Yu nyu bɔbɔ gɛt prɔblɛm fɔ swɛla milk? I kin bi Esophageal Atresia.

Yu nyu bɔbɔ kin bigin fɔ kɔf ɛn chok wantɛm wantɛm we yu gi am sɔm milk? I de fom na in mɔt? As mama ɔ papa, yu go mɔs fred bad bad wan we yu si dɛn tin ya. Sɔmtɛm dɛn kin kam wit dɛn sik ya we dɛn bɔn wit we dɛn kɔl Esophageal Atresia. Nɔ wɔri. Lɛ wi tɔk bɔt dis insay simpul wɔd tide ɛn ɔndastand ɔltin.

Fɔ tɔk am simpul wan, wetin na Esophageal Atresia (EA)?

εsophageal Atresia (dεn kin kכl am "εsophagus") na difεkt we dεn bכn pikin. Fɔ tɔk di kɔrɛkt tin, na prɔblɛm wit di pikin in ɛsophagus. Di tiub we de kɛr it frɔm di mɔt to di bɛlɛ we wi de swɛla. di wɔd "atresia" min se wan say we de pas na di bɔdi dɔn blok ɔ blok. so, if di εsophageal atresia, di pikin in εsophagus nכ de gro dכn frכm usay i fכ kכnekt to di bεlε, bכt i de stכp af-af εn i de blכk. I tan lɛk wata paip we dɔn brok tu. Bikɔs ɔf dis, di pikin nɔ kin ebul fɔ drink milk ɔ swɛla it nɔmal wan. Wan ɔda siriɔs prɔblɛm we dɛn kin si wit dis kɔndishɔn na tracheoesophageal fistula (TEF) . insay dis kes, insted fכ kכnekt di εsophagus to di bεlε, i de kכnekt to di pikin in trakya, we na di brith tכb. Dis kin rili denja, bikɔs tin dɛn lɛk milk ɛn saliva we di pikin de swɛla kin go dairekt insay di lכng.

Difrɛn kayn dis sik de?

Yes, dεn divayd dεn Esophageal Atresia εn Tracheoesophageal Fistula (TEF) kכndyushכn dεm to sεvεra men tכp dεm dipכnt pan aw dεn de apin tכgeda כ sεparat. Yu dɔktɔ go plan yu tritmɛnt bay di rayt kayn tritmɛnt.

Aw yu go no if yu pikin gɛt dis sik? Wetin na di sayn dɛm we de sho se yu gɛt dis sik?

Dɔktɔ ɛn nɔs dɛn kin pe atɛnshɔn gud wan to dɛn sayn dɛn ya we dɛn de chɛk pikin we dɛn jɔs bɔn. Na mɔtalman dɛn kin pe atɛnshɔn to 3 men sayn dɛn.

• Kɔf: Ɛspɛshali we yu de tray fɔ drink sɔm milk.
• Chok : Chok kin apin bikɔs yu nɔ kin ebul fɔ swɛla milk ɔ saliva.
• Saynosis: Di skin ɛn di lip dɛn kin tɔn blu bikɔs ɔksijɛn nɔ de na di bɔdi.

Dis na dɛn ɔda tin dɛn de:

• Foamy mucus dischaj frɔm di mɔt.
• Fɔ pul wata pasmak.
• Vɔmit ɔ chok we yu de tray fɔ gi pikin in bɛlɛ.
• I nɔ izi fɔ blo ɛn fɔ blo kwik kwik wan .

Bɔku tɛm, ɔda sik dɛn we kin mek i nɔ izi fɔ swɛla nɔ kin mek i nɔ izi fɔ blo. Bɔt if ɔl tu di prɔblɛm fɔ swɛla ɛn i at fɔ blo apin togɛda , i go mɔs bi se na bikɔs ɔf wan sik we dɛn kɔl Esophageal Atresia wit Tracheoesophageal Fistula (TEF).

Wetin mek dis kin apin to bebi dɛn? Wetin na di men rizin?

Dis na wan sik we dɛn bɔn wit. Dat min se i kin apin we di pikin de gro na di bɛlɛ. nכmal wan, insay di fכs stej dεm fכ di pikin, di εsophagus εn di trakya na wan tכb. na leta dis pat de separet to tu pat, we de mek di εsophagus εn trachea. insay di kes fכ εsophageal atresia , dis separeshכn prכsεs nכ de komplit kכmplit wan. Risach pipul dɛm nɔr dɔn ebul fɔ no yet bɛtɛ bɛtɛ wan wetin kin mek dis prɔses stɔp af-af. Bɔt dɛn biliv se we dɛn jɔyn di jɛnɛtiks ɛn di tin dɛn we de apin na di say we dɛn de, kin ɛp fɔ du sɔntin.

Aw dɔktɔ dɛn kin no bɔt dis sik?

Sɔntɛnde, di skan we dɛn kin du bifo dɛn bɔn di pikin kin gi yu tin fɔ no, bɔt bɔku tɛm dɛn kin no di sik afta dɛn bɔn di pikin.

Diagnosis bifo dɛn bɔn pikin

sכmtεm dεn kin si kכlכ dεm bכt dis we dεn de du anomaly skan, we dεn kin du arawnd 20 wiks we uman bεlε.

• Polyhydramnios: If tu mכch amniotic fluid de rawnd di pikin. Dis na bikɔs di pikin kin swɛla dis wata. Di wata kin gɛda bikɔs di pikin nɔ ebul fɔ swɛla.
• Smɔl ɔ in bɛlɛ bɔbul we pɔsin nɔ de si: If di pikin in bɛlɛ nɔ ful-ɔp wit wata we dɛn de skan .

If yu si sɔntin lɛk dis, yu dɔktɔ kin tɛl yu fɔ du ɔda tɛst, lɛk fɔ du MRI na di pikin we de na di bɛlɛ.

afta dεn bכn di pikin (Postnatal Diagnosis) .

Dɔktɔ dɛn kin sɔprayz se dis sik kin apin we pikin sho di sayn dɛn we wi dɔn tɔk bɔt we i bɔn am. di men tεst fכ kכnfכm am na fכ tray fכ put sכm sכm tכb (nasogastric tכb) tru di nos εn insay di bεlε. if di εsophagus blok, di tכb de stכp af we i nכ go insay di bεlε. Dɔn dɛn kin du ɛkstrem rayt fɔ si ustɛm di εsophagus dɔn blok, if i kɔnɛkt to di trakya, ɛn if wata dɔn go insay di lɔng dɛn. If dɛn kɔnfyus dis sik, dɔktɔ dɛn kin chɛk bak fɔ ɔda prɔblɛm dɛn we gɛt fɔ du wit di pikin we dɛn bɔn.

Yu tink se dis sik kin wɛl ɔltogɛda if dɛn du ɔpreshɔn?

Yɛs. Bɔku tɛm, i pɔsibul. We dɛn dɔn no di sik, di pikin in kɔndishɔn kin stebul ɛn dɛn kin sɔlv di prɔblɛm wit ɔpreshɔn kwik kwik wan. Bɔt sɔm pikin dɛn kin nid fɔ de na ɔspitul fɔ sɔm tɛm bifo dɛn du dɛn ɔpreshɔn.

• Te di pikin dɛn we dɛn bɔn bifo tɛm gɛt sɔm wet.
• if di gap bitwin di tu pat dεm na di εsophagus tu big (Long-gap esophageal atresia - LGEA). If na so i bi, yu go nid fɔ wet te di tu pat dɛn gro smɔl ɛn kam nia.
• If ɔda prɔblɛm dɛn de we kin mek pɔsin in layf de pan denja, lɛk siriɔs at prɔblɛm dɛn , dɛn nid fɔ trit dɛn fɔs.

Insay dis tɛm, di pikin kin gɛt ɔl di kia we i nid ɔnda di sɔpɔtishɔn fɔ spɛshal dɔktɔ ɛn nɔs dɛn na di Nionatal Intensive Care Unit (NICU) . dεn de gi di pikin di it we i nid tru wan tכb (enteral nutrition) כ intravenously (parenteral nutrition). So yu nɔ nid fɔ wɔri se di pikin nɔ go ebul fɔ it.

Aw dɛn kin du di tritmɛnt dɛn ɛn di ɔpreshɔn?

difrεn men gol dεm de fכ tritmεnt: fכ mek di pikin in brith stebul, fכ gi am sef it, εn leta fכ kכrekt di kכndyushכn tru כpεrayshכn.

Instant manejmɛnt

We dɛn dɔn no se di pikin gɛt dis sik, dɛn kin du dɛn tin ya we dɛn de pripia fɔ ɔpreshɔn:

• di mכkus εn saliva we kin kכmכt na di trot εn mכt dεn kin kכl dεm bay we dεn sכk dεm.
• Dɛn kin put wan tiub fɔ blo fɔ protɛkt di say we di briz de blo.
• dεn de yuz fכ it tyub כ IV layn fכ gi nyutrishכn εn wata.
• Dɛn kin gi antibayɔtik fɔ mek yu nɔ gɛt infɛkshɔn na yu lɔng (nyumonia).

Ɔpreshɔn (Ɔspitul Ripa) .

We di mɛdikal tim dɔn no se di pikin dɔn rɛdi fɔ ɔpreshɔn, dɛn kin du di ɔpreshɔn. di men gol dεm na: 1. fכ kכnekt bak di tu pat dεm we separet na di εsophagus (anastomosis). 2. fכ klos fistula (we na kכnεkshכn bitwin di εsophagus εn di winda paip), if wan de. Naw, ɛnitɛm we i pɔsibul, dɔktɔ dɛn kin du dis ɔpreshɔn bay we dɛn kin yuz ɔpreshɔn we nɔ kin tek bɔku pipul dɛn . dis min se insted fכ mek big say na di chεst, dεn kin put kεmεra (thoracoscope) εn dilik instrכmεnt dεm tru sכm sכm sכm sכm sכm pat dεm. Dis kin mek di pikin wɛl kwik kwik wan.

Di we aw pɔsin kin wɛl afta dɛn dɔn du am ɔpreshɔn

Afta di ɔpreshɔn, dɛn kin kɛr di pikin go bak na di NICU. Afta sɔm dez, dɛn kin du spɛshal ɛkstrem rayt we dɛn kɔl ɛsophagram fɔ chɛk if di say we dɛn kɔt dɔn wɛl ɛn if ɛnitin lik. We dɛn dɔn kɔnfyus se ɔltin fayn, dɛn kin bigin fɔ gi di pikin in bɛlɛ smɔl smɔl ɔnda dɔktɔ in sɔpɔtishɔn. Dis kin tek sɔm tɛm fɔ mek di pikin yus to am.

Aw di pikin in layf go tan lɛk afta dɛn dɔn trit am?

Bɔku pikin dɛn kin wɛl ɛn liv nɔmal layf. Bɔt sɔm pikin dɛn kin gɛt prɔblɛm dɛn we go de fɔ lɔng tɛm bikɔs ɔf dis sik ɛn di ɔpreshɔn we dɛn de du. Dɛn tin ya kin bɛtɛ as tɛm de go, bɔt dɛn kin nid fɔ gɛt dɔktɔ fɔ kia fɔ sɔm ia.

• Tracheomalacia: Dis na wan sik we di katilej na di trachea kin wik, we kin mek di trachea kin smɔl smɔl we yu de blo. Dis kin mek yu swɛt , i nɔ kin izi fɔ blo we yu de slip, ɛn yu kin gɛt infɛkshɔn na yu chɛst ɔltɛm (nyumonia, brɔnkayt).
• I nɔ kin izi fɔ swɛla: Sɔm pikin dɛn kin gɛt prɔblɛm fɔ swɛla bikɔs dɛn nɔ kin ebul fɔ swɛla. Dis prɔblɛm kin apin mɔ we yu de introduks sɔlid it dɛn. Dis kin bi bay we yu kɔt it smɔl smɔl ɛn gi am wit wata.
• Gastroesophageal Riflɔks Disizin (GERD):dis na we di bεlε asid de kam כp di εsophagus (we fiba di gεstritis). Dis kכndyushכn kin apin pan lεk af pan di pikin dεm we dεn trit wit EA. I rili impɔtant fɔ trit dis lɛk aw dɔktɔ tɛl yu.

If yu pikin gɛt ɛni wan pan dɛn prɔblɛm ya, tɔk to yu dɔktɔ bɔt am ɔltɛm. Yu kin aks fɔ ɛp frɔm spɛshal pipul dɛm lɛk speech-language pathologist ɛn nutritionist dɛm fɔ gi yu di sɔpɔt we yu nid. εsophageal atresia, εsophageal obstruction, tracheoesophageal fistula, bכn difεkt, nyu bכbi, pikin chok, nyu bכbi כpεrayshכn, εsophagus