Yu dɔn ɛva gɛt tumbu lɛk dis? Mek wi tok abaut Desmoid Tumors!

Yu dɔn ɛva notis wan tin we nɔ kɔmɔn ɔ swel sɔmsay na yu bɔdi ɛn yu dɔn wɔri? Sɔntɛnde, dɛn tin ya nɔ kin denja so. Bɔt tide wi go tɔk bɔt wan kayn tumbu we spɛshal smɔl ɛn we fɔ gɛt spɛshal atɛnshɔn. Dɛn kɔl dɛn tin ya desmoid tumor. Lɛ wi tek wan luk pan wetin dɛn bi, wetin mek dɛn kin fɔm, aw fɔ no dɛn, ɛn aw fɔ trit dɛn.

Wetin na Desmoid Tumɔs? Lɛ wi fɛn ɔltin simpul wan!

Fɔ tɔk am simpul wan, desmoid tumor nɔto kansa . Bɔt dɛn kin kɔl dɛn bak agresiv fibromatosis. Dat min se sɔntɛnde dɛn kin gro kwik kwik wan ɛn agresiv wan. Dɛn kin fɔm na di kɔnektiv tisu na wi bɔdi. Tink bɔt am lɛk di glu we de ol difrɛn pat dɛn na wi bɔdi togɛda.

Pan ɔl we dɛn tumbu ya kin kam ɛnisay na di bɔdi, dɛn kin si dɛn mɔ na di bɛlɛ, an, leg, ɛn sɔntɛnde na di ed ɛn nɛk .

di tin we imכtant pas כl na dat dεn tכmכro dεm ya nכ de spre frכm wan ples na di bכdi to כda wan (dεn nכ de mεtastas) lεk kεnsar.

Bɔt, wan prɔblɛm de. Bɔku tɛm dɛn tumbu ya kin gro sloslo . כltu, sכm kin gro kwik kwik wan εn spre insay di tisu dεm we de nia (lokal infiltrativ). If na so i bi, i kin rili at fɔ pul dɛn wit ɔpreshɔn. Wan ɔda tin na dat dɛn kin kam bak (rikɔr) ivin afta dɛn dɔn trit dɛn. Bɔt nɔto ɔlman in situeshɔn na di sem, ɛn i impɔtant fɔ mɛmba dat.

Ɛni kayn nɛt dɛn de?

Yes, dεn kin sheb di dεsmoid tכmכro dεm to sεvεra men tכp dεm, dipכnt pan usay dεn fכm:

• di bכdi wכl dεsmoid tכmכro dεm: dεn ya de divεlכp na di tisu wכl (abdominal wכl) we de rawnd di כgan dεm we de insay wi bכdi (lεk di bεlε).
• di tכmכro dεm we de insay di bכdi: dεn ya de divεlכp na di tisu layn we de rawnd di intestin dεm (mεsεntri).
• εkstra-abdominal dεsmoid tכmכro dεm: dεn ya de divεlכp ausayd di bכdi εn di bכdi wכl. Bɔku tɛm dɛn kin bigin na di sholda, di ɔp an, di chɛst wɔl, ɛn di ɔp leg. Dɛn kin divɛlɔp bak na di ed ɛn nɛk.

Wetin na di sayn dɛm we de sho se yu gɛt dis sik? Aw wi go no if wi gɛt am?

Desmoid tumor nɔ kin ɔltɛm mek big big simptom. Bɔt di sayn dɛn kin apin nɔmɔ we di tɔŋ gro big fɔ prɛs pan di nɛv ɔ ɔgan dɛn we de nia am. Dɛn tin ya kin bi:

• Lump ɔ swel: Dɛn kin si dis mɔ na di an, leg, ɔ bɛlɛ.
• Nɔs ɛn vɔmit: Dɛn sayn ya kin apin if tumbu de na di bɛlɛ.
• Pen ɔ swɛt: Dɛn kin fil dis we di tumbu prɛs pan di nerv dɛm, di ɔgan dɛm, ɔ di blɔd vesel dɛm we de nia di tumbu.
• I at fɔ muv yu an ɔ yu leg.

Impɔtant: Nɔto ɔl lump we de fɔm na di bɔdi na desmoid tumor. Bɔt if yu gɛt wan swɛlin we big pas tu inch (lɛk 5 sɛntimita), we de kɔntinyu fɔ gro, ɔ we de mek yu fil pen , i go fayn fɔ mek yu go to dɔktɔ fɔ advays.

Wetin mek dɛn desmoid tumor ya kin fɔm? Wetin na di tin dɛn we kin mek i apin?

dis tכmכro dεm de fכm we di sεl dεm na di kכnektiv tisu gεt mכtεshכn εn bigin fכ sheb kwik kwik wan εn we dεn nכ de kכntro. As tɛm de go, dɛn sɛl dɛn ya we pasmak kin gɛda ɛn mek wan tumbu.

Dɔktɔ dɛn stil nɔ no bɛtɛ bɛtɛ wan wetin mek dɛn sɛl ya kin chenj fɔs. כltu, risεch dεn dכn sho sεvεra jin mכtεshכn dεm we kכnεkt wit dεsmoid tכmכro dεm. Dis infɔmeshɔn kin ɛp fɔ mek tritmɛnt dɛn we de tɔch dɛn muteshon dɛn de ɛn kɔntrol aw di tumbu dɛn de gro.

Udat dɛn kin gɛt dɛn tin ya mɔ? (Di tin dɛn we kin mek pɔsin gɛt prɔblɛm)

Sɔm pipul dɛn kin gɛt desmoid tumor. Lɛ wi tek wan luk pan udat dɛn bi:

• Yɔŋ ej: Dɛn kin no dis sik pasmak pan pipul dɛm wae ol bitwin 30 ɛn 40 ia.
• fכ bi uman: uman dεn kin gεt dεn tכmכro dεm ya mכr we dεn bεlε כ sכm tεm afta dεn bכn. Bɔku tɛm dɛn kin apia na di bɛlɛ wɔl. biכs di εstrojen lεvεl de go כp we uman bεlε, sכm masta sabi pipul dεm biliv se lεk de bitwin εstrojen εn dεsmoid tכmכro dεm.
• Fɔ gɛt wan sik we dɛn kɔl Familial Adenomatous Polyposis (FAP): Dis na wan sik we dɛn kin gɛt frɔm dɛn mama ɛn papa. bitwin 5% εn 10% pan di pipul dεm we gεt FAP de divεlכp dεsmoid tכmכro. כltu, dεn tכmכro dεm ya de divεlכp usay dεn bin de du כpεrayshכn bifo fכ pul wan sכm sכm we de gro (kכlon polip) na di kכlon.
• Trauma: Risach dɔn sho se we pɔsin wund bad bad wan, ɔ we pɔsin gɛt trauma bak na di sem say (fɔ ɛgzampul, we i de nak di sem say bɔku tɛm we i de ple spɔt), i kin mek i gɛt dismoid tumor.

Aw dɔktɔ dɛn kin no bɔt dis? (Diagnosis) .

If yu gɛt dɛn sik ya, yu dɔktɔ go fɔs du yu bɔdi ɛgzam ɛn aks bɔt yu sik. Dɔn, dɛn kin du dɛn tɛst ya:

• Imej tɛst: Di wan dɛn we dɛn kin du mɔ na CT skan ɛn MRI. Dɛn wan ya kin si di tumbu klia wan insay di bɔdi.
• Bayopsi: Dis na di tɛst we impɔtant pas ɔl fɔ du . Dis min se dɛn kin tek wan smɔl pat pan di tisu frɔm di tumbu ɛn chɛk di sɛl dɛn ɔnda maykroskɔp. Dis na di wangren we fɔ no ustɛm na us kayn tumbu i bi.

If yu dɔktɔ sɔprayz se yu gɛt FAP, dɛn kin du ɔda tɛst. Nɔto ɔlman we gɛt desmoid sist gɛt FAP. Bɔt i impɔtant fɔ no if yu gɛt am, bikɔs pipul dɛn we gɛt FAP kin gɛt bɔku bɔku kansa na dɛn kɔlon.

Aw fɔ trit am? (Tritmɛnt)

Bɔku tɛm dɛn kin trit desmoid tumor di sem we lɛk kansa tumor. Dis min se yu go mɔs wok wit wan tim we gɛt dɔktɔ dɛn we kɔmɔt na difrɛn spɛshal wok dɛn, ɛn wan pan dɛn na wan dɔktɔ we de mɛn kansa.

Trade, ɔpreshɔn na bin di men tritmɛnt fɔ dɛn tumbu dɛn ya. Bɔt bikɔs dɛn dɔn kam fɔ no se dɛn tumbu ya gɛt bɔku chans fɔ kam bak afta dɛn dɔn du di ɔpreshɔn, di tritmɛnt dɛn we dɛn de gi naw na di mɛrɛsin dɛn we dɛn de gi. Ɔda tritmɛnt dɛn na:

• Aktiv sɔvɛlayshɔn (ɔ wachful wet): If yu tumbu de gro sloslo ɛn nɔ de kɔz ɛni big simptom, yu dɔktɔ go de wach yu ɔltɛm. Dɛn go de du skan ɔltɛm. If yu sik chenj, yu kin bigin fɔ trit yu kwik kwik wan.
• Ɔpreshɔn: I kin nid fɔ du ɔpreshɔn if di tumbu de gro kwik kwik wan ɔ i de mek i gɛt siriɔs sik. Ɔ, if di tumbu de pan denja fɔ mek i gɛt siriɔs prɔblɛm, lɛk we di bɔdi nɔ de blo, dɛn kin du ɔpreshɔn.
• Targeted therapy: Dɛn mɛrɛsin ya de wok bay we dɛn de target sɔm patikyula jin ɔ protin dɛn we de ɛp di desmoid tumor dɛn fɔ gro. Yu dɔktɔ kin tɛl yu fɔ tek wan kayn mɛrɛsin we dɛn kɔl Tyrosine Kinase Inhibitor (TKI).
• Cryoablation: Dis na ɔda we fɔ du ɔpreshɔn. I de yuz kol pasmak fɔ pwɛl di tumbu. dis tritmεnt kin yus fכ sכm sכm dεsmoid tכmכro dεm we de ausayd di bכdi (fכ egzampl, na di an εn lεg).
• Kimotɛrapi: Dɛn kin yuz dɛn mɛrɛsin ya fɔ shrink ɔ pul di desmoid tumor dɛn kpatakpata. Bɔt difrɛn tin dɛn de we pipul dɛn kin tink bɔt aw dis tritmɛnt go wok fayn.
• Hכmon tεrapi: כmon mεdikeshכn dεm lεk Tamoxifen kin εp fכ stכp di growth fכ desmoid tכmכro.
• Radiation therapy: Dɛn kin yuz redyushɔn fɔ shrink ɔ pwɛl di tumor. Dɛn kin yuz am in wan ɔ dɛn kin yuz am wit ɔda tritmɛnt dɛn.

A nid fɔ go to dɔktɔ ɔltɛm? (Go bak)

Yɛs, fɔ tru. Ivin afta yu dɔn gɛt tritmɛnt, yu go nid fɔ go to yu dɔktɔ ɔltɛm bikɔs chans de fɔ mek di desmoid tumor dɛn kam bak.Bɔku tɛm, yu go nid fɔ du tɛst ɛn skan ɛvri siks mɔnt fɔ di fɔs tri ia. Afta dat, if no prɔblɛm nɔ de, yu go nid fɔ go chɛk-ap wan tɛm insay di ia ɔ ɛvri tu ia. Yu dɔktɔ go disayd ɔmɔs tɛm yu nid fɔ kam, i go dipen pan yu kɔndishɔn.

Wetin a kin ɛkspɛkt wit dis kɔndishɔn? (Prɔgnosis) .

Desmoid tumor nɔto di sem fɔ ɔlman. Sɔm pipul kin gɛt dɛn bɔt nɔr kin sho ɛni sayn. Na lɛk tu pan tɛn pipul dɛn gɛt dɛn ɛn dɛn kin go we dɛn nɔ gɛt tritmɛnt. Bɔt fɔ ɔda pipul dɛn, dɛn kin gro ɛn bi prɔblɛm wit dɛn wɛlbɔdi.

Dipen pan di kayn we aw di jenɛtik chenj na di tumbu, dɔktɔ dɛn kin mek sɔm gɛs bɔt aw di tumbu go agresiv ɛn aw i go kam bak afta dɛn dɔn trit am. Bɔt dɛn nɔ go ebul fɔ tɔk natin fɔ tru.

Pan ɔl we nɔto kansa, dat nɔ min se yu fɔ jɔs wet fɔ am. Desmoid tumor na siriɔs sik we yu dɔktɔ fɔ de wach.

Aw di rit we pipul dɛn kin liv? (Di Rayt fɔ di wan dɛn we nɔ day)

Desmoid tumor nɔr kin de pan denja fɔ yu layf, bɔt dɛn kin bi prɔblɛm fɔ yu fɔ kɔntinyu fɔ manej.

di mכst imכtant tin ya na di rεkכrεshכn-fri sכvayv rεt (`rεkכrεshכn-fri sכvayv rεt`) . afta fayv ia, dis rεt kin kכmכt frכm lכw 23% to 65%. dis de dipכnt bכku pan di nεchכr fכ di jεnεtik mכtεshכn na di tכmכro.

Yu dɔktɔ go ɛksplen to yu wetin yu go ɛkspɛkt bay wetin yu dɔn no bɔt yu sik.

Di tin we impɔtant pas ɔl na: ɛkspɛkt sɔpɔt

Desmoid tumor kin bi rili unpredictable. Dɛn kin mek pɔsin fil pen, nɔ kin muv, ɔ i kin afɛkt di ɔgan dɛn we de nia am. Dis we aw pɔsin nɔ kin no wetin fɔ du kin rili mek pɔsin strɛs. Sɔm tumbu dɛn kin gro sloslo ɛn dɛn nɔ kin nid fɔ gɛt tritmɛnt wantɛm wantɛm, bɔt ɔda wan dɛn kin nid fɔ tek tɛm manej dɛn.

Bikɔs desmoid sist na tin we nɔ kin apin so ɔltɛm ɛn i kin afɛkt ɛnibɔdi difrɛn we, i impɔtant fɔ fɛn tritmɛnt frɔm wan tim we gɛt spɛshal pipul dɛn we gɛt ɛkspiriɛns fɔ manej dɛn kɔmpleks kɔndishɔn ya. Wan we fɔ du tin wit bɔku tin dɛn kin gi di bɛst chans fɔ kɔntrol di sik dɛn ɛn fɔ mek dɛn gɛt bɛtɛ kwaliti layf.

Wetin wi nid fɔ lan frɔm dis (Take-Home Message) .

Okay, so, frɔm wetin wi dɔn tɔk bɔt, sɔm impɔtant tin dɛn de we yu nid fɔ mɛmba:

• Pan ɔl we desmoid tumor nɔto kansa, i nɔto sɔntin fɔ tek am layt.
• If yu gɛt wan ɔnusual lump ɔ swel na yu bɔdi, mɔ if i kɔntinyu fɔ gro ɔ i de mek yu fil pen, nɔ west tɛm ɛn go to dɔktɔ wantɛm wantɛm.
• Dis sik kin kɔmplikt smɔl, so fɔ gɛt kɔrɛkt diagnosis ɛn sɔpɔt frɔm wan ɛkspiriɛns mɛdikal tim go ɛp yu fɔ liv fayn fayn wan wit dis sik.
• Nɔ panik, bɔt tek tɛm. Di tin we impɔtant pas ɔl na fɔ fala di rayt advays we di dɔktɔ gi yu.

If yu gɛt ɛni ɔda kwɛstyɔn bɔt dis, mek shɔ se yu tɔk to yu dɔktɔ. Stay wit wɛlbɔdi!

` Desmoid tכmכro, agresiv fibromatosis, kכnektiv tisu tכmכro, nכn-kansa tכmכro, tכmכro simptom, tכmכro tritmεnt, Sri Lanka Wεlth