Yu gɛt wan sik we dɛn kɔl `(Porphyria)`? Ɔ pɔsin we yu sabi gɛt dis sik? Yu de sɔfa wit sɔm sayn dɛm lɛk wae yu bɛlɛ de at bad bad wan, yu de vɔmit, ɛn yu bɔdi wik? Dɔn yu dɔktɔ kin dɔn tɛl yu bɔt wan vaysin we dɛn kɔl `Givosiran`. Di nem kin tan lɛk se yu de mek yu fred smɔl fɔs, bɔt nɔ wɔri. Tide, wi go tɔk bɔt dis mɛrɛsin na simpul we we yu go ɔndastand.
Wetin rili na dis mɛrɛsin we dɛn kɔl Givosiran?
Fɔ tɔk am simpul wan, `Givosiran` na vaysin we dɛn kin gi fɔ trit wan sik we dɛn kɔl `(Porphyria)`. Insay dis sik, wan pɔyzin kemikal we dɛn kɔl `(Porphyrins)` kin gɛda na wi bɔdi. Jɔs lɛk we di dɔti bɔks na wi os ful-ɔp, we dɛn pɔyzin tin ya gɛda na di bɔdi, yu kin gɛt bad bad tin dɛn lɛk bad bad bɛlɛ pen, vɔmit, ɛn fɔ lɔs yu an ɛn fut dɛn. naw, wetin dis `Givosiran` vaksin de du na fכ ridyus di fכmeshכn fכ dεn tכxik `(Porphyrins)` dεm na di bכdi. Dat min se, i de wok lɛk fɔ kɔntrol di we aw dɔti de mek. We di kayn pɔyzin tin wae de kam dɔŋ, di sayn dɛm wae yu kin fil kin go dɔŋ bak pasmak.
Dis mɛrɛsin kin de ɔnda di brand nem `GIVLAARI`. Dɔn bak, sɔntɛnde dɔktɔ dɛn kin gi am fɔ ɔda sik dɛn. Nɔ wɔri bɔt am.
Tin dɛm we yu fɔ rili tɛl yu dɔktɔ bifo yu tek dis mɛrɛsin
Yu dɔktɔ go nid fɔ no yu kɔmplit wɛlbɔdi histri bifo yu bigin dis tritmɛnt. So, if yu gɛt ɛni wan pan dɛn tin ya, mek shɔ se yu tɛl yu dɔktɔ
ɛn nɔ ayd ɛnitin .
- Kidni sik : If yu gɛt ɛni kidni prɔblɛm.
- Liva sik : If yu gɛt ɛni liva sik.
- Alɛji : If yu gɛt ɛni alɛji (alɛji) nɔto jɔs fɔ dis mɛrɛsin, bɔt fɔ ɛni ɔda mɛrɛsin, it, ɔ day, duya tɛl wi bɔt am.
- Bɛlɛ : If yu gɛt bɛlɛ ɔ yu de op fɔ bɔn pikin.
- If yu na mama we de gi pikin in bɛlɛ: If yu de gi yu pikin in bɛlɛ.
Fɔ gi dis infɔmeshɔn kɔrɛkt wan rili impɔtant fɔ mek yu sef.
Aw yu kin yuz dis mɛrɛsin?
Dis nɔto mɛrɛsin we yu kin kɛr go na os. `Givosiran` na
injεkshכn we dεn kin gi כnda di skin .Na dɔktɔ ɔ nɔs we dɔn tren na ɔspitul ɔ klinik kin gi yu dis. So yu nɔ nid fɔ wɔri bɔt di doz ɔ aw fɔ tek am.
Yu tink se dɛn kin gi pikin dɛn dis mɛrɛsin?
Yɛs, sɔntɛnde dɛn kin gi pikin dɛn dis mɛrɛsin bak. Bɔt i nid spɛshal kia. If yu pikin nid dis tritmɛnt, tɔk to dɔktɔ we de mɛn pikin dɛn bɔt am ɛn no di ditel dɛn.
Wetin fɔ du if yu tek di mɛrɛsin pasmak?
Dɛn kin gi dis na ɔspitul, so di chans fɔ mek dis apin rili smɔl. Bɔt if yu tink se yu dɔn tek di mɛrɛsin pasmak, go to
di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital wantɛm wantɛm . Ɔ go
na di Imejɛnsi Tritmɛnt Yunit (ETU) na di ɔspitul we de nia yu.
Di tin we impɔtant pas ɔl na dat, na fɔ yu nɔmɔ dɛn gi dis mɛrɛsin. Nɔ ɛva sheb dis mɛrɛsin wit ɔda pɔsin.
Wetin a go du if a mis di de we dɛn gi mi di vaysin?
I rili impɔtant fɔ gɛt yu vaysin dɛn di rayt tɛm fɔ dis tritmɛnt. So nɔ mis yu klinik deti dɛn. If yu nɔ ebul fɔ atɛnd di de we yu dɔn sɛtul bikɔs ɔf imejensi, duya kɔl yu dɔktɔ ɔ klinik bifo tɛm ɛn mek dɛn no.
Ɔda tin dɛm wae kin miks wit dis mɛrɛsin
Sɔm mɛrɛsin kin mek prɔblɛm we dɛn tek am wit `Givosiran`. So, yu fɔ tɛl yu dɔktɔ
bɔt ɔl di mɛrɛsin dɛn we yu de tek. Dis kin inklud mɛrɛsin fɔ ɔda sik dɛn, vaytamɛn, tradishɔnal mɛrɛsin, ɛn ɔyl.
Na mɔtalman, nɔ tek `Givosiran` wit dɛn mɛrɛsin ya: Prɔblɛm kin apin bak wit dɛn tin ya:- Kafin - we dɛn kin fɛn insay ti ɛn kɔfi
- Dextromethorphan (we de insay sɔm kɔf srɔp dɛn) .
Dis list nɔ kɔmplit. So i bɛtɛ fɔ tɛl yu dɔktɔ bɔt ɔl di mɛrɛsin dɛn we yu de tek. Dɔn bak, tɛl dɛn if yu de smok, drink rɔm, ɔ yuz ɔda drɔgs.
Tin dɛn we yu fɔ tink bɔt we yu de du tritmɛnt
Yu dɔktɔ go wach yu gud gud wan we yu de tek dis vaysin. Dɛn kin ɔda bak fɔ mek dɛn du
blɔd tɛst fɔ si aw di mɛrɛsin de afɛkt yu bɔdi.
Wetin na di bad tin dɛn we kin apin to pɔsin?
Lɛk ɛni mɛrɛsin, `Givosiran` kin mek sɔm sayd ɛfɛkt. Bɔt, nɔto ɔlman kin gɛt dɛn. Sɔm kin siriɔs, ɛn ɔda wan dɛn kin kɔmɔn. I impɔtant fɔ no bɔt dɛn tin ya.
Side effects of Givosiran vaccine🚨 If yu get dis symptoms, tel yu dokta kwik🙂 Dɛn nɔ kin siriɔs, bɔt if dɛn kɔntinyu, yu fɔ tɛl
yu dɔktɔ. | Alɛji we pɔsin kin gɛt | Skin rash, it, swel na di fes, lip, tong ɔ trot. |
| Kidni injury | di urine we de kכmכt dכn, di ankכl, an, כ fut de swel. |
| Liva injuri | Pen na di ɔp rayt say na di bɛlɛ, yu nɔ kin want fɔ it, yu nɔ kin fil fayn, yu kin gɛt layt kɔlɔ, yu kin gɛt dak yɔlɔ ɔ brawn urine, yu yay ɔ yu skin kin yɔlɔ, yu kin taya we nɔ kɔmɔn. |
| Pankriaytis we gɛt sik | Siriɔs bɛlɛ pen we de fil lɛk se i de rayt to di bak, pen we kin wɔs afta yu it ɔ we yu tɔch di bɛlɛ, fiva, nɔs, ɛn vɔmit. |
| Taya | Fɔ fil se yu nɔ gɛt layf. |
| Vɔmit | Fɔ fil lɛk se yu de vɔmit. |
| Pen na di say we dɛn injɛkshɔn | Rɛd, sɔri, ɔ swel smɔl na di say we dɛn injekt am. |
If yu gɛt ɛni ɔda kayn sik we nɔ kɔmɔn we dɛn nɔ tɔk bɔt na dis list, tɛl yu dɔktɔ bɔt dɛn bak.
Mɛsej we dɛn kin kɛr go na os
- `Givosiran` min ` Pɔfyuria`Wan spɛshal vaysin we dɛn kin gi na ɔspitul ɔ klinik fɔ trit pɔsin we gɛt mɛrɛsin.
- Bifo yu bigin fɔ trit yu, mek shɔ se yu tɛl yu dɔktɔ bɔt ɛni ɔda sik we yu gɛt, di mɛrɛsin dɛn we yu de tek, alɛji, ɛn if yu gɛt bɛlɛ.
- If yu gɛt ɛni siriɔs sayd ɛfɛkt lɛk bad bad bɛlɛ pen , yu yay we de yɔlɔ, ɔ we yu nɔ de pis bɛtɛ , go to dɔktɔ wantɛm wantɛm ɛn nɔ de te.
- Nɔ mis di klinik apɔntinmɛnt dɛn we yu dɔn plan fɔ du. Dis na impɔtant tin fɔ mek di tritmɛnt go bifo.
- If yu gɛt ɛni kwɛstyɔn, wɔri, ɔr frayd bɔt dis mɛrɛsin, tɔk to yu dɔktɔ bɔt am opin wan.
Givosiran, GIVLAARI, Porphyria, Porphyria, vaksin, Givosiran injεkshכn sinhala, Porphyria tritmεnt sinhala, sayd ifekt dεm, liva, kidni, bεlε pen
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