We yu dɔktɔ tɛl yu ɔ sɔmbɔdi na yu famili gɛt ALS (Amyotrophic Lateral Sclerosis), wi no se i kin bi big lod. We yu de liv wit dis sik, dɔktɔ dɛn kin gi yu difrɛn tritmɛnt dɛn. Edaravone na wan pan dɛn kayn spɛshal mɛrɛsin ya we de ɛp fɔ kɔntrol aw dis sik de go. So, insay dis atikul, wi go tray fɔ ansa yu kwɛstyɔn dɛn bɔt dis mɛrɛsin simpul ɛn klia wan.
Wetin na Ɛdaravon?
Fɔ tɔk am simpul wan, Edaravone na wan likwid mɛrɛsin we dɛn kin yuz fɔ trit wan sik we dɛn kɔl Amyotrophic Lateral Sclerosis (ALS) , we sɔm pipul dɛn kin kɔl bak "Lou Gehrig's disease."
Wetin dis drɔg kin rili du? Tink bɔt wi bɔdi as di mɛsej dɛn we de kɔmɔt na di bren tru di nerv dɛn de kɔntrol wi bɔdi. Insay ALS, dɛn nɛv sɛl dɛn ya kin pwɛl. Edaravone de ɛp fɔ mek dɛn nerve cell ya na yu bɔdi gɛt wɛlbɔdi. So, i kin ɛp fɔ slo di lɔs pan di mɔsul kɔntrol we kin apin as tɛm de go.
Di impɔtant tin na dat dis nɔto mɛrɛsin fɔ ALS, bɔt i de ɛp fɔ kɔntrol di sayn dɛm ɛn slo di sik fɔ go bifo.
Tin dɛm wae yu fɔ tɛl yu dɔktɔ bifo yu tek dis mɛrɛsin
Bifo yu gi yu Edaravone, yu dɔktɔ go nid fɔ no yu kɔmplit wɛlbɔdi istri. Mek shɔ se yu tɛl dɛn bɔt dɛn tin ya mɔ.
- If yu gɛt asma ɔ ɔda sik dɛn na yu lɔng.
- If yu gɛt alɛji fɔ dis mɛrɛsin, edaravone, wan kemikal we dɛn kɔl salfayt , ɔda mɛrɛsin, it, atifishal kɔlɔ ɔ tin dɛn we de mek yu nɔ pwɛl.
- If yu gɛt bɛlɛ ɔ yu de tray fɔ gɛt bɛlɛ.
- If yu na mama we de gi pikin in bɛlɛ.
Dis infɔmeshɔn rili impɔtant fɔ yu sef. So tɔk to yu dɔktɔ ɛn nɔ ayd ɛnitin.
Aw ɛksaktɔli yu kin yuz dis mɛrɛsin?
Bikɔs dis kin kam lɛk wata, yu nid fɔ tek tɛm smɔl we yu de yuz am.
- Fɔ fala di advays we di dɔktɔ gi yu: Ɔltɛm tek yu mɛrɛsin jɔs lɛk aw yu dɔktɔ tɛl yu fɔ tek, di tɛm we dɛn tɛl yu fɔ tek am.
- Shek gud gud wan: Shek di mɛrɛsin bɔtul fayn fayn wan bifo yu yuz am.
- Kɔrɛkt mɛzhɔmɛnt: Yuz spɛshal mɛrɛsin fɔ mɛzhɔ sirinj, kɔp, ɔ spun we kam wit di mɛrɛsin fɔ mɛzhɔ di mɛrɛsin. Nɔ yuz ti spɔnj ɔltɛm we yu gɛt na os., bikɔs di we aw dɛn de mɛzhɔ dɛn nɔ kɔrɛkt.
- Tek am ɛmti bɛlɛ: I bɛtɛ fɔ tek dis mɛrɛsin ɛmti bɛlɛ, we min se wan awa bifo yu it ɔ tu awa afta yu dɔn it.
- "Saykl" mεtכd: dεn kin gi dis mεdisin insay "saykl". Dis min se yu gɛt de dɛn we yu de tek di mɛrɛsin ɛn de dɛn we yu nɔ de tek am. Fɔ ɛgzampul, dɛn kin gi yu wan schedule fɔ tek di mɛrɛsin fɔ 14 dez ɛn afta dat yu fɔ stɔp fɔ 14 dez. I rili impɔtant fɔ fala dis schedule di rayt we. If yu gɛt ɛni kwɛstyɔn bɔt am, aks yu dɔktɔ fɔ mek shɔ se yu ɔndastand. Nɔ tek pas di mɔni we dɛn tɛl yu fɔ tek, bikɔs dis kin mek yu gɛt siriɔs sayd ɛfɛkt.
Wetin fɔ du if yu mis wan doz fɔ mɛrɛsin?
If yu fɔgɛt fɔ tek wan doz, tek am jɔs lɛk aw yu mɛmba. Bɔt if i dɔn lɛf smɔl fɔ lɛ yu tek yu nɛks doz, skip di doz we yu mis ɛn tek yu nɛks doz di tɛm we yu dɔn sɛtul. Nɔ ɛva tek tu doz wan tɛm fɔ mek di doz we yu mis.
Wetin a go du if a tek bɔku tin bay mistek?
If yu tink se yu dɔn tek mɔ mɛrɛsin pas aw dɛn tɛl yu fɔ tek am, kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital wantɛm wantɛm. Ɔ go na di Imejɛnsi Tritmɛnt Yunit (ETU) na di ɔspitul we de nia yu.
Wetin na di bad tin dɛn we kin apin to pɔsin?
Lɛk ɛni mɛrɛsin, edaravone kin mek sɔm pipul dɛn gɛt sayd ɛfɛkt, bɔt nɔto ɔlman kin gɛt am. I impɔtant fɔ no bɔt dɛn tin ya.
| Sayd ɛfɛkt we pɔsin kin gɛt | Tɔk bɔt |
|---|---|
| Tin dɛn fɔ ripɔt to yu dɔktɔ wantɛm wantɛm | |
| Alɛji Riakshɔn dɛn | Skin rash, it, ayv, swel na di fes, lip, tong ɔ trot. |
| Lɔw blɔd prɛshɔn | Diziz, layt ed, blurred vishɔn. |
| I nɔ kin izi fɔ yu fɔ blo | Fɔ blo shɔt, i nɔ kin izi fɔ blo. |
| Tin dɛn fɔ tɛl di dɔktɔ if dɛn kɔntinyu fɔ du am | |
| Ed de at | Kɔmɔn ed pen. |
| We yu nɔ gɛt bɛtɛ balans na yu bɔdi | Fɔ fil se yu nɔ de tinap tranga wan we yu de waka ɔ tinap. |
| Brus we nɔ kɔmɔn | Brus na di skin bikɔs ɔf ivin di smɔl tin. |
If yu gɛt ɛni ɔda kayn sik we nɔ kɔmɔn we dɛn nɔ tɔk bɔt na dis list, duya tɛl yu dɔktɔ bɔt dɛn bak.
Aw fɔ protɛkt ɛn pul di mɛrɛsin?
- Fɔ kip di mɛrɛsin: Ɔltɛm kip di mɛrɛsin usay pikin ɛn animal dɛn we yu lɛk nɔ go ebul fɔ rich . I bɛtɛ fɔ kip am na rum tɛmpracha (bitwin 20-25 digri sɛlshiɔs). Protɛkt am frɔm ɔt pasmak ɛn dairekt san layt. Di tin we impɔtant pas ɔl na fɔ trowe ɛni mɛrɛsin we lɛf afta 15 dez we yu opin di bɔtul. If nɔto dat, trowe am we di de we i fɔ dɔn pas.
- Aw fɔ trowe am: Di bɛst we fɔ trowe di mɛrɛsin dɛn we dɔn pas ɔ we yu nɔ want na fɔ aks yu ɔspitul ɔ famasi bɔt dɛn program. If dat nɔ pɔsibul, ɛmti di mɛrɛsin na di kɔntena, miks am wit sɔntin lɛk kɔfi grɔn we dɛn dɔn yuz, dɔti, ɔ pusi dɔti, ɛn put am insay bag ɔ kɔntena we dɛn tayt ɛn trowe am na di dɔti. Nɔ ɛva flush am dɔŋ di tɔylɛt.
Dɛn dɔn gi yu dis mɛrɛsin fɔ yu nɔmɔ. So, nɔ sheb am wit ɛni ɔda pɔsin fɔ ɛni rizin. Di dɔktɔ go gi yu dis mɛrɛsin bay aw yu de fil ɛn aw yu gɛt wɛlbɔdi.
Mɛsej we dɛn kin kɛr go na os
- Edaravone nɔto mɛrɛsin fɔ ALS, bɔt i de ɛp fɔ kɔntrol di rit we di sik de wɔs.
- Fɔ fala di "saykl" schedule we yu dɔktɔ gi yu ɛksaktɔli. Nɔ skip wan doz fɔ mɛrɛsin, ɛn nɔ tek bɔku.
- If yu gɛt siriɔs alɛji lɛk fɔ swel na yu fes, yu lip, ɔ yu nɔ ebul fɔ blo, go to dɔktɔ wantɛm wantɛm.
- Mek shɔ se yu tɛl yu dɔktɔ bɔt ɛni ɔda sik (especially asma) ɛn alɛji we yu gɛt.
- Opin di mɛrɛsin bɔtul ɛn trowe ɛnitin we lɛf afta 15 dez.
- Fil fri fɔ tɔk to yu dɔktɔ bɔt ɛni kwɛstyɔn ɔ tin we de mɔna yu.
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