I nɔmal fɔ mek yu fil bad we dɔktɔ tɛl yu ɔ sɔmbɔdi na yu famili gɛt Amyotrophic Lateral Sclerosis, ɔ ALS . Na dis kayn tɛm, e kin fayn fɔ no bɔt tritmɛnt wae kin ɛp yu fɔ liv wit dis sik. So tide wi go tɔk bɔt Edaravone, wan vaysin we de briŋ op to ALS pasɛnt dɛn. If dɛn dɔn tɛl yu ɔ pɔsin we yu lɛk dis, dis atikul go rili ɛp yu.
Fɔ tɔk am simpul wan, wetin na Ɛdaravon?
Edaravone na wan mɛrɛsin we dɛn kin yuz fɔ mɛn Amyotrophic Lateral Sclerosis (ALS) . Dɛn kin kɔl ALS bak di sik we dɛn kɔl Lou Gehrig’s disease. Okay, naw mek wi si wetin dis rili de du.
di mכsul dεm na wi bכdi de muv, lεk fכ muv wi an εn leg, fכ tכk, εn sכlow, tru di nεv mεsej dεm we de kכmכt frכm di bren. Insay ALS, di nɛv sɛl dɛn we de kɛr dɛn mɛsej ya kin pwɛl smɔl smɔl. As tɛm de go, dɛn nɔ kin ebul fɔ kɔntrol di mɔsul dɛn igen.
Di impɔtant tin na dat, Edaravone nɔto mɛrɛsin fɔ ALS. Bɔt i de du sɔntin we rili impɔtant. I de ɛp fɔ mek di nɛv sɛl dɛn na yu bɔdi gɛt wɛlbɔdi. So, dis mɛrɛsin kin slo di rεt wae di sik kin mek di mכsul dεm lכs, we min se i kin slo di sik.
Tin dɛm fɔ tɛl yu dɔktɔ bifo yu tek dis mɛrɛsin
Bifo yu bigin fɔ tek Edaravone tritmɛnt, i impɔtant fɔ gi yu dɔktɔ wan kɔmplit diskripshɔn bɔt yu wɛlbɔdi kɔndishɔn. Mek shɔ se yu tɔk mɔ bɔt dɛn tin ya:
- If yu gɛt asma: Dis min se yu gɛt prɔblɛm wit yu lɔng ɔ yu fɔ blo.
- If yu gɛt ɛni alɛji: Ɛspɛshali if yu gɛt ɛni alɛji to Edaravone, sulfites, ɔda mɛrɛsin, it, day, ɔ prɛzɛvɛtiv, yu fɔ tɛl yu dɔktɔ.
- If yu gɛt bɛlɛ ɔ yu de tray fɔ gɛt bɛlɛ.
- If yu na mama we de gi pikin in bɛlɛ.
Bay dis infɔmeshɔn, di dɔktɔ go disayd if dis tritmɛnt fayn fɔ yu ɔ nɔ fayn fɔ yu ɛn aw fɔ gi am sef wan.
Aw yu kin yuz dis mɛrɛsin?
Dɛn kin gi dis mɛrɛsin as injɛkshɔn insay wan vein. Bɔku tɛm, na di dɔktɔ dɛn we de wok na ɔspitul ɔ klinik kin gi dis. Bɔt sɔntɛnde, dɛn kin tich yu ɔ pɔsin we de kia fɔ yu aw fɔ gi dis injɛkshɔn na os.
Fɔ fala di schedule fɔ di mɛrɛsin dɛn jɔs lɛk aw yu fɔ tek am!
Dis na di impɔtant pat pan dis tritmɛnt. Edaravone na "saykl." Fɔ tɔk am simpul wan, i gɛt wan patikyula patɛn.
- Fɔs saykl: Bɔku tɛm, dɛn kin gi di mɛrɛsin fɔ 14 dez kɔnsɛkutiv wan. Dɔn, dɛn nɔ kin gi di mɛrɛsin fɔ 14 dez.
- Nɛks Saykl: Insay di saykl dɛn we de kam afta dat, dɛn kin gi di mɛrɛsin fɔ 10 dez insay 14 dez, dɔn dɛn kin blo fɔ 14 dez.
Yu dɔktɔ go ɛksplen dis schedule to yu ɛksaktɔli. I rili impɔtant fɔ fala dis schedule di rayt we. If yu tek mɔ pas di mɔni we yu tɛl yu fɔ tek ɔ fɔ pas di de we yu tɛl yu fɔ tek, dat kin mek yu gɛt siriɔs sayd ɛfɛkt.
Wetin fɔ du if yu mis wan doz fɔ mɛrɛsin?
- If yu de tek yu mɛrɛsin na ɔspitul ɔ klinik: If yu nɔ ebul fɔ atɛnd di de we yu dɔn sɛtul, kɔl yu wɛlbɔdi tim wantɛm wantɛm ɛn mek dɛn no. I rili impɔtant fɔ mek yu nɔ mis yu apɔntinmɛnt fɔ tek mɛrɛsin.
- If yu de tek yu mɛrɛsin na os: If yu mis wan doz, tek am jɔs lɛk aw yu mɛmba. Bɔt if i dɔn lɛf smɔl fɔ lɛ yu tek yu nɛks doz, skip di doz we yu mis ɛn tek yu nɛks doz di tɛm we yu dɔn sɛtul. Nɔ ɛva tek dabl doz. If yu gɛt dawt, tɔk to yu dɔktɔ.
Wetin a go du if a tek bɔku mɛrɛsin?
If yu tink se yu dɔn tek mɔ mɛrɛsin pas aw yu tink, kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta wantɛm wantɛm na di Kɔlɔmbɔ Nashɔnal Ospital , ɔ go na di ETU (Imejɛnsi Tritmɛnt Yunit) na di ɔspitul we de nia yu.
Wetin na di sayd ɛfɛkt dɛm we dis mɛrɛsin kin gɛt?
Lɛk ɛni mɛrɛsin, Edaravone kin mek yu gɛt sayd ɛfɛkt. Sɔm kin siriɔs, ɛn ɔda wan dɛn kin kɔmɔn. Di impɔtant tin na fɔ no bɔt dɛn tin ya ɛn tek akshɔn kwik if nid de.
| Sayd ɛfɛkt we pɔsin kin gɛt | Diskripshɔn ɛn wetin fɔ du |
|---|---|
| Sayd ɛfɛkt dɛn we nid fɔ go to dɔktɔ wantɛm wantɛm | |
| Alɛji we pɔsin kin gɛt | Skin de rɔsh, it, swel na yu fes, lip, tɔŋ, ɔ trot. Tɛl yu dɔktɔ wantɛm wantɛm bikɔs dɛn tin ya kin siriɔs. |
| I nɔ kin izi fɔ yu fɔ blo | If yu asma wɔs ɔ yu gɛt nyu prɔblɛm fɔ blo, go to dɔktɔ wantɛm wantɛm. |
| Lɔw blɔd prɛshɔn | Diziz , fɔdɔm, nɔ de si fayn. Tɛl yu dɔktɔ if yu gɛt dɛn sik ya. |
| Sayd ɛfɛkt dɛm we dɛn fɔ ripɔt to di dɔktɔ if dɛn kɔntinyu fɔ de | |
| Ed de at | Nɔmal ed kin at, bɔt if i kɔntinyu ɔ i bad, tɛl yu dɔktɔ . |
| We yu nɔ gɛt bɛtɛ balans na yu bɔdi | I nɔ kin izi fɔ mek yu balans we yu de waka ɔ tinap. |
| Brus we nɔ kɔmɔn | Ivin smɔl injuri na di bɔdi kin mek big brus ɔ brus. |
If yu gɛt ɛni ɔda kayn sik we nɔ kɔmɔn we dɛn nɔ tɔk bɔt na dis list, nɔ fred fɔ tɛl yu dɔktɔ bɔt dɛn bak.
Ɔda tin dɛn we yu fɔ tink bɔt ɛn aw fɔ kip mɛrɛsin
Prɔblɛm wit ɔda mɛrɛsin dɛn?
Nɔr ripɔt nɔr dɔn de bɔt ɔda mɛrɛsin dɛm wae de kɔz siriɔs prɔblɛm wit edaravone. Bɔt i impɔtant fɔ tɛl yu dɔktɔ bɔt ɔl di tin dɛn we yu de tek . Dis inklud:
- Mɛrɛsin fɔ ɔda sik dɛn
- Vitamin, ɛbul prɔdak ɔ sɔpɔtmɛnt
- If yu de smok ɔ drink rɔm, tɛl wi bɔt am bak.
Aw fɔ kip di mɛrɛsin?
If yu de yuz mɛrɛsin na os, no bɔt dɛn pɔynt ya.
- Kip am usay pikin ɛn animal dɛn we yu lɛk nɔ go ebul fɔ rich.
- Stɔr am na say we di tɛmpracha nɔ pas 25 digri sɛlshiɔs (77 Farenheit), dat na, na di nɔmal rum tɛmpracha.
- Kip di mɛrɛsin insay in fɔs pak te i rich di tɛm fɔ yuz am.
- Protɛkt frɔm layt.
- Nɔ ɛva yuz mɛrɛsin we dɔn pas. Aks yu dɔktɔ fɔ advays bɔt aw fɔ trowe di mɛrɛsin we yu nɔ yuz ɔ we dɔn pas, fayn fayn wan.
Dɛn dɔn gi yu dis mɛrɛsin fɔ yu nɔmɔ. Nɔ sheb dis mɛrɛsin wit ɛni ɔda pɔsin fɔ ɛni rizin.
ALS na sik we nɔ izi fɔ du, bɔt tritmɛnt lɛk Edaravone kin ɛp fɔ mek di sik nɔ go bifo kwik kwik wan. Tɔk to yu dɔktɔ ɔltɛm ɛn tɔk klia wan bɔt aw yu de go bifo ɛn ɛnitin we de mɔna yu.
Mɛsej we dɛn kin kɛr go na os
- Edaravone nɔto mɛrɛsin fɔ ALS, bɔt i de ɛp fɔ protɛkt di nerve cells ɛn slo di sik fɔ go bifo.
- I rili impɔtant fɔ fala di saykl schedule we yu dɔktɔ gi yu ɛksaktɔli. Nɔ ɛva tek pas di mɔni we dɛn tɛl yu fɔ tek.
- Tɛl yu dɔktɔ bɔt ɛni sik lɛk asma, alɛji, ɛn bɛlɛ bifo yu bigin fɔ trit yu.
- If yu gɛt sɔm sayn dɛn lɛk fɔ mek yu nɔ ebul fɔ blo ɔ yu gɛt siriɔs alɛji, go to dɔktɔ wantɛm wantɛm.
- Tɔk opin wan wit yu dɔktɔ bɔt ɛni kwɛstyɔn ɔ tin we de mɔna yu. Nɔto yu wan de.
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