Yu dɔn ɛva tink se di tu kidni dɛn we de insay wi bɔdi tan lɛk wan supa filtreshɔn sistɛm? Na dat kin apin. Di men wok we di kidni dɛn de du na fɔ filta di dɔti tin dɛn we wi nɔ want na wi blɔd ɛn pul dɛn kɔmɔt na di bɔdi as urine. Bɔt imajin, wetin go apin if sɔntin pwɛl dis valyu filta? Na da tɛm de di prɔblɛm dɛn kin bigin. Tide wi go tɔk bɔt wan sik we pipul dɛn nɔ no bɔt, bɔt we rili impɔtant we de pwɛl di filta dɛn na di kidni dɛn. Dat na FSGS.
Fɔ tɔk am simpul wan, wetin na FSGS?
Di ful nem fɔ FSGS na Focal Segmental Glomerulosclerosis. Pan ɔl we di nem kin tan lɛk se i kɔmplikt smɔl, di stori rili simpul. Mek wi brok am dɔŋ ɛn ɔndastand.
Ɛni wan pan wi kidni dɛn gɛt lɛk wan milyɔn smɔl smɔl filta dɛn we de ɛp fɔ filta wi blɔd. We wi de tɔk bɔt mɛrɛsin, dɛn kin kɔl dɛn tin ya glomeruli . Tink bɔt dɛn lɛk ti strayn na di kichin. As blɔd de pas tru dɛn filta ya, dɛn kin kip di gud tin dɛn we di bɔdi nid (nyutriɛnt, minral) bak insay di blɔd, ɛn filta di dɔti tin dɛn we dɛn nɔ want ɛn di wata we pasmak. Wetin separet na wetin de kɔmɔt as urine.
insay FSGS, dεn sכm sכm filta dεm (glomeruli) kin bi ska כ at. dεn kכl dis ``sklerכsis.'' we dis ska de apin, di filta dεm nכ kin ebul fכ du dεn wok fayn fayn wan.
Naw lɛ wi luk di ɔda wɔd dɛn we de na di nem:
- Fכkal: Dis min se dis damej nכ de afekt כl di filta dεm na di kidni, na sכm pan dεm nכmכ de afekt.
- Segmental: Dis min se ivin insay filta dɛn we dɔn pwɛl, na wan pat pan di filta nɔmɔ kin pwɛl, nɔto di wan ol filta .
Fɔ tɔk am simpul wan, FSGS na wan sik we sɔm pan di filta dɛn na di kidni dɛn kin pwɛl, we kin mek dɛn nɔ ebul fɔ wok fayn.
Wetin na di men kayn FSGS?
FSGS kin sheb to tri men kayn. Lɛ wi si wetin dɛn bi.
| FSGS tayp | Tɔk bɔt |
|---|---|
| Praymari FSGS | No klia rizin nɔ de fɔ dis kayn tin. Dis kכndyushכn kin apun witout eni kכzכn. |
| Sɛkɔndari FSGS | Dis kayn tin kin kam bikɔs ɔf ɔda mɛrɛsin, infekshɔn, mɛrɛsin, ɔ ɔda tin we kin kɔmɔt na do. Fɔ ɛgzampul, i kin kam bikɔs ɔf tin dɛn lɛk dayabitis, fɔ fat pasmak, infɛkshɔn lɛk HIV, sɔm mɛrɛsin dɛn, ɛn fɔ yuz drɔgs. |
| Jɛnɛtik (Familial) FSGS | Dis kayn tin na bikɔs ɔf wan jenɛtik dɛfekt, we min se i kin kɔmɔt frɔm mama ɛn papa to pikin dɛn. |
Wetin na di sayn dɛm fɔ pɔrsin wae gɛt FSGS?
Di big prɔblɛm wit FSGS na dat i nɔ gɛt ɛni klia simptom na di fɔs stej . Bɔrku tɛm dɛn kin kam fɔ no am bay we dɛn de du rutin mɛdikal ɛgzam ɔr wae dɛn de tɛst am fɔ ɔda sik. Bɔt sɔm tin dɛn de we kin apin to pɔsin.
- Ɛdima: I kin swel, mɔ na di leg, anklɛ, an, ɛn fes. Dis na de fɔs sayn wae bɔrku pipul kin notis.
- Proteinuria: We di kidni filta dεm dכn pwεl, di protin dεm we di bכdi nid de filta kכmכt εn kכmכt na di urine. Dis kin mek yu urine tan lɛk fɔm (lɛk sop wata).
- Di kɔlɔstrel we de na di blɔd de go ɔp.
- di protin albumin we de na di bכdi de dכn.
- We yu de gɛt wet wantɛm wantɛm: Dis kin bi bikɔs wata we nɔ nid fɔ de na di bɔdi.
- Ay blɔd prɛshɔn (Hypertension).
We sɔm pan dɛn sayn ya (espɛshali we pɔsin kin swel, we i gɛt prɔtin na di urine, ɛn we di prɔtin nɔ de na di blɔd) kin apin togɛda, di dɔktɔ dɛn kin kɔl dis sik we dɛn kɔl nephrotic syndrome .
Denja kondishon (komplikeshɔn) wae kin apun bikɔs ɔf dis sik
If dɛn nɔ de manej FSGS fayn, siriɔs kɔmplikeshɔn kin kam as tɛm de go. Di prɔblɛm we siriɔs ɛn denja pas ɔl na we di kidni nɔ de wok fayn . Dis na we di kidni dɛn nɔ ebul fɔ wok fayn. Dis na imejensi we kin mek pɔsin in layf de pan denja.
If yu gɛt FSGS ɛn yu gɛt dɛn sik ya, yu fɔ go na ɔspitul in imejensi dipatmɛnt (ETU) wantɛm wantɛm :
- Di ay blɔd prɛshɔn we pɔsin nɔ ebul fɔ kɔntrol.
- Blɔd we de lɔs (anemia).
- Nɔs, vɔmit, ɛn nɔ want fɔ it.
- Di an, fut, ɛn fes kin swel bad bad wan.
Aw dɔktɔ kin no se i gɛt FSGS?
Afta yu dɔn lisin to yu sayn dɛm, di dɔktɔ go rifer yu fɔ sɔm tɛst dɛm.
- Blɔd tɛst: Chɛk di lɛvɛl we di prɔtin, dɔti tin dɛn, ɛn fat de na di blɔd.
- Yurin tɛst: Mek yu no di kayn prɔtin ɛn blɔd we de na di urine.
- Kidni fכnshכn tεst (Glomerular Filtration Rate - GFR): Dis de mכsu aw yu kidni dεm de wok fayn fayn wan.
Bɔt pan ɔl we ɔl dɛn tɛst ya kin sho se FSGS de, wan tɛst de we dɛn fɔ du fɔ kɔnfɔm di sik 100% : wan kidni bayɔpsi .
Wetin na kidni bayɔpsi?
Dis min se yu fɔ tek wan rili smɔl pat pan yu kidni bay we yu yuz smɔl nidul. afta dat dεn kin egzamin di tisu כnda maykroskכp fכ si if εni skata de na di kidni in filta dεm. Dɛn kin tek dis as di gold standad fɔ no FSGS.
Wetin na di tritmɛnt dɛm fɔ FSGS?
Di tritmɛnt fɔ FSGS kin difrɛn frɔm wan pɔsin to ɔda pɔsin. I dipen pan tin dɛm lɛk di kayn FSGS wae yu gɛt, yu ej, ɛn ɔda mɛrɛsin wae yu gɛt. Di men gol fɔ tritmɛnt na fɔ kɔntrol di sayn dɛm, fɔ gɛt gud kwaliti layf, ɛn fɔ mek di kidni dɛn nɔ pwɛl ɛn fɔ mek di kidni nɔ wok fayn.
Di impɔtant tin na dat di damej we FSGS kin du to di kidni dɛn nɔ go ebul fɔ chenj. Dis min se i nɔto sik we pɔsin kin mɛn ɔltogɛda. Bɔt, tritmɛnt kin mek di sik nɔ go bifo kwik kwik wan.
Di dɔktɔ kin tɛl yu fɔ du dɛn tritmɛnt ya:
Di kayn drɔgs dɛn we dɛn kin yuz
- Mɛrɛsin dɛn we de kɔntrol blɔd prɛshɔn ɛn ridyus di prɔtin we de kɔmɔt na di urine. εgzampl dεm: `(Angiotensin-kכnvεrt εnzym inhibito dεm - ACE-Is)`, `(Angiotensin rεsεptכr blכk dεm - ARB dεm)`.
- Diuretics na drɔgs we de ridyus di wata we de na di bɔdi.
- Immunosuppressive drugs na drɔgs we de kɔntrol di wok we di imyun sistɛm de du.
- Stɛroyd dɛn lɛk `(Kɔtikosterɔyd)`.
- insay sכm kes dεm, spεshal tritmεnt dεm lεk `(Plasmapheresis)`.
Di we aw pipul dɛn de liv dɛn layf kin chenj
Jɔs lɛk mɛrɛsin, di chenj dɛn we yu de mek na yu layf bak rili impɔtant.
- Di it: I rili impɔtant fɔ mek yu nɔ gɛt bɔku sɔl (sɔdiɔm) ɛn prɔtin we yu de it. Kɔnsul yu dɔktɔ ɛn pɔsin we sabi bɔt it bɔt dis.
- Ɛksesaiz: Du ɛksɛsayz ɛvride.
- Nɔ smok: If yu na pɔsin we de smok, i impɔtant fɔ lɛf fɔ smok wantɛm wantɛm fɔ mek yu kidni gɛt wɛlbɔdi.
Wetin di fiuja go bi fɔ pɔsin we de liv wit FSGS?
FSGS na sik we nɔ de mɛn we nɔ gɛt ɛni mɛrɛsin. Di prɔgnosis kin difrɛn frɔm wan pɔsin to ɔda pɔsin. Sɔm pipul kin liv wit de sik wae dɛn kin kɔntrol fayn fayn wan wit tritmɛnt ɛn nɔr kin gɛt prɔblɛm fɔ lɔng lɔng tɛm. Fɔ ɔda pipul dɛn, di sik kin wɔs smɔl smɔl ɛn mek dɛn kidni nɔ wok fayn.
If dat apin, yu kin nid fɔ gɛt dayalaysis ɔ fɔ transplant yu kidni fɔ mek yu kɔntinyu fɔ liv.
Bɔt ilɛk wetin apin, if yu gɛt di rayt tritmɛnt, fala yu dɔktɔ in instrɔkshɔn, ɛn kɔntinyu fɔ liv fayn layf, bɔku pipul dɛn we gɛt FSGS kin liv aktif, sakrifays layf. De tin wae impɔtant pas ɔl na fɔ de pan tap fɔ yu sik bay wae yu de du mɛdikal chɛk-ap ɔltɛm.
Mɛsej we dɛn kin kɛr go na os
- FSGS na sik we kin mek di dilik filta dɛn we de na di kidni dɛn gɛt skata, we kin mek di kidni dɛn nɔ ebul fɔ filta di blɔd fayn fayn wan.
- If yu leg, yu an, ɔ yu fes swel fɔ no rizin, ɔ if yu notis se yu urine de fom, nɔ ignore am. Si yu dɔktɔ wantɛm wantɛm.
- Pan ɔl we dɛn nɔ go ebul fɔ mɛn dis sik ɔltogɛda, if dɛn trit am fayn ɛn chenj di we aw dɛn de liv dɛn layf, dɛn go ebul fɔ kɔntrol di sik ɛn nɔ go pwɛl di kidni dɛn.
- I rili impɔtant fɔ yuz di mɛrɛsin we di dɔktɔ gi yu di rayt we ɛn fɔ kɔntrol di tin dɛn we yu de it.
- FSGS nɔto sɔntin fɔ fred, bɔt i rili bi kɔndishɔn fɔ wɔri bɔt. If dɔktɔ de kia fɔ yu di rayt we, yu go ebul fɔ liv gud layf.
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