Yu de gɛt strenj lumps na difrɛn say dɛn na yu bɔdi? Sɔntɛm yu gɛt mɔ tit pas aw yu fɔ gɛt we yu de tit? Pan ɔl we dɛn tin ya kin tan lɛk nɔmal tin, sɔntɛnde, siriɔs stori kin de biɛn dɛn. Tide wi de tɔk bɔt dis kayn sik we nɔ kin apin so ɔltɛm, bɔt we rili impɔtant, we ɔlman fɔ no bɔt. Dat na di sik we dɛn kɔl Gardner Syndrome.
Wetin na Gardner Syndrome, fɔ tɔk am simpul wan?
Fɔ tɔk am simpul wan, dis na tin we nɔ kin apin so ɔltɛm we wi kin gɛt frɔm wi mama ɛn papa tru di jin dɛn. Na sik we pɔsin kin gɛt frɔm in mama ɛn papa. Pɔsin we gɛt dis sik kin bigin fɔ gɛt abnɔmal tumbu na difrɛn pat dɛn na in bɔdi.
wetin kin apin na dat כndrεd sכm sכm sכm tin dεm we de gro insay di kכlon. Dɛn kin kɔl dɛn tin ya we de gro na di mɛrɛsin we dɛn kɔl polip . Di tin we denja pas ɔl na dat if dɛn nɔ trit dɛn, ɔl dɛn polip ya kin rili gɛt kansa na di kɔlon .
Apat frɔm di kɔlon, tumbu dɛn we nɔ gɛt kansa kin kam bak na di bon dɛn, insay di bɔdi, di skin, ɛn ɔda sɔft tisu dɛn. Pipul wae gɛt dis sik kin gɛt sɔm ɔda kayn kansa bak.
Aw dis sik kin kɔmɔn? Udat kin gɛt am?
Dis na rili wan sik we nɔ kin apin so ɔltɛm. Fɔ ɛgzampul, na kɔntri lɛk Amɛrika, na wan pan ɛvri milyɔn pipul dɛn nɔmɔ kin gɛt dis sik.
Bikɔs na sik we dɛn kin gɛt frɔm dɛn mama ɛn papa, bɔku pipul dɛn we gɛt Gardner syndrome kin gɛt bɔku chans fɔ gɛt mama ɔ papa we gɛt dis sik. Dis min se i de pas tru jin frɔm jɛnɛreshɔn to jɛnɛreshɔn.
Wetin na di sayn dɛm fɔ dis?
De sayn dɛm fɔ Gardner syndrome kin chenj as tɛm de go. Sɔm sayn dɛn kin apin we i smɔl.
| Tɛm we di sayn dɛn kin bigin | Di tin dɛn we pɔsin kin si |
|---|---|
| We i bin smɔl |
|
| We i bin yɔŋ | Bɔku bɔku kɔlon polyp dɛn de. Bɔt dɛn tin ya nɔ kin sho ɛni sayn fɔs. Bay di tɛm we di sayn dɛn de sho, di sik kin dɔn rili go bifo. |
Di impɔtant tin na dat bay di tɛm we di sayn dɛm fɔ kɔlon polyp de sho, di sik kin dɔn go fa fawe. So, if pɔrsin na yu famili gɛt dis sik, i rili impɔtant fɔ mek yu du tɛst kwik kwik wan.
Us ɔda tin dɛn we gɛt fɔ du wit di sik we dɛn kɔl Gardner syndrome?
Pɔrsin wae gɛt Gardner syndrome kin gɛt bɔrku risk fɔ gɛt dɛn kayn sik ya:
- Ekstra tit dɛn
- Osteomas (bon tumor) .
- Desmoid tumor - pan ɔl we dɛn tin ya nɔto kansa, dɛn kin gro kwik kwik wan ɛn pwɛl di tisu we de rawnd.
- Fεt tכmכro dεm (Lipomas) .
- Fibromas we dɛn kɔl fibromas
- Adenomas - tכmכro dεm we nכ de kεnsar we de fכm na di gland dεm.
- Sist dεm we de na di εpitel
- wan kכndyushכn we de afekt di rεtina na di yay (CHRPE - kכnεjital haypatrכfi fכ di rεtina pigmεnt εpitεlium) .
- Bɛlɛ kansa
- Kansa na di liva
- Kansa na di kɔlon
Wetin mek dis de apin? Wetin na di rizin?
Di rizin fɔ dis na bikɔs wan pan wi jin dɛn nɔ fayn. Fɔ tɔk di kɔrɛkt tin, wan jin de we dɛn kɔl di APC jin . Di men wok we i de du na fɔ kɔntrol di sɛl dɛn na wi bɔdi fɔ mek dɛn nɔ sheb ɛn bɔku kwik kwik wan. Jɔs lɛk di brek dɛn na motoka. jin dεm lεk dis dεn kכl dεm tumor suppressor genes , we min se dεn de mek tכmכro nכ fכm.
Pɔsin we gɛt Gardner syndrome gɛt wan bad bad APC jin. Dis min se di brek we de kɔntrol di we aw di sɛl dɛn de sheb nɔ de wok. dis kin mek di sεl dεm de sheb we dεn nכ kin kכntro εn bigin fכ mek tכmכro εn polip dεm.
Aw dɔktɔ kin no bɔt dis sik?
Bikɔs dis sik gɛt difrɛn sayn dɛn, dɔktɔ kin yuz bɔku tɛst fɔ no if i gɛt am.
- Jɛnɛtik tɛst: Dɛn kin du dis tɛst fɔ si if yu gɛt prɔblɛm na yu APC jin. Yu dɔktɔ kin tɛl yu fɔ du dis, mɔ if sɔmbɔdi na yu famili gɛt dis sik.
- Kamɛra tɛst: Dɛn tin ya na fɔ put smɔl kamɛra insay di bɔdi fɔ chɛk di insay pat pan di insay.
- Sigmoidoskopi we dɛn kin du
- Ɛndoskopi we dɛn kin du
- Kolonoskopi - dis na wetin de sho klia wan se di polip dεm na di kכlon.
Wetin na di tritmɛnt dɛm fɔ dis?
Di tritmɛnt dipen pan di sayn dɛm we yu gɛt.
Imajin se yu gɛt ɛkstra tit. Dat kin bi wan fɔs sayn fɔ dis sik. Dɔn yu fɔ mek dɛntist pul dɛn tit dɛn de ɛn fiks di ɔda tit dɛn. If yu gɛt desmoid tumor, yu kin gɛt tritmɛnt lɛk kemotɛrapi fɔ shrink dɛn.
Bɔt di men ɛn denja prɔblɛm wit dis sik na di polip dɛm we de fɔm na di kɔlon. Dɛn nid fɔ du ɔpreshɔn fɔ mek dɛn tin ya nɔ tɔn to kansa.
| Nem fɔ di ɔpreshɔn | Wetin dɛn de du |
|---|---|
| Kɔlektɔmi we dɛn kin du | Fɔ pul pat ɔ ɔl di kɔlon. dis כpεrayshכn dεn kin rεkomεnd if na lεk 20-30 polip dεm de. |
| Proktocolectomy we dɛn kin du | fכ pul mכst pan di kכlon εn rεktum. |
Mɛmba se dis ɔpreshɔn na di wangren we fɔ stɔp di polip fɔ mek i nɔ de na di kɔlon ɛn tɔn to kansa.
Yu tink se dɛn go ebul fɔ mɛn dis sik kpatakpata?
Bɔt i sɔri fɔ no se, dɛn nɔ kin ebul fɔ mɛn di sik we dɛn kɔl Gardner syndrome ɔltogɛda.
Bɔt, dɛn kin ebul fɔ kɔntrol dis fayn fayn wan. If dɛn tek di rayt tritmɛnt ɛn chɛk-ap ɔltɛm, dɛn kin no ɛn trit siriɔs tin dɛn lɛk kansa kwik kwik wan. So nid nɔ de fɔ panik.
I pɔsibul fɔ liv nɔmal layf wit dis sik?
Yɛs, yu kin ebul. Bɔt sɔm chenj dɛn kin apin to yu layf afta dɛn dɔn du yu ɔpreshɔn. Fɔ ɛgzampul, if dɛn pul yu kɔlon, dat go chenj di we aw yu de dayjɛst it ɛn pas stɔl. Yu kin nid bak fɔ gɛt wan sɛpret pasej ɛn wan ostomy bag we dɛn fit na di ɔdasay na yu bɛlɛ. Yu dɔktɔ go ɛksplen dis to yu ditayli.
Ɔpreshɔn fɔ mek kɔlon kansa nɔ kam bikɔs ɔf dis sik kin mek pɔsin liv lɔng. Wan stכdi sho se 100% pan di pipul dεm we bin gεt proktocolectomy bin stil de alayv afta 5 ia.
Aw yu de kia fɔ yusɛf?
Fɔ liv wit Gardner syndrome min fɔ liv wit di risk fɔ gɛt kansa we yu yɔŋ. I nɔ izi fɔ du. Fɔ dil wit da tin we nɔ shɔ kin tranga na yu maynd.
So, i impɔtant fɔ mek dɛn du tɛst fɔ no if pɔsin gɛt kansa di rayt tɛm. Dis min se if kansa kam, dɛn kin no am ɛn trit am kwik kwik wan.
If yu de fil strɛs fɔ dis, tɔk to yu dɔktɔ bɔt am. If nid de, go to pipul dɛn we go gi yu advays.
Ustɛm a fɔ go to di dɔktɔ?
If yu notis ɛni nyu chenj na yu bɔdi, fɔ ɛgzampul, nyu lump, ɔ chenj na yu bɔdi, mɔ if yu notis blɔd na yu stɔl , go to dɔktɔ wantɛm wantɛm.
Us kwɛstyɔn dɛn yu fɔ aks yu dɔktɔ?
We yu go to yu dɔktɔ, nɔ fɔgɛt fɔ aks dɛn kwɛstyɔn ya.
- Wetin na di tritmɛnt dɛm wae de naw fɔ mi sik dɛm?
- Yu tink se a go nid ɔpreshɔn?
- Us tɛst dɛn a fɔ du? Aw ɔltɛm a fɔ gɛt dɛn?
- Us chenj dɛn na mi bɔdi a fɔ pe atɛnshɔn mɔ to?
- Yu tink se i fayn fɔ mek di ɔda pipul dɛn na mi famili du dɛn jenɛtik tɛst?
Gardner syndrome nɔto sɔntin we yu fɔ fred, bɔt na wan sik we yu fɔ tek tɛm wit ɛn mɛn am fayn fayn wan. If yu gi yu di rayt advays ɛn tɛst yu, yu go ebul fɔ liv yu wɛlbɔdi ɛn lɔng layf.
Mɛsej we dɛn kin kɛr go na os
- Gardner syndrome na wan sik wae nɔr kin bɔrku pan jɛnɛtiks wae kin pas frɔm mama ɛn papa.
- di men risk ya na dat kכlכsכl כl di polip dεm we de fכm na di kכlon de tכn to kεnsar.
- di fכs sayn dεm fכ dis kin bi fכ εkstra tit dεm we de sho we i sכm pikin כ tכmכro dεm we nכ de fכ kansa we de divεlכp na di bכdi.
- Pan ɔl we dɛn nɔ kin ebul fɔ mɛn dis ɔltogɛda, dɛn kin ebul fɔ kɔntrol am fayn fayn wan if dɛn de chɛk am ɔltɛm na dɔktɔ ɛn ɔpreshɔn.
- If yu ɔ sɔmbɔdi na yu famili gɛt dɛn sik ya, i impɔtant fɔ go to dɔktɔ wantɛm wantɛm. Tɔk opin wan wit yu dɔktɔ bɔt yu bɔdi ɛn yu maynd wɛlbɔdi.
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