl ɛn we yu fɔ du. Dɛn fɔ mek pipul dɛn nɔ de si di bad bad san we de na Sri Lanka as mɔ as dɛn ebul.
- Nɔ go na do na di strong san bitwin 10:00 am ɛn 4:00 pm.
- If yu go na do, wɛr klos we kɔba yu bɔdi, lɛk hat we gɛt wayd brim ɛn klos we gɛt lɔng sliv.
- SPF valyu na 50 ɔ pas datYuz gud tin fɔ protɛkt yusɛf frɔm di san lɛk aw yu dɔktɔ tɛl yu. Put am 20 minit bifo yu go na do.
2. Di mɛrɛsin dɛn we dɛn kin put pan pɔsin in bɔdi:
- Yu dɔktɔ kin gi yu krim, loshan, ɔ ɔntmɛnt fɔ kɔntrol di inflamɛns ɛn rash na di skin. Kɔtikosterɔyd krim ɛn takrolimus ɔntmɛnt na dɛn dɛn kin yuz mɔ.
3. Injɛkshɔn fɔ drɔgs:
- Sɔntɛnde, if di spat dɛn rili tik ɛn nɔ de du tritmɛnt, di dɔktɔ kin injɛkt wan stɛroyd mɛrɛsin dairekt insay di spat.
4. Di mɛrɛsin dɛn we dɛn kin yuz fɔ it:
- If di sik dɛn na di skin rili bad ɔ dɛn nɔ kɔntrol am wit mɛrɛsin dɛn we dɛn kin put pan pɔsin, dɛn kin gi am mɛrɛsin we dɛn kin tek bay mɔt. Di mɛrɛsin dɛn we dɛn kin yuz mɔ fɔ lupus na haydroksiklorokin ɛn klorokin . Dɛn tin ya kin ɛp fɔ kɔntrol di we aw di imyun sistɛm de wok pasmak.
5. Vitamin D we de na di bɔdi: .
- If yu nɔ de na di san, dat kin mek yu bɔdi nɔ gɛt bɛtɛ vaytamɛn D. Yu dɔktɔ go tɛst yu fɔ dis ɛn gi yu vaytamɛn D tablɛt if nid de.
Tin dɛm fɔ tink bɔt we yu de liv wit lupus
Cutaneous lupus na wan sik wae de kam wae yu de liv yu layf, bot if yu de manej am fayn, yu kin liv wit am fayn fayn wan. Pan ɔl we i nɔ kin izi fɔ ajɔst to dɛn chenj ya fɔs, as tɛm de go, dɛn go bi pat pan yu layf.
- Nɔ pik ɔ skrach di blemish dɛn na di skin. If yu du dat, i kin pwɛl di skin mɔ ɛn mek nyu blemish dɛn kɔmɔt.
- If yu de wɔri bɔt blemish, yuz spɛshal kɔsmɛtik we yu dɔktɔ tɛl yu fɔ kɔba am.
- I go fayn bak if yu nɔ yuz fluorescent layt (tyub layt) na os ɛn na wokples . Dɛn kin pul smɔl UV rayt bak.
- Si yu dɔktɔ ɔltɛm. Atɛnd chɛk-ap ɔltɛm fɔ wach yu kɔndishɔn ɛn chɛk fɔ ɔda kɔndishɔn, lɛk SLE.
- Tink bɔt yu maynd wɛlbɔdi bak. Sɔntɛnde, di blɛsin dɛn we yu kin si na yu skin kin mek yu fil bad ɛn wɔri. Sɔntɛnde lɛk dis, tɔk to pɔsin we yu biliv ɛn aks fɔ advays if nid de.
Cutaneous lupus nɔto sik we de mek pɔsin in layf de pan denja. Bɔt i kin afɛkt di kwaliti we yu de liv yu layf. Di tin we impɔtant pas ɔl na fɔ no gud gud wan bɔt di sik, fala yu dɔktɔ in instrɔkshɔn dɛn gud gud wan, ɛn fɛn di tritmɛnt ɛn layf we fayn fɔ yu.
Mɛsej we dɛn kin kɛr go na os
- Cutaneous lupus na sik we wi yon imyun sistεm de atak di skin. I nɔ kin pas pɔsin.
- Di men sayn dɛm we i kin gɛt na we i gɛt rash we tan lɛk bɔtaflay akɔdin to di chɛst ɛn nos, ɛn di pat dɛn we gɛt skel we kin wɔs we yu de na di san.
- Di men tin we kin mek pɔsin gɛt dis sik na we pɔsin de na di san (UV rayt) . So, i impɔtant fɔ protɛkt yusɛf frɔm di san.
- Pan ɔl we dis nɔ kin wɛl ɔl, dɛn kin kɔntrol am fayn fayn wan wit mɛrɛsin ɛn chenj dɛn layf.
- If yu gɛt dɛn sik ya, i rili impɔtant fɔ go to dɔktɔ, mɔ to dɔktɔ we de mɛn yu skin kwik kwik wan.
💬 Comments (0)
No kɔmɛnt nɔ de yet. Ad yu kɔmɛnt ya fɔ di fɔs tɛm.
Ad yu kɔmɛnt