Sɔntɛnde wi ɔ pɔsin we wi lɛk kin gɛt fɔ du big tritmɛnt lɛk stem sɛl transplant bikɔs ɔf siriɔs sik lɛk kansa. Pan ɔl we dɛn kayn tritmɛnt ya kin wok fayn, sɔntɛnde dɛn kin mek sɔm prɔblɛm dɛn. Tide wi de tɔk bɔt wan spɛshal mɛrɛsin we dɛn kin gi fɔ trit dis kayn siriɔs prɔblɛm, bɔt we nɔ kin kɔmɔn. Dat na di vaysin we dɛn kɔl Defibrotide.
Wetin na Defibrotide ɛn wetin dɛn kin yuz am fɔ?
Fɔ tɔk am simpul wan, Defibrotide na spɛshal injɛkshɔn. Dɛn kin yuz am fɔ trit siriɔs sik we kin apin afta dɛn dɔn transplant stem sɛl, bikɔs di smɔl smɔl blɔd vesel dɛn na di liva kin blok . pan mεdikal, dεn kכl dis kכndyushכn Veno-occlusive Disease (VOD) כ Sinusoidal Obstruction Syndrome (SOS).
Imajin se smɔl smɔl blɔd vesel dɛn de we de pas na wi liva. Afta big tritmεnt lεk stεm sεl transplant, sכmtεm dεn vessel dεm ya kin blok. Dis kin gɛt big impak pan di wok we di liva de du. Da tɛm de, wan mɛrɛsin we dɛn kɔl Defibrotide kin ɛp fɔ opin dɛn blɔd vesel ya we dɔn blok bak ɛn fɔ mek di liva nɔ pwɛl.
Di impɔtant tin na dat, dis nɔto mɛrɛsin we yu kin kɛr go na os. Dɛn kin gi am as infushɔn na ɔspitul, ɔnda di ful sɔpɔtishɔn fɔ dɔktɔ ɛn nɔs dɛn .
Tin dɛm wae yu fɔ tɛl yu dɔktɔ bifo yu bigin tritmɛnt
Bifo yu ɔ yu pɔsin bigin fɔ trit yu wit Defibrotide, i rili impɔtant fɔ tɛl yu dɔktɔ bɔt yu kɔmplit wɛlbɔdi istri. Speshali, yu fɔ no bɔt dɛn tin ya:
| Situeshɔn we yu nid fɔ ripɔt | Wetin mek na so i bi? |
|---|---|
| If yu gɛt prɔblɛm wit blɔd. | Dis impɔtant mɔ if yu dɔn ɔlrɛdi gɛt wan sik, bikɔs difibrotayd kin mek yu blɔd bɔku. |
| If yu de tek ɔda mɛrɛsin dɛn we de mek di blɔd tan ɔ we de mek di blɔd nɔ klɔt (blɔd tin dɛn). | Di dɔktɔ fɔ no bɔt dis, bikɔs if yu yuz dɛn mɛrɛsin ya togɛda, dat kin mek yu blɔd bad bad wan. |
| If yu gɛt alɛji fɔ Defibrotide ɔ ɛni ɔda mɛrɛsin, it, ɔ day. | Dis impɔtant fɔ mek yu nɔ gɛt alɛji. |
| If yu gɛt bɛlɛ, yu de tray fɔ gɛt bɛlɛ, ɔ yu de gi pikin in bɛlɛ. | Yu fɔ tɔk to yu dɔktɔ aw dis mɛrɛsin go afɛkt di mama ɛn di pikin. |
Mɛrɛsin dɛn we nɔ fɔ yuz wit Defibrotide
Fɔ tek tɛm: We yu de tek Defibrotide, ɔda mɛrɛsin dɛn we de mek di blɔd nɔ klɔt ɔ we de mek di blɔd tan lɛk Heparin ɛn Alteplase , kin mek yu blɔd bad bad wan . So, mek shɔ se yu tɛl yu dɔktɔ bɔt ɔl di mɛrɛsin dɛn we yu de tek, lɛk ɛbul mɛrɛsin dɛn, vaytamɛn dɛn, ɛn sɔpɔtmɛnt dɛn.
Sɔm sayd ɛfɛkt dɛn we pɔsin kin gɛt
Lɛk ɛni mɛrɛsin, Defibrotide kin mek sɔm sayd ɛfɛkt. Sɔm pan dɛn tin ya kin siriɔs, so i impɔtant fɔ no bɔt dɛn ɛn tɛl yu mɛdikal tim wantɛm wantɛm if yu gɛt ɛni sayn.
| Sayd ɛfɛkt we pɔsin kin gɛt | Fɔ ɛksplen |
|---|---|
| If yu gɛt dɛn sik ya, tɛl yu dɔktɔ ɔ nɔs wantɛm wantɛm. | |
| Alɛji Riakshɔn dɛn | Skin rash, it, swel na di fes, lip ɔ tong. |
| Sayn dɛn we de sho se pɔsin de blɔd | Blɔd na di stɔl ɔ blak stɔl, rɛd ɔ dak brawn urine, vɔmit sɔntin we tan lɛk kɔfi grɔn, rɛd spat na di skin, blɔd we nɔ kɔmɔn frɔm di yay, gam, ɔ nos. |
| Di sayn dɛn we pɔsin kin gɛt we i gɛt Lɔw Blɔd Prɛshɔn | Diziz, yu nɔ de si fayn, yu de fɔdɔm, yu de fil lɛk yu taya ɔ yu wik. |
| Sayn dɛn we de sho se pɔsin gɛt di sik | Fiva ɔ fil kol, kɔf, trot we de at. |
| Bɔku tɛm, dɛn tin ya nɔ kin siriɔs, bɔt if dɛn kɔntinyu fɔ de, tɛl yu dɔktɔ. | |
| Rɔnbɛlɛ | Fɔ mek yu bɔdi wam. |
| Vɔmit | Fɔ fil lɛk se yu de vɔmit. |
| Fɔ vɔmit | Fɔ vɔmit. |
Wetin fɔ du if di doz go ɔp (ɔvados)?
Bikɔs dɛn kin gi dis mɛrɛsin na ɔspitul, ɔnda dɔktɔ in sɔpɔtishɔn, di rayt we pas ɔl, di chans fɔ mek dɛn tek am pasmak nɔ kin bɔku. Di mɛdikal tim kin wɔri bɔt am ɔltɛm. Bɔt if ɛnibɔdi de tink bɔt dis kayn tin, di dɔktɔ ɔ nɔs na di ɔspitul go du di tin dɛn we i nid. Bɔku tɛm, di ɔfishal ples fɔ gɛt advays na wi kɔntri if ɛni pɔyzin apin na di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital . Bɔt if sɔntin lɛk dis apin na ɔspitul, dɛn kin aktiv di ɔspitul in Imejɛnsi Tritmɛnt Yunit (ETU) wantɛm wantɛm.
Mɛsej we dɛn kin kɛr go na os
- difibrotayd na spεshal injεkshכn we dεn gi insay wan vein we de trit wan siriכs liva komplikashכn we kin apin afta dεn transplant stεm sεl.
- I impɔtant fɔ tɛl yu dɔktɔ bɔt ɔl di ɔda mɛrɛsin dɛn we yu de tek, mɔ di wan dɛn we de mek yu blɔd tan, ɛn ɛni mɛrɛsin we yu gɛt.
- Di men tin we kin apin we dɛn de du dis tritmɛnt na we pɔsin de blɔd . So, if yu notis ivin di smɔl sayn we de sho se yu de blɔd, tɛl di dɔktɔ dɛn wantɛm wantɛm.
- Dɛn kin jɔs gi dis mɛrɛsin na ɔspitul ɛn nɔto mɛrɛsin fɔ yuz na os.
- If yu gɛt ɛni kwɛstyɔn ɔ wɔri bɔt dis mɛrɛsin ɔ tritmɛnt, duya nɔ shem fɔ aks yu dɔktɔ ɔ yu nɔs wokman dɛm.
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